Hi ladies
Hi...I posted awhile back in the new diagnosed section. I have IDC stage IIIc. I would love to hear from some of you that are in the stage i'm in. feeling a little scared about waht the future holds. I just finished my 3rd round of chemo this week.
Comments
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Hi Diana. Yes, its a scary stage to be in. I've found it helpful to meet the diagnosis head on and be as proative as possible. Exercise, eating right and participating in clinical trials has helped me keep both my sanity and a sense of hopefulness. You'll find lots of great support from the ladies on this board. Coming here helps deal with the myriad of emotions this diagnosis leaves us to contend with. Hugs and good wishes.
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Hi, Diana,
The woman who runs the medical supply store where I get my mastectomy bras is a Stage IIIC survivor, and she's seven years out and feeling great! Just keep trudging along...you'll get there, too.
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Hi Diana, I am stage 3a. I finished treatment a year ago. When I first stared treatment it seemed like it was going to take so long to finish, But it really did go fast. I also walked everyday and ate right. I wish I found this site when I started out. Everyone here is so nice and very helpful. I am doing well. My hair is coming back and I am starting to do the things that I enjoy again. Those grandbabies sure keep me busy. Good luck on your journey. I use to have family in Little Rock also. I loved going there. It was so pretty. SharonH
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hi, another stage 3 gal. i never dwelled on being stage 3 much, because there's nothing one can do about it. it's better than stage 4, to put it mildly, and at the risk of sounding blunt, there are plenty of stage 1 and 2 women who wind up stage 4. mypoint is: this disease is a sneaky bastard, but there are so many hopeful stories and amazing, amazing women who survive and thrive.
ignore the stats, ignore the numbers. make a health goal for yourself - e.g., i've decided i'm going to be throwing my now 5th grader's college graduation party. when I make that, i'll make another goal.
good luck to you, and congratulations on clearing 3 rounds of chemo! there's great support here - amazing ladies all around.
janyce
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Hi Diana,
Welcome, but sorry you have to be here. This place has helped me ENORMOUSLY over the last year and a half. They helped me keep my sanity and reigned me in when my imagination started taking over. No question is off limits either. You'll find lots of candor and wisdom here.
Keep us posted on how things are going!
(((Hugs)))
Sharon
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Hi Diana!
Welcome to the Stage III sistas!
I can relate to your request to hear from others with a stage IIIc dx. To begin with I was just told "locally advanced". Boy, did that sound nasty and I needed to find others!
I've been on the boards since Aug of 2009. Just finding out that I wasn't alone was a tremendous help. And as I've hit bumps or needed advice, these ladies have been so helpful. We are quite diversive so it's very likely, when you need help, that you'll find at least one lady who is spot on with the same problem and how she got through it.
My only issue now is finding the right hormonal treatment. Once I get that figured out my life will be back on track. I returned to work 13 months ago and this summer my garden looks much, much better than the last 2 summers!
Could you give me more information on where you are in chemo? I actually did weekly ACT so when you say that you've had your 3rd round I have no idea how many or how often.
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Hi Diana - there are lots of stage III ers around and even lots of IIIcers. I have just passed the two year mark since dx. You wil ifnd lots of help and support here. Just ask away!
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Sorry you've had to join us here Diana. I'm also IIIc, the 28th will be a year out for me and I've finished active tx. You're feelings are totally normal, we've all been there and I still get that way sometimes. I'm sorry to say those feelings might never go away but they do get fewer and far between till bc is not on your every thought. It is an process that takes time. Chemo is the worse part, so congrats on getting this far with tx. Rads will be much, much easier and for me my BMX (surgery) was easier than I anticiapated. I just had my ovaries & flallobian tubes removed 1 month ago and that was a breeze...each step gets easier and easier, for most of us. Stay strong and come here anytime you need us, we get it. Hugs and prayers going your way.
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Diane,
IIIb here, ILC...5 years this week from my last chemo, doing great. Hard as it is to believe now, you will soon have the yukky (treatment) stage in the rear view mirror, and over time you won't really even be able to remember what is so vivid to you now. This is a great place to spend time, vent, ask questions and just hang out with other been-there, done-thats. Thinking good thoughts, Leigh
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Sorry you had to join us here too
. My name is Beth and I'm 3 years out. Yes, you're gonna be scared, and THAT'S OK. It's your right to be considering the circumstances. If you don't mind me asking, did you find the lump on your own? I found mine that way scratching the right place at the right time so to speak, and at 38. I'll be 41 in a few weeks. I hadn't had a chance to get a baseline, and mine was stage 3a, IDC. But this bastard of a disease, especially the IDC type is the most common AND MOST CURABLE!!!!!!!!!! Those were the exact words the doctor (ob/gyn) said to me over the phone as I heard my horror.
Chemo I had heard was a bitch too, but miraculously I got through my regimen of AC/taxol fine. Soup could handle queasiness, and I WAS AT WORK DAY OF CHEMO!!! GO FIGURE!!! Rads were the bitch for me --skin broke down, peeled, faster than it healed. Get Aquaphor for rads if you're going through with them. It's a vaseline based ointment sold in drugstores over the counter. It cools your skin the same way an ointment would if you laid in the sun, cause basically when you get radiated, you're getting a sunburn. Good luck and God Bless. Keep us posted of progress
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Hi there, and welcome. I'm new to the board myself. I don't actually know what the difference is between IIIb and IIIc, but I'm IIIb with IBC and IDC. I sure know how it feels to be scared and to look for hope, though, as I'm sure we all do here. There are so many success stories out there, and I plan to be one of them. I'm a year out from diagnosis and happy to say that I am full of energy and am exercising 6 days/week now. My mind may always torment me with that bit of worry, but I'm going to do my best to be healthy and well, and live my life better than I ever have before. Good luck with your chemo, etc.
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Welcome Diana. It looks like we are almost dx twins. I'm 3c, and also found my lump five months after a clean mammo. You probably have dense breasts like me and were never told that mammos were not effective for you. There are whole other threads devoted to the topic. I can't look back but I do talk to many other women about the dangers of assuming mammos work for dense breasts.
My favorite thread on this board is the 5 years out checking in posted at the top of the page. You'll find many stage III women who are doing well and surviving this extremely scary dx. You'll have days where it will probably hit you like truck. The wonderful ladies on this board have helped me through a few meltdowns. Don't keep those dark thoughts inside. You'll feel so much better once you talk about it with women who truly understand.
Chemo is tough but doable. One of the benefits of being Stage III is there is no question about the amount of treatment you'll receive. You'll be hit hard. When it comes time for TAxol ask you onc how often you'll receive it, weekly vs biweekly. The weekly dose is gentler on the body and is just as effective.
You've come to the right place for support and information. Stage III is a very different place to be, and we all understand each other.
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also sorry you have joined our club - but this week 7 years ago was my lumpectomy ... still here still kicking !
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Hi Diana, Glad you found us. I am " out" 6 yrs from a stage IIIC, and all is blessedly well.
The initial days are scary, but with time it wil get better. Come here often for support and wonderful, accurate information. Try to stay positive and keep in mind they bring out the "big guns" for us stage IIIers and that is actually a good thing when dealing with this disease.
There are alot of us out there and soon you'll be on the other side too!
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Thanks so much ladies for your words of wisdom and positive input. It helps so much being able to talk and relate to someone that is in, or has been in my shoes. You're very much an inspiration to myself and others.
Hugs
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Hi Anacortesgirl,
Thanks so much for replying. So you've made it through chemo and are on hormone treatment now? I had my 3rd round of chemo last Thursday. My plan is 4 rounds of AC every 15 days with Neulasta after each one. Then twelve weekly cycles of Taxol. sometime around Oct. I am to have a Mastectomy followed by radiation. I'm still working at the moment but not sure how long I'll be able to do so.
Diana
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Hi Clariceak,
Wow...our stories are very similar. Yes it was very much a shock finding out you have cancer after a clean mammo 5 months earlier. I had noticed a hard swollen, discolored area on my right breast on Mother's Day. With the discoloration I was initially told it could be IBC. But after the biopsy they diagnosed me with IDC. My PETscan showed the cancer in my right breast, right axillary & sub pectoral lymph nodes. My doc also mentioned a suspicious spot on the back of my chest wall. I am going to be on weekly rounds of Taxol after this next round of AC. How are you doing with your treatment now? I try to stay positive most of the time but occasionally my mind does wander on what might could happen. Thanks so much for your reply and positives thoughts coming my way.
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Diana - you must doing well with your chemo if you are still working. Taxol will be so easy compared to AC. Be sure and ask your onc about Zometa. Many of us on the Stage III board are using it to hopefully prevent reoccurance(although the studies aren't conclusive yet) and you may need to be proactive with your onc to receive it.
It will be 2 years since dx next month and I just saw my onc and I'm doing well. You will get your health back too. I would caution you not to spend time with Dr. Google or ask about your prognosis unless you want to hear some scary statistics based on old data. When I realized I was Stage III prior to my first visit with my onc, I very clearly stated to her that I realized my situation was serious and I did not want to discuss my prognosis. I only wanted to talk about treatment. I had cancer in an internal mammary node plus loads of lymph nodes and vascular invasion. Not a good situation, but there are women on this board that are surviving worse dx than mine!
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Solange49: i 'm stage III too. I was dx 1-11-11. I'm 2 weeks into radiation, not bad. Got through the 4 A/C 4 Taxol pretty well. I feel good. I do get occassional hot flashes, but no period for 3 months. Thanks to all that post here. It really helps me when I start to freak out. I have a 5 o'clock shadow on my head. It's a start. My husband told me now I have more hair then him. Have a blessed day.
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Hi Diana!
Another Stage 3c!! I too had positve axillary and internal mammary nodes. I just had my 3 year anniversary in June and am doing GREAT. Feel free to PM me!!!
Jackie
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Hi Diana,
I'm coming in a bit late here!! Another IIIcer here!!!!
I remmeber feeling sooooo alone when first dx, everywhere I looked I would find bc sites, but no specific dx like mine. You are not alone, it's an uphill battle, and you are doing it !!! I am sorry you had to end up here, no one wants too. You will find the most courageous and wonderful sister's on this stage III thread. These girls have helped me through some really bad days!!
It's good to know your not alone in your dx. I am doing great!!! It will be 2 years in Nov. from my dx, so I am on my way.... and so are you!! Read the 5 year check in! It is so uplifting!
Peaple are surviving and thriving!!! You can do this, and there is life after cancer!!!!
God bless you through the journey you have found yourself on, you will be in my prayer's. Prayers for peace, when you have none, strenghth when you feel week, and that you will find joy
in the midst of this trial!!!!!
We are here!!
Love and hugsss to you!!!!!!!!!!!!!!!
Stephanie
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<chuckle>
I think Stephanie said a lot in her post! I enjoyed it!
Diana -
Thanks for the clarification. Like Clarice mentioned, I'm glad that you have been able to work up to this point! But if it's time to get away then do it! I started chemo Aug 21 (my B-day!) and finally quit work at Christmas. It became such a struggle and I finally realized I was working 2 jobs. But the cancer job was more important. Went back for a few weeks after chemo and before my double mast and then have been back since last June.
I probably should have stayed away longer but there was a tragedy at work that compelled me to be there for my coworkers. I started all this when I was 50 and it's been such a shock. Went from healthy, no meds to daily meds and various issues. Probably would have been better off if I had stayed away from work longer.
But I'm determined to thrive everyday!
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