CLL/SLL and Invasive Papillary Carcinoma

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hitenge
hitenge Member Posts: 6
edited June 2014 in IDC (Invasive Ductal Carcinoma)

My Father 74 was diagnosed with CLL/SLL in 2007. He underwent Chemo ending January 2009. He was in remission till May 2011 when his nodes were again growing. We started Chemo of Bendamustine + Rituximab. After first cycle, he was diagnosed with Invasive Papillay Carcinoma after Masctomy.

It is intermidiate grade II. Lymph node involvment is 0/4.

Any one here with such carcinaoma?

What should be the treatment after Masctomy?

We are awaiting other reports about Her2 etc.

Regards

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2011

    Not sure what CLL/SLL is...Regarding the Papillary Carcinoma, there are several of us with what are considered rare "favorable" breast cancers.  Papillary USUALLY falls into that category.  Once he has the surgery, the final pathology report will tell you more about the characteristics of the tumor and if it is favorable.  USUALLY, Papillary breast cancers are slow growing and DO NOT metastisize.  While you are waiting for the surgery, check out the NCCN 2011 breast cancer treatment guidelines. 

    Thoughts and prayers to you and your father.

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  • hitenge
    hitenge Member Posts: 6
    edited July 2011

    CLL is Chronic Lymphocytic Leukaemia. Since in my father's case it is more in Lymph Nodes, it is called Small Lymphocytic Lymphoma(SLL). This is again slow growing cancer.



    Thanks for info on Papillary Carcinoma.

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited July 2011

    I was diagnosed with Papillary Carcinoma back in 2008. The surgeon knew nothing about it in the breast, but it is common as a kidney cancer. It is normally considered to have a good prognosis as VR has said and is usually treated like IDC. I "only" got a double mast with no follow-up meds, chemo or rads. I did have micromets and ITCs (isolated tumour cells). Keep us posted on his treatment, it is very heartening to see how well everyone else is doing.

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  • hitenge
    hitenge Member Posts: 6
    edited July 2011

    We received Immuno Histo Chemistry Profile

    It  says

    ER: Strong Positive in 90% tumor cells

    PR: Strong Positive in 90% tumor cells

    Cerb B2: Negative.

    Any suggestions? We have a meeting with Surgeon on 7th July.

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited July 2011

    Nothing to add, I didn't even know my percentages, just that I was ER+/PR+ HER2-

    Let us know what he/she says!

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2011

    Your tumor has very good prognostics.  What I've learned about the rare "favorable" breast cancers is that they usually follow the same treatment protocols as they would for traditional IDC.  What my doctor explained to me is that once you have had a breast cancer, it increases your chances of another breast cancer...not by much, but still there is an increase.  So, when you discuss treatment, the question is not to OVER or UNDER treat this BC.  You need to also discuss the likelihood of future distant recurrence as well ask what is your risk of a new breast cancer.  Good luck.  You're going to be dizzy by the time they finish with the statistics...And remember with a rare "favorable" breast cancer, the data is not as strong as when you are being treated for a traditional bc.

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  • hitenge
    hitenge Member Posts: 6
    edited July 2011

    Our Doctor prescribed Nolvadex (Tamoxifen) 10 mg, 2 tablets a day for 2 years. I believe this is the standard treatment after Masctomy.

    His Hemoglobin went down from 11.8 to 7.6 due to blood clot where he was operated. We had to transfuse 4 units of bloodto recover this loss and also due to the fact that he already is a patient of Chronic Lymphocytic Leukemia (CLL).

    The Doctors had to remove the clot and now he is OK. We are awaiting healing of the wound to restart his  chemotherapy of CLL.

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2011

    Not sure why doctor is doubling the 10mg.. When tamoxifen comes in 20mg tablets... Not sure with men but with women, hormonal therapy is usually for 5 years. Hope he gets well soon. Sounds like he had a rough go of it. Thoughts and prayers.

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  • hitenge
    hitenge Member Posts: 6
    edited July 2011

    The Doctor said Nolvadex would be required for 5 years but he will review after 2 years. He said either one tablet of 20mg or 2 tablets of 10mg either together or one each in the morning and evening. Not sure why he did not prescribed 20 mg staright away.

    My father is one of  very few double cancer (CLL+Breast Cancer ) patient and so far is coping well. Inspite of last few rough days, he is very positive and does not believe in giving it up.

    Thanks for all the good wishes.

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  • hitenge
    hitenge Member Posts: 6
    edited July 2011

    Can you inform me about side effects of Nolvadex/Tamoxifen? Are these side effects serious?

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