Stage 4 sisters need your help

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nancyh
nancyh Member Posts: 2,644
edited June 2014 in Stage I Breast Cancer

Hey Gals,

I'm writing to draw attention to the recent decision by the FDA to pull their approval of the drug, Avastin, for use in metastatic breast cancer.  We in the metastatic community don't have enough numbers to be heard and we really need your help.  Someday, if you have a recurrence, this drug may not be available in the US.  Interestingly, Europe's equivalent to the FDA has looked at the same data on Avastin and has not only upheld its decision to approve Avastin, it has expanded the usage (in combination with other chemotherapies).

Please consider contacting your congressional representatives and urge them to keep Avastin available for breast cancer patients. 

Thank you so much and please PM me if you have any questions.  There is a lot more to the Avastin story than the headlines would imply.  Some patients are getting great benefit, especially the triple negative gals, who have run out of other options and Avastin is all they have left.

Comments

  • j414
    j414 Member Posts: 321
    edited June 2011

    Great idea! 

    Here is the contact info for our Congressional reps.  Enter your state and zip code to find your elected officials, then you can send your comments via email or use the web form.

    House of Representatives

    https://writerep.house.gov/writerep/welcome.shtml

    United States Sentate

     http://www.senate.gov/general/contact_information/senators_cfm.cfm?State=IL

  • nancyh
    nancyh Member Posts: 2,644
    edited July 2011

    Thank you so much and again, those of us in the stage 4 world really do need the help from all our breast cancer sisters.  PLEASE write your senators and reps, it only takes a minute or two and your comments don't have to be perfect.  Just urge them to keep Avastin available in the US (as it is in over 50 countries around the world).  Many of us living with stage 4 disease are gaining valuable quality of life thanks to this treatment.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

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  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2011

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