help with vit D levels
Comments
-
Victoria, I was told my D levels were about 100 after taking supps and I needed to keep taking the supps. That seemed strange as that should be a high reading according to these threads. Now I find there are two different measurements used, ng/ml and nmol/L.
So I have to wait till January to find out if the reading is a high 100ng/ml or low to moderate 100nmol/L. I don't even know what the initials are short for.
30 ng/ml = 75 nmol/L
Does anyone from Australia have the answer to this?
-
I'm answering my own question here. From a page by the Medical Journal of Australia:
Mild vitamin D deficiency: Defined as serum 25-OHD levels in the range 25-50 nmol/L, mild deficiency leads to increased parathyroid hormone secretion and high bone turnover.
So assuming my measurement was in nmol/L, it's still not bad.
http://www.mja.com.au/public/issues/182_06_210305/dia10848_fm.html
-
When I asked my onc about my Vit D being 40 at my last visit, he seemed not very concerned...I like him otherwise, and don't want to switch just for this, but would like to add someone else to the "treatment team" who is up on the cutting edge research b/w zinc, Vit D, diet, etc. and breast cancer. Like my PCP, but he defers to the onc on anything cancer related, so back to square 1.
Not sure whether I should try a naturopath, nutritionist, endocrinologist, DO??? Could those of you who feel like you've gotten good advice about Vit D issues let me know what kind of health care provider has been helping you?
Thanks!
-
Way back..when I asked my ex-onco if I could have a Vit D3 test I was told "we only do blood tests that relate to cancer." Sheesh!
-
My med onc is also clueless about Vit D3 and BC but will order the test anytime I request it. What's it to him since bloodwork is being done routinely anyway. If my insurance doesn't care, why should he, it's just another note on his written orders. Luna5 - agree with your Sheesh!
-
patoo
It was my Endocrinologist that checked my Vit D levels (I came in at 16) and then he put me on 5000iu a day (now 4 mo's later its 68). Anyway, maybe that's a good place to start. My med onc has no problem adding it to any lab work I have done.
-
My experience has been that the doctors are either ignorant or not willing to believe in the power of 5000 IU of Vit D3 taken daily. THey would rather you get 50000 IU of Vit D2 once a week (although there is a lot of research that shows that D2 does not help!). Insist on a blood test for Vit D levels every 6-12 months or every annual checkup. It is a simple and inexpensive test.
-
unklezwife- Only after requesting the D3 test did my Onc test me. I think even she was alarmed that my level was only 16. I took one course of the 50,000 iu D2 weekly plus my own D3 for a few months. When tested, my levels inched up to 24. I just completed another 50,000 per week course of D2. I am spending a LOT of time in the sun this summer (even braving a bit of sunburn) in the attempt to get these levels UP. I would be very interested if you have any links to studies showing that the D2 is not effective. My Onc is actually very receptive to my research. I'm starting to feel she should pay me instead of the other way around!
-
Everyone over 40 seems to be getting tested for Vit D levels. All the docs(PCP) in this part of Calif seem to be on board. It pertains to osteoporosis also. If your MO won't order it for you, try telling your PCP that you are afraid of getting osteoporosis & want to take preventative measures. Afterall,you have enough to deal with already. I was tested premenopausal & pre breast cancer. It's done routinely here.
-
D-Mom, my docs won't rebate me for my research either!
-
It took me almost 2 years to get my D3 from 22 to 68 using 20,000 IU per day. The first time I dropped my dosage to 15,000 IU my D3 dropped to 58 so upped again to 20,000 IU per day....the got it into the 70s....now finally with time in the sun and the 20,000 IU, got it too high at 114 so have cut back. Have a "double check" with a dif doc coming in this week....if is still high -- I will finally be able to go on a more normal dosage for a while and see if I can maintain at a normal level.
DesignerMom...all I know is my husband's doc kept putting him on the weekly D2 to no affect... his D2 is still low and he won't listen to me about taking over the counter D3.
-
I was on D2 for a year and my level raised from 22 to 32ng/ml. I have been on 4000 IU of over the counter D3 each day and now my level is 54ng/ml. I don't know why doctors keep prescribing D2 when D3 is more effective.
-
Doctors prescribe D2 because it's a prescription. D3 is over the counter. The prescription is also a "cya" for the doctor.
-
Thanks for the feedback on D2 prescription versus D3 over the counter as far as raising levels. I think I will just stick with the D3 now that I finished my second D2 Rx. Hopefully combined with the abundance of sunshine I am getting, my levels will be up by the time I retest in September.
-
D2 is from plant sources. D3 is from animal sources. D3 is more "bioavailable" for your body to make use of it.
The docs provide that mega-prescription of D2, but it seems to only help a random few. I'm not discounting D2 entirely, as some are helped by it but most have noticed very little change with D2. What good is a whole boatload of D2 if your body can only make use of a small portion of that?
With D3 so cheap and available (meaning to purchase, as well as bioavailable) that is my choice.
-
That is also my choice as so many have come here after a few rounds of D2 with little change. Seems many also only did 2 or 3 rounds of the mega-dose D2 before their docs decided they would probably do better on D3. I guess for vegans however D2 would be the way to go - nice that they would at least have that alternative.
-
the second opinion I got from another oncologist, is currently testing my D3 level. My PCP said that 31 was great. The oncologist wants it higher then 60, I will find out in 4 weeks what his plan is.
The first oncologist did not get into supplements, The first time I went she had a treatment plan ready for that day, take tamoxifen and screenings.
The new onco, is going to come up with a plan over the next 4 weeks.
-
Dr's will tell you vitamin level of 40 or above is fine. But, the Block Center and my local nutritionist told me 80 to 100 for full protection. When I was diagnosed my level was 30. It's still only 52 after taking 50,000 IU's 3 times a week for a month. I take 10,000 IU's daily.
-
Can someone please advice which brand is better for Vit D?. I alternate between Kirkland brand(which has soy bean oil) and Naturemade. Thanks.
-
I take the BioTech D3Plus. I won't provide a link, you can google it. It is the D3 endorsed by the Vitamin D Council.
Each capsule provides not only D3 but also Vitamin A, K2, magnesium and zinc in the appropriate levels to the D3. For ultimate absorption.
I have been taking between 5,000 and 10,000 IU's/day. My last level was 81. When I know I will be in the sun, this summer, I cut down, somewhat.
The sun is the best source of D3. But there is just not that much sun, in Seattle WA so I rely on my Biotech D3.
-
Leia: the drug company you mentioned sponsors the Vitamin D Council, so it's not surprising that they (Vitamin D Council) would endorse their products. I admit don't know anything about the product and whether it's better or worse than what you would find in your local drugstore.
-
Ladies -
This thread has been so successful that we now have an entire board devoted to Bones and associated issues in the Day to Day Matters section of the board.
While I still love lots of the info here, it might be helpful to the community to use that board, so we can find info in one place.
Sue
-
Yeah, MaryNY you don't know. Whether the Vitamin D Council product is better. And neither do I.
I also have Vitmain D3 from NOW Vitamins. That cost $7 for a 3 month, 5000/day regimen. The Vitamin Council product is way more expensive.
Although, expensive compared to what. The "BioTech D3Plus" costs me, personally, I think $250/year. If I get Stage 4 breast cancer, The Avasitin will cost our society $90,000. For this last gasp effort, at my life. Put on all of you. You, the taxpayers, will have to pay for me. $90,000. So, I can live, miserably for three more months. And then die.
This is not rational. This is idiocy. This has to end.
Vitamin D IS the cure.
-
I posted this over on the bones forum, but thought some of you might be more apt to find it here.
Vitamin D Supplementation Prevents Breast Cancer Therapy-Related Bone Loss Elsevier Global Medical News. 2011 Jul 5, R HyerCHICAGO (EGMN) - The bone loss associated with aromatase inhibitors was significantly slowed with increasing supplements of vitamin D in a prospective cohort study of 156 postmenopausal women."The bone loss was less, the higher your vitamin D level was maintained," said session chair Dr. Thomas J. Smith of Massey Cancer Center of Virginia Commonwealth University. "This is one of the first intervention studies," he said. "And the results are pretty striking."Dr. Sonia Servitja of Hospital del Mar in Barcelona, and colleagues, assessed the association between 25-hydroxy-vitamin D (25(OH)D) concentrations and bone loss at baseline, after 3 months of supplementation, and after 1 year, in patients receiving aromatase inhibitor therapy for early-stage breast cancer.The 156 women in the prospective cohort had hormone-positive breast cancer and had initiated aromatase inhibitors from January 2006 to June 2009.All patients received daily oral calcium (1 g) and vitamin D3 (800 IU). Patients with a baseline level of 25(OH)D less than 30 ng/mL received additional oral vitamin D3. The women were a mean age of 62 years with a mean age of menopause onset of 50 years.The magnitude of the bone-loss prevention correlated with incremental increases in 25(OH)D concentrations.Each 10-ng/mL increase in 25(OH)D concentration at 3 months appeared to be associated with a 0.55% decrease in bone loss, which was almost a third of the average bone loss experienced by these patients, according to the study findings, presented as a poster at the annual meeting of the American Society of Clinical Oncology.The findings suggest that vitamin D supplementation at doses higher than the standard of 400 to 800 IU/day might be useful to minimize bone loss in women starting out on aromatase inhibitors and who are not eligible for bisphosphonate therapy according to current guidelines.Patients who achieved 25(OH)D concentrations greater than or equal to 40 ng/mL at 3 months experienced significantly reduced bone loss. In addition, 25(OH)D increases at 3 months were protective for relative bone loss (adjusted beta for each quintile 1.01%, P value less than .001).Dr. Servitja disclosed no relevant relationships. Dr. Smith disclosed research funding from the American Cancer Society and the National Cancer Institute. -
Why is everyone so enthralled with "Medical Industrial Complex" "studies?" And just ignoring common sense?
Common Sense. Like, eating whole and natural foods is better than processed "fake" foods. Yet, everyone eats the "fake" foods. And, getting out into the natural sun will give you "cancer." When human beings have been out in the natural sun for thousands of years, and no one got cancer.
We have only gotten cancer from the sun in the past 60 years; after we all started eating all of his processed "food."
I don't eat "processed" food. I eat whole foods. And the sun is my friend. The source of Vitamin D. The two work in synergy.
The source of all natural foods is the sun. The source of our health is the sun. We need to all get back to this basic concept.
And reject this current notion that we just need more "drugs" and other nonsense.
We have more cancer, now, than when the "War on Cancer" started, 50 years, ago. And why is that?
Well, it is because people don't eat real food, anymore. And they don't get out in the sun, anymore. The true source of life.
-
Leia~
I am curious, when you do go in the sun do you wear sunscreen?
I have been doing 10 minutes without and then go and put some on. I did have skin cancer a couple years ago...
-
Leia, are you saying there was no cancer, say, 70 years ago? Is it possible since less was known then, that cancer was around but called something else? Actually, there are many on this board who did have family history of BC in their moms, grandmoms, aunts, so I'm sure that must go back at least into the 1930's. What about the millions of people who eat processed food who don't get cancer - just lucky? Please, I'm not being mean to you or anything but it's just not that simple. There are many who also did not eat processed foods for many years pre-BC but they are still here. Just wondering; please don't take offense. I do agree that it probably has lots to do with the foods we eat but I also believe it has to do with the air we breathe, the stresses we endure, etc. HUGS.
-
Leia -- there's a book you might like to read called "Cancer: The Emperor of all Maladies". Others here have talked about it. Cancer isn't new. There's more of it, true, but there are also far more people, and better ways of detecting it. There are also more culprits around that encourage cancers to develop, but there is really nothing much that's new about cancer.
My mother was the first in her family from as far back as we could delve into the family tree to develop cancer. She was dx'd with BC at age 57, even though she gave birth to and nursed 5 children, did not eat processed foods (other than the food she "processed" herself), disliked most dairy products, didn't drink or smoke, never had sunburn that I can recall, grew her own veggies, ate very little meat, never took BC pills or HRT, was not overweight. However, she WAS a worrier and dealt with a fair amount of stress in her life. So....what caused her BC? She died in 1970, 4 years after her dx.
We all do make generalizations about many subjects, but I thought yours begged to be challenged. No offense meant, and non taken, I hope!
-
Ang7, I have never used sunscreen. My usual sun exposure is only in the summer, I walk one hour/day. And so I get the sun exposure for that hour but only, when it is sunny, in Seattle, WA. Which actually is not often.
I do try to get as much Sun Vitamin D as I can, but since there isn't much sun I rely on supplements.
What kind of skin cancer did you have?
-
patoo, 70 years ago, half of the people in the USA, smoked. I am a smoker. Some people on this board have mocked me for that. Quite right, actually. The poster promoting the FOCC and the D3. What a hypocrite. Smoking is a known carcinogen.
Yet, only 10% of smokers, get lung cancer. It is not Smoking=Lung Cancer, It is just not.
Smoking is just one of the very many known carcinogens. What was the latest ... cell phones?
Like you said, patoo, "What about the millions of people who eat processed food who don't get cancer - just lucky?"
Yeah. Just like the millions of people that smoke that don't get lung cancer.
I think it's stress.
My parents both smoked. My mother was a Type A stress person, died of lung cancer at 62. My father, Type E drowned in a motel pool in FL at the age of 78. The cause of death, never determined.
With the D3 and the FOCC my stress level is 10. Out of 100. And I believe that that lifestyle, is counteracting the smoking carcinogen.
The problem with medicine, today, is they only focus on one thing; the disease, immediately at hand. NEVER the entire patient. So, every symptom is "treated." And so we have people taking 15 drugs.
Nonsense. Im going to treat myself. If I'm wrong, I'm the one that loses.
I'll take that risk.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team