Is there a July 2011 group?
Comments
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Thanks ewa, snoopy and jenni!! I feel so much better already.
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Hello I too will start chemo in July. I was diagnosed on 5/13 with lumpectomy on 6/16. Met with the oncologist this morning and I will be doing AC Adriamycin/Cytooxan 4 times every 2 weeks. I will have 3 week break (yay) and then start Taxotere w/Herceptin 4 times every 3 weeks. Then just Herceptin for 1 year. Port is to be put in 7/7 and supposed to start 7/8. I thought that would be too soon after, but BS says its ok. Guess I will hear from the oncologist if its not. My husband and son leave for Scout Camp on July 17 and are gone for the whole week, I am so afraid that my hair will start falling out while they are gone, but at the same time I don't want to ask them/hubby to stay home as this is a good bonding time for them.
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Wow, two days. I'm starting to stress a bit. Not so much about the procedure as how I will react. Will I be tired, sick, energetic, ready to take over the world? Dad is going with, so I'll have emotional support. Doing all my laundry now so I won't have to worry about it for a while.
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Hey July gals...I am from the March Chemo group. I just wanted to wish you all well....I know how scary it is. I did TCx4 and it was not that bad for me. It was not fun but I got through it better than I anticipated. I also used cold caps and have a full head of hair. Feel free to PM about caps or about y experience with TC. Good luck! Hugs!
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Hi ladies. I actually start T/C tomorrow. I am nervous but hope I have as much info as I can. I feel a bit overloaded at times. I check in and let everyone know how it went. I am so glad to have this site to come to. It helps ALOT! BTW, talking about losing hair...I heard it was around day 13. Day 13 on my treatment cycle will also be my 13th wedding anniversary so we are planning on shaving my head that day! If it is going to happen, might as well, have fun with it.
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Hi! I too will be starting Chemo in July. I believe it will be around July 11th when I return from vacation. I am currently undergoing IVF to have embryos frozen. I am glad to know there is somewhere like this to get through this with people who are going through the same thing. I am triple negative stage 2 grade 3.I will be taking Abraxane and Cytoplatin. My treatment plan is chemo-surgery-radiation. I have already began to see bills coming in and have been attempting to find resources to help head off the bulk of these bills before they really get brutal. If anyone knows of any great places to go for help for people with health insurance please let me know.
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Hi ladies!
I would like to join in, if you'll have me. I'm going in for my chemo-education this Friday and barring any unforseen circumstances, I'll be starting on July 7th with four rounds of TC. I want to get the first couple of weeks under my belt in hopes that I'll feel well enough to travel to SC later in the month. My nephew-in-law is coming home from Afghanistan and I promised my niece last year that I'd be there for the celebration.
I'm feeling pretty good about the prognosis; I just want to get started so that I can put this particular chapter behind me.
Snoopy73, I see your birthday is the 3rd. Mine is the 5th. Yay for July babies!
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Hi all I will be going for July chemo too. Just had my lumpectomy and as the C is aggressive, surgeon wants me to start on Chemo asap. Also took out my gall bladder too as the stones were giving me problems. This is my 2nd chemo. Did that 5 years back for right breast. I am 43 years old and have 2 gals 10 & 8 years of age.
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Welcome, welcome welcome!!!
Bless, how old are you? if u don't mind my asking?? I Only ask b/c I'm only 35 and noticed you are freezing embryos. Hugs to you!!!! Also, there's a forum on here that has some financial advice in there, regarding insurance and such. What my husband and I have been doing is gathering a few weeks worth of mail and than we call our insurance if need be with all issues at one time.
Valbee, I read somewhere that quite a few ladies have traveled and vacationed during chemo treatments without SE really getting to them. I wish I remember where on the forum but if you don't see anything than post on one of the earlier months for info, everyone is so wonderful across the board here!!! I'm so glad to have found this place!!!
Frances, you can probably answer some of all of our questions having done this once before. So sorry you are facing all of it again!!!!
Anyways, wish none of us were here under these circumstances but also glad we can all help each other through it.....welcome!!! -
Ladies - keep your mouth real clean. Brush after every meal. rinse with mouthwash. Visit your dentist before chemo. In my last chemo, what started out as a simple gum infection quickly turned into a nightmare for me. As usual, I thought nothing of the infection, took antibiotics thinking it will go away. However, my condition worsened and in 2 days my mouth was totally covered with ulcers and the gums were all inflammed. Not a single spot was spared, pus was oozing and the tonsil and throat were inflammed too. By the time I rang my oncologist, I could hardly speak and was told to go A&E straightaway It was only when tests were done at the hospital did I realise how serious my condition was. My white blood count was so low that it was listed as critical. My immune system could have shut down totally. My mouth felt as if it was wired shut with millions of red ants thrown inside eating my flesh away....
Otherwise chemo is really ok. just discomfort in the first few days but onco can prescribe medicines to reduce side effects.
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Hi. I'm 28 years old and I will be starting round two of Chemo on July 12. I was diagnosed April 1st, have had AC, a double mastectomy and will be starting Taxotere, then radiation. Anyone familiar with it? What does TC mean? What does triple negetive mean? I think my oncologist said something about it, but now I can't remember. Anwyays, my doctor was very torn between stage 2 or 3. There were no nodes involved, but it was growing more rapidly than either of my doctors had seen before. I think because of that, my age, and my genetic testing being positive they are being really aggressive with my treatments. Glad to jump on this forum, because I'm scared of starting taxotere. I hear it is worse than AC and I hated AC so much.
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Jamie 30- I shaved my head too during my first batch of chemo! It started falling out after the second dose of chemo and my husband just shaved it all off for me. You can tell from my picture that I don't bother with a wig or scarf.
They look great, but the wigs are too hot and I can't tie a scarf to save my life!
Where about in North Carolina if you don't mind me asking? I'm in High Point, outside of Greensboro.
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Valbee - not only are we July babies but I am also starting chemo on july 7th, so we have something else in common:-) I will have 6 rounds of TC, my MO said that because of my age (I will be 38 yrs on sunday) and the fact that i ahve small kids, she wants to make sure we "insure" my body:-) altho she does not want to "overtreat" me, still not sure why i ahve to do 6 rounds instead of 4, but she said that after my 4th round she will review and maybe stop there. Hopefully that will be the case:-) but dont mind either way. I jsut feel soooo anxious and nervous and scared of Chemo, i guess its scared of the "unknown" I am pryaing that I will have no or minmal SE so that I can spend time with my kids:-( I will also be using the Penguin Cold Caps to keep my hair.
Good Luck to all you July ladies; I will keep you in my prayers; We will be OKAY:-)
((HUGS))) to you all.
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To all ladies starting chemo in July: Lord watch over all of us and let our journey be a smooth one with minimum discomforts but maximum results. We will be OK, dear Lord.
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Frances, thanks for the reminder that I needed to schedule a dental appointment. I did that and will be going in for a cleaning/exam tomorrow morning.
Snoopy, I'll be 45 on Tuesday. Cracks me up when all of my docs keep talking about me being young. I'll take it!
My kids are grown and out of the house, but I'm working full time and there are so many changes taking place at work, I'm hoping for minimal SE as well, just to be able to keep up. I'm also in grad school, but on the recommendation of my MO and advisor, I'm taking the next semester off.
I don't plan to try to prevent the hair loss; as long as it's temporary, I can handle that. I've heard that it can grow in curly. Wonder if it ever comes back less gray?
Extending my good luck wishes to all of us as well. We can do this!!
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Hi I thnk am starting my chemo in july..I have my app this Thursday with my oncologyst so im pretty sure that i will start soon.Im very nervous but very positive too..im 38 years old and have 2 kids 12 and 9..im too young to die so i will fight with all my heart and body
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Paulamati,
Sorry you have to make this journey too but WELCOME !!! We're all going to get through this together, one day at a time!!!! I'm only 35 and fully intend to kick some serious cancer ass!!! -
Calevorse- I am about 30 minutes out from Raleigh. I drive there for my treatments because they are so amazing. I had my first Taxotere/cytovan today. I am doing good. They actually managed to draw blood and start an iv today and it only took one stick for each which is a miracle for me. I have already noticed that I have a weird feeling in my mouth and food taste bad. Hope this doesnt last too long. I took a big bite of my favorite, stewed squash, and almost cried because it tasted so bad. I cant lose my favorite food. I am hoping for very few to none SEs but I am ready if they do come. I am thinking about going ahead and shaving my head early. I can deal fine with no hair but I do not want to get into the car and drive to my sisters salon (in her house) with bald patches. I atleast want it to match. My hubby is scared of hurting me so we are going to her house together. He is very protective over me and and just a wonderful man all around!
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Jamie - glad to hear you are doing good from first chemo. Effects if any will all go away by 4th day and you will be be fine again.
Paulamati - sorry that you have to begin journey with us. You are not alone and we will all be here to support each other. I am seeing my onco on Friday and am sure he will order chemo asap for me.
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Making some play lists for my time in the chair tomorrow. Lady Gagan and The Decembrists and some French Accordian music. yeah, weird, I know.
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Jamie, I have (had) fairly long hair, past my shoulders. I saw my stylist today and had her cut it into a chin-length bob. I need to do these things in stages. This whole experience has been a series of dipping my toe into the water to get used to it, from the biopsy, to my lumpectomy, to learning that my nodes were positive, to accepting that I would have to have chemo.
So, I did the same with my hair today. I'm in control of at least that. Eventually, I'll have my cousin shave it, but for now I'm getting accustomed to the idea of not having long hair.
As for your favorite food.. I read on the Tips for Getting Through Chemotherapy thread about using plastic utensils to help combat any metallic taste. Maybe that will help a bit? Or try to hold off on your favorite for a few days?
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Jamie, glad to hear it all went pretty smooth for your first day!!! I'm not looking forward to that metallic taste if it's almost instant on day one, BOO!! I hope it goes away quick for you!
Good luck tomorrow Shiny!!! Is it your first one?
Valbee, my hair is also pretty long, almost halfway down my back and super thick. I'm going in the next week or so and cutting it to at least shoulder length too. I need to work my way to baldness also, it's going to be one of the hardest parts for me. I'll get over it but it's going to be hard.
are you going to wear a wig you think??? I think I will, I need to start researching ASAP!!! -
Hey Madismommy719, I am 30. I would love to know of these financial resources. We are faxing papers to sharing hope foundation tomorrow. I think thats what it is called. The doctor gave me the info. They are through fertilehope.com. They will pay for half but it would be great and wonderful to know of someone that can help with the other half. Thanks sooooooo much in advance
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Yup, first day in the chair. Mom will shave my head in two weeks. Got my lint roller and maalox at the grocery this evening. Among other necessities. I'm 41 (42 on the 17th). I'll be doing AC for two months and then Herceptin and something else and then rads. Oh goody.
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all the best Shiny... focus on the positives... lady gaga?
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Valbee, I understand that. My hair was to the bottom of my back and I had it cut short not to long ago. It was a BIG step for me. Its kinda funny that things started happening for me a few weeks before I was diagnosed. I kinda got these weird feelings about things and one of them was I felt I needed to cut my hair. My hubby says he thinks it was getting me ready so I wouldnt have such a hard time when everything started happening a fw weeks later. Signs maybe...idk. So now I feel really outta control about things but my hair is one of the things I can control. We are thinking of moving it up to July 4th. A day for freedom. I worry alot about when my hair is going to start falling out, how bad is it going to be, am I going to have my now hair and huge bald spots, am I going to clog all the drains, and wake up with hair all over my pillow. So I think I am going to buzz it and get the lint roller so I can be in control more. I think going ahead and doing it will help me to deal better with less anxiety about it. My hubby and my kids are going with me to my sisters. We are going to let my kids so some and she is going to make it look better after they do. She is planning on doing her head to support me. My neice sent me a pic last night, she did shave hers already. I have told them that I am fine with it but they are not allowed to complain to me about being bald since they had a choice and I do not. But I know they are doing it because they love me. So heres to having freedom on July 4th.
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Jamie, the thought that your sister shaved her head in support just gave me tears.... That is one of the sweetest things!!! My husband offered to shave his with me, and I appreciate that BUT he shaves his head bald every summer, so it's not that drastic.
Did your MO give you any indication when it will fall out? I was told somewhere around the 2nd session for me, around day 20-25.....
Does anyone watch The Voice? We watched last night for the first time, is Beverly (I think thats her name?) battling cancer? Or is that just her look? Either way, I sure hope I have that strength to put my baldness out there like that!!! -
I have posted a video of my niece on my facebook and she commented about Beverly. I think that is her look. I know she rocks her baldness everytime she goes out. BTW, anyone can friend me there. Just put in that you are from BCO so I will accept it. You can see the video there. My neices boyfriend keeps joking that he shaved his for me but then again he always shaves his so it is a running joke now.
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When I first shaved mine I only cut it down to a 1 so I still had some hair left. I wish I had gone ahead and shaved it all the way down, because I definately had patches and I couldn't immediately shave it because I was experiencing so much skin pain from the neulasta shot. Now that it is all gone I feel much more comfortable. I have a month between chemo for double mastectomy, but I've been keeping up wih my shaved head, because I know it is all about to fall out again.
Jamie30-That is so sweet that people are shaving their heads for you! I have heard wonderful things about the docors in Raleigh. I start Taxotere in two weeks. I heard it has it's very own set of side effects so I started a discussion board for it. Feel free to hop on and compare notes. I hope you continue to have minimal side effects! Good Luck to you!!!!
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Day one in the chair is over. Feel a tired, but that's probably due to not enough sleep last night. Yeah, I was a bit nervous. My infusion nurse was incredibly smart and learned. Cute as a button too, being all of 4'10". Talked to a dietician. Crazy lady thinks she can make me quit coffee. Bwahahahahahaha,no. I quit smoking and that's the only vice left. Nap time now.
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