Survivors who have used only alternative treatments

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited June 2011

    Lynn ... Off topic, but I've been meaning to tell you I love your avatar.  I have that exact same color of morning glories tattooed on my lower back.  I have five different kinds growing in my flower garden.

    Bren

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  • Lynn18
    Lynn18 Member Posts: 416
    edited June 2011

    BinVA:  Thanks!  Your tatoo must be very pretty-I love that shade of blue.  I like your avatar too-I have a lot of roadrunners around my house and they really do look just like that when they run.

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  • leggo
    leggo Member Posts: 3,293
    edited June 2011

    I wouldn't normally jump in on this thread but my family dr. happens to be an expert on L-Carnitine. He headed the last convention on the subject. It only proves useful if using it during chemo. It does little once chemo is finsished. It has a very small window for effectiveness.

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited June 2011

    Lynn ... thanks!  You must be in the southwest somewhere.  We don't have roadrunners back east, but I used to see them when I lived in southern Utah and Nevada.

    hugs,

    Bren

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited June 2011

    Ladies..............my surgeon said "no way" to me when I suggested having a double mast. instead of a lumpectomy, saying "that's a lot of surgery", "and for you not necessary"..........I'm glad now that I listened to him....................I am doing fine, just contemplating Femara.............now

    stop arguing ladies, and turn on country and listen to Scotty McCreery sing his new single called  "I Love You This Big"...............great song, which will calm you all down................

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  • PattyS
    PattyS Member Posts: 534
    edited June 2011

    Shirley....why don't you, and (your fragmented sentence teacher) shokk head on back over to your other site. Which is where you report back to each other, after checking here first to see what the wonderful ladies here are discussing. Then you all bash the ladies here for discussing such trivial things, like dinner and vacations and not being intelligent enough to discuss more important things that really matter. Shame on you!

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  • lago
    lago Member Posts: 17,186
    edited June 2011
    Claire_in_Seattle that is so cool you were in the study. I only took it once a day  but I do believe it worked. I think I started right after my 2nd tx. Left foot had already started but didn't seem to get it elsewhere.
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  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited June 2011

    Shirley, I think you missed the post that Patzee posted where Patmom sent one of the pm's to her badmouthing me and my "gang".  All was revealed.  Another one was from janeluvsdogs and veggiegal.  So please get your facts straight.

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  • 208sandy
    208sandy Member Posts: 2,610
    edited June 2011

    Looks like I missed the treatment time for neuropathy - I was told at the time that it would disappear within three months and it didn't - but it's not nearly as bad as it was at first and I pretty much try to ignore it - for some reason it's made wearing sandals difficult - perhaps it's the lack of arch support - anyway it's not a big deal but I was hoping I'd get lucky.

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  • 208sandy
    208sandy Member Posts: 2,610
    edited June 2011

    Lynn18-

    Didn't mean to be so sarcastic with my beta blocker "story" comment - I am actually on a beta blocker myself and have been since my bc diagnosis - that's why I am nervous about blood sugar - my numbers skyrocketed while I was on AIs and that's why I finally dropped them but I cannot drop my beta blocker - it took forever for me to find one that didn't slow me down and my blood sugar is way down in the normal range now and I try to keep it there - I've had to give up my love affair with pasta and good bread except on rare occasions and I've taken up exercising and eating tons of vegetables instead.

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  • TMarina
    TMarina Member Posts: 692
    edited June 2011

    Is there another thread that posts stuff about holistic/natural healthcare that doesn't bash those of us that also used conventional treatment?  I'm not asking to be argumenative, I'm asking because I am sincerely interested in which supplements, etc., are helpful for different side effects/diseases.  It would be nice to have that info all on one thread. I love it when people post links to studies, because that really saves me the time of doing the searching.

     I still have neuropathy from 2 years of chemo (2 diff. cancers; both tx had chemos that cause neuropathy), and I am wondering what I can take now.  I asked my onc about 2 supplements (Glutamine and one of the B vitamins-don't remember which one), and he told me it was ok to take them, but the studies were inconclusive.  He is big on research, and knows his stuff, so he doesn't recommend something unless there has been a large, conclusive study.  So many things are said to be the "miracle cure", only to be found out later to be dangerous or ineffective.  He did tell me about a trial that is going on now about some sort of cream that might help with neuropathy.  So that sounded hopeful.

    Anyways, I have been taking B6, but never did try the glutamine.  Any advice on what may help now?

    Lago--I'm not following you around, but I always like it when you show up on a thread I am reading because you are always so level-headed and have great research and facts to share.  Thank you! Smile

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  • 208sandy
    208sandy Member Posts: 2,610
    edited June 2011

    Lago - what Tina said!

    Sandy

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  • kira1234
    kira1234 Member Posts: 3,091
    edited June 2011

    TMarina, You will find lots of good info on the natural girls thread. I find it very informative, and very respectful to all.

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  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited June 2011

    Referring to Lago.

    Yes, I agree too.....LIKE!

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  • TMarina
    TMarina Member Posts: 692
    edited June 2011

    Thanks Kira!  I will check it out!

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  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited June 2011

    Tina -- I had some neuropathy in my hands (kept dropping things because I couldn't judge the "grip" level!) and in my toes following taxotere. I took L-Glutamine (500mgs before bedtime) for about 4 months.  My neuropathy cleared up.  Whether it would have, on its own, or not, I do not know.  However, it did disappear.  Hope this helps!

    Linda 

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  • lago
    lago Member Posts: 17,186
    edited June 2011

    I'm glad my posts are useful. thanks

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited June 2011

    Lago...............always are and I too enjoy conversing with you.................

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  • Lynn18
    Lynn18 Member Posts: 416
    edited June 2011

    208sandy:  I know, I just didn't want to appear to be pushing beta blockers, lol.  That study is interesting, though.  I am glad you were able to get your blood sugar within normal levels--good for you!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011
    bluedahlia wrote:

    Shirley, I think you missed the post that Patzee posted where Patmom sent one of the pm's to her badmouthing me and my "gang".  All was revealed.  Another one was from janeluvsdogs and veggiegal.  So please get your facts straight.

    Blue, what on earth are you talking about?  I wasn't posting about PMs. 

    Oh, I'm sorry.  I only noticed that this thread was entitled, "Survivors who have used only alternative treatments". 

    Patty, I'm happy to know that you read other sites.  I hope you also read things that we post about world events.  You may learn something.  And, Patty, I don't believe you know the history of relationships on this board.  I don't know how long you've been a member.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    delete

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited June 2011

    Shirley .. I got a PM from another member, copying a PM she had received that was slamming ME to hilt.  The very same PM also slammed Blue and Angel. 

    Talk about not knowing the history of the boards.  I know the name of the person who was doing all that slamming.  Sadly .. it didn't surprise me at all. All I will say is that it is a member who posts regularly on Breastcanswer.com.  It's a sad state of affairs when people are sending hate PM's to one another about other members on this site.  Is that the history of relationships on this board you're talking about?

    Bren

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  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited June 2011

    Shirley, I didn't fall off a turnip truck and I hate when someone lies to me, to my face (pm) when that person was logged on at the time of the reporting and told me she wasn't, actually hadn't been on for hours.  Outright lie.

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  • DiDel
    DiDel Member Posts: 1,329
    edited June 2011

    Bren that is a shame..I came here in hopes to find out if there were alternative therapies should/could try as my body heals from surgery and treatments. I've been afraid to post a thing because i keep hearing about all these people getting reported for no reason. This thread states to discuss Acupuncture...Massage therapy, supplements and herbal treatments. All things that interest me ..but apparently I am not qualified to be here since I am not into 100% holistic therapy.

    I will try the natural girls thread

    Diane

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  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited June 2011

    Add that to the pm that was revealed and BINGO!  The other two, janeluvsdogs and veggiegal....well I know who they are.  No surprises there either.

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  • jancie
    jancie Member Posts: 2,631
    edited June 2011
    Well at least one of them has been disarmed Laughing
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  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited June 2011

    That's the only good thing that came from Patzee's escapades.  She outed the behind the scenes subterfuge.  This has been going on a long time.  Maybe they will think twice now.

    NHC, it's still to early to say, but hands will be spanked as one case has shown.

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  • PattyS
    PattyS Member Posts: 534
    edited June 2011

    Shirley, thanks for the invite but I'm not sure there is much to be learned over there.

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  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited June 2011

    Can't question anything either, over there, Patty, cause if your opinion differs, you WILL be banned, which is what they are hoping for around here too.

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  • Titan
    Titan Member Posts: 2,956
    edited June 2011

    TMarina..why don't you start the new thread?  I think that would be great...!  I did have chemo but I still go on the natural girls thread and read what they are doing...I figure it can't hurt.  I have read alot about vitamins to take, d3 levels and lots of other information.

    We are trying to raise an organic garden..problem is..the rabbits seem to like it too..any ideas on how to discourage the dang rabbits from eating my green beans and tomatoes?  We are going to put some marigolds around the garden...I guess the smell of them is supposed to keep the varmints away..

    I just love having a garden..walk out the door, pick the veggies fresh and eat them..it doesn't get any better than that.

    Sorry..I didn't stay on topic.

    Bottom line is...whether or not we have had chemo...our goal is to stay alive..right?  So why don't we all get together and share our information and get on with it..

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