Is it Lymphedma or is it not?

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usetheforce
usetheforce Member Posts: 8
edited June 2014 in Lymphedema

Hello. I am a 36 y/o male that was diagnosed with BC in Nov. 2010 and had a modified radical mastectomy in December with 17 nodes removed. About 2 weeks ago I noticed a little swelling in my index finger and then continued to get worse and now is getting better.

I contacted the lymphedema therapist and she said that it is unusual for just an index finger to swell and didn't think it was lymphedema. I contacted my Dr. and she said the same thing. She told me to try and take some ibuprofen and see if the swelling goes down.

 Has anyone had any experience with just a finger swelling and it be lymphedema? I am still young and active and also need my hands for work (I am a physical therapist assistant). I want to avoid lymphedma!! Any thoughts/advice/information would be much appreciate! 

 Thanks!!

Comments

  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited June 2011

    I think it could be quite possible that just one finger could swell.  I am not an expert but think it's in the realm of possibilities.  I' sure some of the experts or those more knowledgable will  be along soon.

    Can you get a referral to a LE clinic or therapist?  Catching is early is a key.  I don't have a lot of arm welling but it can be in my hand if I'm not careful what I'm doing.

    Hope you can get the answers you need. NJ 

  • Karina121293
    Karina121293 Member Posts: 370
    edited June 2011

    Hi usetheforce,

    After mastectomy in January, about three weeks later , my hand got swollen, then continued to get better. Now my thumb is a little swollen and stays like that all the time. I have not even mentioned this to my doctors, since it's not bothering me and I am still in active treatment and have quite a lot on my plate besides this. But I am sure it is limphedema and don't know if it will get worse in time. I know people whose hands/ arms get swollen now and then from overusing it, then gets better with time for another long time. So I think it is very individual, but would love to avoid a sever one myself.

    Hope this helps and you get more answers soon for peace of mind. Let us know how it goes.

    Karina

  • kira66715
    kira66715 Member Posts: 4,681
    edited June 2011

    My lymphedema started in the dorsum of my hand, three weeks post op, after bug bites. It did move down and involve my finger--notably my index finger.

    As a PTA you do need your hands, but you also need to be assessed for lymphedema and treated if needed.

    Lymphedema can be focal. As Andrea Cheville MD of Mayo Clinic says--it can be "patchy"

    Do you have access to a well trained lymphedema therapist? You'll need an MD referral (as you know.)

    Let us know how you're doing

    Kira 

  • Fitz33
    Fitz33 Member Posts: 243
    edited June 2011

    I had some swelling in my arm, like a good size puddle but the doctor said it didn't appear to be lymphedema as usually an entire arm would swell, not something in the middle of the arm.  She did refer me to a lymphedema p.t. and she also said it didn't appear to be lymphedema but no one seems to know just what it is.  The p.t. said it could be a lymph gland problem and it caused some pooling in my arm.  It's been 2 wks now and some of the pooling has gone away.  

  • kira66715
    kira66715 Member Posts: 4,681
    edited June 2011

    Fitz, I was hoping Binney would answer you, but I think she missed your post--I have to say, in my opinion, this "lymph pooling" is lymphedema---just by definition. And yes, it can be isolated and patchy.

    I sure hope the PT gave you some self management tips to deal with this, and prevent it from occuring in the future.

    Unfortunately your doctor is mistaken in her belief that with lymphedema the entire arm has to swell: for me, it's just my hand, and occasionally my forearm. Other women just have it on the lower forearm, or the upper arm.

    At least she sent you to the PT, but I think the PT dropped the ball. 

    Here is a link for professionals on LE information:

    http://www.stepup-speakout.org/essential%20informat%20for%20healthcare%20providers.htm

    And on treatment of LE:

    http://www.stepup-speakout.org/treatments_for_lymphedema.htm

    And, when Andrea Cheville MD from Mayo Clinic wrote an article for lymphadivas, she wrote about this patchy issue:

    http://lymphedivas.com/lymphedema/gauntletandsleeve/

    For women with established lymphedema the decision to use a gauntlet or glove is based on slightly different considerations. Lymphedema of the upper limb may be distributed in a surprisingly patchy manner. For example, lymphedema may be restricted to the underside of the upper arm or the back of the hand. It goes unsaid that lymphedema is a very individual phenomenon. Many women with lymphedema never note hand involvement despite use of an arm compression sleeve for many years. However, even these women should remain watchful for hand swelling since lymphedema is a dynamic process with the potential to change over time. A quick check for hand edema after engaging in the activities listed above is always warranted. Differences in skin texture or the visibility of bones, veins and tendons may indicate lymphedema. These changes suggest a need to consider some form of hand compression. 

    Kira

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2011

    Hi, Fitz, I'll just agree with Kira on this. Actually your quote from the PT about it being "a lymph gland problem" gave me a chuckle -- that's what lymphedema is all right!Laughing

    Here's a page to help you find a well-trained lymphedema therapist near you. Any PT can legally call themselves a "lymphedema PT," but that doesn't mean they've had the necessary training to treat it:
    http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm

    Even if it resolves for now, you still want to get good help now, in order to keep it from progressing. Let us know what you discover!

    Be well!
    Binney

  • Fitz33
    Fitz33 Member Posts: 243
    edited June 2011

    Kira and Binney4, thank you so much for your kind advice.  I've been reading through some of the material you suggested and have found a wealth of information.  I did get lymphedema exercises to do and also self massage instructions (wow, are they weird!) so maybe I should be doing those daily.  Since I don't seem to have any pain and the swelling has gone down I've not done anything.  Do you think I should be each day?

  • kira66715
    kira66715 Member Posts: 4,681
    edited June 2011

    I would try them daily and see if it helps the swelling go away faster.

    Kira

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