Low Body Temperature anyone?

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  • MBJ
    MBJ Member Posts: 4,352
    edited June 2011

    If anyone decides to do a reset I would get the help of the moderator on the above links as he has been doing this for ten years.  The moderator has you fill out a medical questionaire in order to best help you.  I am hoping that more people will become aware of this and hopefully create a place of support for those wanting to reset their temperature.  This is one of the hardest things I have ever done in my life!

  • ruthbru
    ruthbru Member Posts: 57,235
    edited June 2011

    I believe my temperature used to be 'normal' before chemo, and never thought of it at all until I recently had surgery for a hernia. Part of the post-surgery instructions were to take your temperature twice a day for a week (to make sure you weren't getting an infection), I was startled to find that my temperature was consistantly at about 97 degrees or so. I don't feel sick and actually like feeling cold, so don't think it is a problem for me, but interesting none the less.

  • MBJ
    MBJ Member Posts: 4,352
    edited June 2011

    Ruth:  My only concern is that if my body temp remains low will my BC return.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited June 2011

    But what would temperature have to to with that?

  • MBJ
    MBJ Member Posts: 4,352
    edited June 2011

    Most people with serious diseases seem to also have low body temps.  That's why I started this thread: to see if anyone who has had BC operates at 98.6 and if not why and how does one fix this!  If 98.6 F is optimal for good health why would it be acceptable to operate at a lower temp?

  • ruthbru
    ruthbru Member Posts: 57,235
    edited June 2011

    I have a 6 month checkup in July and just wrote this down in my 'Questions Notebook' as a topic to run past my oncologist. I will let you know if he has any insight. I will also check it out with my GP (who does a lot of research and whom I love!) when I see him in the fall.

  • sanbar8771
    sanbar8771 Member Posts: 281
    edited June 2011

    Ruthbru, I see my PS on Monday, I will ask the same thing. I am curious on this as well. Thanks everyone for your input.

  • Leah_S
    Leah_S Member Posts: 8,458
    edited June 2011

    MBJ, on what do you base your statement that "most" people with serious diseases seem to have low body temp? I have never seen any research on this. Which does not mean it doesn't exist, it merely means I haven't seen it.

    I might seem to fit into that category - low body temp all my life & now have bc. However, I was dx at age 57, and neither of my sisters (both with low body temp) have bc or any other serious diseases.

    So a blanket statement like that one would need something to back it up.

    Perhaps most people with low body temp and serious diseases have low body temp because of the disease and not the other way around - in other words, they don't have a serious disease because of the low body temp.

    Leah

  • sheila888
    sheila888 Member Posts: 25,634
    edited June 2011

    Everybody's temp and BP varies.

    Whats right for one could be low for someone else.

    It's like saying only 120/80 BP is normal and anything below or above means something wrong.

    My BP is usually little lower than that while some people get dizzy Im perfectly fine with it.

    This is like saying one size fits all but it doesntWink

  • Leah_S
    Leah_S Member Posts: 8,458
    edited June 2011

    Seyla, I agree with what you said about the variation.

    I have gotten worried, "Are you feeling all right?" questions from nurses when my BP is taken. I have had BP that has others almost passed out and I'm up & running.

    Leah

  • MBJ
    MBJ Member Posts: 4,352
    edited June 2011

    Yes, everyone's temp varies and cycles throughout the day, but it should be within normal ranges, not practically hypothermia!

    I am not the expert, I am just researching this!  I am concerned that my pain only goes away when I push my body temp up.  I am concerned and if you are not, that's okay with me.  I think that it is strange that I am fine at 98.6 and not at 98.3 and in fact sweat so profusely I cannot sleep or leave the house.  This is about asking questions and finding answers not about absolutes.  The temp chart above is directly from Wikepedia, not something I made up!  I have symptoms that are problematic, mostly that my brain doesn't work and when I read that these symptoms can continue for years after chemo and no dr. has an answer, well, for me that's not a good enough answer!

  • Leah_S
    Leah_S Member Posts: 8,458
    edited June 2011

    MJB, if regulating your temp helps you feel better, then do it! I was not questioning whether you felt better when you regulated your temp, I was questioning your statement about "most" people with serious diseases have low body temp.

    Keep researching, keep doing what makes you feel better. Even if you're the only person you know who has such a difference in how you feel with such a small fluctuation of body temp, it's still valid for you.

    Best of luck.

    Leah

  • MBJ
    MBJ Member Posts: 4,352
    edited June 2011

    BTW:  I have actually heard the comments about low body temp and cancer from nurses and dr's where I received treatment.  That it is very common amoung other diseases, such as diabetes, for instance.  I asked the question here in hopes that someone who has had BC might actually now have a normal body temp.  Looking for hope and answers!

  • Leah_S
    Leah_S Member Posts: 8,458
    edited June 2011

    MBJ, I hope you find both.

    Leah

  • MBJ
    MBJ Member Posts: 4,352
    edited June 2011

    Thank you Leah!

  • impositive
    impositive Member Posts: 629
    edited June 2011

    Ladies, I am the one who started the fungal thread.  I believe cancer and fungus are linked (as well as other diseases.)  The thread is now dormant because of the abuse it received.  Anyway, this thread has me fascinated as well.  I too have had low body temp most of my life.  This got me to thinking about that and how it relates to fungus.  I found this article.  It is titled, "Just warm enough. Mammals' body temperatures may represent balance between warding off fungi and limiting food needs." http://www.sciencenews.org/view/generic/id/67029/title/Just_warm_enough  It is basically about a study and theory in biological evolution but the following excerpts relate to what we're discussing here.

    One might predict from this model that raising an animal's temperature would lead to greater resistance to fungi. Lowering body temperature would then be expected to make animals more vulnerable to fungal infections.

    Frogs and other amphibians in decline around the world - in part because of infections with a chytrid fungus - may provide some evidence that the theory is correct. Warming up infected frogs can help clear them of the fungus, Heitman says.

    Reducing a mammal's temperature in the laboratory to find out whether lower body temperatures lead to fungal disease is difficult because messing with body temperature can affect many other biological processes. But hibernating bats may provide a clue that Casadevall is onto something, says David Blehert, a microbiologist with the U.S. Geological Survey's National Wildlife Health Center in Madison, Wis.

    Blehert studies white-nose syndrome, a fungal disease that is killing bats in large numbers in the eastern United States. A fungus called Geomyces destructans infects bats while they are hibernating - a time when body temperatures drop from 40˚ C to about 7˚. "They're not warm-blooded when they get infected," Blehert says. When bats are up and around and at their normal body temperature, they seem impervious to the infection, he says.

    In a report published November 11 in BMC Biology, Blehert and others described how the fungus, which erodes and replaces the bat's skin, damages wings and leads to death. Casadevall's idea has "become important in our thinking about this disease," Blehert says.

    The idea of a link between fungal disease and body temperature is not controversial among scientists, Blehert says. "It's very logical."

    YamahaMama, you mentioned toenail fungus and also your hands cracking. I've noticed a lot of women on these boards have to deal with toenail fungus.  Also, after my daughter moved into a new home, her hands begin to crack like you described.  They discovered the home had mold (fungus) growing in the attic.  (She also had fertility problems and PCOS - Polycistic ovary syndrome during this time, that I feel was related to the mold as well.)  Once the mold problem was remediated, her hands cleared up and she got pregnant.  Anecdotal, I know but just my thoughts and observations.

    Fever is a way for our bodies to ward off or fight infection, yet when we are sick and we get fever, we try to suppress it with fever reducers. I have never understood that. 

    The question is...What makes us have low body temp???  I am definitely interested in resetting my body temp.  Thanks for this thread MBJ!!  I have read quite a bit of that website you linked but I'm not really sure what to do to begin. 

    Sorry about being so windy, just trying to keep warmLaughing

  • barble
    barble Member Posts: 8
    edited June 2011

    I have had a low body temp for years and had thyroid checked by doc but results said no issues. Then I went to naturopathic doc as a friend recommended him because she said I always ate like a bird, excercised regularly and was overweight. After 2 weeks of temp taking my temp measured between 96.4 to 96.9 and was put on thyroid meds by naturopathic doc. medicine only stimulates thryroid so person can go off it eventually. when I researched breast cancer I found that another common thread to getting BC was a low thyroid!!!! I had been on natural meds for a little over a year and my temp has gone up to 97.4 to occasionally up to 98.6 and also took meds to remove toxins so that I have lost 20 lbs in 3 months and have been eating 3 healthy meals a day now (use to skip lunch lots and barely ate supper) as I know I need to feed my body to stay healthy while going through chemo; also have been walking every day at least 1/2 hour and hope to eventually get back into intense belly dancing as I use to do this 5 hours week. The frustrating thing about a lower temp is that on my day 7-10 when I get a slight fever with sore throat, I was told that they don't recognize people with low temps and only would treat me if I reached the "magical 100.4F protocol" even when I was hot then cold and shivering and before I was diagnosed I could be sick with the flu at even 99 F!

  • Cyborg
    Cyborg Member Posts: 848
    edited June 2011

    My temp is 97.1 or 97.2 all of the time and I believe so since chemo. Almost done with chemo and then will start rads. I want to review this thread so I can check out the benefits of having higher temperature.

  • MBJ
    MBJ Member Posts: 4,352
    edited June 2011

    impositive:  Thank you so much for the info!  Many studies have been done on this and if one just reads the links above many questions of how to do a reset are answered.  Sometimes temporary use of thyroid meds are necessary for harder cases but a thorough medical evaluation is done for you by the moderator on fixlowbodytemp.com and bodytemp.eu to rule out other problems like Hashimotos which is more difficult to do a reset with.

    One of the many ways you end up with a low body temp is just taking soemthing as innocent as Tylenol.  He theorizes that when the body has a fever it's trying to fight of something and instead of letting our bodies do this we all now just take a pill.  I don't recal having a proper fever since I was a teenager!  Of course there are no absolutes and many things can contribute to the breakdown of the body:  bad diet, heavy alcohol or drug abuse, exposure to toxins & poisons, etc.  However, for me, this is a way to help heal the body after all of the chemo, radiation, anesthesia, surgeries.  Getting your body temp up I think is a big key to healing--then if you still have issues with your health you won't also be dealing with the side effects of low body temp, you will just be addressing things unrelated. 

    My friend in the UK said her cracking skin finally sloughed off and her toenail fungus has now all grown out.  I have had nail toe nail fungus on my baby toes since I was a teenager so I am really looking forward to getting rid of this! 

  • DebRox
    DebRox Member Posts: 437
    edited June 2011

    This is very interesting. I too had a toenail fungus.



    More recently I was on antibiotics due to kidney infection. This prompted a yeast infection in which I was prescribed diflucan. I had a rough patch of skin on my lower back that was itchy and growing larger. My gp prescribed cortisone but it never went away, that was until I took diflucan.



    Anyways my point is, I consistently have low body temperature, I had or have mild toe nail fungus and I had that patch on my skin which I would say was fungus as it had completely cleared with 2 doses of diflucan. I wonder how long I've had fungus in my body, that I couldn't fight naturally.



  • MBJ
    MBJ Member Posts: 4,352
    edited June 2011

    DebRox:  It's such a simple thing but I do question why no one is looking at this issue! 

  • Robinsegg
    Robinsegg Member Posts: 22
    edited June 2011

    Thank you for this subject. My doctor is trying to reset my low temperature higher because he said low temps means lower immune function. He said it takes months to slowly raise the waking temp.

    The poster who said she felt like a fever at 98.6-- I understand but that can't be good because your body isn't hot enough to fight invaders. The goal is to get the temp slowly to 98 (the feel good point) so that when you get a fever it really is 99- upwards.

    A lot of us don't know what normal is. The doc has me keeping a chart of temps 3 times a day starting before I get out of bed in the morning.

  • sanbar8771
    sanbar8771 Member Posts: 281
    edited June 2011

    MBJ... I spoke to my Dad who is a crazy holistic nobody and he was telling me that Iodine can help with thyroid issues. This is what he said via email...

    They (Thyroid experts not conventional doctors) have determined that the best way to diagnose thyroid levels is by monitoring body temperature. Mine has been low since I was a kid. You should take iodine until your temperature is normal. Conventional doctors look at your TSH and if it is in the broad range they say it is OK. BUT, it needs to be close to 1.0 to be healthy. Low thyroid may contribute to cancer so they can go together. Thyroid disease is rampant in the US because our regulators removed Iodine from our baking goods and made the substitution of bromide which blocks thyroid production. In the 1940's they thought that Americans were getting too much iodine and they mandated the change to our food rules. It is still in effect. All bread is brominated in the US.

    But let me say as crazy as my father is, this makes sense.

    Has anyone used Iodine to help raise their temp? Or heard of this theory?

    Thanks for listening,

    Julie C

  • MBJ
    MBJ Member Posts: 4,352
    edited June 2011

    Julie:  I was doing the iodine and I do the mineral salts to clear out bromides and found out about it here:  breastcancerchoices.org  Iodine alone didn't bring up my body temp and my thyroid reads as normal.  They did change and no longer put iodine in our food in the 1970's and this can contribute to goiter and other thyroid issues but so can a host of other things. 

    Robinsegg:  Who is your dr?  It shouldn't take 3 months for a reset though it could if not done properly.  What is your dr's approach?  Does he just prescribe Cytomel?

  • sanbar8771
    sanbar8771 Member Posts: 281
    edited June 2011

    MBJ... I am having surgery Monday. Should I wait to take the iodine after the surgery? I am sick of being cold. I dont mind the hot flashes but the chills makes me concerned. It all started after the last surgery I had in March.

    How much did you take? what are mineral salts? what did you do to reset your temp? I am so tired of Dr's telling us that these are hormones...I just dont think this is right. I dont think I should feel cold all the time. I am wearing a freaking scarf right now and its 80' here in san Diego.

    Thanks :)

  • mollyann
    mollyann Member Posts: 472
    edited June 2011

    Julie,

    Your father isn't crazy. I use iodine tablets as part of my integrative breast cancer protocol and I've started sweating during exhertion for the first time since I was 12. I didn't know I had low thyroid until I felt better and my temp went up. My dry skin went away. No hand or body lotion needed now--just face cream.

    There is a 5,000 member iodine group discussion on Yahoo. My blood tests always showed my thyroid as normal. Hah! I didn't know a good doctor evaluates your thyroid by symptoms as the blood tests are unreliable.

    I can vouch for MBJ knowing her stuff! She is fortunate to have access to one of the best integrative docs and she has researched carefully. Because of my sister I get to attend integrative medical conferences and they all back up this information-- you can check.

  • sanbar8771
    sanbar8771 Member Posts: 281
    edited June 2011

    Mollyann/MBJ, How much iodine do I need to take and in what form? Shoul I try and get the iodine from natural food? Thanks for your help! I think this might be my last Post for today. Have a great day everyone!

  • MBJ
    MBJ Member Posts: 4,352
    edited June 2011

    sanbar:  Any general anesthesia will mess up your body temp and you would have to start all over again.  I try, when possible, to ask for Twilight anesthesia--you are out but not under general.  This tends to not mess with body temp.  If you can't avoid general anesthesia then just know your body temp will be affected by this.

    I am taking a break from Iodine and all supplements until I complete my reset and then I will reintroduce things slowly.  Check out the breastcancerchoices.org and go to the iodine section as you have to take supplements with it.  Anyone with Hyper-thyroid shouldn't use iodine.

  • sanbar8771
    sanbar8771 Member Posts: 281
    edited June 2011

    MBJ, I am getting my Tissue expander put back in to my left breast. I think I want to be asleep fully for this procedure. I had a pseudomonas infection back in March and I had to wait 3 months with the TE removed before I could get it fixed. But since that last surgery I have been all messed up. I thought maybe the infection was still there but my Dr reassured me the infection is gone  I was also on IV antibiotics a few months ago for this infection. Ugh...this is all so confusing. I will read the website you are suggesting. Thank you again for responding so quickly. You have been so very helpful. Julie

  • MBJ
    MBJ Member Posts: 4,352
    edited June 2011

    Julie:  Good luck with your TE replacement and I hope you heal up quickly.  BC made me realize I had to be my own advocate and since I am unable to work feeling like this, I have lots of down time to do research.  Gentle hugs!!!

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