Chemo June 2010
Comments
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kittycat - is that your real hair? you look so different than the photos with your wigs - great, just different! if that is your hair, i can't believe how long it is and how good it looks!! it gives me hope for mine...
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Tmarrina- This is the last week of school. We have school very late here in the East. We start later too. About Sept 6th. I haven't told anyone at work but it looks like I won't go back next Fall. My parents will hire me to care for them instead. They are beginning to recognize that they can do less and less for themselves. My sister and I were discussing hiring help to come in during the day. Then, I realized I would have to "manage' whoever they hired since my parents can't do that stuff anymore. Also, my job has no room for advancement or extra benefits. So, much to my suprise my parents jumped on the idea of me becoming their caregiver which means they really are needing more help than I realized.As of now we will try it out this summer. Probably three days a week. Always changes !
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Had to share the news with you...1st mammogram post surgery is NORMAL!!!
Relief. Now to finish the infusions and move on! Hooray. Thanks for taking this journey with me. Hugs all around. Bon -
Bon- Finally, some goooooood news for you! Yes! Yes! Onward and upward! It is my great honor and pleasure to be journeying with you!
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HIP HIP HOORAY BON !!!!!!!
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Hi my dear Peeps!
I have been gone from the boards a bit and look at how busy you have been posting! I have been going a million miles a minute and it is starting to wear me down a bit. I have a terrible cold. Unfortunately, the coughing caused me to crack my healing rib. So now, in addition to the cough I have a very sore set of ribs. There isn't much they can do for the ribs. I am doing a heavy travel schedule for work so I am trying to be careful with the luggage lifting. Good thing I have eyelashes again because it is much easier to bat your eyes when you have eyelashes!
I had a dear friend diagnosed with BC last week. I really prayed hard that her tests were going to come back benign but no such luck. She is really not handling the whole news thing well and keeps insisting she doesn't want to be in the club. I wouldn't wish BC on any of us but somehow I hoped me having it would stop any of my close friends from having to go through it. Like some how I could be the sacrificial lamb. I know it doesn't work that way but it was my hope. Anyway, they are doing another biopsy this week on a second area of her breast. We will know the treatment plan after this week's biopsy. I just wish I could take away her hurt.
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Latte, yes that is my real hair. It is very unruly and takes forever to blow dry. I finally have bangs. Yay!!!!
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JFV that sounds like a great arrangement. My parents lived i Florida and I live in Kansas City. WHen my dad died we realized mom was not taking care of herself. SO after 2 years we put her in assisted living. Now I wish I had her here with me to take care of her, especially since I am out of work. My sister makes visits to her every 2 or 3 months and I was going once or twice a year. But since my diagnosis last year I have not been down to visit. Do you get any tax incentives as a caregiver?
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Carol- I am trying to research the tax/ insurance end of it right now. I am a little frustrated. Everything seems to point to hiring an eldercare attorney to figure out caregiving and my pay etc... My father is very stressed about the money end. I know he has enough to pay me for awhile. It is part of his nature to worry about things. Now that he is losing his memory he seems to get stuck on certain issues.
Jackie OUCH OUCH OUCH !!!!. Do I need to give you a "life is too short slow down and take care of yourself lecture" ? Can't you find someone else to travel for you for awhile ? What if you hit turbulence on a plane ride ? Ok now I am making up problems. But, really honey... Can't you just take a few days off and rest. I know what you mean about wanting no one you are close to, to get BC. I keep hoping I took the cancer hit and the rest of my family can avoid it. Wishful thinking I know. Please tell your friend we are all praying for her and sending good thoughts. Let her know we all hate the club too but we are able to make a life for ourselves.
Kitty- I am totally jealous of your beautiful hair. Mine is not growing in that quickly and what has grown is very curly.
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Joan
I am starting to have to admit that resting sounds wonderful! Honestly I am exhausted. I do travel next week but it is a one day down and back. Then I am home for a full week! Yay! Plus hubby is going to head to MD to check on his Dad so I will have house to myself and I can sleep if I want to.
Kitty - your hair looks great! I am trying to decide what to do with mine. I really need a cut because it is getting a bit unruly but I want to grow it out again (I think) and my hair dresser loves to put in layers because mine is so think. The layers take forever to grow out. What to do what to do.....
Carol & Joan - I am so sorry you are facing the parent care issue. I have some of that myself but for now mine are living independently. I worry about that for many reasons. But I can't seem to convince any of them (mine or hubby's) that they need to be somewhere else. Good luck!
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Good morning.
Kitty and Jackie...I'm so sorry for the news of your friends. This disease effects so many. It would be nice if we could protect everyone we love, and even those we don't, from having to deal with bc (or any cancer for that matter). But, alas, that isn't how the cosmic forces work. The best we can do is to honor those who've been lost and warn the rest about the need for early detection, Mammograms, ultrasounds, self exams...all of it. It might not be perfect, but it's all we've got for now...until the cure!
Carrol and Joan...I sympathize with you about elder care and await my turn with trepidation. As an only child of an only child and a step-Dad without any children of his own, I will be faced with being the caretaker at some point, too. I love them dearly and am so fortunate to have them in my life at my 'advanced' age. I pray that things work our for your families and that you have the strength and stamina to do what must be done for your parents. And that you retain a sense of humor. Ginny has shown us through the antics of Julia that a sense of humor is required!
I wanted to share more good news with you all, my sisters...My txs are over! My last Herceptin IV ended yesterday at 1PM and I am DONE!!! (Over done, some would say...but done, nonetheless!!!) My chemo began June 23,2010 and the Herceptin ended June 22, 2011...one full year!
We have been through so much together...tears and triumphs. I could never have done this without you and am so happy to be sharing the victory with you.
Some day soon I hope to awaken and not have cancer be the first thing I think of. I am committed to getting on with life...as soon as I get the port out, have a hysterectomy and a colonoscopy! Just more 'stuff' to do. Thinking positive.
Wishing you all a wonderful day! And sending a great big THANK YOU! Hugs...Bon
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Dear Bon
Congrats on finishing up - I still have 3 more doses. Will finish up in Sept. I have never felt that I am "over done" but I have heard the concerns when friends and family can't believe I am not finished yet.
I can't wait till they do my exchange - the end of July. This damn bowling ball I am carrying around on my chest is the pits. I also just want to go to sleep and wake up without thinking of BC. Still going to PT to deal with my frozen shoulder.
Are they going to take your port out right away or make you wait a bit? Why the hysterectomy? Is this because of the BC or are there other problems? I don't mean to pry, but it has not been suggested for me - just wondering if I should ask the Dr.
Hugs to all the rest of my June "sisters". Very sorry to hear of the recent losses of your friends and family.
I am off to a retirement luncheon at my former school. Will see people I have not seen since before chemo...their reactions should be interesting.
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Lizzyanne...A friend of mine had a double mx in February and just had her exchange surgery in May. FAST!!! (Lucky for her, she didn't need chemo or radiation). She is happy to have the 'bricks' gone and something that feels more normal in their place. She did great with the exchange surgery...was driving herself within 10 days...maybe even sooner. Not suggesting that you do that, but just letting you know that it was an easy surgery compared to the mx. All she has left to do it the tattoo and that won't be for another couple of months. Maybe when she get's here new nipple I'll join her and get some eyebrows! They haven't grown back.
As for the port...well, I guess that after yesterday I'll be getting it pulled out sooner rather than later. After all this time, the port failed to give blood yesterday. They did infuse through it and didn't make me go for a port scan or adjustment at the hospital across the street because it was the last infusion. The oncologist says to have it taken out now but he knows the BS favors leaving it in for awhile. Hope I can convince him to take it in July so I can get on with things, It's never been comfortable, never. In fact, it's been painful and annoying since day one. Actually, I'll be thrilled when it's gone. I think that having a port sort of signifies you're sick...a thick medical chart and a port aren't the hallmark of a healthy person. Can't do much about the thickness of the chart, but I can say bye-bye to the port!
The hysterectomy was suggested early on due to the ER,PR negative status of my tumor. I will make an appointment with a GYN next week to see if that's still in the cards. I would hate to end up with cancer of the ovaries or uterus when they aren't necessary to my existence at this stage of my life. Will keep you posted on that.
Ok, Lizzyanne, we have to countdown another 3 Herceptins and that exchange surgery before we do the big victory dance for you. I'll be waiting for news.
Hugs. Bon
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WOOT WOOT WOOT FOR BON !!!!!!!!!!!!!!! HIP HIP HOORAY FOR BEING DOOONNNNEEEE!!!!
Bon- My port removal was painless but took most of a day thanks to NY hospital time. A nurse told me that if cancer came back it's no big deal to insert another port in me. So, I don't see why Oncs drag there feet regarding removal.
Thanks for the support regarding the old folks. Luckily I can ease into caretaker mode over the summer and I don't have a career to leave. As much as I love being a Teaching Assistant it is just a job. So, it's not like I will make a huge lifestyle or financial sacrifice to care for them.
Lizzyanne- Thinking of you as you visit your old coworkers. I still run into people who do not recognize me thanks to the change in weight and short hair.
Jackie I am so glad you are resting your poor bones. I hope your hubbies Dad is Ok. I am glad you and your pup can relax on the sofa together.
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Hello my friends... Don't post much but this is and always will be my home. I get on here and read and see what is happeing, I have learned sooooo much. Well anyway just giving you an update...and want to share some good things that has happened. It has been a year since I was told I had "bc", I put in small letters cause Christ is the big "C".... and a year later I have become a grandmother for the 1st time YAY
it's great...my son is 30, thought it would never happen...Bless his heart he took the news bad...mommy had to tell him I was going to be alright... well anyway on to more good news... my daughter graduated for medical school YAY!!!! and is now a Dr. of Physical Therapy and has past her boards.. will be working in our town...again YAY!!! Had my 32nd anniversay YAY!!! spent the 31st in Dr's office
... A lot can happen in a year and not always sooo bad... I thank my wonderful God for letting me see all these wonderful things that are happening in my childerns lives...
Want you all to know that I pray for my friends on here all the time and you all are not to far from my mind..,. You ladies have helped me more then you will ever know... when I have a question or if I feel strange all I have to do is get on here and not even say a word but just read and someone has been there or done that and I am normal as normal as I will ever be LOL... To sum it up... You all are great... and Thanks for everything....and maybe I will start chatting more huh...
as you see when I get going I don't stop... that is what my DH says anyway...
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Congrats Bon! I had my port removed after radiation. It was so nice to get rid of that thing!!! I'm getting a hyst next month. Not looking forward to it, but with my BRCA1 gene, it's the best thing for me to do.
It's Friday and I'm tired!!! Yay for the weekend! -
Bon and Kittycat... YAY on having port out...Hope all is fine and please let me know how it feels cause I still have mine and was wondering about if it hurts to remove it..
Kittycat...Heres to a great weekend!!!
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BON, HOO RAY HOORAY HOORAY HOORAY HOORAY HOORAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Sandiddstn, it so good to hear from you. Congrats on all the good things happening in your life. Please post more often and keep us up to date.
When the last of our June sisters are ALL DONE with the treatments and surgeries, we will have to do a group happy dance and celebration.
Jackie, rest and relax, enjoy and heal, be kind to yourself.
Love and Hugs, Mimi
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Ladies, Thanks so much for cheering me on at the end here. It means a lot to know that you understand what a milestone this is to be finished with IV's and to be looking forward to getting the port out.
Question...has anyone heard from Sherry recently? Or Chey since the death of her BIL? I worry when they are silent for too long.
Jackie, I do hope you get some rest. I doen't know how anyone can keep up a travel schedule throughout this type of illness and treatment.
Kitty...love the hair. Isn't it nice to have hair again?! I don't even bother to really style these grey locks. Just scrunch in mousse and tousle. I love wash-and-wear hair!
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Bon- I'm so happy for your finish, my friend. I so totally agree about doing everything possible to "get! on with life".
Sandi- Congratulations on all your wonderful life celebrations! Thank you for keeping us in your prayers.
Like Bon said: Where are Sherry and Cheyenne???????
With the whole "getting on with real life" goal, I am going to try to stay off BCO more. I feel it sort of pushes me back into the daily focus on this BC. I am going to tag my favorite three threads to email me alerts whenever anyone posts. Of course this thread is tagged. That way I will keep up with all the shenanigans. Of course I get email alerts if any of you PM me. I know the thousands of hours here on BCO were an enormous help in my treatment, but now I need to focus on getting beyond BC. The good thing is I will continue to be friends with all of you!
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DMom...I'm with you. I, too am spending less time on this website, although I credit it, and all of you, for really saving my life. I need to get on with it and not think of cancer first thing every day, I do get the alerts when someone posts and I try to read all those and then jump in when seems appropriate.
In the not too distant future I will PM many of you with my personal email so that you can contact me directly, outside of bc.org, if you choose to. And just to let you know, I now have a premium SKYPE account that allows me to video conference with up to 10 people. (Subscriptions were 1/2 price this week so I opted in because I use SKYPE for my business, too).
But...I'm here with all my June 2010 Sisters until we can all say "I'M DONE". So keep your posts coming and let me be part of your cheering section! Or to give or get hugs when needed.
Love and Luck to you all. Hugs all around...Bon
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Bon--YAY!!!!!!!!!!!!!!! I'm SO happy for you!!! Hope the port removal is easy--I'm sure it is! I'm going to keep mine until I no longer need it for 6 month ct scans. It doesn't bother me, so may as well keep it! I hope your Herceptin SEs go away quickly!! I'll be done mid August!
Jackie-ouch! I'm glad you will be able to rest soon. I get worn out just reading all you do!
Kitty--I, too, love your hair! Mine came in pretty thick, and I did have it cut once to shape it, but it seems to have stalled! I think maybe the Herceptin is slowing it down.
Sandi--Glad you checked in! Sounds like life is going great for you! God is GOOD! Thanks for the prayers!! Please do check in more often.
This is my "home" too. Love all you ladies. If any of you want to keep in touch by facebook, pm me your name, or ask for mine so you can look me up. If enough of us were on there we could have a "group" page on there too! (if you have any q's about FB, just ask. I've been on it for several years, and know how to make it private)
SHERRY AND CHEY--WE MISS YOU!
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I'm a Facebook jumkie too ! Anyone can pm me and I'll friend you ! I still check this board everyday and enjoy or conversations on many different subjects. I too am trying to move on but would HATE to lose any of you ladies.
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Bon - Hip Hip Hooray on the final tx!!!! Now you can get on with getting on.
As for me and my goofy travel schedule. I wear myself out! LOL Actually a quick trip next week to Charlotte NC an then I am home a week and a half with no planes. Yay!!!!
We are going to need to firm up some dates for next Spring to do our trip to Orlando. Everyone send me a PM and let me know if you are interested in going and if so what dates would be best for you. Once I have a sense of dates that will work I will get the reservation done. I feel a celebration is in order!
TIme will never erase our connection!
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Hi,All!!!!!! So glad to hear from all of you. Still trying to wade through red tape to get our BC support group going at work. Hope and pray it will get worked out.
Jackie, I don't have any black out dates so far for the spring reunion so the rest of you just let me know when and where---I think I'll start packing now/////HA_HA.
About the sense of humor with aging parents and how to cope. I always try to remember that Mom does not mean to be the way she is and cannot control her actions or thoughts. It has been best for me to not take anything she says seriously and to try to put a comical spin on it with her and that really helps to lighten things. She really believes all the stories that she tells so I just listen as though they are just "stories". Most of her nonsense is not hurtful so I can just let it go. Good luck to all dealing with this and I pray you keep your wits and humor intact..
Sandid, Thanks for posting and please keep in touch. wonderful to hear good things happening in your life.
Jacke, I am only 1.5 hours from Charlotte. What will you be there for?? It is a nice town to visit.
My hair is still curly after 2 haircuts but maybe a little more fixable. I am keeping it short right now because it is almost all gray and curly so it is easy. It is very thick also. My eyebrows are extrememly thin, though, so I sympathize with not having eyebrows.
BON YAH YAH YAH for having finished treatment. It is sure good to be on the other side of the treatments. Much luck and prayers for the coming surgery to be easy, pain-free, and quick to heal. Enjoy life as it gets more "normal".
Lizzy, Hope you finish soon and all goes well.
Sherry and Chey WHERE R YOU!!!!!!!! Hope you two are well also.
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Gin - I am flying into Charlotte tomorrow evening and right back out on Tues afternoon. Next time I am down though will be a longer trip (sometime in Aug). I will let you know because maybe we can meet half way between. That would be fun.
Went to the July 4th celebration in town here last night (yes they knew it was June but....) and rode the Ferris Wheel. Talk about childhood memories unleashed!
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So good to hear from Sanddin and Gin. So glad to hear so many happy times in your life Sand. Gin, I hope I find a coping mechanism to deal with my parents. You are an inspiration.
Back from my daughter's dance recital. She did well. I think this is recital # 14. At her previous recital I was recovering from my first chemo. I certainly feel alot better this year.
Jackie...... Ferris wheel. What fun.
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Jackie...our office admin spent 3 days at Universal in Orlando over the May 13, 14, 15 weekend and she said the park was virtually empty compared to the norm. Now that isn't Disney but the game is the same. Seems that time frame is close to the end of school and most parents aren't traveling with kids right then.
I checked to see that next year in 2012, that mid-month May weekend (the 13th) is Mother's day. And the 28th is the Monday Memorial Day holiday. So that leaves us early May or early June or the week between Mom's Day and Memorial Day. The Epcot International Flower and Garden Festival is supposed to run until May 20, 2012. And then their concert series runs June 12-July 30.
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Jackie- If possible, I would love our rendezvous to be earlier rather than later. We usually get really busy once June arrives, as school is out, and we head out. I'm wondering if there is a time slot earlier (when we are still freezing our butts off in the North) that might work? It sure would be an added bonus to get out of the cold.....of course I will be happy to meet all of you anytime!
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hi everyone - glad to hear all the updates. i ahve also been trying to cut back on the amount of time i spend here - i am having terrible trouble sleeping (due to tamoxifen i think), and going onto this site and facebook makes me stay awake even longer...
apart from the sleeping issues, i'm feeling so much better! i have been working part time for the last 2 moths, and as of July 1st i am going back to full time (not looking forward to that - it's been nice working part time, but not so nice financially...)
have a good summer everyone!
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