Chemo June 2010

toni30

Hi Ladies: I don't check in very often, but it's good to catch up. For people with sleeping problems, I am on Arimidex and I just told them to give me sleeping pills. I figure as long as I have to take medication that has insomnia as a side effect, I'll take sleeping pills too.What the h----.  I stll have some neuropathy in my toes - anyone else?  Hugs to everyone! Toni

Sherry9316

Toni - my neuropathy in my toes finally subsided about three months after I finished radiation.  I still can't stand covers touching my feet - but the burning and tingling are gone.  Hopefully yours will go away soon.

Husband and I are having a little get away next week.  Going to Dallas for a few days to reconnect with each other as spouses instead of patient and nurse! 

flopsy

Toni,  Yes, I do still have some neuropathy in my toes but had some prior to BC from a med reaction about 4 yrs ago so I think mine is probably permanent.   It has gotten a little better than it was at first but still very bothersome at times.  I am sleeping better these days since I started the glucosamine chondroitin with melatonin in it.   Hope this continues to help.   My hormone blocker is Femara and so far I am doing good with it.  I started taking it last September and I think I am doing okay on it.   I do want my onc to order another Bone Density test next time I see him, though.

 Sherry,  Congrats on the trip plans.   Go and enjoy and celebrate life.   My sister told me today that they have declared chocolate a vegie, So make sure to have some on your trip.

TMarina

toni--I still have neuropathy also.  I had it from a chemo prior to bc, then the Taxol made it worse.  It is getting better though, but I don't know if it will ever completely go away. 

My doc (primary) gave me Trazadone to help me sleep.  I didn't want to keep taking Ambien, because it can be addicting.  Trazadone isn't (according to my doc). 

JFV

Hi Toni and Sherri and Lizzy_  Liz, love the new hair and the happy sound of your post.  Sherry, glad you are getting away.  Hang in there Toni !  I do have a little neuropathy in my feet.  I mostly feel it when I do something new like heavy duty exercise.

We are sweltering today.  Drove to Ohio for a family wedding this weekend.  My hubby did most of the driving but I did a couple of hours at a stretch also.  This time last year I could get to and from the grocery store and that was about it !

Sherry9316

We are back from Dallas.  Had a great time - no specific itinerary, took everything at a leisurely pace ad napped in the afternoon.  Visited with old friends and family, did some touristy stuff and ate at great restaurants.  It was a great getaway. 

Had company this weekend.  My husband's brother drove up from Dallas and my husband took him on a skydive this afternoon.  Brother loved it and wants to go again.  They are leaving tomorrow for Branson for vacation.  

kittycat

Hi girls! Sorry I've been away for so long. We went on vacation the week of 4th of July and now I'm getting ready for my hysterectomy/ oophetectomy tomorrow. I've been working, going to the doctors, cleaning and doing a lovely bowel prep for the surgery. Fun! I saw my PCP yesterday. He ran a glucose tolerance test on me because I still have a burning pain in my leg. He wanted to rule out diabetes. The tast came back with a severe drop in blood sugar after the 3rd and 4th hour. So now he thinks I might have hypoglycemia. I saw my onco today and she reviewed the results as well. Now I have to see an endocrinologist in August. Good thing is I don't have diabetes. My onco still thinks the pain in my leg is from my back. My lower back MRI came back clear, so who knows! My breast MRI came back clear! Woo Hoo! And no cavities in my teeth! All these medical appointments are making my head spin! When does it end? Soon, I hope!



Well, anyway, I hope you all have a great week. It's good to catch up with everyone!



(((hugs)))

cheyenna

yay kittycat!!!!!

flopsy

kittycat,   that is great news about the test being okay.   The leg thing sounds like nerve related issues.   I have neuropathy in my lower extremities now from the chemo and get pains and burning a lot but especially in my feet and hips.

Had a really sad accident here in our subdivision yesterday.  A 13 yr old girl and her twin sister were riding on an ATV here and she was flipped off when they hit a pile of bricks that had dirt over them.  She died almost immediately from a head injury and was not wearing a helmet.  They were visiting from California with some of our neighbors.  The family is devastated and I feel so bad for the twin.  They would be 14 on AUG 1.  Wish I could do something to make it better but can only pray and empathize.

TMarina

Gin--that's awful!  That poor family--and the twin must be just devastated. 

kitty--good news on all the tests!  Sorry your leg still hurts though!

Sherry--that Dallas trip sounds like it was wonderful!

JFV

Gin- I am so sorry to hear about the accident.  What terrible sadness.  There are no words for some tragedies.

Kitty- Glad to hear testing went OK.

cheyenna

Bump

lizzyanne

Dear Chey

Bump??? Hope all is well with you. Your one word post worries me...

Liz 

janny99

It's been awhile since I've been on here....How is everyone doing these days?  I'm trying to find my new normal...the biggest issues I have had were with my 'brain'...especially short term memory.  I went back to school, first in a teaching capacity, then started taking classes again.  Wow, major boost to my cerebral issues.  My first semester was tough, but the classes I took were hard and really helped me exercise my brain!  I will be starting classes this coming Monday and I'm very excited.

Is anybody still having body aches?  I feel pretty good, but I do feel as though the chemo aged me 10 years!!!  I have had a hard time getting back to where I was before cancer.

 It's a good feeling to not think about cancer everyday, and sometimes I will even go several days without a reminder that I was a cancer patient.  I sometimes refer to the year 2010 as the "year that wasn't".....  I hope that all of you amazing and wonderful women are doing well, you all helped to pull me through the toughest time of my life, and for that I want to thank you.

JFV

Good to hear from you Janny !  I am well.  The kids, husband and parents keep me busy.  I understand what you are saying about the memory stuff.  I have improved but continue to have what I call chemo moments where I realize my memory of an event has completely evaporated and I have to trust the person who is asking me something that what they are asking me actually happened.  I have aches and pains and even notice some continued neuropathy especially in the cold weather.  My chest and back around my foobs is numb and burns and aches and just feels odd !

Having said all that I do feel much better emotionally and physically.

Best Wishes !

Joan 

cheyenna

Hi my beautiful girls, im really good!! ill write more later,

PearlGirl

Bon here. It's April 2012 and 8 of the June 2010 Chemo girls are in Orlando celebrating our 2nd year of finding each other and getting on with life. We are survivors and thrivers, Still supporting each other through the highs and lows of the bc journey. Long live the Pearls of June!

lizzyanne

So glad to see that you are still getting together. I have been feeling great. Some issues with reconstruction but I have enjoyed being able to play golf again and feel like I am getting on with my life. Returning to CT this week from our winter in AZ. Have all my tests lined up when I return. Staying positive...

Hugs to you all



Liz

grneyd5600

Hi All.  What a wonderful week of sisterhood in Orlando!  I am so blessed to have you all in my life.

 Thank you for making the trip.

Jackie

flopsy

Can not even begin to describe the awesome trip to Orlando.   I had to keep pinching myself to make sure we were really there.   I had a great trip and am looking forward to many more with my chemo buddies.

cheyenna

Bump

kaycee

Hi all,

I'm just checking in, in need of a little reassurance. I've been feeling fabulous since treatment ended, and have truly been enjoying each day. All my check-ups have been good up till this point.

It may be nothing (crosses fingers) but I found a lump in my "cancer boob" a week before Christmas. Called my MO who was on vacation due to the holiday, but saw her nurse practioner the same day. The NP sent me off for an ultra sound at one of those stand-alone radiology centers, and the technician there assured me that the lumpy thing didn't look like malignancy to her, and that I would get a call from my MO's office after the radiologist read the test.

A couple weeks passed without a call. I figured no news is good news, and it was after all the holiday season when people were off. My dear husband badgered me until I gave up and called the MO's office again. I spoke with the nurse practioner, who apologized profusely and tracked down my results.

The report was as expected, but suggested a mammogram follow-up. I was due anyway, so had my mammo appt. yesterday at St. Luke's. I had a 3D scan (new) which is supposed to give the radiologist a better view. I then had another ultra sound, the radiologist came in and double checked the scan, and decided she needed to do a biopsy.

Because I am on a low-dose aspirin regime, I have to get that out of my system, so the biopsy is scheduled for next Tuesday.  I know it could be scar tissue and/or that the St. Luke's radiologist is just much more cautious than the first rad doc, but I have to admit the idea of going around with this again has me spooked.

I'll report back if anyone is still around this thread after pathology comes back, probably the end of next week.  I must say, I am so happy that I had to scroll eight pages back to find this thread -- it must be that most of the June 2010 gals are doing well and living and loving life.

Thanks for listening. Just putting it out there makes me feel better. 

Hugs,

Kaycee

lizzyanne

Hi Kaycee

Glad that so far you are getting negative results. Will be keeping you in my thoughts and prayers that it is good news.

I have been doing well. My next blood work is next month. Keeping busy and enjoying playing golf here in AZ.

Hugs

Liz

kaycee

Thanks for the reply, Liz! It's good to hear that you are doing well. I wish I was in Arizona on a golf course with you

I have good news. The path report came back negative on my new lump. The doctor said that the area is a fat necrosis, which probably formed from radiation damage to the area. I knew nothing about fat necrosis, but learned that it's fairly common for breast cancer patients to develop, and that it strongly resembles malignacy on mammos and ultra sound. If it is so common, I wish that my RO or MO had told me about the possibility during treatment. Maybe I would have freaked out (a little) less when I found the lump. 

Thanks again, especially for the prayers.

Hugs,

Kaycee

lizzyanne

So glad that it all turned out GREAT for you. I am always amazed at the little things that come up and scare us because ...no one ever told us.....

This is a continuing and hopefully very long journey.

Hugs

Liz

kittycat

Kaycee,



That is great news!!! Congrats!

Dawn46

Hello everyone! I should be posting in the July 2010 chemo group but couldnt find them.

I had a question and didnt know if anyone could answer. The past couple months I have been having horrible pain in the arch and heal of my right foot. I have not tripped or did anything that could have injured it. Is it possible to develope nueropthy almost 3 years post chemo? I cant even stand in the morning it hurts so bad. I have to make an appointment with my oncologist but wanted to get your opinions first. I still suffer from chemo brain which my dr doesnt believe too much in. Thank you!

lizzyanne

Hi Dawn - I have neuropathy in my toes that sometimes spreads up through my foot and calf, but I have had it from the beginning. I thought it would get better but it is still with me - some days it hurts more than others. The worst time is at night when I am trying to get to sleep. It has also woken me up on occasion. I choose not to take any drugs for it because the side effects of the drugs seem to me to be worse than the neuropathy. 

Hope you can get some answers from your oncologist.

Liz

Carrol2

Dawn I am from the october 2010 chemo but I watch this thread cause you ladies were always ahead of me so I knew what might be coming. I have the same pain your talking about. Sounds like it could be what I have, plantars fasciitis especially if your first steps in the morning are the most painful. I had never heard of it before. Get good shoes with good arch support that fit properly or inserts. If you google it you can find all kinds if things to help with it. I do stretching exercises with a ball that really helps. I thought that I got this because I work in retail and I am on my feet a lot but now that I am reading your post I think maybe it's that plus the fact that I had chemo, maybe also the Tamoxifen I am taking. Good news is it can go away, bad news is it takes a few months and it can flare up again if you wear the wrong shoes. Go to a good shoe store and get your feet measured to be sure your in the right size, I was wearing mine too tight. 

anyone else have this?

Dawn46

Thank you ladies very much for the info! I am going to research plantars fasciitis now. I feel like I'm falling apart now at age 49. lol