Staying Healthy, Staying Strong, Staying Young
Comments
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Nordy, thank you so much for posting that information. It always helps me to read up-to-date recommendations from a reliable source -- even if I'm not always happy about what I'm reading!

otter
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Excellent info', Nordy! Thanks so much for sharing it! Deanna
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Thanks Nordy.
Actually, I do a lot of strength training as well, so am quite muscled and buff. And I walk enough hills so I don't worry about cycling either.
One other thing I want to point out. You should actually enjoy doing at least some of the exercise you do. I loathe doing weights/crunches in the morning, but they don't take much time out of my day. I love cycling and skiing, so fun as opposed to "exercise".
If I had to rely on a gym to get my exercise, I would look like a porked up sloth. However, a lot of people love working out in a gym.
Exercise or dance classes aren't my thing either. I would also personally rather walk in howling rain and wind than in a mall. Something Byronic about being out in the elements.
So a lot of the secret is figuring out what you enjoy, and then doing it.
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Claire - I consider cycling fun also... and skiing as well, although since we have been teaching our kids the last couple of years, snowplowing has become a chore... just looking forward to the day (think it will be next year) when my youngest is making s-turns and stopping on her own. My oldest reached that point this year and it is awesome! And yes, I agree, you have to find what works for YOU! Some people do better if they have a walking/running/cycling/exercise partner. This is two fold as not only does it give you someone to socialize with, but also gives you someone to be accountable to if you don't show up! I personally like to run alone, although I do enjoy that running with someone faster than I will make me improve my speed. As for cycling... the bigger the group the better! I don't really need someone to talk to, but I always think "safety in numbers" out on the road! Group ex classes are great for someone that really needs that push. I am not really big on them... but I have to say that I took a Zumba class and it was a lot of fun. I sweated bullets, challenged myself, and that hour went by so quickly!
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When I first started exercising I definitely needed the group accountability thing. Now that I know I'm going to exercise, I mostly like to go it alone on my own schedule. Although sometimes it is fun to walk or bike with a friend ( we can get in visitiing & exercise at the same time). I've been tempted on a Zumba class.....
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This is a great thread, Claire. Thanks for posting it and to all who have contributed!!!!
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Nordy: Thank you for that information about osteoporosis. After a bone scan, my onc told me I had osteopenia. Do you know if this means I will get osteoporosis? I was wondering what doctor I should go to about this, maybe my family physician?
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Osteopenia is not osteoporosis, but is the start toward it! Kind of like being pre-diabetic. There are things you can do to try and build back bone and keep it strong - such as the exercises I mentioned and eating right. Some people never develop osteoporosis, event though they are osteopenic - but you will have to work at it. You may want to talk to your family MD/internist about it and see what he thinks you can do as far as exercise. If you are already pretty active, you can probably stay active and add on some of the resistance work, but if you haven't been active, it is good to get clearance ahead of time. You can also talk to your onc about it and see what he/she has to say. Good luck! I am osteopenic also and try to stay active to fight this every step of the way!
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I think it depends more on where your T-scores lie Lynn. Because "osteopenia" is anything between -1 to -2.5. Anything greater is osteoporosis.
So do talk to your primary about this. I do know that it is highly unlikely for patients with normal bone density to go all the way to osteoporosis. But quite common for those with osteopenia.
You should know your T scores.
In your shoes, I would learn the real deal, and then go out there and walk my buns off. And lift weights. And take any meds recommended.
This goes back to staying strong. Good luck.
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I started walking and then running about 18 months ago. Before that, I was busy chasing four kids, but never really exercised in a regular way. Sure, I gardened, played with my kids, and worked hard around here, but it wasn't "me" time - it was just tiring. About a year and a half ago, I saw Biggest Loser for the first time. (yes, I dont' watch much TV but my husband got into it) and I thought of THOSE people could bust their butts, so could I! I started walking and running just 15 minutes a day with my Ipod on (essential - absolutely essential for me to have the music - being ADD, I get SUPER bored with any exercise routine if I don't have a distraction!)
Now I'm up to about 45 -50 minutes a night and I incorporate in that my "driveway" routine, ab crunches and some butt exercises and strength training. I usually do about five nights a week.
Yesterday I went to the cardiologlist for the first time. Having lost my dad in February to a heart attack without any warning, I wanted myself checked especially after chemo. There is no evidence at this time of damage done by the adriamyacin and I passed the stress test with flying colors. The doctor said my cholesterol levels were fabulous and said he wished his were as good.
I ran through chemo when I could - so I didnt' lose too much muscle. I was out exercising 2 weeks after my mastectomy.
My advice is to find something you love to do. If you hate aerobics inside in the living room, like I do, then don't do it! If you like being outside, find your niche there. If you hate running but love Richard Simmons type stuff, then do that - or join a gym or class if that's your thing. Personally I cannot exercise in the morning. I just can't do it - but I find around 7:30 at night I'm ready to tie on the running shoes and go! I am in better shape physically now than I was before I was diagnosed. I wasn't able to tolerate tamoxifen, so I live with the fear of a recurrence and that's what gets me outside and running every night.
I will tell you that if nothing else, it gives you back a feeling of empowerment. Cancer takes so much from us; as I tell my friends, this is my way of shoving my foot up cancer's behind! I struggle a lot with fear of recurrence to the point that I get myself very worked up, and this helps boost my endorphins and clear my head.
Great thread - I never saw that study before and it's very interesting!
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Cala- Where is the "Like" button when you need it?
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Nordy and Claire: Thank you, I will check with my primary about osteopenia. I walk several miles each day and I would like to start running. I have not done strength training since my dx, I hope I can start that without problems.
calamtykel: How great to hear you are in better shape now than before you were diagnosed! You are a great role model.
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Just a reminder that everyone reading this thread should be getting out there today.
I am off to see the nude cyclists in a couple of hours. Not the longest of rides, but have a 40+ mile training ride with a friend planned for tomorrow. So think I am off the hook. I will be doing one long ride the next two weekends leading up to the Seattle-to-Portland.
All I can say with strength training Lynn is start easy. I know I was relatively fit when I resumed after a two-month break and I needed to start easy as had favored my surgery side.
My healthcare provider is a major sponsor of cycling/running/triathlon events here, so I often get discounts. They even have a separate fitness web page. They view it as part of preventive care.
I think they believe they get their investment back, not just in terms of additional patients, but in lower medical costs.
The great news is that they supported my desire to exercise throughout treatment. Funniest was when my internist wanted to make sure I had given my radiation oncologist a hard time for NOT doing the Seattle-to-Portland last year (and I had done it). I assured him that I had not missed this golden opportunity.
Anyway, have a blast out there exercising. - Claire
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It is a nice rainy day here... like normal. Only rode 20, but ran 5.3, so I am happy to have gotten out there, but sad that I didn't get to do the 75miles with 3500' vertical today. What can you do??? Claire - do you ride STP every year? I did it in 09 - it was my first major ride and I did it in one day with the longest training ride up to then had been 34 miles. LOL My brother didn't think I could make it. I kept thinking, "If Lance can come back from cancer and win the Tour, I should be able to do a measly 206 miles in one day." It worked. Mind over body. But since then, I haven't had the desire to do it again... there are plenty of other rides out there! Next weekend is the MS century in Utah and we are doing that. We have a great team, so it should be a blast.
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Claire you crack me up. Thanks for the reminder to get out there! I am just getting back from a long exercise break, but have a 5k registered in 2 weeks, then my first sprint tri at the end of July. I have positively no idea what I am doing in the tri, but figured I need to set a baseline somewhere!! I have Lance's book..very inspiring. All my friends wore pink bracelets during my treatment (didnt have the heart to explain about how little pink really does). At the end of treatment...we replaced those pink bankds with yellow LIVESTRONG ones!
I also start the neratinib trial this week..hopefully that doesnt take too much wind out of my sails!
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Thank you for starting this thread, Claire, and thanks to all of you who have contributed to it! I NEED this thread!! I feel empowered and motivated for the first time since my exchange surgery nearly 5 weeks ago. I'm having my post-op visit with my PS on Tuesday and I'm hoping to get the green light to start doing some sort of weight training and cardio.
Especially since exchange, I've been so scared to "bounce" or "lift" because I'm afraid my incisions will open or my foobs will shift or I'll otherwise mess something up. I haven't done ANYTHING other than walk at a moderate pace. I'm literally watching my body become more soft and flabby every day and feeling a little depressed as tamoxifen works its way through my body for the 2nd full month. Not sure if the chemopause hasn't also been contributing to my changing body and, of course, my fears of lymphedema.
I know how GREAT exercise makes me feel and how good it is for us so doggone it, I am going to go for a good brisk walk right now! Thanks again and please keep these positive posts coming!!! :-) -
I may be off exercise for a while as wiped out on my way to the Solstice Parade. Hit my ankle bone and ankle is huge. Think just a bruise.
Just took a bath to soak the rest of my scrapes and cuts. Have grown quite the cankle!
So not sure about Sunday's ride. However, I did walk at least a mile today and have a supermarket run to do.
Fortunately, one of my neighbors came and rescued me as could not have cycled home.
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Oh Claire_in_Seattle, I'm so sorry to hear of the fall. I hope it is just a bruise. Put ice on it anyway.
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Thanks. I think it's a bone bruise from hitting my ankle bone on the pavement. I also have a scraped knee and scrapes on each hand. Tore a hole in the knee of my cycling tights. Fortunately, too cold for shorts or would have been a lot more scraped up.
I hit the crack in the pavement I always forget about. Was feeling great as had a really easy climb up what used to be a difficult hill. Anyway, hit it the wrong way and my front tire skidded out from under me. Fortunately, no real traffic. One guy stopped and helped me. Made sure I was OK. No worse than shaken up.
I would have been fine if it hadn't been raining.
I went to the parade anyway as almost there. I can't imagine how cold the nude cyclists were. (It's really fun here as body paint is really an art form.) I had on two sweaters and a wind jacket and was cold.
The best was when one of the nude cyclists said "Welcome to summer". Was really funny as hardly "summer weather".
Hope the rest of you have better "outside weather". - Claire
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Oh, Claire. I am sorry about your wipe out! That stinks. I hope all the swelling goes down. You are right in resting and icing - also elevation and compression will help. (Think RICE). I can't believe anyone was outside cycling in the nude today! Good grief! And really - I don't think summer is ever going to get here! Thank goodness for gear!!!
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So sorry about your tumble, Claire! Sounds like a painful fall, but it also sounds like it could have been a lot worse, and I'm thankful it wasn't. Rest and heal up. Deanna
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Claire, hope the bruise heals quickly so you can get back on the saddle! Glad you still had fun at the parade.
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Claire: Sorry about your wipeout--wishing you a speedy recovery.
I will start easy with the strength training. I have some light weights. To be honest, I don't even have my sleeve yet---that's on my list of things to do.
Nude cyclists? I think I saw them on the news. That would be something to see!
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Claire, did your accident happen because you were distracted by the NUDE cyclists?
I would crash for sure! -
No, they were later. I just had to watch them. Really, really creative body paint. I posted a couple of pix on another thread. (But no "weiner shots".)
I am fine as long as I don't do any major walking or cycling. So finally an excuse for vegging on a Sunday.
I felt sorry for anyone not able to wear several sweaters or a heavy jacket. Hope it will be warmer and dry next year. Some people from my healthcare center were in the parade. So painted-on nurses' uniforms. Very very funny. - Claire
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Bump......
Even with my sore ankle, I still walked two miles yesterday and did all my exercises. Just didn't do the long ride on Sunday.
So a reminder to get out there. Won't be difficult as we have sunshine.
I think I will be OK by the weekend to cycle again. Especially if I find the right ankle bandage.
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Claire: Great that you can still get a couple of miles in with your sore ankle. I walked several miles this morning--
Can I ask those of you that do strength training if you wear your sleeve everytime you work out (those who use a sleeve)?
I will check out your pics, Claire, of those cyclists.
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Claire, you're such an inspiration! But don't overdo it! Even world-class athletes need time to rest and heal after an injury. Deanna
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World-class athletes take steroids! Lol!
I don't have lymphedema. Stupid question: Do sleeves prevent lymphedema? Nobody ever told me to wear one. -
I don't have lymphedema and I don't wear a sleeve. I don't do heavy lifting.....10 pounds max. If you are a serious weight lifter then it might be different.??? I know a poorly wrapped arm can do more harm than good, and I don't know that even wearing one correctly will prevent it if you are prone to it. (Of course if you already have LE then you need to work with a specialist on what precautions you need to take so it doesn't get worse from exercise). Toning actually helps strengthen the lymph system.....so it is something we all should be doing (start slow, put it into your regular workout schedule etc.)
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