how long did you wait from dx to surgery?

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cosbon
cosbon Member Posts: 12

Hi everyone!   I was diagnosed with DCIS, grade 2, small lesion (about 1 cm) in my right breast.  I was diagnosed on Sept 9, (after having diagnostic mamm on 9/1 and biopsy on 9/7).  I am having surgery on Oct. 12.   My doctor tells me that is fine to wait that long, but I'm still nervous, as it seems from reading the forums that many people had their surgeries within a couple of weeks.  I wanted to get feedback and find others have done, and some reassurance that is ok to wait that long! Thanks!

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Comments

  • lago
    lago Member Posts: 17,186
    edited October 2010

    I had to wait 1.5 months from my biopsy and I had IDC, 5.5 cm tumor (although they thought it was 7cm before surgery) fast growing, Grade 3, agressive, HER2+!

    Thing is even fast growing cancers don't grow that fast. I know in the case of IBC they get you in ASAP. If there was an issue they would get you in sooner.

    But yes I hated the wait and was scared. After surgery I was much more relaxed… well until this past Tuesday when they told me chemo starts next Tuesday ;-)

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited October 2010

    I was diagnoised on Nov 16 and my first surgery was Feb the following year.  I really wanted to know all that I could and meet as many doctors as I needed to feel comfortable with my decision.  Plus I did not want to deal with the holidays being sick.  It worked fine for me.

  • flopsy
    flopsy Member Posts: 365
    edited October 2010

    cosbon, My surgery was 3 weeks after my diagnosis and I had a Stage 3A with 5 positive nodes.  During the wait my Dr. got an MRI of both breast, Bone scan, and CT of chest,abd, and pelvis done so that we would know if there was anything else.  I opted to have a Bilateral mastectomy as I had really dense breast that were hard to read.  My cancer was not like yours but I think the wait is not so long but if you want to move it up I would ask the office and keep asking and they may move it up for you.  I know the stress and anxiety of waiting is awful and I feel for you.

    I recommend you use this time to get familiar with your diagnosis and get things in order.  Start a folder with copies of all your test results and document office visits and info with each visit because once things start it does sometimes become overwhelming.  Good luck with everything.   I am sending a big ((((((CYBERHUG)))))) to you. 

    Lago-Hate to hear you are starting chemo but just remember that so many of us have already completed that journey and we made it.  It is hard to make yourself accept this treatment because it is tough on you.  Rest as much as you can and when people ask what they can do give them something specific and it will help them feel they are doing something good for you.   Hope things go well for you and the treatment time seems to just zip by.  LOL, Ginny

  • don23
    don23 Member Posts: 512
    edited October 2010

    I had to wait six weeks from the time I was diagnosed to the time of the surgery. I had a bilateral with reconstruction so the two surgeons had to coordinate their time. I was a nervous wreck just like you. I was told that is OK to wait that long. My tumor was 1.8 cm. If if weren't for this forum I wouldn't have probably made it through. It did give me time to research my particular type of cancer so I was well informed by the time the surgery came. Hang in there!

  • cosbon
    cosbon Member Posts: 12
    edited October 2010

    I am having a mastectomy, not because of the size of the lesion, but because of my strong family history of breast cancer, and I am 50 years old (about the time my mother died of the disease.)  I am also having reconstruction at the same time, and thus like you don23 I have to coordinate with the ps and the bs.   I also consulted with 3 surgeons and 2 plastic surgeons in the first few weeks, and by the time I chose my doctors (at Rush University) any sooner dates were unavailable.    Thanks for sharing your stories, and I wish all of you good luck!  

    Any other woman, particularly DCIS, who waited this long???  Thanks all!!   

  • don23
    don23 Member Posts: 512
    edited October 2010

    Wish you all the best!

  • lago
    lago Member Posts: 17,186
    edited October 2010

    Cosbon I'm being treated at Rush too. Just sent you a PM.

  • DMS
    DMS Member Posts: 51
    edited October 2010

    I have DCIS, med to high grade.  I was diagnosed on June 18 and had my surgery on July 19 and didn't start radiation until September 1. I was trying to decide between two very good surgeons, a man and a woman and made my choice based on first available appointment ( a two week difference).   I was anxious to get it out even though  intellectually, I knew I could wait.  

  • mathteacher
    mathteacher Member Posts: 243
    edited October 2010

    I took two months to thoroughly research my options. It made a difference in my final decisions. I'm glad I took the time.

  • ginger2345
    ginger2345 Member Posts: 517
    edited October 2010

    AS you can see from the above posts, waiting with a dx of dcis won't impact your surgery or chance of recurrence. And you are waiting just one month--that's not too bad ,except for what is naturally your anxiety. I concur with the above that there's much to learn and knowing more going in is helpful in all the decisions that lie ahead.

    The doesn't make waiting easier, so keep busy and knowing that your dx is not life threatening and finding  your ca at this early stage is already insuring the best outcome for you.

    You are less than 2 weeks away and it is okay to wait that long. Hoping for the best for you.

  • SJW1
    SJW1 Member Posts: 244
    edited October 2010

    Cosbon,

    With DCIS you can wait several months to have your surgery without it being a problem. Because it is non-invasive, it can't leave the milk ducts and invade the rest of your body.

    I waited for 6 months to have my lumpectomy.

    Best wishes with your surgery,

    Sandie

  • Laurie08
    Laurie08 Member Posts: 2,891
    edited October 2010

    I was diagnosed 4/22 and had surgery 6/30.  As someone else said, it took two surgeons and they had to coordinate schedules.  Waiting is very hard, but it does give you time to plan your surgery choices, reconstruction etc.  I thought I knew what I wanted and after research made a lot of changes.  The time allowed me to be confident in my choices and not feel rushed.  Best of luck to you.

  • sweetaerobabe
    sweetaerobabe Member Posts: 319
    edited October 2010

    I was Dx Aug 17th and having surgery the same day you are. Oct 12th. A partial mastectomy and SNB.

  • cosbon
    cosbon Member Posts: 12
    edited October 2010

    Thanks everyone for your responses.  Today is Saturday, and I am having surgery a week from Tuesday. Of course my 12 year old son has a nasty nasty cough and I'm doing my best to keep his and my hands clean, and him away from me, but it's going to be tough.   If I get sick there's no way they'll do that surgery on me.  I also need a root canal I think on  a tooth.  The BS said it would be fine if that is done on Mon or Tuesday of next week, as I'll have a week to heal from it.   Laurie, it sounds like you and I have a very similar tumor, and we are making the same decision (bilateral mastectomy) because of our family histories.  My mother died at 51 years old.  I just keep thinking how happy she would be that mammograms can detect so early now.  She passed in 1978 befor mammograms were wide spread.  I am very afraid that the biopsy was wrong and that there is some IDC in there, but the doctor said that is 'very unlikely'.    Thanks Ladies, you are all amazing. 

  • momof3sofar
    momof3sofar Member Posts: 123
    edited October 2010

    I was diagnosed on Sept 14th and I don't even meet with my PS until Oct 13th to discuss options.  I don't expect to get a surgical date until late Oct or early Nov.  I am not thrilled with waiting but it is what it is.  Good luck on the root canal, staying well,  as well as the BC surgery, sounds like you've got your hands full right now.

     Dawn

  • barbara510
    barbara510 Member Posts: 19
    edited August 2013

    I was diagnosed with DCIS on May 13, 2010, had a lumpectomy on May 21. Two days before the surgery I found a second lump. This is after a mamo, MRI and ultrasound didn't find the second tumor. They removed it during the lumpectomy, and it was dcis as well. That's when my recommended treatment went from lumpectomy with rads to mastectomy. I have a strong history of breast cancer in my family, so I decided to go for a BMX. 

    I waited until 9/20 to have the BMX. Dr.s said it was okay and I wanted to wait until my kids were in school. It was a long time to wait, but it gave me time to prepare, talk to other doctors and really reflect on my decision.

    No regrets. Very RELIEVED it is over, still healing, but the end it near. I am happy my new boobs too. The PS did a great job.

     Good luck! Barbara 

  • Susie123
    Susie123 Member Posts: 804
    edited October 2010

    I was diagnosed 3 days before Christmas. My surgery was Jan 21. I think it's pretty normal to take a month or so, but when you're waiting, and you've been told you have cancer, you feel like they're moving at the speed of snail, and you just want it out of you, now!

  • sweatyspice
    sweatyspice Member Posts: 922
    edited August 2013

    Diagnosed in August 09, surgery end of Jan 2010; so surgery was six months after diagnosis.  Multicentric high grade w/ necrosis.  It was still all DCIS at surgery, but I was starting to get nervous that I was pushing the envelope.  However, that's how long it took for me to decide what I wanted to do, find the right Dr.'s and get the thing scheduled.

  • cosbon
    cosbon Member Posts: 12
    edited October 2010

    Thanks all for your replies.  You've calmed me down quite a bit.  Good luck to all!!

  • speech529
    speech529 Member Posts: 337
    edited October 2010

    Cosbon,

    I was diagnosed March 27 and had a lumpectomy on June 2; needed more excision and rad, but opted for a uni mx on June 28.  DCIS is not an emergency, although it feels like one!  It's a blessing to be able to take time to find out as much as you can, get a variety of medical opinions and figure things out in your own mind and heart.

    I had immediate reconstruction with my mx.  I wish you success in your treatment!

  • Bailee4
    Bailee4 Member Posts: 20
    edited June 2011

    I was diagnosed April 6 and am still waiting for surgery.  Having a really hard time tonight cause I'm told that the surgeon will be busy for another month before I can have my surgery.  Feeling kinda neglected and like there's no one in my corner.  On top of that I have had plans since November to take 10 teens on a trip to Washington DC for a missions trip and that falls right in that time slot.  Will have to send someone else in my place. I gotta tell you that it's been a long time since I've felt so low.

  • CandDsMom
    CandDsMom Member Posts: 387
    edited June 2011

    Hi Bailee-

    So sorry you are having to deal with this. Any chance of switching to a different surgeon? Or calling the surgeon's office and demanding to be done sooner? The good thing with DCIS is that you do have time, but I can definitely understand wanting/needing to get this part of it behind you.

    (((hugs))) 

  • Bailee4
    Bailee4 Member Posts: 20
    edited June 2011

    Thanks CandDsMom,  I'm afraid I'll have to start all over if I switch surgeons. Had a rough day yesterday because I'd been holding it together for so long.  I'll see the surgeon next week again and beg for a sooner date.  Thanks for the hugs.  Venting helped.  

  • Blinx
    Blinx Member Posts: 280
    edited June 2011

    Baillee, can you have surgery after your trip? I know you probably want this to be done with, but maybe it would work out better?

    I had my first biopsy on July 3rd, and surgery on Sept 25. In between, I had MRIs and MRI-guided biopsies. Those were tough to schedule in the summertime, with everyone's schedules. I was a basket case near the end and just wanted it to be over with. Didn't finish rads until January. A much longer journey than I anticipated, but it could have been much worse.

  • Bailee4
    Bailee4 Member Posts: 20
    edited June 2011

    Surgery date is now June 29 with wire insertion and SNB on the 28th.  Surgeon says I will be able to take that 13hr drive to Washington on July 15th so hope he's right.  Will I feel well enough?  Hope so.  If not I'll send someone else as this is most important.

  • mpwilkinson
    mpwilkinson Member Posts: 3
    edited June 2011

    I was diagnosed in June 2007, had a lumpectomy in July 2007.  Margins were not clean, so was told I needed a unilateral mastectomy.  It took me a long time to accept it, and then we had to coordinate schedules between the bs and the ps - so my mastectomy was not until January 30, 2008. 

    Baillee4 - my experience was that I would not have felt well enough for a trip like that 2 weeks after surgery.  It depends on how fast you recover (surgery makes you very tired), and how many drains you have.  I had only 1 drain (thank goodness), and was able to have it taken out 9 days after surgery.  I was off work for 2 weeks basically resting on the couch.  I went back to work (a desk job and I am able to work from home), but remember getting tired easily.  My job also requires travel, and I waited 6 weeks before I took a trip.  Primarily because during the first 6 weeks after surgery you cannot lift more than 10 pounds, and my luggage would have weighed more than that. 

    Of course, everyone is different!

    Best,

    Patti

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited June 2011

    Diagnosis: March 27. Surgery: April 9 (tumor/node excision and BMX).

    I rushed things, though, because I wanted the cancer out yesterday. Therefore, my plastic surgeon was not able to make it on such short notice and I had tissue expanders put in at a later date. I could have waited without my condition getting worse, I'm sure, but I didn't want to sleep one more night with a palpable cancerous lump. Call me old fashioned.

  • Robinsegg
    Robinsegg Member Posts: 22
    edited June 2011

    Two months. I did a lot of research on DCIS. I might have moved faster if I had a different diagnosis. I saw my neighbor suffer with lymphedema because she rushed into surgery so I was very careful.

  • cycle-path
    cycle-path Member Posts: 1,502
    edited June 2011

    Bailee, what surgery are you having on the 29? Lumpectomy and SNB? Are you the person driving to DC? Will you be the only adult on the trip? How old are you? Is your stamina pretty good and are you in good physical shape other than BC?

    If it's only a lumpectomy and SNB, and if you're not the driver, and if there's another adult going along, I think you might be able to manage it if you're in good physical shape now and have good stamina. Otherwise I would definitely cancel it.

    I think 2 weeks is a little short. I think I might have done it after 3 weeks but not after two.   

  • kmccraw423
    kmccraw423 Member Posts: 3,596
    edited June 2011

    I concur - two weeks is too short.  My DCIS was diagnosed on October 3 (breast cancer awareness month - of course!) and I had a bilateral mastectomy on December 19th.  As with most others, it was hard to schedule two doctors' schedules plus the availability of the hospital.  And in between diagnosis and surgery I went for a second opinion at Georgetown University Hospital.  I chose Loudoun Hospital because my sister is a hospitalist there and I knew I would get a private room and really good care as she is well-liked by the hospital personnel.  She had an oncologist, my primary care physician, a physician in palliative care, the infectious disease doctor, the breast surgeon and the plastic surgeon in to see me!  I think I was covered!

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