April 2011 chemo

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  • scc218
    scc218 Member Posts: 163
    edited June 2011

    I LOVE the idea of the Fast Forward button!  So perfect.  I'll fast forward to December when all the treatment will finally be done and I can move on with life.

    Artiecat -- So glad you can take the time off and you have a supportive team.  I'm finding the work thing a bit tough during chemo.  I'm a self-employed medical transcriptionist and they need their reports.  Fortunately, I've found some people to help me out a bit, but I still have some rough days.  12 hours of typing today.  I have about 8 hours to do tomorrow, but I can't do it because I have chemo.  I'll have to come home right after chemo and do some more work.  Hoping I don't feel too crappy.  At least I work from home, so I have some flexibility in my hours. 

    My last A/C is tomorrow and the last Neulasta is Friday.  Can't wait to kiss that regimen goodbye.  On to Taxotere in 2 weeks, which they say is milder, and I hope they're right.

    Thinking of you all.......

  • shoema
    shoema Member Posts: 27
    edited June 2011

    My onc told me to take zinc for the metalic taste. I still have some yuckiness, but it doesn't seem as bad and is pretty much gone after the first week.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    Wow, Merilee - DONE? Congratulations in advance! I have to admit I'm a tad jealous, since I get 21 more infusions and won't finish til September 2012. My oncologist yesterday called it "a marathon." Thanks for the white light.

    The TDM1 was pretty easy compared to AC. I'm tired and achey today, but nothing compared to the AC hangover. Now let's hope it's working!

    Ginger and profbee: I have a paraffin wax machine for soothing hands and fingers. I wonder if something like that would help with the neuropathy? And I love the vitamin E suggestion if it works.

    Blessings to all today.

  • Merilee
    Merilee Member Posts: 3,047
    edited June 2011

    Yes to the wax question, at least it is helping for me

  • axtella
    axtella Member Posts: 88
    edited June 2011

    I'm right behind KG with starting Taxol today. I also have had a nice chemo break as my onc decided I wasn't going to have the last AC as the SE's were too much on my blood counts.

    I thought I would start Taxol yesterday but it requires steroids 12 hours prior to treatment so I am off to get treatment 1 of 4. 

    I'm still amazed my hair did not completely fall out even though I had my head shaved. It's also continuing to grow back in...DARKER and is about 1/4 long now. I must say I really enjoy wearing my scarves vs my wig!

  • artiecat
    artiecat Member Posts: 257
    edited June 2011

    What does the wax do?

  • Merilee
    Merilee Member Posts: 3,047
    edited June 2011

    Warms the bones and  holds in moisture. I slather on coconut oil before I dip. I have had  very dry finger tips since I started. you can cover the wax on your hands with baggies if you want to keep it on a while. The other thing I do is I slather on coconut oil, put on an old pair of white gloves from the good will and then put my garden gloves on to go out and work in the yard. By the time I come back in, my hands feel great. I have done my feet as well. Such a nice little self love thing.

  • kg1234
    kg1234 Member Posts: 95
    edited June 2011

    HI ladies ...mmm... where does one get a paraffin wax machine?  I'm going to have to case that out.  Are they expensive?

    Merilee, I have been working in my yard too....didn't think to wear old white gloves...my hands are completely dry.  Great tip!

    It's thursday...I had treatment on Monday.  I feel okay.  Last night I had the bone aches (similar to neupogen) and I still have some this morning....it's funny, because the bone aches move around.  I really hope this is not cummulative or else, I'm really gonna be hurting by say treatment #11.  Other than that I am eating well, feel okay and generally just tired~~but completely manageable compared with AC.

    Windlass...glad to hear your treatment is treating you better already.  I'm jealous as I have a friend in town who is done her chemo .....I'm so happy for her it hurts --she had AC too (I'm also happy for you too Merilee!!) however, it's hard when you have a longer road. 

    Bring on the self-love!!!!! One thing that has helped me is a Pandora bracelet, which a dear friend gave me, and she gave it to me with a breast cancer ribbon charm on it.  Since then, after each treatment, surgery, etc...I have purchased new charms.  For each AC, I got one charm...since I have 12 taxol, I am going to treat myself to 1 charm after 4 treatments. It's just a little something to remind mysel what I've been through.

    Anyone out there with tips on treating yourself to nice things?  What are you doing to get through treatment?  

  • KiwiMum
    KiwiMum Member Posts: 704
    edited June 2011

    Good luck everyone starting Taxol.  I have one more AC before I switch to Taxol. I'm very keen to hear the difference in SE's.

    I am sick and tired of AC!  I hate being tired, I hate feeling sick, I hate having no hair and I hate that horrible taste in my mouth.  I've spent the last week feeling quite cross about the treatment. The end still seems a long way away!  I've worked out that if everything continues on schedule I'll have my last chemo on the 27th of September.

    I will then have 5 weeks of daily rads to look forward to.  Sigh!!

    KG1234 - what a great question.

    What am I doing to get through treatment?  I am rewarding myself after every chemo.  So far I've bought Earrings for #1, Shoes for #2 and a Handbag for #3.

    As I also have 12 x Taxol ... do you think 12 x Treats is too many?  lol 

  • Merilee
    Merilee Member Posts: 3,047
    edited June 2011

    Kiwimim

    I'm with ya I hate ths crap! Here's  a hug.

  • Sarah246
    Sarah246 Member Posts: 53
    edited June 2011

    Kiwimum & Merilee I hate this cancer also and all the meds and side effects.

    I had my third treatment and feel it was the worst. Rashes and bone pain, diarrhea and tiredness, fungus been kicking my butt. I'll be going soon to get my port fixed so I don't have to take this medicine through my arm veins anymore.

    We must keep fighting.

  • Merilee
    Merilee Member Posts: 3,047
    edited June 2011

    It seemed like the side effects of #3 lasted longer. I was still feeling like shit yesterday and that was 9 days out.

  • KiwiMum
    KiwiMum Member Posts: 704
    edited June 2011

    Hope you feel better today Merilee.

    Here's hoping for a better #4.  We deserve it.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited June 2011

    Hi everyone, took me much longer to get over 3, my mania was off the wall.  Hope the next one is easier.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    I think the mania comes from the steroids. I was super hyper and started having heart palpitations so badly I called my oncologist in a panic. Then I discovered that *I* had been taking additional steroids and not even knowing it! Decadron is the culprit. I had no idea it was a powerful steroid! When I dropped it from my post-chemo regimen and just used the other drugs, I had no problems with mania or heart issues.

  • artiecat
    artiecat Member Posts: 257
    edited June 2011

    I didnt bounce back as well after #3 either.  Finally yesterday I felt better and it's #4 on Wednesday!

  • seeay
    seeay Member Posts: 56
    edited June 2011

    I hear you all ladies - loud and clear! Hate this  - all of it, but my mantra is "Just keep swimming...." TCH - Round 3 was the worst so far - SE started earlier and lasted longer. The Carboplatin was causing a lot of hearing loss so I was switched to cytoxan. Perhaps that's why it was worse???? Halfway through - woot woot!!!! I figure if I can get through the next one, I can do it. WE ALL CAN!! When I am discouraged and think I will never resurface from this crap, I look at my 2 children and tell myself, YES I CAN!" Just keep swimming, fellow fighters! When we are all done, I am hosting Boobiepalooza and you all are invited!!!!!!!!!!!!!!!!!

  • Merilee
    Merilee Member Posts: 3,047
    edited June 2011

    Seeay count me in. My grown Down syndrome  son is my inspiration too. All I need do is think " what would become of him without me ?" and I snap into determination mode instantly.

    Articat-almost there! I am exactly one week behind you. Lets plan on 4 being a walk in the park.

    I am feeling better today but I think I have cried about 10 times today. Just letting it flow and carrying a box of tissue. Good for the soul once in a while I think.

  • panamajayne
    panamajayne Member Posts: 136
    edited June 2011

    Hello new friends, this is my first post.  I had #4 and last AC on May 30th,  exhaustion is really the only side effect I am experiencing, no nausea  because I am given an IV bag of anti nausea med, .  and amazed I still have my hair.   I start Taxol June 27th once a month for 4 months.  My ? is:  Taxol side effects less, more or the same as AC.  

  • Sudzinvermont
    Sudzinvermont Member Posts: 70
    edited June 2011

    Hi All,

    It's been a wile since I've posted, but I've been reading everyones updates and continue to be inspired by you all. 

    I went for #4 TCH last week and my platlets were too low, so they gave me the Herceptin and I have to go back on Tuesday for the T and C.

    They had a problem with my port and had to do the Herceptin via an IV. After a couple of blown veins they were finally able to get the IV in on my wrist. My arm is a mess...I'll be wearing long sleves for a wile I think.

    My side effects have been minimal. Pain for the most part from the nulasta and some nausea here and there. I've been able to take care of it with some medicinal pot and a lot of guided meditation.

     I've been keeping positive, working everyday and taking care of my daughters. I feel so lucky...i'm almost living a normal life in spite of this nastyness.

    I wanted to let you know that I'm reading every post, and thinking of you all. We are pretty damn awesome!

  • artiecat
    artiecat Member Posts: 257
    edited June 2011

    Wow Merilee, you are an inspiration.  I am in awe of all of you who have families to take care of along with this.  My two girls are 37 and 42.  42 yo lives near me and is definitely in charge of me!  I am happy that I shook off the lethargy today and my big loom is half way warped!!!

    I had a breast MRI on Friday - go to Onc on Monday for review.  

    Welcome to the newbies and returnees!!!!

  • profbee
    profbee Member Posts: 858
    edited June 2011

    Hey friends!  Yes, my 4-year-old definitely adds to the fatigue!  :)  He also adds to the love, laughter, and joy of every day though.  (But to be honest, since he's been on the seizure meds he's been totally cranky and whiny and not himself...ugh...just what I need on top of everything else, but he hasn't had a seizure in the 3 weeks he's been on the meds!)

    So, today...after yesterday's 10th weekly Taxol infusion and my regular Tykerb daily, I'm nauseated and vomited.  Could it be that we're just more sensitive to foods while on these drugs?   Last time I vomited I had a stomach virus that lasted a WEEK--an entire 7 days of not eating.  I'm praying that's not what's going on here!!!  But I'm highly suspicious of the Thursday night sweet and sour takeout chicken I had for lunch today.  Thoughts anyone?

    Best friend from high school is flying out tonight with her daughter for a visit--PLEASE don't let me be sick this week!  PLEASE!!!! 

  • axtella
    axtella Member Posts: 88
    edited June 2011

    I had my first Taxol on Thursday. So far no feeling sick to my stomach. I am having some pretty painful bone aches though! Rather deal with that then to be sick to my stomach!!

  • geocachelinda
    geocachelinda Member Posts: 223
    edited June 2011

    Had treatment #3 on Friday.  I was off a month due to heart tests.  My port is working great too.  I have had little side effect so far expect for ecxessive gas!  Nasty gas and hiccuping too!  I get my nuelasta shot Monday.  Not looking forward to the back pain.  It is bad enough as it is without being aggravated by the nuenasty shot!

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited June 2011

    Hi all, thanks windlass, will keep a close eye on what i'm taking. I'm bipolar on the manic side anyway.  Never had such a clean house.  DH was laid off from work last week so that's not great.  Had a good weekend.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    Oh, Bernie Ellen - laid off?? That's terrible! We are thinking of you and sending supportive thoughts your way.

  • axtella
    axtella Member Posts: 88
    edited June 2011

    Does anyone know the dosage for the bone pain from nuelasta using claratin and tylenol? I have some pain this time around in my legs and hips. Is it regular claratin or claratin D?

  • artiecat
    artiecat Member Posts: 257
    edited June 2011

    Axtella - are you safe from the fires?  I think they are north of you.  Regular claritian.  I just followed the dosage on the package (actually got the generic Target brand).

  • Merilee
    Merilee Member Posts: 3,047
    edited June 2011

    I found that clariton and naproxen worked best for me.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    axtella: I never got bone pain from Neulasta.

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