Chemo May 2011

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    Hello ladies,

    Is chemo brain a result of the lack of oxygen that is being carried to the brain due to the red blood cell loss?  I see the term a lot, but don't really know what it means.  I forget some things occasionally too and when I tell people it's "chemo brain," I want to know what I'm saying.  :-D

    I also would like to give you all big HUGS and encouragement.  Take care of yourselves and don't ever feel guilty for needing to rest.  Your body needs it to recover.  It also needs food and water to recover.  So, please eat and drink water - especially when you don't feel like it. 

    {{{BIG HUGS}}}

  • 40-years-old-now
    40-years-old-now Member Posts: 309
    edited June 2011

    Cant tell you about snorning because I always snore like a train.

    Forgetting things, yes. Currently I am trying to remember what I was looking for before I read this post. UGG.

    I think it is the fatgue. When you are sleepy you remmebter less. I curreltny am forgetitng how to type.

  • Cyborg
    Cyborg Member Posts: 848
    edited June 2011

    Felt forgetful during early part of diagnosis. Started getting my brain back as I started treatment. Rest/sleep helps. I have been able to read technical books and retain. I hope that everyone has a good day. Still feeling tired, but I know that I can nap later. Love to all of you.

  • blondelawyer
    blondelawyer Member Posts: 327
    edited June 2011

    I'm not sure the medical cause of chemo brain (but am scared to death to be one of the those few unlucky ones that does not get over it), but I think that it has to do with the body needing to focus on physical survival and diverting attention from the other less important functions like memory.  With grief, this happens a lot too and I remember (vaguely) reading about it being a medical response to the trauma and stress of experience a death.  I imagine it is quite similar with the trauma and stress of a cancer diagnosis and the drugs that we are put through.  Lucky me--I get a double dose with both Widow Brain and Chemo Brain!  I try to keep lists that help sometimes and have honestly just reduced the amount of stuff that I do--taking more off my plate and just resting.  I know that not everyone can do that, but if you can, minimize and get your rest!  Just my two-cents :)

  • MamaV
    MamaV Member Posts: 907
    edited June 2011

    Marcya - I really needed to read your encouraging post today.  I have such nausea from the anxiety and depression that I sit at work all day and don't feel like eating nor drinking.  I just chugged a bottle of water and heated up some noodles and chicken that I brought to eat.  I'm eating it right now!  I have lost 25 pounds since my diagnosis in December and I didn't have any to lose. 

  • Cyborg
    Cyborg Member Posts: 848
    edited June 2011

    MamaV sorry you are having a tough day. The anxiety and depression hit me too. I am actually afraid to stop chemo since I feel like at least I am "doing something" when doing the chemo. Good that you are eating and drinking water. I found that the bubbley mineral water went down when nothing else was appealing. Also, I found that drinking out of glass was helpful--even when I was pouring water out of a plasitc bottle into a glass.

    Love and hugs to everyone.

    You know, I feel so sad for the men who have this disease. I hope that they are getting support and will join this thread if they are diagnosed with breast cancer too.

  • MamaV
    MamaV Member Posts: 907
    edited June 2011

    Thanks Cyborg - I understand what you mean about the chemo.  I have 5 more to go - in the chair tomorrow - but now am starting to get major anxiety about radiation.  I just can't stop my mind from racing and worrying!

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited June 2011

    I finally dragged myself to get a manicure and pedicure... My nails were looking rough from three weeks of neglect.



    Sadly I discovered that my fingernails have started to get black streaks at the nail beds. A trifecta of loss my three favorite assets..nails, hair and boobs. :(



    Damn.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    MamaV, I'm happy you were able to eat and drink.  I also drink Ensure Plus to get my nutrients and I recommend it for those days/times when you don't feel like eating a meal or food.  It does help you gain some strength and energy.  It may even help build your appetite.  Plus, remember - during chemo - you must drink 2-3 quarts of water a day.  You have to flush the toxins out of your body so they don't hang around wreaking havoc making you sick.  Sure, you'll pee ALOT, but it's a small sacrifice for the greater good.  (SMILE)

    Beaglesgirl - It's temporary.  You will get all new ones and better than before!!  Cheer up sister.

    Take care ladies!  {{HUGS}}  

    Good night.   

  • neecee
    neecee Member Posts: 663
    edited June 2011

    Well ladies, I couldn't take the shedding anymore, so I went to my stylist and had her buzz me down with a #1 guide.  My husband had his done at the same time in support.  I am glad I took control of when my hair left me.  If I had waited a couple of days, it was going to make the decision for me.  As the hair came off, it revealed several bald spots on the top and sides.

    I'm free!  And really enjoy the lint roller, too!

    Oh - my avitar explains how I feel in my wig.

  • blondelawyer
    blondelawyer Member Posts: 327
    edited June 2011

    Side effects knocked me out today!  I was feeling fine and went to get an acupuncture treatment and then had some lunch.  Basically had to RUN home to get to the bathroom and I'll spare the details, but it was not pretty.  Cleaned up and showered and then laid down to rest and woke up 5 hours later!  I'm so bummed that the diarrhea is back, I was hoping that the letting my colon calm down for a few days would help.  I'm not sure what the doctor will do about the study drug now.

     I'm still anxious about the swollen, red breast, but have my MRI in the morning and will meet with my oncologist after that to talk about the results and options.  There haven't been any changes in the breast that I have noticed this week.  The onco-psychiatrist prescribe a different anti-anxiety medication to hopefully keep it on a more even keel, but I haven't made my way to the pharmacy to pick it up and am worried about it making me too tired given the fact that I am already exhausted!  

     And since I am whining...my sunburn does not seem to be healing very quickly and hurts :(  Ugh. 

  • neecee
    neecee Member Posts: 663
    edited June 2011

    {{{blondelawyer}}}

  • 40-years-old-now
    40-years-old-now Member Posts: 309
    edited June 2011

    Mama V- Rads are easy, I started rads and chemo on the same day.

    Big things to remember when they do the simulation make sure you are in a comfortable position, a very comfortable position, if something does not feel right have them fix it.

    Have fun if they do the tattoos, I say that I am really into stars so I decided to have constalations. (they are little dots that dont hurt more then a prick when done).

    Give up modostity (your rad tech will see the area no matter how they try to be nice about it)

    Play rag doll if they want, ask but my techs want me to let them position me, works great.

    I have had 5 doses of rads. Side effects are very minimal.

    Hope this helps.

  • Cyborg
    Cyborg Member Posts: 848
    edited June 2011

    Blondelawyer: quite a few of us ladies had infections or cellulitis on our breast. Just take your temp regularly. Sorry. Just want to make sure you are OK. Sleep tight.

  • blondelawyer
    blondelawyer Member Posts: 327
    edited June 2011

    Thanks Cyborg.  My oncologist doesn't think that it is an infection (and my blood counts don't indicate that it is) but has me on antibiotics in case.  His suspicion is that my tumor is growing in spite of the chemo--it is an aggressive bugger!  I'll know a lot more after the MRI and discussion with my oncologist tomorrow.  It's just nerve racking!

  • cothi76
    cothi76 Member Posts: 45
    edited June 2011
    Hello May board, I ended up starting yesterday so I had left May board but i still check thread here also. I just wanted to add some advice about getting manicures and pedis during chemo. Because your immune system goes down for the majority its probably not the best thing to do. I've been in the salon business long enough around nail techs to know there's not enough cleaning and sanitation going on to keep it safe enough. If you do buy a kit from them and take it with you home and bring it back, so you have your own set. You can buy your own disinfection solution from Sally's Beauty Supply and clean them yourself at home, coz you never know the last time they changed there solutions. It doesn't matter how clean or how much you pay, people get sloppy behind the curtains. Much love ladies and men if your part of this board tooSmile
  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited June 2011
  • neecee
    neecee Member Posts: 663
    edited June 2011

    I'm fine.  Gearing up for another round in the chair on Monday.  How are you?

  • MamaV
    MamaV Member Posts: 907
    edited June 2011

    I go for Taxol today at 12:30pm - ugh!

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited June 2011

    Just trying to make thru A/C, is the taxol any easier MamaV? Cause this this this is kicking my butt, I'll be done done at the end of June and then I'm looking at 12 weeks of taxol.

  • DebRox
    DebRox Member Posts: 437
    edited June 2011

    cotrinh76:  Thanks for the tip.  I am in desperate need of a pedicure and was hoping to go either Friday or Monday when my immune system is the strongest.  I am back in the chair on Tuesday.

    I will purchase my own tools and disinfectant as a precaution.

    Incidentially, my nails stopped growing (or slowed down) for about 10 days post tx.  They are growing again.  I am sure this is normal. 

    Beaglesgirl:  Doing ok, starting to get anxious about round 2 and taking pre-meds.  I hate the feeling from steriods!

    MamaV:  HAng in there, you are in inthe home stretch.  I face rads after as well, and am stressed about that.  The rad onc office keeps calling me to find out when I am finished chemo.  I have told them numerous times.  On their last call I asked them to just leave me alone.  I will contact them when I am finished, let me go through one thing at a time PLEASE!

    Neecee:  Glad to hear you are doing fine. Your avatar is cute.  Im right behind you in the chair - ugh!

    To everyone:  Keep eating and nourishing your bodies.  Especially those that are dropping weight.  I am in that category and try to keep eating despite lack of appetite, we have to keep our bodies strong and in recovery mode after each knockdown.  I love the Ensure idea and will add some to my smoothies. 

    Love and hugs to all!!!

    Blondelawyer:  Wishing you the best with the MRI and Onc visit.  Keep us posted.

  • Patriotic
    Patriotic Member Posts: 281
    edited June 2011

    Hi ladies! Hope everyone is feeling ok.



    Blonde lawyer, hang in there. The wait must be nerve wracking as hell!

  • Patriotic
    Patriotic Member Posts: 281
    edited June 2011

    Regarding chemo brain, I remember experiencing similar symptoms while pregnant. I personally think it's just that this cancer treatment BS feels so all-consuming that the other less important crap tends to get pushed to the sidelines.



    Yesterday, I was applying lip gloss in the bathroom, rushing to meet a friend for lunch, and I threw the tube in the garbage because I momentarily thought I had paper towel in my hand. Needless to say, you begin to wonder if you're going crazy!



    Does anyone know if I can add an avatar to my profile on the iPad? Can't figure it out.

  • MargieC
    MargieC Member Posts: 394
    edited June 2011

    MamaV I am thinking about you and everyone else in the chair today.  I was in the chair Mon. 

    We cut my hair down last week to #2 on the clippers.  Today the bald spots seem to be sreaming out at me.  I work from home and no one is around today so I am working without my dewrag or wig so everytime I pass the mirror I just dont reconize the person looking back.  I keep telling myself it's just hair it will grow back.

    Hang in there ladies...  We are all very strong and can get through this.  This is just a bump in the road to make us stronger...

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited June 2011

    Patriotic, I'm afraid not :( I had to get on someones laptop to upload mine.

  • MamaV
    MamaV Member Posts: 907
    edited June 2011

    Beaglesgirl - taxol is soooooooooo much easier than A/C! A/C kicked my butt and taxol has been sp much better! No nausea, hardly any fatigue and for me just a little back ache on day 3 or

    4! The hardest part is emotional. I've heard some call it taxol depression! It's just hard to gear up emotionally every week - probably a lot b/c my counts are steadily low. No Neulasta but all counts ar low and stay there b/c they get u every week! I'm working full time and only taking half day for tx. I hope it goes as well for you.



    Debrox - I haven't heard from the ROs office. It's the unknown coming again and wondering how I will do. I swear the emotional side of this stupid disease is so much worse than the physical side! I feel like a mental patient and maybe should be locked up ha ha!

  • Cyborg
    Cyborg Member Posts: 848
    edited June 2011

    Doing some chores, like going to Costco, that I may not be able to do next week. I have been skipping for twelve hours straight a night. Good kick for peeps who are in the chair this week.



    Love and Hugs to Everyone.

  • blondelawyer
    blondelawyer Member Posts: 327
    edited June 2011

    My tumor has grown despite 3 taxol treatments, so we are switching things up. I start AC on Monday--dose dense for either 4 or 6 treatments and I'm not sure what's after that. I'm waiting for the biopsy right now, which will be the last part of the research study for me because of the taxol. I'm trying not to freak out, but honestly I am scared. I'm already triple negative and have a crazy aggressive tumor and now we know that at least one chemo agent doesn't work for me. I know that there are lots of other chemo drugs out there, but it scares me to see options dwindling.

  • Patriotic
    Patriotic Member Posts: 281
    edited June 2011

    Oh, blonde lawyer, I am so sorry to hear that. But, at least you found out EARLY and are switching regimens. I am sure it can't stand up to AC; nothing can!! I know it's scary. Thankfully, there are lots of other options. Also, you might not feel positive about doing neo-adjuvant because of the growth. But imagine you had done surgery first and didn't know the taxol wasn't the best option for you? Big hug.

  • ---
    --- Member Posts: 197
    edited June 2011

    beaglesgirl,

    i also started having black streaks on my nailbeds, both thumbs.  all of my cuticles are now black.

    laureen

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