Chemo May 2011

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  • bak94
    bak94 Member Posts: 1,846
    edited June 2011

    Candice, glad you are feeling better, sounds like you have a great plan.

    Blondelawyer, we probably see the same oncology therapist, I also saw a naturopath and really liked her. My first month I got so tired of all the appointments, my schedule has slowed down now, as I am not in a study.

    Cyborg, it is crazy to think how drastically and quickly our lives have changed. I must admit that I have met some amazing people during this journey, including all my online friends.

    Patriotic, glad you are feeling good on the taxol, i am worried about it because the last time I did it I had a hard time. Hope I can convince doc to try the abraxane on me instead.

    Lifelover, sorry you had a bad chemo week, but glad to hear you feel better. This week is my bad chemo week, and seems a bit more rough than the first 2, just patiently waiting to feel better. I still take my walks, just not as far and much more slow, but it does seem to help.

    One of my dogs just farted and I think I might get sick.....oh, im ok! I better let them out!

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited June 2011

    For those of you who have lost your hair. I have lost all but what looks like a bad stubble and my head seems very dry. Will the rest of go too? Thie 1/4 inch length feels like little needles.

  • txladysara
    txladysara Member Posts: 52
    edited June 2011

    Hello May Ladies, it was good to read the posts again. I am doing fine, but yes anxiety, or what i think is anxiety got to me this past week. The first week after chemo I too have the SE and they are not fun. Hubby had his vacation and he tended to me and well I did practically nothing, didn't do the basic things I usually do so I am thinking maybe that brought on the anxiety even more since I would eat, see a bit of tv, computer a bit then sleep again, over and over. He went back to work on Sunday and on Saturday I went to check the mail and throw some trash w/ my pup and I felt weird, like I do sometimes, unbalanced and weird, but I did it anyway, maybe a 3 min walk, but when I got back I felt better and I was thinking, could it be that I was in bed too much? Maybe lack of exercise, so lack of oxygen has made me more anxious. I hadn't gone out at all since Tuesday, so was home from Wed to Sunday, and just one short walk. I seem to be better today, a bit of heartburn and tummy ache but thats it. 

    Ohh another great thing is that I got the scarf from goodwishes, aww its awesome!! And along w/ it came a very nice card signed personally by all these great ppl. :) I don't have to fold it or anything it's already in the shape it should be and its really nice silk one, retail price 72.00. I will definitely wear in to my next appt. If anyone is intrested google good wishes scarfs and just email them w/ your first 2 choices and they will send you one of the two. :)

    I also got my wig from the American Cancer Society, its really nice. Don't know if I will wear it but still like having the option of having it, just in case. The bad thing is that I missed my nieces graduation and my sons girlfriends graduation this last week cause I wasn't feeling up to it. But, they know I love them and wish them the best. :)

    Every time I get chemo during day 2 or 3 i try to talk myself out of it, saying to myself, uggh how can I agree to get poisoned, next Dr. visit I will tell him I'm through w/ this, but then the first week is over and I'm ok, maybe i can do this. The second chemo, uggh I let my husband and son talk me into this, grrr, i will tell the Dr. i will quit, lol. Then I get renewed and think, God I can't do this, but You can, help me not give up. We can't girls, we must not grow weary, we must get through this, and w/ Gods Grace we will. :) Here's to us going on and getting stronger day by day!!! God bless us all :) Amen!

  • neecee
    neecee Member Posts: 663
    edited June 2011

    bkj66 - My last treatment was May 23.  Next one is next Monday.

    {{{DebRox}}}

    blondelawyer - I just thought my days were busy! 

    38YO - hang in there.  It does get better.

    Patriotic - have a good week!

    lifelover - here's to a better round #2.

     I've been whining that my days off from work have had a doctor's appointment, medical procedure, treatment, or recovery from one of the aforementioned.  I was looking forward to tomorrow (day off work) being a doctor-free day, but managed to not make it to the lab in time for my bloodwork today.   So tomorrow  off I go to the onc office for bloodwork.  I was diagnosed on April 12, and it seem that all my life consists of now is work and cancer treatments.  Sigh. Oh well.  It will be over soon.  As my BS said, "in 2012 you can look back and say 2011 wasn't your best year, but you made it through".

     

  • bak94
    bak94 Member Posts: 1,846
    edited June 2011

    Beaglesgirl, I still have stubble, wish it would fall out.

    I am sad, I tried to go out to let the chickens out into their run and I got really tired and weak and didn;t even make it outside, just went to the kitchen and took more anti nausea medicine and lorazapam. Also bummed because we usually have family over for the fourth of july and my chemo treatment is 3 days before the 4th, so I will most likely feel like I do today 3 days after chemo, so that means no 4th of july party for me.

  • txladysara
    txladysara Member Posts: 52
    edited June 2011

    Beaglegirl I never shaved my head, I cut my hair shoulder length and still have some strands that stick out of my hankerchief (which is what I feel more comfortable in) and I like having a bit of strands. The nurse and the lady from American Cancer Society said I should just shave it off, but I don't want to. :) I like my little bit of hair I still have, I think that it might all fall eventually. I make fun of myself LOL, I look in the mirror and see a bald head w/ some strands here and there and I say I look like Gollum from The Lord of the Rings. Hehehe I have to laugh at myself, if I don't I will cry LOL so it's all good. :) My precious LOL

  • DebRox
    DebRox Member Posts: 437
    edited June 2011

    TXladysara: thank you for saying what you did about talking yourself out of chemo. My brain is doing that to me as well. I know my husband and family will talk me into going. I want to quit, but I know I must not grow weary and continue. God will help me.



    Neecee: I'm right in the chair behind you on June 14. Starting to feel anxious about it now. I certainly look forward to putting 2011 behind me, emotionally it has been the worst year I've evert dealt with!



    You guys who work thru treatment are my heroes, I don't know how you do it. Bc seems to be like a part time to full time job, managing appointments, tests, ses etc.



    Hang in there everyone. I'm sure this is the toughest part!

  • neecee
    neecee Member Posts: 663
    edited June 2011

    DebRox - My breast care coordinator said bc treatment IS a part-time job. 

  • blondelawyer
    blondelawyer Member Posts: 327
    edited June 2011

    My friends are telling me that getting better IS my job right now.

     Beaglesgirl:  can I assume you love beagles? I have a 10 1/2 year old :)

    I had my 3rd treatment today--infusion went fine.  Somewhat bad news is that my breast is swollen and red.  The oncologist doesn't think that it is infection and the blood results don't point to infection.  He thinks that my tumor is growing and pushing on stuff.  It's early in my course of treatment, but he is considering changing things already.  I have an MRI this week because of the study, so after those results are in we'll decide what to do.  The swelling is pretty significant and the whole thing is red.  I'm on abx in case.  I also restarted the study drug today, so hopefully the diarrhea doesn't come back with a vengeance!  I'll know more about what the plan is on Thursday.  The MO said that he might switch me to AC now, but I'm not sure.  I am going to try to stay distracted for the rest of the week.  I did reschedule some of my appointments because I just don't want to do so many!  I am doing art therapy tomorrow though, which I am looking forward to. 

  • MamaV
    MamaV Member Posts: 907
    edited June 2011

    Beaglesgirl - use a sticky lint roller on that stubble and it'll come out.  It'll feel sooo much better with those little needles gone!  It'll take a few days, but it will make them come out faster!

    Neecee - I am right there with you on work and treatments.  We had 3 mini vacations planned this year and all have been cancelled. SUCKS!  I'm afraid though that if I don't work, I will fall into such a depression that I will just sit in the dark and never get out of bed!  

    Keep up the fight friends - Taxol #8 of 12 for me on Thursday this week and my DH actually could get the day off to come with me!  (My mom and sisters have been taking turns ... I think I might fall apart more with him there, but we will see!)  I feel like he must really be getting tired of me crying all the time - it's been a long 6 months already.  I can't wait for 2012~

  • 40-years-old-now
    40-years-old-now Member Posts: 309
    edited June 2011

    Glad to hear that it does get better.

  • Cyborg
    Cyborg Member Posts: 848
    edited June 2011

    Blondelawyer - I am glad your doctors are keeping an wye on your breAst. I had a pretty fierce case of cellulitis. Hope that doesn't happen with you.

    38 years old - glad to see you on the boards.

    Wishing all of you a good night.

  • neecee
    neecee Member Posts: 663
    edited June 2011

    MamaV- I have to work for financial reasons, and I choose to work for mental ones.  I call it work therapy.  For a few hours every work day, I get to think about something else.  Bliss!

    Blondelawyer - glad to hear your docs are actively working your breast symptoms.

    To everyone - my shedding has begun.  I feel like one of my pets - I leave hair everywhere I go.  I have a lot of hair on my head, so I think it will be a while before anyone notices, unless the rate of shedding increases or I start losing it in chunks.

  • bak94
    bak94 Member Posts: 1,846
    edited June 2011

    NeeCee, I couldn't handle the shedding! I had to shave my hair even though it wasn't looking thin at the time, I still have stubble now and wonder what my hair would look like if I hadn't shaved it, pretty darn thin I am sure at this point with bald spots.

    Even though working a few hours for me was exhausting, it did help me feel a bit more normal. I am only working 3 days every 2 weeks because of doctors appointments and because of the fatigue I have for about 4 days after chemo, my job is very physical, and I can't sit when I want.

    Today is day 4 after 3rd ac, and it is going to be a good day, much better than yesterday, I can feel it already!

    Laureen, how are you doing with round 3? You must be 2 days post 3rd treatment, which seems to be a rough time for me. Hope you are doing ok.

    Blondelawyer, hope you get some answers quick. i will be at swedish tumor institue on thursday, did you say you will be there also? My appointment is at 3. Im the chubby bald chick:)

  • MargieC
    MargieC Member Posts: 394
    edited June 2011

    HI all

    I haven't posted in a while. Since my counts were really good my Dr oked for us to take a planned vacation to Jamaica May 29-June 5.  It was so nice to get away with friends and just relax.  Of course my hair started coming out Monday May 30 on Thursday my good friend came to my room and used our clippers and cut my hair really short.  I still have hair just thin (my hair started coming out on day 17 from my first TCH treatment).

    Yesterday I went to see my Dr and had chemo round 2.  I am doing chemo prior to surgery and yesterday my Dr could barely feel my two tumors.  she was very excited as was I. 

    Word of advise to anyone having chemo without a port.  (I currently do not have one since I had a trip planned.  I will be getting one at some point.)   advise --  drink a ton of liquids for a couple of days leading up to your chemo session to plump up your veins.  I did that prior to session 1 but didn't get in as many fluids before session 2 and they had to try twice to get my IV line in.

    So far I am symptom free from session 2.  I am doing everything I have been told by my Dr and it has been working for me.

    Hope everyone has a sympton free day.

  • blondelawyer
    blondelawyer Member Posts: 327
    edited June 2011

    bkj66--Yes, I will be there on Thursday for my study MRI and biospy but better be out of there by 3 pm :)  Good luck on your appointments!  I feel like I am there all of the time, so perhaps we can meet IRL some time.

    I am really happy with my Dr. and he encourages me to call for any reason at any time.  He even calls me back himself at 8:30 pm on a Friday night!  

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited June 2011

    MamaV, I am lint rolling my head, thanks for that tip!!



    Blond lawyer, yes, I love my hounds. I have three rescued beagles 5,6 & 7 yrs old. I love the senior ones tho -- give yours a big squeeze from me. I just think they are so loyal and affectionate. :)

  • ---
    --- Member Posts: 197
    edited June 2011

    jackifp,

    Thank you so much for your generosity.  I am deeply touched.  Fortunately, I found a room to rent in Hayward.  I am scheduled to move in next Wednesday.  I am down this week from #3 A/C yesterday, thus the delayed move.

    Again, my warmest gratitude to you.

    Laureen

  • ---
    --- Member Posts: 197
    edited June 2011

    bkj66,

    I finished #3 yesterday.  You're right, today is my 2nd day.  Last night was bad - as my immediate side effects were always bad.  I had sinus headache, nausea, and queasiness.  I just woke up feeling a bit better.  How are you doing now?

    Laureen

  • ---
    --- Member Posts: 197
    edited June 2011

    Cyborg,

    Thank you so much for sharing your emotional ride between sadness and anxiety.  I think your coping mechanisms were really good.  I see myself using "distractions" as well to divert my mind from being sick and being homeless.  And just like you, I have watched 3 movies over the weekend.  Bridesmaids was hilarious!

    I hope you are doing well.

    Laureen

  • ---
    --- Member Posts: 197
    edited June 2011

    mamaV and beaglesgirl,

    I used a lint roller as well on those days when almost all hair were shedding off.  It was frustrating to see them drop all over the place and my skin!

    Laureen

  • neecee
    neecee Member Posts: 663
    edited June 2011

    bkj66 - I am having fun with the shedding at the moment.  I can tell people I can literally pull my hair out.  I'm sure I won't find it so funny as it gets thinner.  And I can see that the shedding is going to get really old really fast.

  • neecee
    neecee Member Posts: 663
    edited June 2011

    Got this week's blood work results back.  Everything in the normal range except my hematocrit, which is slightly below normal.  Onc's office doesn't seem worried about it.  That is what I get for giving up red meat!

  • blondelawyer
    blondelawyer Member Posts: 327
    edited June 2011

    Talked to the nurse today and he said that they are not concerned about IBC at this moment, so that was a relief.  He also scheduled an appointment for me with my oncologist right after my MRI on Thursday so we can talk about the plan in person.  I love how attentive they are!

    Had a day full of therapy today.  First physical therapy--I exercised too hard for their liking...they want me to be s-l-o-w.  The other stuff was fine.  Then I went to the onco-psychiatrist and talked about how things were going.  She prescribed a new anti-anxiety medication to hopefully keep my anxiety in better check.  Then art therapy (free at my center!).  Talked a bunch and then drew my tumor--interesting picture that made :)

    I'm tired today--I didn't sleep well because I was worried about the swollen breast and probably because of the steroids.  Hopefully I'll get some sleep tonight.  Tomorrow I only have acupuncture scheduled, so I am looking forward to a down day. 

  • Katarina
    Katarina Member Posts: 386
    edited June 2011

    Blondelawyer - Have they let you see your MRI? I understand scans and MRI's are best way to see cancer versus non-cancerous areas. I haven't seen mine yet and want to. Good to hear they're taking care of you and you are getting PT.

    Has anyone experienced memory loss so far?  I've noticed I struggle with names of things that are simple - like couldn't think of the word "sunblock" to tell the RN taking my blood that I had it on my skin. It was frustrating. I just can't get the word recall, or I'll ask someone something and forget the name they gave me within short order - that could be just failure to listen and pay attention to the answer, but I'm not sure.

  • blondelawyer
    blondelawyer Member Posts: 327
    edited June 2011

    Katrina:  I did see my first MRI and the MRI report for the first and second.  The third is scheduled for Thursday (I'm in a study, so that is why I'm having extra tests) and I am sure that I will at least get a copy of the report and probably see the films.  My oncologist is great about giving me copies of everything--I have quite a collection growing!

  • Patriotic
    Patriotic Member Posts: 281
    edited June 2011

    Glad to see everyone doing well.



    I had a question about migraines and tension headaches. I have never done acupuncture. Does it help those? What else can it help with?



    I, too am suffering from occasional "CRS Syndrome." LOL. I almost forgot a meeting yesterday. Thank God for the stupid Outlook calendar!

  • Patriotic
    Patriotic Member Posts: 281
    edited June 2011

    I forgot to mention that I had my first bout with addressing the looks of pity. While sitting in the infusion chair today, a women came in for her 1st infusion, scared to death. She brought a friend (who is a nurse) with her. The friend kept staring at everyone who was receiving treatment with the look of shock and pity. I don't think she realized she was doing it but it made me so uncomfortable. I tried to put the patient at ease and talked about what to expect. The friend then looked at me and said, "But, you look so good." I guess she thought the patients would all appear as though they were on death's "door." After about a half hour, the patient's friend left. I don't think she could handle it. And she is a nurse!!!!! Anyway, my first experience with the "look of pity." ugh!

  • blondelawyer
    blondelawyer Member Posts: 327
    edited June 2011

    Patriotic:  Acupuncture is wonderful for migraines and tension headaches!  I had a tension headache for about 3 days and it went away completely in about an hour after acupuncture.  I have a friend who had frequent migraines and now with acupuncture never gets them.  I highly recommend it!

  • MargieC
    MargieC Member Posts: 394
    edited June 2011

    Katarina - I have also been forgetful.  The nurses told me it's chemo brain Embarassed 

    Has anyone had issues with snoring for a few nights after chemo?  I never snored (except when extremely congested) and now for a few days after chemo I am snoring like a freight train.  My hubby actually got up last night and slept in our spare bedroom. 

    have a good day everyone.....

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