Solaris vest
Now that my implants are gone, I'm revisiting getting a Solaris vest for night time. With my recent success finding a t-shirt style compression garment and seeing how much better this works for me, my therapist and I are considering getting the vest with short sleeves. I told her my main concern is being able to sleep at night, since lack of sleep will cause a flare as much as anything else. I sleep on my back and both of my sides, and I am wondering what the short sleeve would feel like if I'm lying on my side. Therapist said we may be able to make it a very short cap sleeve to minimize this issue.
Do any of you wear these, and, if so, what are they like to sleep in? Are they thick? Are they hot in the summer? Unfortunately, this is when I will probably need it most. Any info and feedback on this garment would be much appreciated.
Comments
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Hi, Tina,
I do have a Solaris night vest, but since my LE is bilateral and includes my arms, I also have two sleeves. The vest is sleeveless but has a row of snaps around the outside of the arm holes, and the sleeves are designed to snap onto that at the top.
I also have a Solaris day vest, which at the time I got it was a prototype, as they were just trying them out. It's somewhat thinner and it has a cap sleeve and rounded neckline. I love it and sometimes wear it at night, though then my sleeves don't snap on to it. My night vests zip on, but the day vest slips on over my head. The designer that did mine has since left, so when I needed a new one I had to send that one back for them to copy. I don't know that they advertise that design, but it's custom so you can ask for what you want.
Here, for what they're worth, are a couple of observations about night vests. First off, if you're going to sleep in it you need it to be cut low enough that when you lie down and move around it doesn't strangle you. You wouldn't think that would happen, but figure in the angle of your head when it's on a pillow and you'll get the idea; also, lying down in something fairly thick like that means it isn't as flexible as, say, a lovely silk negligee (which it doesn't resemble in the least!
), so it has a tendency to nudge into your neck when you lie on your side if you haven't allowed enough room in the neck area. (Your fitter isn't likely to realize that, since she hasn't ever slept in one.
) Second, all my Solaris (and JoviPak) garments can be stored in the refrigerator in a plastic bag during the day. When I put them on in the evening, the foam has absorbed the cold and it holds it for several hours, which is even a help with hot flashes.
The effect is cool and comforting, not cold like ice or anythingAll my Solaris stuff is black, but they now come in colors. Unless you're crazy about the industrial look I'd suggest you go for some color. These garments last around two years, so you're going to be looking at it for a long time.
Like I say, mine are comfortable, but they're not attractive, and sometimes what I feel about them is pure grief -- I would love to climb into bed unencumbered and wake up refreshed and unswollen, but it ain't gonna happen. So expect some delight with the feel of it and the relief
, and some frustration because you need it in the first place
. Give yourself some room.Hugs,
Binney -
Tina,
I have the Solaris vest that goes over one shoulder - the "Thoracic Sling." It's soft, cushy, bulky and pretty hot. I get too hot when I sleep in it (I tend get too hot sleeping anyway.) I also have a sore neck by morning which I think is from me feeling all twisted up in the vest/sleeve/sheets/etc. rather than from the vest itself. It doesn't strangle my neck and it doesn't have snaps to attach my Tribute sleeve. The good thing is it's kind of adjustable because it closes with velcro. The bad thing is the velcro tends to pop open when I get it really snug - so I add a belt around my ribs to help keep it closed. The other bad thing is it's still a problem keeping consistent compression in and around my armpit where I need it most. I asked Solaris about making a lighter weight, pull on, day vest/tee like what Binney's prototype sounds like (she had described it in another thread) and they said NO. I suspect they might be more forthcomimg with a therapist than witha pt. (If only I cound find a local therapist w experience or interetst in fitting garments . . . . yada, yada.) Anyway, I don't wear the thing all that often - on planes, long car trips, and around home when I feel especially achey which (fortunately for bulky vest wearing) happens more in cold weather. As Binney said, it's not attractive! Ridiculously expensive too. Jovi has a very interesting looking vest on their (confusing, or is it just me?) website.
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Binney and Ninja, thank you for your comments. Very good info to have prior to fitting. I will definitely print this and show to my therapist. I'm so pleased that it's the two of you who have a vest, because from my thread on t-shirt and tank garments it seems we have similar LE issues and problems with fit. Well, I guess that's why we all need a vest.
Here's another question. In 2009 when I had my first big flare and was being treated by the same therapist, she had me wearing my Control-it tank 24/7. In the beginning, I also had a larger one for nighttime that could accommodate yellow foam inserts that provided extra compression over my problem area. Later I used swell spots instead of the foam. Does the material of the vest or its construction work differently than a compression tank while sleeping? Or is it the custom fit that makes it superior? I am mainly thinking about having this garment for the summer months when my LE tends to be worse or whenever I have a flare. If my post-surgery swelling continues to decline as it has, I will at least be back to my baseline, or even better. In the past, when things were stable, I could go without a compression garment most of the time. -
Tina, I don't know anything about compression vests, but I wanted to echo SleeveNinja that the "new and improved" jovi site with all the floating bubbles is impossible to use. IMO.
But, Tina, see if you can call and check out their vest.
Kira
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Agreed -- Jovi site is completely frustrating. And the Lymphedivas's black pages give me a headache.
Tina, the construction of the vest (or a Solaris or Jovi sleeve, for that matter) is completely different from a simple compression tank (or compression sleeve). The foam exerts a gentler but more comprehensive pressure, and the stitching pattern encourages a directional flow that acts more like wrapping than elastic compression. In other words, for a lot of people the directional stitched, foam filled compression garments actually aid in reducing swelling (like wrapping does) rather than just containing it (like elastic compression garments do).
I use mine for flares too, and for travel. And I use my vest with the zipper for ER and hospital procedures. It gives me resting compression and reminds them to be careful, but it can be easily opened if they need access to my chest. (Last year for an ER visit I put on my Solaris sleeves, which no one in the ER had ever seen before -- completely baffled. I said it was for LE and they insisted that LE garments didn't look like that. They kept asking me what was under it, and I kept saying, "My arm!" Finally one guy says, "I mean, are there open sores, oozing, what?!" Hmmmmm.
I've volunteered to do a LE in-service for the ER, but so far they haven't taken me up on it. Ignorance is NOT bliss -- it's not even SAFE!Be well!
Binney -
Think of these vests as bandaging for your trunk - active/therapeutic compression vs. containment compression. My Solaris vest is basically a giant, wrap-around, swell spot. Although, "custom fitted" it's hardly measured or made like couture or Savile row (how I imagine them!). In my experience, the "custom" in LE garments is comparative. Arms are basically cylindrical and it's really difficult to get a decent fitting sleeve. Getting a proper fit for the varied and dynamic contours of a torso is even harder. I still need to stick swell spots under my vest for a solid fit, and then, only until I move.
The therapist who first treated me said I should wear a compression vest all day and the Solaris vest for sleep. She ordered a Veronique vest for me -- no way could I wear that, not to mention arm openings cut into my worst swelling. Have found more comfortable garments and added swell spots, but have yet to find anything that fits in the right places.The Jovi vest looks sleeker than the Solaris. It has an outer jacket and they can place the foam just where you need it. They will only deal with a therapist or a fitter (not with a pt); they are difficult about making alterations; vest price is almost twice Solaris.
So - just yesterday I met a woman who is a former costume designer and has a professional serger and she said she'd help me try to fashion a compression tee. I have something in mind that shouldn't be too difficult to make. It . . . just . . . might . . . . work . . . . .
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Thanks for explaining the difference between the vest and a compression tank. Definitely sounds like a garment that would be useful. Now, if this item were made with short sleeves, do either of you think I could sleep on my side while wearing? Would a cap sleeve or even shorter "sleeve" work for side sleeping?
I see that a vendor my LE therapist uses has a boutique in a medical facility in Maryland not terribly far from me. I would make a day excursion if I could see these vests in person. I will talk with my therapist and see if this is possible. Looks like they carry Solaris and Jovi products. I don't like the idea of ordering something I might have to pay for out of pocket without seeing in person first. Even if insurance covers, who wants another useless item hanging around the house? I have a whole drawer filled with LE stuff and don't want to add to it.
Ninja, good luck with creating your own custom compression tee! How nice to find someone willing to help you - and who has the necessary equipment! -
I don't see why you couldn't sleep on your side. I always sleep on my side(s). If I had it to do over, I'd get a cap sleeve - don't see why thay can't make that - maybe a slight cap sleeve that attached to my arm sleeve. Sounds like you don't wear a night sleeve on your arm? Leaving room for the top of the arm sleeve could be an issue. My first therapist just ordered my vest for me -- I had no idea what I was getting into or that there were any options . . . .
I feel like I have LE stuff all over the place. It's so depressing.
Trying not to get too excited about the tee experiment . . . but I am.
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Ninja, my LE is truncal, but it extends to those darn underarm and back areas that are difficult to cover with typical tanks. Exactly why the Kmart tee is perfect. Now if the cap sleeve on the vest weren't bulky, I would be fine with it. I just see a potential issue of lying on my side and feeling uncomfortable where the bulky sleeve ends and my exposed arm begins. I'm concerned it will be similar to my temporary setup a couple years ago. The yellow foam insert in my tank that ended on the outer area of my back was so uneven that I was sleeping on an angle even when lying on my back! Not good! Bad for my back and body. I have sleep issues already and anything extra is enough to make me a mess.
It is depressing to have LE stuff all over the place, and I will feel better when I have fully weeded my clothing of items that are no longer wearable since my deconstruction surgery. For example, I have 7 or 8 mastectomy bras that I will never be able to wear, some with tags on. My therapist banned me from wearing a long time ago, and if a prosthetic is ever possible, it won't be that size or worn with those bras. Need to see if I can get something for them or give away to the gal here who keeps a closet of stuff for women who can't afford mastectomy products. -
Tina, I think a short sleeve would be unworkable for side-sleeping. The seams on night garments are on the outside, but they're bulky, so if you had an underarm seam plus a sleeve seam under your arm it'd be pretty pesky. My Solaris vests that connect with my sleeves are designed with a drop sleeve at the top so the snap connection is off my shoulder, and consequently the connection is a bit below my axilla. (My JoviPak ones are designed so the top of the sleeve goes up over my shoulder and snaps above my shoulder, and I don't like that arrangement at all -- when you lay down it bunches up around your ears.) My Solaris day garments have a cap sleeve, and I can sleep in that just fine.
I too have to continually thin my LE supplies or the sheer bulk of it makes me depressed. I have those under-bed plastic cases to hold a lot of it, and it's out of sight, so not quite so distressing.
Be sure to call that fitter and see if she has a garment she can show you before you drive that far, because it's not like they keep a supply of them on hand. But I sure do understand your need to see/feel them before you buy. It's a huge problem. Kira and I had a ball at the LE trade show we went to last month -- what a relief to be able to visit all those booths and do some comparative "shopping"!
Be well,
Binney -
I appreciate the info about the sleeves and seams. I definitely will make sure they have an example of a garment or at least the material before making the drive.
I bet seeing all the merchandise at the trade show was amazing! What a great opportunity. -
I saw my therapist today and expressed my concerns about the quilted short sleeve. I said if there were a sleeve made out of a thin stretchy material like my compression tee that helped ease the transition between the vest and the sensitive underarm and behind the arm areas, that I could go for that. She then said that one of her patients had actually had a vest made like that. She showed me an arm garment so I could feel the fabrics and get a sense of its thickness and how it felt on my body. She also confirmed I could have a lower neckline than the one shown in book so I don't feel strangled while sleeping. She actually had two arm samples, one a little older than the other. The outside seam on the newer one felt softer, probably because it was more finished. She also had a Jovi leg sample, but I didn't like the feel of it as much. She agreed Solaris is much easier to work with as far as returns, initial modifications right after garment is made, and one modification later on if necessary. We're still waiting to hear from my insurance co about approval.
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Tina,
Sounds promising. I don't find the seams bulky or problematic. The "edges" of the arm opening are totally smooth -- like the edges of swell spots -- no seams there. The material is thick but squishy -- pretty much just a giant swellspot. Another thought: I ususally wear a cotton tee shirt (a regular old tee - not compression) under my vest. Think if you might do that and if the tee shirt sleeve would provide the protection you need.
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Tina - last night I slept in my solaris vest and sleeve and nothing else ( not a pretty picture, I assure you) so I could file this field report. I made it through the night w the AC on and a fan next to my bed. Woke with a sore neck - got the kinks out swimming this morning. [[[[I think what I hate most about LE is just feeling wrong in my body all the time. Remember the Just So story about how the rhino got his skin? Someone put crumbs in his skin while he was swimming and he became scratchy and wrinkley and ornery ever since? I just want to take my skin off, straighten it out, loosen the scared tissue and dump the LE flab. I don't miss my boob; I do miss feeling comfortable in my skin!!!]]] Anyway, it occurred to me to mention that I am numb in my armpit, some of the area around it & in back of my arm (from original ALND.) Also I always have a LE sleeve on. That may be why the arm opening doesn't bother me and I think a cap sleeve wouldn't. It's an odd numbness where I don't feel anything immediately (you could hold a lit match to my skin and I wouldn't feel it) but an hour of rubbing or pressure from even the softest seam or fabric feels like searing razor blades. I don't get the razor feeling from the vest. I ususally get it from the edge of a cami or a bathing suit (from bras, of course, but I never wear one anymore.) Coverage in and right around axilla is good but not perfect. Actual compression, especially in that area, is light or nonexistant but the soft bulk feels supportive. Just information (TMI perhaps) - in case it helps your design process.
Of course, I want to know what you come up with and how it works.
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Well, Ninja, I hadn't even thought about what I'd wear with the vest, so thanks for the experiment! The idea of wearing an old tee for protection in the underarm area makes sense. Do you think it's cooler with or without a tee under the vest?
I thought the fabric of the vest was very nice and soft. My therapist said there are a couple choices of fabric, but what I tried seemed soft and non-irritating. I think the support will feel good, but I do worry that the bulk of the vest will leave other parts of my body in slightly different positions - such as, will I need a higher pillow to raise my neck and head a little? And I wonder how my lower back will feel with the upper slightly elevated from the bulk of the vest on top. Maybe it's squishy enough to prevent any of those issues. Man, the additional warmth of the vest is another concern since I sleep so hot at night and already crank the a/c. Will have to cope with that somehow.
Can relate to what you say about not feeling yourself in your own skin anymore. My whole chest is foreign territory. The LE plus changes in muscle and ribcage from recon and then decon have left me feeling out of sorts at times. The LE area under my arm does feel a little better now that the implants are gone though. A numbness that felt so icky to me was actually caused by the implant, and while I was surprised by its disappearance, I certainly don't mind!
Thanks for your research and feedback, Ninja. I really appreciate it! So nice to have ideas from others who wear to brainstorm vest construction. At the moment I'm thinking that having stretchy fitted sleeves attached might not allow me to wear anything underneath, which i assume would make it necessary to clean more frequently. Or maybe feel hotter when sleeping. Or make it more difficult to wear something underneath when flying. Binney, do you wear anything under your vest? And how often do these vests require washing?
Tina -
Tina, I wear a close-fitting t-shirt under mine too. I didn't always, and I don't know why I started, but it does make my underarm area feel better. You can order your vest as long as you want it. I have a shorter one for summer, but my winter one goes down to my waist. I wear my t-shirt inside out and turn up the bottom over the vest when it's hot. With the shorter vest I do sometimes find my lower back uncomfortable from the added bulk higher up, but only when I sleep on my back. On my side it's fine.
I don't mean that the vest seams are rough, only that if you had a seam that ran under your arm to make a short sleeve it would add double the bulk to that area, from both the vest seam and the sleeve seam. The cap sleeves don't have additional arm seams in the axilla area (if you can picture that? don't know how to describe it.)
I wash mine whenever it starts to feel "loose" and the washing tightens it up. Which comes out to about once every two or three weeks, longer in the winter. It's not a hassle to wash. Just gentle cycle with some towels and a gentle soap (I use Ivory Snow), an extra rinse cycle at the end. Then into the dryer on low with a few clean tennis balls for an hour, and it's ready to go. The sleeves take longer to dry because of the enclosed space in the arm and hand. I wash my sleeves and vest separately because I can't stand EVERYTHING being tight all at once, so one week I'll wash the sleeves, then the next week the vest. But that's just me.
For a cooler effect with something under it, you could go for a natural-fiber shirt instead of a t-shirt. I have a cotton undershirt that works great in the worst of the heat.
Does any of that even make sense?!!
Binney -
Oh, NOW I have to buy tennis balls, too? The whole thing's off!!
Seriously, thank you for the feedback. I'm pretty sure I understand what you're saying about the double bulk in the sleeve area. And it's very good to hear how the shorter length vest affects your back when you sleep on your back. This is exactly the kind of thing I'm trying to avoid. Hmm, I am a problem child - I sleep equally on my back and sides, probably more on my back. I guess to start I should get waist length, or at least to the bottom of my ribs. Oh, boy, just in time for summer!!
I really appreciate this info!! And, yes, it all makes sense!
Hugs,
Tina
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I don't wash my vest often because (and why) I wear it w a shirt under it. I don't wear it regularly and only at home or in my own car. (I don't fly often but I always wash it after a plane trip (ick.)) I don't think the bulk per se is enough to cause you to sleep out of alightment or that the length will make much difference. For me, it's just having a thing around me. . . or something. I don't mind the sleeve for sleeping but the vest is a bit much. Last night was the first time I wore it against my skin - not much different than with a tee. One less layer to twist and wrinkle but sartorially awkward in it own way. Think about what you might like in cold weather too -- I pefer a thin cotton l/s tee under rather than over. I probably started wearing it over a shirt in the first place because I got it in winter.
Who would have imagined there was so much to think about? I'll have to try tennis balls.
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"SARTORIALLY AWKWARD"!!! Perfect, yes!
Hmmm, I thought the tennis balls were SOP. No, huh? I think it was Kathy Weatherly at Solaris who put me on to them, so I just assumed that was part of their laundering instructions (which I haven't read in a loooooong time
.) The idea is, they help fluff up the foam.Don't worry, Tina, you don't have to HIT the tennis balls, just toss them into the dryer and fish them out afterward. (Just make sure they're clean ones.
) I have a can of them on top of my dryer, and they've lasted for years.I don't think I've ever discussed these stupid vests in this much detail with anyone, ever. It's kind a relief to get it all out there!
Thanks!
Binney -
I guess I really meant I never imagined there was so much to talk about. Other than this forum, I'm in my own little world figuring out the nuances of my own LE body and my expanding body of weird LE garments, get ups, and experiments. I never talk to anyone about any of it except here. It is a relief to get it out there!
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I'm so grateful I don't have to ponder these questions alone. My LE therapist is very good and concerned about proper fit and choosing the right garment for my needs. However, talking with the two of you who have real life experience with this vest is the best!
Maybe it's because it's past midnight, or maybe I misread earlier, but let me ask this one last question to clarify. First off, I don't wear anything on my arm, so I am looking at just a vest. Okay, I'm pretty sure the short sleeve is out because it would be too bulky for side sleeping. I thought I understood that the cap sleeve wouldn't be necessary if I were wearing a cotton tee under the vest while sleeping. Was I wrong about that part? Are you both saying the cap sleeve would be better for my underarm issue and still comfortable for side sleeping? And I'd be still be wearing the cotton tee under it? Binney, I reread your earlier post about sleeping in your day vest with the cap sleeve being comfortable. Maybe I just got the words short sleeve and cap sleeve mixed up. So one final time, ladies: Do you recommend a plain vest with no sleeves at all? Or do you suggest a vest with cap sleeves made of the same material as vest? -
"I don't mean that the vest seams are rough, only that if you had a seam that ran under your arm to make a short sleeve it would add double the bulk to that area, from both the vest seam and the sleeve seam. The cap sleeves don't have additional arm seams in the axilla area (if you can picture that? don't know how to describe it.)"
Okay, I think I missed your point here, Binney. I think you're saying to go for the cap vs. the short sleeve. You're probably not saying to get no sleeve . . .
And, Ninja, I think you're saying the cap sleeve doesn't provide a lot of compression but yet it is comfortable for the sensitive underarm area. So I think you're in favor of the cap, too?
And you thought you were done talking about the stupid vest!!
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Tina, I think the issue is to make sure the vest is wide enough both in front of and behind the axilla, so it's more like a shirt that like a muscle-shirt. You don't just want wide straps, you want actual shoulders on it. Does that make sense?
Hugs,
Binney -
My vest is sleeveless -- full coverage front and back. That's how they make them. I think you'd be fine with that. I have never seen or tried one w sleeves. In my imagination a short, short sleeve (a cap sleeve) would be comfortable -- but I'm guessing. It could be annoying, or bunchy, or hot, or hit your chin when you sleep, or make the rest of the vest less accomodating to movement. OMG! Better not get me started . . . .
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