March 2011 Rads
Comments
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thegood5 -
I got tiny blisters that looked more like a little rash. My RO advised me to put a tiny bit of Cortaid (1% Hydrocortisone cream) on them before bed.
They said they are common on the chest.
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thegood5, same here. I used the cortisone and it helped tremendously.
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OTC Cortizone works great. I would put that on and then Aquafor on top of that. Made the itch more bearable.
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Thank you everyone! I told my DH it's like Chinese water torcher...the constant itch and burn. Thanks for your input...I did use cortizone cream a little before, but my onc said not to use it very often.
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the good 5 - i was dumb and messed with one it was so tiny, but my skin was so sensitive now there is almost a dine sized scab from where my skin ripped off! it was weird (i still have no feeling in my chest since surgery so i had no clue my skin was ripping)
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I used benedryll cream...it worked better for me. They said any anti itch stuff, and as much as I wanted to use...just make sure your skin is clean when you go to rads!
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ewww texasrose36! At times I wish I was numb there...it's such an unbearable painful itch. Oh well! Thanks everyone for your input!
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When the itch got to be too much, I used a cold-pak. It really gave me relief.
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I've heard some doctor's so NO cold packs what so ever...And I find that ridiculous! I guess their afraid of skin damage from direct contact, but who among us just puts ice on our skin for a long duration? I have one of those handy dandy ice pack things...it looks like it's from the 1950's with a screw on cap. It's the best five bucks I ever spent! They still sell them at the drug stores too. I think the docs get all regimented about stuff, but in the long run, it's about treating your skin well, managing the side effects.
I saw my onc yesterday...I had to wait for 1.5 hours! She's the only one that make me wait. At least this time she wasn't ill, and she actually responded to my questions...I had an awful time with her before. I start Tamoxifen today, as soon as I get to the pharma. I'm anxious about the SE, but only time will tell!
marjie: I love the dragon boats! I wish we had something like that around here! I used to lead wilderness trips for people with disabilities and there were summers I spent more time in a canoe than out of one. The team aspect of the dragon boat must be inspiring and comforting! I'm glad you have something like that in your life...I think it's important!
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I actually googled radiation burns and almost every site said a cold compress is fine....it def helped..thanks for the info!
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I would put a wet washcloth in the freezer for a few minutes and then lay it over my chest. It felt so good and the amount of time of cold on the skin was just right--for me at least.
I see my onc tomorrow for my 4 month post BMX and one month post rads appointment. Having a mental block as to what I should ask at this point. She won't even talk to me about recon for another 6 months to a year. Kind of at that--what do I do now stage. . .
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I hear you, cmblastic. I am also at that 'what do I do now' stage. I see my oncologist next week, and I know I wll go on Tamoxifen or something similar, but I feel sort of like--is this it? Also, I don't know what the heck is wrong with me, but anytime I have to go to a doctor or have blood work, I freak out a bit. I can't sleep the night before and I am a nervous wreck with constant hot flashes while I am there. Fun!
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I was so exhausted after that onc appt! As soon as we walked out of the office I say to Chris, I don't know why these appointments drain me so much. And he replied "Because you let yourself get so worked up over them." He's totally right. I asked all kinds of questions about recurrence, and it's not like she can answer them. She said "I've been here 23 years, some women I've only seen once...some women I've seen back a couple of times" A COUPLE OF TIMES! There are no absolutes in this BC world. I learned they take blood every time I go to see the MO...every three months for a year, every 6 months after that for 4 years, then once a year for the mammo at the end of the 5 year follow up. She went into great detail about self exams, which was helpful and scary, since I only accidentally found my lump the first time. They did a tumor marker...and I have to wait for those results...it's an odd feeling...In some ways I just feel to exhausted to worry about it, in other ways I want to drive to the office now and demand the results! I think I'm just in limbo...that's the only way to summarize this "end of treatment" feeling. I have five years of being in limbo! Ack!
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Girlfriday, you described that feeling perfectly...sometimes I don't even want to worry/think about it, other times its a panic attack and hitting a brick wall.
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Scans....anyone get them prior to TX or after chemo and rads? My new onco wants them....SCARED!
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KCMomx3, Hi! I had all my scans before surgery, chemo and rads. I finished everything on April 18th and my onc will not do any more unless i have symptoms. Not planning on having any. I think it's pretty normal to have them though. Are you having them after everything? Good Luck!!!
Pam
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KC, maybe he wants scans since you are new to him and is just checing to make sure rads did it's job? I am having scans done when I am thru with rads, but that is because I have a met on my liver and they are checking to make sure nothing with it has changed.
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KCMomx3: I agree with thegood5...NEW doc...If you didn't have them before, he's probably covering all bases. He has no reason to be suspicious after all of your treatment, but he does have a reason to get the in depth review so he can make sure you are treated properly. Breathe through it. More diagnostics are better than being ignored!
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Yesterday I had bloodwork, saw my onc and was really poked and prodded and checked over for the first time since before my treatment started. Had my first breast exam .... the fact that I don't want to touch my breasts apparently goes for everyone else too - just about slipped into kungfu defensive mode, lol. I swear they thought I was nuts but everyone said not to worry, it's very common for women not to want to be touched after all we have been through.
Anyway, everything is looking good. My onc said to expect lots of changes to my breast as I recover from rads. My skin seems fine now, but my breast is quite solid feeling and mostly numb. She said the nerves would come back but it may take up to six months and that the firmness would likely stay and it would feel and appear as though I had an "uplift". Hmmmm - would they consider making the other one match???
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I also saw my MO today, bloodwork too, Not too much poking since I had a BMX, there just isn't much left to there to poke and prod. Said I was healing well and looked "great" for someone who was only a month out of rads. Back handed compliment? I'll take it, I guess. My downer was her saying she did not want me to get my port out for another 3 months. We'll see, she said. Arrrgh, and of course, I have no courage to say--I want it out now. Something to be pouty about!!
Marjie--I am so glad you feel "uplifted!!''
And I get the part about not wanting to be touched. Still quite a bit shy about that--guess that's a whole other forum!!!
KC, Don't be afraid of more scans, he is probably just crossing all his t's and making sure he has current and up to date info.
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marjie- I don't want anyone or anything touching me either! And I can't believe how lopsided I am! I prefer loose, cumfy clothing and I've been wearing sports bras since my surgery so it's not all that noticable but my regular bras don't work anymore! I'm probably close to a cup size different from left to right! I didn't expect such a difference.
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Yup, I'm the same about not wanting my 'area' touched. I had my first post-treatment breast exam a couple of days ago and felt really uncomfortable and tender. Also, I found out that I will have to have a regular mammogram on that breast when it's time. Yikes! That's gonna be very unpleasant, for sure. I also noticed that my damaged breast is a bit smaller and doesn't quite fill my regular bras like it did. And I'm not numb there, or solid feeling--more floppy! The only numbness I have is under my arm where they removed all my lymph nodes. It's a strange, almost painful feeling when I use the electric razor there! Oh, the things we are experiencing!! Never could have imagined it all.
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marjie, LOVE the new avatar. You are looking good! You almost make me want to post a current picture of myself--almost.
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Oh c'mon Sandymess - DO IT! I bet you look beautiful. Here is a "closeup" - can you see the freckles??? I guess that's a new thing - my daughter thinks it's "cute". Good Lord.
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You really do look great, marjie. Check out my avatar. You talked me into it! I look so much older than I did last July!!
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sandymess i love your smile
very catching!
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Sandymess - YOU LOOK WONDERFUL!!! I think I look older too, but hell, look what we've been through!
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Thank you, marjie and texasrose. It's true we have been through hell. And I, for one, look like it.
Oh well, time will help, I think. A little more hair to frame my face, and I'll be happy. It's been 6 months and I am still surprised every time I pass a mirror!
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I am the same when I catch my reflection in a mirror or window....I am starting to feel like the old me, but sure don't look like it!
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Sandy and Marjie--I love your pictures! your smiles are so refreshing!! I am 5 months out from chemo and my hair is at the spikey go every which way stage. Very grey. I wish I could find a picture of me to post--but that would mean posing for one, and then liking it enough to post it. I keep looking in the mirror and seeing my grandmother. All I need it the cat eye glasses!!
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