Chemo May 2011

 Cyborg, I hate this Hurry up and Wait. At this point I know for sure I am having chemo, Or atleast I better as they are putting in a port Monday 16. But it would be nice if they tell me what meds I am going to be on. LET ME RESEARCH!!

Loviesmom2 I am trying to focus, but currently I feel up in the air with all this waiting.

Marybe- Yes I am planning on having fun with her. I am also going to ask the people there how they make the hair extensions as my daughter wants some of my hair made into an extension for her.

DebRox- I think you are right about the waiting. I wish I knew when I was starting,

mccrimmon- my surgern told me that I have to be healed before chemo.

Pop up add at bottom of this page, Breast milk may offer early cancer test. Like when you are breastfeeding you are thinking oh I need to be tested for cancer. All I was thinking about was is she gettig enought food, I hope that tooth doesnt come in sharp, and oh my breast are so full I need to feed her.

Anyone know what to do about a pulled groin mussel, (happened at surgery april 21) cant seem to make it feel better. Hurts worst then the lump removal stuff. I am tired of limping around.

Just started TC X 4 chemo two days ago and decided I need to to join a support group so that I don't feel so alone in this journey.  Not feeling very well today but better than I did this morning.  Does it usually last a week before you feel better?

Oh Stepahnie, sorry you are facing this again, mine is my second time, but with a new primary after 8 years.

Sue53, I am still waiting for a week to pass to see if I feel better:)

Laureen, so sorry you are feeling so bad! I had some sickness this mornig so I took the anti nausea meds plus lorazapam and went right back to sleep! I feel better now, hoping to go for a short walk, feeling housebound.My nurse did call this morning and said I was likely low on electrolytes or the low bloodpressure thing. She asked if I checked my blood pressure-well, no, I was too busy passing out!

Cyborg, what day are you on? I am looking forward to more energy. I haven't felt really bad, just kinda weird and very tired, the meds seem to be halping me with sickness.

So I had chemo on Saturday, they makes me 5 days out. I better find a wig or head coverings soon!

Still no SEs and today I went for my neulasta shot....got it in my stomach.  I took claratin which someone told me would help with the bone pain I could get....thought that was pretty wild advice, but I did it and I asked a nurse and she said she thinks Susan Love recommended that in her book.  Too early to tell if I will even get bone pain, but if I do I think it's in a few days.  Next week I am off, but I will be going in for my Xgeva shot (for bones) and having blood work done. 

MaryB; I go to the James Center. I go down on tuesday and stay in a hotel get treatments on Wed. and come home after that. What part of Ohio are you at. My sister usually travels with me, since it is about a 3and a half hour drive. We so enjoy going to the tuttle mall. Even though I never have money to buy anything. ha. They treat me so good at the James and I have alot of faithin the treatment I am recieving there. 8 more treatments of taxol/herceptin before surgery,.

Guys, let's make the May girls mantra:  No Apologies!

Let's vent and bitch and moan all we want, because I bet we are all doing the "game face" all day long, which is exhausting.  So no apologizing here, I decree it!

So I am new here and this whole DX sucks! I cut my long hair into a pixie before surgery.  I am so glad since I would never been able to fix it or sleep on a ponytail.  I would advise anyone to just cut it short and enjoy one less hassle in life.  I see my oncologist next week to discuss the "plan" and it it driving me crazy.  I feel like I am waiting so long and since I had 6 positive nodes, I just keep feeling like it's moving around in my body and will come back somewhere else.  I felt like I was in good hands and now question it.  Its a crappy feeling.  I look forward to meeting the MO and building a relationship of trust.  I need that more than anything right now.  Once I get the "plan" I will come back and get advise from all of you.  There seems to be some really good info here and I will use it wisely.  I look forward to all the "friendships" I will make here.  

Ronda 

Hope everyone is doing ok today.  Feel better today than yesterday but kind of lonely here at home alone.  Hubby said he would try and come home early.

Solds19,

I had the very same experience, so you are not alone.  I had my AC last monday and side effects kicked me 2 hours after the infusion.  Hang in there.  I am still nauseous today (5th day). 

I was telling everybody I ahev been to hell and am starting to crawl back.  When I woke up this morning (5th day), I felt like I am back at the gates of hell:-(  No fun!

Take care,

Laureen

I had a week followup appointment and my white blood counts were 800! That is low! I had a neuposgen shot 24 hours after chemo, then one today and they want to do on on saturday and sunday. Has anybodies white blood count got this low from the first treatment? No wonder why I am so tired. They told me to stay away from sick people and wash my hand alot-duh! ANything else I can do? What foods help? Doc found out I am pretty much vegetarian and told me that I can not be during chemo, he told me to go eat a steak! I had some beef enchiadas instead, I can't eat steak or chicken! I will eat fish though.

Today was a BAD day. I went to the surgern today. As you know I had a PET CT scan on Tuesday. The results were 4 hot spot on it. One in my lung, one liver, one right leg, and one left leg. I am still scheduled to get my medi port on Monday, and now Wednesday I am scheduled to get a biopsy of my lung. I am so scared! Cried in the doctors office, lucky hubby was there. The pain in my leg that I have had sence surgery could be from the hot spot on it. I just want to scream!!  I mean, yes I havent been to see a doctor for a check up in 3 years almost 4. But in 2007 I had a base line mamo and other tests and everything came back good. I found this lowsey lump myself. Other then my leg hurting and being sore from the surgery I feel fine, but no I may have cancer in 5 different places in my body. UGGGGG!!!  I feel sorry for myself, I know that we all are going threw this but why me is what is running threw my mind. Why anyone??

Again HURRY UP and WAIT! I hate that!

Other news, I am going to get my hair cut short (and donate) sometime in the next week. Daughter wants to come with me when I get it cut.

Yummy news, I went to the local chocolate store (they make their own chocolate things) and got Chocolate covered oreos. Yummy!!

Oh Candice, I must have been posting at the same time as you-I just want to give you a big hug! I hope it all turns out to be nothing, it just doesn't make sense and none of it is fair. We are here for you though if you want to rant, vent scream, cry, whatever, we are here.