Hair Loss Question
Comments
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Mizchiz,
Thanks for the information. Today I had a PET CT scan, alittle nervous about it. Waiting for my mom to drop off my daughter so we can go and get something to eat. Had a little snack and nothing else sence 9pm last night (currently 451pm). I am hungry!
I have always had thin brittle nails, this worries me a bit. think it might hurt to loose the nails. My toe nails are about a thin as many peoples finger nails.
I got a couple of wigs. I am planning on next week, after my port is put in, to get my hair cut (chin lenght) and donate the cuttings (about 14"). Then when I have my first chemo shortly after I will get it buzzed.
I want to get little clips (like hair extensions) made of my own hair if possible. I also want to make one for my daughter (she want this).
I hate hurry up and wait!. Yesterday I saw the Oncologist and until he has my PET results back I am on hold for knowing what chemo I will have. But atleast now I know I am having chemo.
Oh great I just forget what I was going to say. I thought chemo brain started after you have chemo, not before.
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browniefranks, and MizChiz and all,
I had a friend trying desperately to glue false eyelashes on me. "But you will look so pretty!" she said. I don't care about that, I said, I am alive. "Yeah, but you could look so pretty!"
Some people don't get it if an anvil is dropped on their head. I was okay living without hair of any kind, and handling a harsh treatment regimen because I wanted above all else to live. I just loved those pretied headscarves because I didn't want to waste energy getting ready for the Academy Awards every day, and I went to work most every day. To say that I should really want eyelashes pasted on my face just to look presentable was unkind. What it said to me was that I was ugly. Too ugly to be seen as I was. Especially with her.
I had to tape my nails down so they did not drop off. Most anyone will tell you that the eyebrows and lashes leave last and come back too, but slowly.
No reason not to do chemotherapy that is necessary. Just know not everyone will be kind to you. Most will. And those who won't can take a hike. Treatment is not a fashion show.
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Yes I agres it is not a fashion show.
I am not normally vain. I mean I dont do anything with my hair except wash, air dry, braid, and brush. I dont wear makeup, never have worn false eyelashes, just started to sometimes wear nailpolish.
My husband says that every 4 years or so he takes me to get me hair trimmed.
I have always had long hair, brittle nails, and no fashion sence. I just am worried about the hair.
But am looking forward to possible loosing the mustash, some nose hairs, leg hair.
I am guessing that your friend was not saying that you looked ugly but trying to give you a sence of normalisy. Bad way to do it but atleast you have a friend that cares to try.
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Candice, the reason for the gel overlays on my fingernails is because mine are thin and brittle,too. It actually didn't hurt when I lost my toenail. You can't really tell the nails are loosening unless you fiddle with them. My fingernails and toenails are hanging on and seem to be grown out enough to stabilize them so they won't fall off. My hair... I had FINALLY grown my hair to shoulder length after 20 years of short haircuts. I was thrilled! Then I was diagnosed. Oh well... But I know how you feel as do most of us. Don't jump the gun though and have it all cut off before you know it's coming out for sure, OK? My friend has long hair, had chemo for breast cancer, and hers only came out in spots and she was able to cover it. So, maybe you'll get lucky like her! We can only hope, right? Also, ask about those cold-caps to help prevent hair loss.
YellowDogLady... Wow... Talk about an insensitive friend! When a male friend of mine saw my hair, when I stopped wearing my wig, he told me it didn't matter because I have a pretty face and that I don't need make-up either. I would beg to differ, but it made me feel good that he saw beyond the hair and makeup that he was accustomed to seeing me wear! Some people just don't get it... And it's worse when you're feeling lousy from chemo and you look in the mirror and see a stranger... Here's a song for you, and me, and everyone else who has been affected by breast cancer!
http://www.youtube.com/watch?v=eAfyFTzZDMM
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I think sometimes its hard for people who care to help... If your friend likes makeup and hairdos, then they assume everyone does too... I am not vain, but I do wear makeup and want my hair nice etc... and I bought false lashes in case I lose mine (haven't yet) and hopefully your friend just assumed you might like to have them... I would try not to be offended... Its funny... people are telling me all the time how I look so great (considering I have been in chemo).. I tell them they don't see me at 7am as I look in the mirror at the bald woman and don't recognize myself... I tell them what they see is all an illusion.
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I don't want to speak ill of a fine offer, but it was not once. It was pretty much required if I wanted to go out with this friend, so I didn't. I caught a clear indication that not having enough hair or eyebrows or lashes made me look too butch or just plain ugly to be seen with her. At the time, I didn't care about what other people saw or thought. I was alive, and that was glorious.
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bdavis-
If you had the energy to get all fixed up every day, well, I did not. I worked through it all, but it was hard. A day at work and two hours on the road and trying to do the stuff at home too. The bills got paid, the basic stuff got done. The groceries came in. The trash went out. I did not have the time or energy to worry about my looks so I wore nice headscarves and used a bit of makeup so I didn't look ill.
Probably other people would see that offer as generous but it was so forced on me and at at time I just did not care what anyone thought that it was not welcome. If my own friend is too embarrassed by my condition, she should just not spend time with me in public.
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Oh... sorry... thought it was a one time, "maybe you should try this..." You are right that it isn't right for someone to behave like that... I can't imagine anyone caring about how I look, and not wanting to be seen with me... that would be hurtful... agreed.
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Oh I thought it was a one time thing too. That "friend" is not much of one.
Sorry that she did that to you, and the me trying to look at why.
LOL I would (on a good day for you) either go up as "butch" as you can look and while she is in a group of her friends that dont know you. say "Hi Honey" and give a kiss on the cheek. Or just look at it this way. You have one less xmas card you have to send out.
Keep smiling.
One other thing: What color are some of your scarfs? Just curious.
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all of my hair fell out two wks into my first lot of chemo, (saved a fortune on the following;waxing,razors,shampoo and hair products) my hair was falling out in clumps so i let my eight yr old daugther cut it all off (with the supervision of my friend) in my opinion false eyelashes are more trouble than they are worth, and they do tend to look a bit mad if youve got no eyebrows.
my hair started to grow bk when i was into my last cycle of chemo,its now been 5 months and my hair is about 5 inches long,have you heard about the hair in recovery programme run by racoon hair extensions,you can get the cost of extensions susidised after treatment,im getting mine done in a couple of weeks,im not a particularly vain or girly girl,but ill be the first to admit that losing my hair was the worst part of my treatment(i got sick of bieng called sir,lol)
good luck xx
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Sorry, All. I got to a tender spot there.
When I started chemotherapy, my Sweetie and I planned our trip of a lifetime for afterwards at the one year anniversary; a two week cruise through the Panama Canal. Something wonderful to look forward to through months of misery.
A friend/extended family person begged and begged to come along. We talked about it and decided that so long as she wasn't expecting to be hosted we would love to spend some time with her. So I called and said yes, you can come, but definitely do bring a friend as we are not going for the night life but for R&R. The more, the merrier and all that, but I'll still need a lot of rest. She said no, she would not share her cabin, she would come alone, and she was used to being alone and she wouldn't have a problem with that.
She did. On the flight out she announced that she did not bring a travel clock and wouldn't trust the servants (that's right) to give her a wakeup call, so I would have to wake her in the mornings. And she did not bring a watch, so I would have to tell her what time it was. And she did not bring a camera, so I would have to take her pictures for her. She didn't want to do what we did, so she cried at dinner most every night about how lonely she was. Or if she did go with us, she complained about the quality of the tour bus speakers or the itinerary or how "All I wanted to do all day was to put my toes in the sand." That one sent me. We all had spent hours on the nicest beach in Acapulco, releasing baby turtles and walking in the surf, but she chose to spend most of it off the beach wolfing chips and guacamole instead of putting those toes in the sand, so that slap in the face hours later when we got back to the ship was just insane.
The false eyelash thing went on for 14 days. "Oh, but you'd look So Pretty!" The implication was that I was not presentable as I was. I didn't care. I was alive. I was on my trip of a lifetime that could have been my last. There were no paparazzi. It actually got worse. She told me that I was not well enough to go on my trip of a lifetime, and my Sweetie and I spent too much time in our cabin (yeah, with a verandah to watch the sights) where she generally refused to join us because it was Happy Hour somewhere. So much for the whole "You don't have to worry about me, I can take care of myself" thing. Then she came back and blasted us to all who would listen for not showing her a good enough time after she stepped on our trip and made us fetch and carry for her and expected us to anticipate her every wish for two solid weeks. I should have just said no. She would have understood that. I certainly did not understand what she did when we tried to be kind.
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38 years old,
My headscarves were all colors. Some batik, some wild prints, some tame. My favorite was a burgundy and brown and gold batik that was just stunning. They are on their way to Australia as we speak to assist the daughter in law of a high school friend who was in the US on the exchange student program back then, and I am proud to send such lucky colorful things to help a next generation survivor.
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98 degrees last week so the scarves were uncomfortable but I did not want to get sunburned, my hubby dug out some vented kangols from the 1990s and I rocked them. Otherwise, I am lucky to be surrounded by people who care more about my health than my looks. Yellowdog lady that "friend" needs to be told off.
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Hi Im Vicki!! Im done w chemo since feb 7th!! Ilost all hair. Especially at the end. I had 4 doses of chemo n lost my hair 2 weeks after .I lpst all the hair including eyelashes n eyebrows also. Mine is growing back fast, but hairs coming thick n slow!!! You will get through this fine
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Yellowdoglady... Well that just sucks... Hope you have dumped your friend... But you did refer to her as an extended family/friend... is she dumpable?
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She was a stepcousin or I never would have considered taking her along. She begged, and begged, and I had known her for decades, so we caved and told her she could come but must please bring a friend. She refused that, and set herself up for a bad time, which was her right, but not to make our hard-earned good time bad too.
Then she told me after we let her book onto our trip that we had been invited to the big Christmas thing with that side of the family and she had said no, we should not be included. And some other backstabbing thing I don't remember. This AFTER booking onto our vacation and all so we would have to put up for two weeks with a person who just decided to tell us months later that she hurt us monhs ago and felt compelled to tell us because we let her come along on our vacation as a favor. It only got worse from there. Who goes to confession to admit they are a shit when they have just begged their way onto a trip with a person they have told others should be excised from the family because her Dad died? She was clear. My Dad dying meant that none of my stepmom's family was mine anymore. Then why the hell was she thinking to come along on my trip? She was my Stepmom's cousin. The answer was clear later; to torment me and hustle after my intended.
She came back from the trip and said she wasn't treated right by me after I invited her along and made so many promises; and I lost my stepmom of decades because she was convinced by that charade. Why don't people who want only to hurt others get a tatoo at birth? I had known this woman for decades and never suspected how insane she could be. She was nuts for 14 days and I never said a word because I figured she would be embarrassed for misbehaving so largely.
But because I won't speak ill of people, she had loads of fun saying I had no right going on my victory trip because I was not well enough, and on and on. I made her trip hard. Spent too much time in my cabin resting instead of going to Happy Hour. Didn't do enough for her. Made her cry because she was (endlessly drunk and) SO LONELY! Wasn't I the bad hostess who never agreed to be a hostess?
Of course she never remembered that conversation with both of us eight months earlier when we said she was welcome if she brought a friend so she would not be lonely.
Some of these things should properly go on a new thread entitled People Who Behave Badly During Treatment and Recovery. I imagine there are so many it would be an instant hit.
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You know, I HAD to stop wearing my wig once the weather here (Ohio) got into the 70s, especially in a school w/ no a/c. My hair is very short and I'm kind of butch looking because of it, I admit. However, I was slightly offended when I walked into a restaurant last night and the hostess started giggling after one of the waitresses whispered something to her. I may just be paranoid but I don't think that's the case. Also, went to a different church yesterday because my son was receiving an award for an essay writing contest sponsored by one of this church's groups. After Mass my son asked me if I had noticed the woman in front of him looking at me through the whole Mass. I didn't, but he noticed and thought she was rude. With as many people as there are being treated for cancer nowadays, you'd think people would be used to it?
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front pubic was one of the last to go. eyelashes & brows were the last to go. the later 2 were the hardest for me. they were my last bit of dignity. NJ
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Just thought I would update. I did get my hair cut to a bob. will be donating about 13" of hair.
It feels weird not having the long hair. (Had it cut yesterday).
I still dont know when they will start chemo. Have biopsy on lung today.
Thank you for your support
Candice
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38/Candace,
When I started chemo, I donated 19 inches and still had a short bob to wear for a few weeks. It's a good thing to do. I figured if I could not enjoy my hair, some small one could with special hair made just for him or her.
It was a good ice-breaker too. Someone would say, "Wow, I like what you did with your hair." Then I'd say that they should not get used to it; it was temporary. It was actually a good way to get friends and neighbors and coworkers on board with the idea that I had a thing to do and it was okay. The best thing in the world is for people to talk to you and ask questions and understand and not to shy away because they assume you are dying. There is no reason for anyone to think that, but they will if they have no idea that anything positive is happening. What you have is treatable, and most of us who get treatment in a timely fashion live long and prosper.
And your hair will grow back. Maybe curly at first, but it will return, in all realms. And you will feel good again, and then fine, and then strong. It will take more than a minute, but one year out from surgery after the rest is over, well, you may just do the Happy Dance in the street showing that classic Pixie Cut. A year later, you will be deciding what to do with all that hair.
Say how that biopsy goes, okay?
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mrsnjband,
I think no one likes to tell a patient that they will lose things like nose hair and pubic hair, but it happens. Your eyes get weepy and your nose runs with no warning. Late in the game the eyebrows and eyelashes may fall. They tend to be the last to go. But if you have a good support network and your family and friends are knowledgeble about the time line, they will not be shocked. Just so happy to see you.
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