Working Through Radiation?

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Katarina
Katarina Member Posts: 386

Please describe your experience working while going through radiation treatments?

I'm curious if you chose not to work, and if you did work (office type jobs) what challenges if any did you have?

I'm on the fence about venturing back into the high stress office work environment and just need to hear about others choices.

thank you!

Kat 

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  • jo1955
    jo1955 Member Posts: 8,543
    edited May 2011

    Katarina - I had 6 weeks of rads and worked everyday.  I had my appts in the late afternoon so I could go straight home each day and not have to worry about going back to an office.  I have a great boss and was able to take a hour or so off before rads to go take a nap if I needed it.  I found it exhausting some days and discovered I could not do all the work I could before and sought help from others I work with.  No one had a problem taking on some extra work since they knew it would be a temporary arrangement.

    Perhaps you can do like I did and get help with the workload.  I decided to work vs staying home so I could stay somewhat active and keep my mind off BC all the time.

    I'm sure someone else will come along and share their story.  Whatever decision you make - I wish you the best of luck.  These are tough times with many tough decisions to make. 

  • momof2greatkids
    momof2greatkids Member Posts: 56
    edited May 2011

    i worked through it - went before work each day - lucky though that rads were 5 min from  home, and work 5-10 minutes from there. If I had to commute the way I did when I lived in Californi, I do not think I could have done it every single day. I was fine the first few weeks, then it can start to exhaust you. About when they were done I was beyond exhausted, and am just starting (I think it has been 4-6 weeks since I finished) to feel some energy returning. We are all different with so many other factors to account for - commute, children, etc. Good luck with your decision! (one thing I may hve done different would be to schedule them for the end of the day - I didn't do that because in my job it is near impossible to actully leave on time for n appt (partly my fault cause I can't say no when someone has something they say is important to get done) but at least then I could have gone right home after. Just a thought!

    (and sorry, the "a' key is only working part time on  my keyboard!

  • ruthbru
    ruthbru Member Posts: 57,235
    edited May 2011

    I was fine. I found I was better off (mentally anyway) keeping with as normal of a schedule as possible. Otherwise all I would have done was sit around, think, and drive myself crazy. Unless you would like a break from your job; I would start out planning to do my regular routine; you can always adjust if you find that you are having a hard time. Best of Luck!

  • LauraCA
    LauraCA Member Posts: 20
    edited May 2011

    I just finished two weeks ago.  I chose to work half time (office job).  I took a nap almost every afternoon from the third week on, and even now that I am finished I still do.  I guess it just depends on the person.  My skin started to blister and peel around the 3-4 week mark.  It hurt so much I had to take painkillers, which zonk me out!  

     I am 47 and have been at the same job for 24 years.  Only one kid left at home and he's working and hardly there.  I was ready for the break to focus on my well being.  Trust your instinct!

     Laura 

  • Katarina
    Katarina Member Posts: 386
    edited May 2011

    Wow, everyone thank you for this feedback and tips. I'm hearing best to schedule end of day by many so far, and get ready for fatigue and if it happens, it happens later and not at beginning.

    You can't believe how invaluable this share is to me. I want to do the right thing for my health and my employer so really doing up front investigation.

    I find my biggest problems are always fatigue and ability to mentally concentrate. I'm sure some people can't get through each day the same way. I know everyone's story is different so the more I hear the better informed decision I'll be able to make when the time comes.  

    Thank you all again for your input. I'm 49, divorced, and have a son headed off to college by the time radiation treatment starts. I will be on my own, taking care of myself during this phase.

    Best, Kat 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2011

    I worked outside during my radiation doing very physical work and had seven weeks of treatment.  I found it more tiring than the surgery and chemo - maybe it was the accumulation of all of it.  If you find yourself tired at the beginning of the last week, I would arrange for a ride home on the last 2 or 3 treatments, if you can.  Sometimes neighbors, friends, volunteers will do this for you.

    My butt was dragging so bad during that last appointment, I'm sure you can still see the marks in the hospital parking lot - I wished that I had anticipated this and arranged for my husband to pick me up.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2011

    Also wanted to cover the skin issue.  After 7 weeks of radiation, I only had a problem on the top of my shoulder and back - that tender area that many of us have to watch when we go to the beach or hike.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited May 2011

    Make sure to use whatever ointment they suggest right from the start; don't wait until you start to get red. Don't put any on in the morning before the zap, but I brought a tube with me so I could slap some on right away in the dressing room when I was done and then again before I went to bed. I didn't blister at all; just had a hot, red boob the last two weeks.

  • DLL66
    DLL66 Member Posts: 700
    edited May 2011

    I've been working full time as an assistant store manager all through my treatment, including radiation. 4 weeks down, 2 to go! My appts are in the morning, so I come back home & nap before work. I am able to do closing shifts at work, so scheduling works out for me. I am definitely fatigued, but it is definitely doable.

    Good luck to you.

  • rdn
    rdn Member Posts: 11
    edited May 2011

    I've been working full time as a manager of an inpatient nursing unit.  I have my appts during my lunch hour.  It actually takes 1.5 hours due to the commute to and from the radiation center; my employer has been very accommodating with this arrangement.  I will agree that keeping active has kept my mind off bc which has been a blessing.  I've completed 14 of 36 treatments and I do get pretty tired by the end of the week.  Listen to your body; it'll tell you what to do.  Best wishes during your treatment.   

  • GabbyCal
    GabbyCal Member Posts: 277
    edited May 2011
    Katarina - I thought I'd also chime in that where I go, they advised me strongly not to wear a bra for the duration of the radiation treatments. They basically don't want anything rubbing/touching the area being radiated. Someone on one of the forums said that they found really soft t-shirts at Target (Merona brand). I stocked up on those and am wearing them (along with some other really soft cotton tops I already had) under blouses and lightweight jackets. Since I know you want to be prepared, thought you'd want to start thinking about how to handle this aspect too.
  • Sherryc
    Sherryc Member Posts: 5,938
    edited May 2011

    Katarina-I worked during rads but worked 5 hours a day.  I had an hour communte both ways to rads. About the third week in I started taking a nap when I got home and that got me through dinner and whatever night time activities I had.  But I still wanted to be in bed by 9pm.  The last two weeks I had friends go with me because of the commute I would get very  sleepy driving  home.  Also I had pretty bad skin problems and the last week of rads I was on painkillers and could not drive as well for that.  The fatigue lasted about 5 weeks after rads and then got much better after that.

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited May 2011

    I worked full-time through it.    I had no choice.   I was tired, though.   To be honest, I would not have worked full-time through it if I didn't have to.    But you can if you have to.

  • KittyDog
    KittyDog Member Posts: 1,079
    edited May 2011

    I don't work and there is no way I could have worked if I had a job.  Half way through I tore my rotators cuff so I was on major pain meds for that and slept every afternoon.  I too was one that burned horribly.  The fatigue was doable until I hurt my arm.  In my area they make you put your arms behind your head and hold on to something back there. 

    Good Luck and as all said use your creams like they tell you too.

  • cary1
    cary1 Member Posts: 372
    edited May 2011

    I worked through radiation. I had my appointments every morning before work, around 8 am. The radiation place was on my way to the office. I had some bad emotional reactions to radiation. I would lie on the table and get very blue (some of that may have been overlap from the chemo). But no big fatigue issues. I wasn't good about the skin stuff, so I would echo Ruthbru's advice to use the cream. I didn't because I hated the heavy greasy feeling of it and by the time my skin started to blister after several weeks, it was really too late. That was stupid. Still it all healed up and the discomfort was relatively minor. I was more upset about the look of it all than the pain. I was so happy when my post-lumpectomy breast stopped resembling a beet :) One of the daily rad technicians was male, and at first that threw me. But he turned out really to be the gentlest and most professional of the three. I'd had mainly female medical personnel before that, except for a male medical oncologist.

    One last thing I'll say. I scheduled my appointments before work to be as little disruptive to colleagues as possible. But there was no recognition much less appreciation of that. Zip. If I had to do it over, I might have allowed myself more sleep! However, if I hadn't had to have chemo, I probably would have done all my cancer treatment without telling people at work about any of it. The hair thing made that impossible. You can't get your privacy back, alas.

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited May 2011

    I think you do what you have to do.   I think there are some women who probably could have worked through it, but were able to take off.   

    Katarina, if you are in a financial position where you don't have to, why put yourself throught the extra stress right now?   I say make your life as easy as possible right now.

  • Katarina
    Katarina Member Posts: 386
    edited May 2011

    Thank you Fearless_one. I think the questions you posed to me are really the crux of it.

    I have a generous employer and I'm not financially strapped. The worst thing I could do "Perceptions wise" is to go back to work then have to back out or shorten my work ability due to illness. 

    Most have already expressed issues. I'm glad people are sharing their stories.  

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited May 2011

    I worked throughout my six weeks of radiation, which ran from mid-October 2008 to Thanksgiving. I'm a desk jockey in an isolated office, so I didn't have the stress of office politics to deal with or physical considerations. The radiation facility was half-way between work and home, so I stopped in on my way home from work.

    I felt pretty good for the first four weeks of rads; then the fatigue set in. My skin was also getting rather crispy around this time. After rads each day, I went home and slept. I had some vacation time to use up (or lose) by the end of the year, so I took two weeks off around Christmas. I slept the entire first week. Then I started getting my energy back. By New Year's Day, I was hiking in the mountains. The two weeks I spent taking it easy may have prevented the long-term fatigue that a lot of ladies suffer from. I've been high energy ever since.

  • Madicyn
    Madicyn Member Posts: 20
    edited May 2011

    I worked through radiation at a desk job.  I'm lucky that the radiation appointments were only a 5 minute drive away, so I took my lunch hour to do it.  I did have fatigue, but I'm sure there was left over fatigue from chemo.  I faithfully applied ointment to the area from day one, four times a day.  I got really red and sore the last week and also the week after.  I took a day and a half off from work the week following the last treatment because the pain got pretty bad.  Then suddenly about day 10 after my last treatment I woke up feeling great. 

  • Blinx
    Blinx Member Posts: 280
    edited May 2011

    I wish I had not worked. Had rads first thing in the morning, went home for breakfast/shower, then to work. Toward the end, I worked from 10 to 4. Extremely fatigued, both mentally and physically. Desk job. I was seriously afraid of losing my job if I were not around -- layoffs were (and continue to be) always on the horizon.

    Another girl at my company, different division, was encouraged to stay home after her surgery and not return until after rads were complete. She napped, exercised, took care of herself. I wish I had gone that route. Years later, I still fight fatigue (from Tamox, I guess).

  • Towny
    Towny Member Posts: 111
    edited May 2011

    I worked as well. Got celluitius during the rads on my left arm. Be careful to keep away from bugs.. Lymphadema and celluitius come hand in hand.. Pay attention .. if you have any infection.. not feeling good. high fever.. hot spot .. etc. go to er!! no questions..

    Also get on Cheryl Chapmans website and get the herbel touch ointment.. great stuff for the rad burn.. heals up very fast. the rad onc will push their stuff .. this is really good the herbal touch.

    you will get tired.. but you go to work get zapped than take a nap... I slept like a baby everynite!!

  • Pegs
    Pegs Member Posts: 198
    edited May 2011

    I worked too, school secretary. my rad treatments were at the end of the day. so i left work an hour early.  i only stayed home towards the end when i was really sore from the burn.  and that was maybe 1 day.  i try to push myself too , during chemo i was really tired and sometimes they would send me home from work, what wonderful people i work with....

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited May 2011

    Katarina: I'm in the same boat, If I don't need chemo, rads will start in June and I was wondering about a work schedule.. I work at a fabric store and am active through-out work - cutting, and unrolling fabric from bolts, cashiering and stocking supplies.. Sounds like it would be better for me too to work in the morning (half days) and do rads in the afternoon? 

    Oh that brings up a question. My RO is thinking 16 rads at a slightly higher dose instead of 23... He said that would be less driving time for me being I live 20 minutes away.. but I'm not sure if the higher dose of rads will make me feel worse??? Anyone have any imput on that?

  • peggy_j
    peggy_j Member Posts: 1,700
    edited May 2011
    GmaFoley, my RO gave me 33 rads at a lower dose to reduce the exposure to my bones. (osteoporosis runs in my family; I had a DEXA scan and while I'm in the supposedly normal range, it's the bad end of "normal"). I live 30 mins from docs so it's a pain to drive there every day, but I'm glad I did the extra rads at a lower dose. My doc also said it's a more conservative treatment with a longer, more-proven track record. FWIW, I'm not working but I'm in grad school doing an independent study, so I have a flexible schedule.
  • Teal3Pink1
    Teal3Pink1 Member Posts: 109
    edited May 2011

    GmaFoley:  I was very interested in the idea of 2 weeks of partial breast radiation and tried to get into a clinical trial, but I did not qualify. I had  16 WBRs and 5 boosts and was able to continue working throughout at a desk job without any days out.  I commute by train and it was easier for me to have treatment first thing in the morning on my way to work. Mild fatigue kicked in after week 2 and I really had to take things slowly and conserve energy around the time the boosts started. The fog lifted about 10 days/2 weeks after boosts finished. Good luck!

  • Katarina
    Katarina Member Posts: 386
    edited May 2011

    My main concern with Rads and getting high dosages but fewer is what increased risk are you being put at?  There's a lot in the news these days that radiation from Scans are not regulated and patients are suffering severe burns. They're talking about regulating Scan dosages starting in 2012. (Yikes, does this mean Onc Radiation may still be lucy goosey as well?Rads can cause cancer -- I just don't know how fine or broad the line is on dosage.

    I'm hearing themes here on Rads causing fatigue at the end of treatment more than anything else. Very good to know. Thank you all for sharing.

    Best, Kast

  • Katarina
    Katarina Member Posts: 386
    edited May 2011

    My main concern with Rads and getting high dosages but fewer is what increased risk are you being put at?  There's a lot in the news these days that radiation from Scans are not regulated and patients are suffering severe burns. They're talking about regulating Scan dosages starting in 2012. (Yikes, does this mean Onc Radiation may still be lucy goosey as well?Rads can cause cancer -- I just don't know how fine or broad the line is on dosage.

    I'm hearing themes here on Rads causing fatigue at the end of treatment more than anything else. Very good to know. Thank you all for sharing.

    Best, Kast

  • ruthbru
    ruthbru Member Posts: 57,235
    edited May 2011

    It is so individual. I really didn't slow down my schedule at all. I was just tired of going and getting 'zapped' every day!

  • GabbyCal
    GabbyCal Member Posts: 277
    edited May 2011

    GmaFoley - I scheduled my rads for afternoon and am glad I did. I've done 14 of 36. I'm fine in the mornings. It's nice having the flexibility to do whatever feels right after each treatment. At first that was running errands, last week it started to be nice to go home and rest for a bit. Not sure if rush hour traffic is a concern, but I scheduled mine to get on the highway before the roads start to back up for the afternoon commute.

  • coraleliz
    coraleliz Member Posts: 1,523
    edited July 2011

    Do you think you could have done it if you had bilateral breast radiation? I have bialteral disease & had BMX. I knew I was in for radiation on the side with positive nodes. Now it's being suggested for the other side because of lympatic invasion of that tumor. I do believe that a BMX is probably harder than a uni  but I'm not sure I can or should apply my logic here. I was hoping to bounce right through it. I'm a very active person. I was even going to swim through it if possible. I know someone who did. RO says it should be OK. But both sides?  I'll slow down if need be. I hope twice as much area being radiated doesn't equal twice as tired.

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