Chemo May 2011

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Cyborg
Cyborg Member Posts: 848

Hi. Chances are high that I will be starting chemo in May. I know of at least one other person who is starting too. Let's support and love each other through this. Hugs with long chimp arms.

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  • Cyborg
    Cyborg Member Posts: 848
    edited April 2011

    Is there another thread for this? Where are you guys...

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

     Unfortunately I will be starting a new one , Halaven on May 4,.  This is not my lst chemo and will not be my last, but this will be a new experience for me since I have never done this one and know everyone reacts differently.   I can handle the SEs,( at least I am hoping) if it works. 

  • BioAdoptMom3
    BioAdoptMom3 Member Posts: 198
    edited April 2011

    I am starting chemo on Friday, April 29, (T/Cx4) so I might as well join in if that's OK!?!?  I am a little nervous about the whole thing and it will be nice to have some cyber hands to hold.  I have my chemo class this Monday.

    Nancy

  • Cyborg
    Cyborg Member Posts: 848
    edited April 2011

    Bioadoptmom3! Yes... Join us.

  • Cyborg
    Cyborg Member Posts: 848
    edited April 2011
  • lorenar
    lorenar Member Posts: 141
    edited April 2011
    Hey ladies.I am formally from the Jan, Feb, and March club. But since I finished my adrimyacin/cytoxan(maybemisspelled). I am now onto taxol/ herceptin, once weekly for 12 weeks. Thought I would pop in to say  Hi and if you have any questions never be in doubt to ask. Also read read up on the other chemo forms. They helped me so much with what to expect. I was scared to death as well. As you keeep going it gets doable I promise. We are all pink warriors in this together. I will be glad to answer any private messages as well. good luck ladies. You will do fine.
  • Cyborg
    Cyborg Member Posts: 848
    edited April 2011

    lorenar- That is a good idea to read the previous posts so I can look at the variety of ways that I may feel and how I can cope.

  • BioAdoptMom3
    BioAdoptMom3 Member Posts: 198
    edited April 2011
    Soooooooooo looking forward to us having each other to get through this journey!  Thanks for the welcome Cyborg and Lorenar, how thoughtful of you!

    Nancy
  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited April 2011

    Hi ladies, I will be starting mid may exact date tbd. Ac dd followed by 12 weekly taxol. I was thinking that surgery was going to be a walk in the park and that chemo had me shaking in my boots... Then sx was a boat load of complications and now I'm bracing myself.



    But I've also convinced myself that the tx is not going to kill me it's just going to be a less than fun summer. Lots of praying, meditating and medication.



    I've got more resolve even tho I've got more fear if that makes sense... I WILL watch all three of my kiddos graduate, buy first houses and make lives of there own. I wILL.

  • lifelover
    lifelover Member Posts: 553
    edited April 2011

    I start FEC the 9th of May and I really do not want to do it.  I'm usually very positive but I dread the next 4  months of 3 FEC and 3 Taxotere.  Wig shop just telephoned and I could not talk to them.  I want to be well again and feel like my old self but I can't return to being healthy until I have   the chemo so I guess I have no choice.   Well, tomorrow is another day and maybe I'll be stronger then.

  • Ruthii
    Ruthii Member Posts: 17
    edited April 2011

    Just received my Oncotype DX score yesterday and with a score of 40, I will be starting chemo mid-May.  Have first appt with the MD oncologist May 6 as BS wants me to start chemo in two weeks from now, leaving two more weeks of healing from the lumpectomy.  I'll have 4 sessions over 12 weeks--I'm not sure of the chem's, but the protocol will be confirmed May 6.

    I thought I would faint before I finally got the Oncotype score as it got delayed twice, putting me into some sick state of suspended animation.  I thought I would faint if I found out I had to have chemo.  Instead, I feel like I can finally see ahead of me.  I don't function well without goals, and now I can make my plan and at least try to take this step by step and get through each day.  The terror of the unknown was just doing me in. 

    At least I can DO something now:  learn about SE's, how to cope with them, figure out what to do about the hair thing--BS assured me it would fall out but grow back. I'm happy about the recommended 4 sessions every 3rd week.  So I figure I have 2-3 weeks to get my house in order and my survival plan in place.

    And I am so happy to have friends here to compare notes with.  This is truly a gift.

    Good luck to all of us.

  • Cyborg
    Cyborg Member Posts: 848
    edited April 2011

    Hi Ruthii,

    I had my surgery on March 17. I am really wanting to do the chemo. I also have 4 sessions. It's goingnto be a "cruel summer." haha. We can do this. I love this website.

  • Cyborg
    Cyborg Member Posts: 848
    edited April 2011

    Hi lifelover and beaglesgirl.

  • MamaV
    MamaV Member Posts: 907
    edited April 2011

    I too, like lorenar, started chemo back in January.  I had 4 treatments of A/C (once every three weeks) and started weekly Taxol treatments last week.  My last treatment will be July 7th, so I think I'm still qualified to be part of the May group.

    Taking it one day at a time like you gals too.  Hang in there!

  • judyfams
    judyfams Member Posts: 148
    edited April 2011

    I finished my chemo on Sept. 8, 2010.  Six rounds of cytoxan/taxotere every 3 weeks.  I am 68 years old and had no problem with the chemo.

    The first round I kept a daily diary to track my reaction, my fatigue, my appetite, my pain etc. so I would know how to plan my days for the other  5 chemo treatments.  For me - the 3 days after the chemo were the hardest.  I felt the most tired and also had the Neulasta shot the day after chemo.  So I made sure to have no plans for those 3 days. I made sure to rest on those days and not push myself.  All things that had to be done were done before I started the next chemo.

    I also made sure to eat many small lean protein meals during the day as well as eating many fruits and vegetables.  No fast food, fatty food or fried food.  No food with preservatives - ate organic vegetables and fruits.  I also drank lots and lots of water to flush out the chemicals. I was not nauseous and tolerated the chemo regimen very well.

    Hopefully this regimen will help some of you ladies plan for your chemo.  I hope you all tolerate the chemo and will not have any side effects that you cannot handle.

    Much good luck to all of you.

    Judy

  • Cyborg
    Cyborg Member Posts: 848
    edited April 2011

    Judyfams,

    Thank you so much. I was really baffled cause I do not eat meat-- bit of I am craving ot, I will as long as it's not fast food. Glad to hear you tolerated it. Good idea about keeping a journal of the first round. Thanks for coming on board this topic.

  • cothi76
    cothi76 Member Posts: 45
    edited April 2011

    Hi ladies, I too will be starting chemo in May. This has been a life changing event for me to be dx. Thank you for starting this group..it helps to get support from others going through the same thing. I have just joined this site. Much luck to us all.

    I'm not sure if anyone else has been given 2 approaches to chemo like myself. AC-TH or TCH. I'm torn between the 2..not sure what to do. I've been told AC can cause luekemia? 

  • Cyborg
    Cyborg Member Posts: 848
    edited April 2011

    Welcome mama V



    Hi cotrinh. I know there are a lot of knowledgeable women on this website. I am new and I do not know anything about much. But check on other threads.

  • BioAdoptMom3
    BioAdoptMom3 Member Posts: 198
    edited April 2011

    A great big warm welcome and lots of (((HUGS))) to all of you who have joined in over the past couple of days!  I am so glad to have some chemo buddies!  I start this Friday (T/C 4x).

    Nancy

  • Cyborg
    Cyborg Member Posts: 848
    edited April 2011

    BioAdoptMom

    Thank goodness for each other

  • jamiebeth
    jamiebeth Member Posts: 50
    edited April 2011

    I'll be starting chemo (T/C 4x) in May, and I am so excited! There's nothing I'd rather do than have chemo! It'll be so...much...fun...whoo-hoo? Sorry, I couldn't maintain my sarcasm.

    Seriously, though, we're all tougher than we give ourselves credit for, and we will get through our ordeals with grace, like so many on this board already have. Here's to us!!

  • lifelover
    lifelover Member Posts: 553
    edited April 2011

    Are there any chemo patients who don't lose their hair?

    I've got my wig fitting Saturday and am having my long hair cut short in anticipation but I won't shave unless I start to actually lose it.  I lost it 17 years ago when receiving radiation treatment so I assume I'll lose it with chemo (have FEC and T).

  • MamaV
    MamaV Member Posts: 907
    edited April 2011

    Jamiebeth you crack me up!  Here's to us is right!

    lifelover - I had 4 treatments of A/C (DONE!) and 12 Taxol (1 done, 2nd tomorrow - 10 more after that) and I lost my hair on days 15-16 after 1st treatment.  Thankfully I have a great wig, but when I take it off - ug - I still can't get used to it.  Lost almost all my eyebrows and eye lashes too - thank God for great makeup and fake eyelashes ha ha.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

       There are some chemos where you do not lose your hair and I have done them, Gemzar and navelvine. Oh, forgot the methotrexate/cytoxin, but that was an oral one.   The one I am about to start in May, Halaven, you do lose hair with.  On the adrimycin, yes, you will lose your hair....also with taxol, taxotere and Abraxane (all members of the taxol family)  I did Abraxane and did not lose my hair until the 29th day after treatment and it did not come out all at once, just got sparcer and sparcer and when that happened, I went and had it cut very short, not shaved, but short.  I do not like losing my hair, but found it easier to deal with than the funky nails and lose of taste.....maybe it is not big deal to some, but I need my sense of taste.  I think you will find everyone is different with their SEs....some women only have an altered sense of taste and some do not get neuropathy.  They list the SEs with each chemo, but that does not mean you will necessarily get them.  I don't know of anyone who has developed luekemia from adriamycin/ cytoxin.............as I said they just have to tell you all the possibilites to cover themselves in case something does happen.  Many women find that their hair starts growing back before they finish the treatments.  No one ever really wants to do this, but consider the alternative.  I actually do recall when I started on one chemo, maybe the navelbine, I was anxious to get it started and happy that we were doing something because my scans had showed progression.  The one I am starting May 4, I am not looking forward to, but that is only because right now I am feeling really good......know I am not good on the inside because of the CAT scan results, but I am feeling good.   So even though I am not looking forward to this, I look forward to getting to know all of you in the months to come.

  • lifelover
    lifelover Member Posts: 553
    edited April 2011

    Thanks Mama V,

    Yeah, I forgot about the eyebrows and lashes - think a shopping trip is in order to look for some fake lashes - I'll actually enjoy that as my lashes now are quite thin.  Maybe that will cheer me up a bit.

  • MamaV
    MamaV Member Posts: 907
    edited April 2011

    I got my lashes originally for my daughter for dance competition at Walmart for $3!  She ended up not needing them so I 'borrowed' them.  They are really good and you can't even tell they are fake.  It's funny how we spend so much energy trying to look 'normal' when we feel anything but!

  • DebRox
    DebRox Member Posts: 437
    edited April 2011

    Chances are extremely high I will be starting chemo this month as well.  46 years old, premenopausal.  I hate this disease and what it puts all of us wonderful women through.  Even just to get to this stage!!!

    Received my path yesterday, meet Onc tomorrow.  Anyways BS will not request oncotype dx as she feels chemo for me is an inevitability.  I was upped to a Stage II due to tumor size, no longer 1.7, now 2.6.  Grade no longer 2 now 3. kI-67=50% and lymphvascular and perineural invasion present - has me worried about those cells floating around my body and forming tumors elsewhere. 

    The only good news from the report was that my margins were clear and my lymph nodes were clear.

    Tomorrow I will have an idea as to what Onc #1 suggests, I plan on visiting at least 2 more. 

    I'll be back, for that I am sure.

    Debby

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

    Hi ladies, I will begin my 1st chemo journey with you on the 12th of May.  Looks like ACT is the route we're taking.  I will be here to provide support/comfort and personal testimony to anyone who needs it.  ((HUGS)) to all.

  • MamaV
    MamaV Member Posts: 907
    edited April 2011

    Debby and Marcya welcome to the club no one wants to join.  Together we will get through this journey.

  • cothi76
    cothi76 Member Posts: 45
    edited April 2011

    ((Hugs)) to all..

    btw if any of you ladies plan on using fake lashes..cheap lashes are great but make sure you use good glue. MAC sells a 'surgical glue' that works great. 

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