April 2011 Rads

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  • ReadingMama
    ReadingMama Member Posts: 573
    edited April 2011

    Letlet, I doubt wiser, but I did have some other ladies tell me that it would be easier to be treated near home, esp on days where you were feeling ill.  Sorry chemo was so hard, I was lucky that my workplace let me work every other week, so I was off chemo week and worked non-chemo week. 

    Our diagnosis (and the good five) are very similiar, we were all dx Aug/Sep and all HER2+. Did you have chemo before surgery also? Isn't it frustrating how slow your hair is growing on Herceptin?  I finished chemo in Jan. and although my scalp is fully covered, I have basically no hair growing away from my head.

  • Motherof3BakingQueen
    Motherof3BakingQueen Member Posts: 6
    edited April 2011

    Hi

    Do any of you ladies having radiation experiencing swelling, hardness and puffiness in the breast.  I haven't seen alot of comments about those side effects.  My breast is so swollen just after 4 rads, and it is so hard.  My skin is fine, but the scar tissue is hard as a rock.  It was like this a couple weeks after lumpectomy, but then started to dissipate, now it's back.  Is this normal.  My Rad Onc. said it wouldn't be like that from the radiation.  He didn't seem concerned, and I definitely feel side effects already.  There's not doubt.  Ribs, heat, soreness, swelling, itchy, irritability.  So bummed.  I honestly thought it wasn't going to be bad....at least not in the beginning few weeks..Anyone feel like this.  I'm really not a negative person.  I like to stay busy and be productive, and keep a positive attitude, but I guess I thought I recouperated from surgery and now I feel like I'm taking a step backward....=(  

  • SusanHG
    SusanHG Member Posts: 655
    edited April 2011

    Hi All!

    Treament #11 done today and I can honestly say that i am feeling back to normal.  I finished my antibiotics and my infection seems to be gone.  I had a very energetic weekend and my shortness of breath has almost subsided.  It just comes and goes every once and a while.  One thing that is starting to happen though is I am starting to itch in my cleavage area.  Am seeing rad onc tomorrow so I will ask what I should do (it is lightly peeling as well).  I heard hydrocortisone cream is good, but need to get his ok first. After each rad I get redder, but definitely recovered almost back to normal over the weekend.

    Ducky:  The only thing I have felt during rads was a deep sort of twitching.  Maybe this is what you feel as well?  Might have to do with the milk ducts being affected by rads?

    Hope everyone is doing well,

    Susan

  • BlueLily
    BlueLily Member Posts: 60
    edited April 2011

    Hi Mother of 3 Baking Queen -  Yes to all of the above right from the beginning.  Aloe, Aquaphor, and stay hydrated... Productivity comes and goes... I try to get as much as possible accomplished before rads....  Still beats the alternative.

  • SusanHG
    SusanHG Member Posts: 655
    edited April 2011

    Mother of3 Bakingqueen:  I actually have experienced this, but it was much worse when I had my infection (it was a second bout of breast cellulitis from surgery).  Still, my infection has gone away and all around my incision is hard, as well as the area of the lumpectomy.  Nipple is definitely swollen and tender, but actually feels better than it did.  When do you see the doc next?  If it is unbearably painful I would get it checked out. 

    btw I felt like hell after the first week, but I feel almost perfect now (after 2).  Still can't walk fast though (way too painful for those babies to bounce ;)  )

  • thegood5
    thegood5 Member Posts: 478
    edited April 2011

    Mo3~ same thing here...my ribs hurt too, front and back on the rads side.  getting red in cleavage area also.  Saw onc this morning and he didn't seem too concerned.  Hang in there and hope it gets better! 

    Readingmama...my hair is about .5 in. on top and an inch in the back, last chemo was Jan. 19th.  Slow but sure!

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011

    Susan, it did feel like twitching, you could be right.

    Letlet, Thanks, and my family  keeps me going and on my toes................Last night ast dinner I said .............You know guys, I've been trying to pinpoint all my ailments before tomorrow, so I don't blame them on Radiation when I start.............. One of the  "Stand Up Comedians" said "hold on Mom, let me get you the Scott Tissue, 1000 roll sheet, cause that is what your going to need once you start writing them down...................Of course the whole room erupted in laughter, including me..........................Crazy bunch they are............I just wish their father was here to enjoy the fun...........It never ends, you can't be with them and not be laughing all the time......even in the Dr.'s offices, hospital waiting rooms, and the hospital rooms........One of the nurses in the surgical center said the day of my surgery "I never saw so much love in one room" and it is true........You can't be sad around them cause they are all so funny, and the in-laws are just as bad...........goofy as hell, but thank God we are one amazing  family..............People say to me "what did you do to make such a happy family, I said "all it took was love"  There is no secret to it, just love them, and when you think you have shown them enough love, show them more.......................that is all it takes.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011

    HEY LADIES GUESS WHAT, I JUST SCRATCHED OFF MY FIRST OF 33 LOTTERY TICKETS................I WON $3.00, NOT BAD FOR THE 1ST DAY.

    My son got me lottery tickets that everything you win comes in 3's..............as far as money goes....it will always be 3 something if you win.............he got that because he thought it was appropriate since I'm getting............33 treatments............well I got my first win, can't wait for tomorrow for my 2ns scratch off...................yea, I'm $3.00 richer...not bad.  I'll keep you posted.

  • sagina
    sagina Member Posts: 1,219
    edited April 2011

    Hi Ducky, glad you're on the road to being finished sooner!  I felt the twitching too, but just figured it was my muscles trying to keep the boob from sliding to the floor!

    Motherofthree~ I am large breasted, not feeling the hardening yet, but was warned that I will.  On my 5 one nope my 4th one, darn residual chemo brain.....wonder if the amount of tissue has something to do with how quickly that happens.

    I'm going to buy Lotto tickets too!!!! How fun!!!!!

  • ReadingMama
    ReadingMama Member Posts: 573
    edited April 2011

    the good 5 - I finished chemo the day before you, on the 18th.  Which was nice because my birthday is the 19th!  My hair is definately no where near an inch. 

    Ducky 3 - congrats on your win, that must be a good sign!

    SusanHG, glad your infection is cleared up. 

  • lesleye
    lesleye Member Posts: 38
    edited April 2011

    Ducky:  Please let us know your winnings!  I think I may do the same thing.  Rads start this Thurs April 28.  So I have a few more days of experiencing your lottery wins.  Best of luck.  

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011

    Will do ladies, and it is fun...........Tempting however to not open all 33 at once.....,  but i will be good, and do a day at a time, the same way I am going to try to handle Rads, and the rest of this mess with Bc...........small c...I can't even give Bc the honor of a capital c............It doesn't deserve recognition, as being important................

  • tvandyk
    tvandyk Member Posts: 6
    edited April 2011

    Hello all, My mom has sent me pictures of flowers each day for each day of rads. I have now received 14 cards. Sticking them all on a piece of card stock and making my own bouquet. She also includes positive words, notes, or quotes. It is the sweetest thing. Something positive for every day. I wil remember this when someone I know goes through something like this in the future.

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited April 2011

    i'm definitely doing the lottery ticket thing. i have 33 rads also. my tats and simulation is tomorrow!!

  • ritaz
    ritaz Member Posts: 186
    edited April 2011

    Ducky:  LOVE the idea of the scratch tickets - I'm 11/30 which means if I buy 30 then I'll already be able to open 11 immediately...What a bonus!  Sounds like you have a wonderful family - you did something right sista to have all that love and concern...After losing their dad I'm sure they sure as heck don't want to lose their mom so soon too...

    tvandyk:  Love the flower card every day - how sweet is your mom? 

    SE's:  some redness, some warmth and I've swelled at least a cup size (how swell) no pain in that area though...My only problem right now is that the ribs on the other side hurt because DH and I were out with friends on Saturday night and I ended up getting a piece of chicken lodged in my throat and DH had to do the Heimlich on me!  What a weird, embarrassing situation that was.  Apparently, he got a bit too enthusiatic on the ribs and now it's sore whenever I breathe in deeply...I refused to go to the doctor - I've had enough of doctors these days!  I'm thinking later - really?  Two bouts with breast cancer and I'm gonna die from a chicken?  That's not right...LOL

    Hugs to all

  • sagina
    sagina Member Posts: 1,219
    edited April 2011

    Ritaz~ holy molly! Glad you are okay, my RO said the ribs do weaken with my treatment, maybe an x-ray won't be so bad? Bet they could shoot it from the rad machine?

    I am only 4 of 33 and yesterday I got home fell asleep at 7 pm woke up at 9 pm back in bed at 10:30 pm and this morning I feel like I haven't slept at all....

    I don't have tats but where the marker is on my breast right where the incision is, is hard as a rock, and sore....anyone else?

    I see the RO every Tuesday through rads, will see what he says today.

    I hope everyone has a wonderful day today, will check in later.

  • AimeeMac
    AimeeMac Member Posts: 241
    edited April 2011

    Just back from radiation #17 of 33, so I am officially more than half way. I should be feeling happy, but do any of the rest of you get hit with a wave of sadness every time you go into the treatment center? I am having trouble picking myself back up once I get home and am thinking of calling my docs for depression meds. Has anyone found that they help and if so, what are you taking?

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011

    Did my 2nd treatment today..........Won $3.00 yesterday, nothing today, but hell I have 31 more tickets to open, and my DS who insisted on taking me again today said when you buy them in a row (33) you have a better chance of winning the "big one" whatever that is........

    Had to see the RO today, and she is the sweetest person, found out yesterday I also had an appt with the BS today at 9am so cancelled that,but walked into his office (right next door to Rads), and said I'll reschedule........they said "we will see you right now", I said, No, and looked at my son, and he said "she'll stay.....I said, you have to get back to work.........He said "and you have to see the Dr."..........he won again.........

    You are right, and thanks for the compliment......I have wonderful children......some are doing much more then others (6), but they all do whatever they can, and some can do more then others.......actually a lot of it isn't necessary, but they won't take no for an answer..

    After seeing the BS today he said to me..............You have the most loving, and caring children I have ever seen, and trust me I see a lot of patients"...........He said "that is so rare, and we here are all impressed with your kids......."I have never seen a more loved Mother in my practice then what you are"......"Everyone talks about your family"............I thanked him, and walked out a little taller, and a little prouder, but I knew it before he said it, but how nice to hear someone else say it to you...........I am in a Regional Breast Cancer Center, so everyone I see is right in the same hospital, and all in the same area, so they communicate all the time to each other....They are truely wonderful people.................Well I will be back tomorrow for #3, and I just keep hoping all goes well..

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited April 2011
    had my tats and simulation today. it was a breeze! and.. my rads tech is about my age, and what a cutie!!! i lucked out on that oneEmbarassed
  • SusanHG
    SusanHG Member Posts: 655
    edited April 2011

    Poor Rita! I feel so bad for you and am glad you are ok.  What a thing to deal with!

    I must say ladies I feel almost 100% today (had #12 today).  Saw my rad onc today and he says i am right on track with where I should be.  Also, I won't feel as many side effects once I get to the boosts since it is directed at such a small area.  16 more full breast txs and then 8 boosts to go!

     I do feel sad sometimes, AimeeMac, but for me i think it is because once radiation is over I won't have the physial sense of ging somewhere to fight my cancer, in other words, having the support of being around doctors and other patients all the time.  I'm hoping these discussion boards will keep the support going for me.  It has been great so far!  Love hearing everyone's experiences!

  • MizChiz
    MizChiz Member Posts: 36
    edited April 2011

    OK, everybody, some of you are making me jealous w/ all this talk of "cleavage." I've never had it. I refer to the area between my boobs as The Grand Canyon. Nothing there. Just open space. Also, my breast has become a tad bit larger since RADS... I was calling the "good" one "Pint" and the cancerous one "Half Pint." Hoping I will have to rename them but I'm sure it'll deflate again... sighhhh... One good thing about the breast surgery was that it seemed to straighten out my nipple and breast. It used to point down and outward as if it was a spotlight on a cop car looking for footprints... I thanked my surgeon for that. This evening is 16/28 and I will see the nurse practioner. Dr. Quirky is on Thurdays. I told Dr. Quirky last time how I flashed my guy friend who mows my lawn last summer. At least he laughed! Wasn't sure he was human. Oh, and if the nurse practioner wants to look at Half Pint tonight, she'd better produce some beads. After all, nothing in life is really free.

  • msjag
    msjag Member Posts: 416
    edited April 2011

    3 to go, skin doing ok...just feel achy all over,   Never thought this week would come when I started, but it did, and you will all get through this, so much easier than chemo, that's for sure.

    Hope everyone is doing well!

  • AimeeMac
    AimeeMac Member Posts: 241
    edited April 2011
    msjag - thanks for the encouragement. I just passed the halfway point but am still having a hard time with the whole concept. Even though it's 10 minutes from my house and is over in a flash (pun intended), it hasn't gotten easier and I find myself down all morning afterwards, unless I keep busy at work. Any advice on how I can turn my mind around?
  • ritaz
    ritaz Member Posts: 186
    edited April 2011

    Thanks for all the kind remarks...I'm okay - breathing is a good thing!  Ribs feeling better today - well, that "might" be the 800mg Ibprophen talking...

    Ducky:  I bought 30 x $2 scratch tickets (all the same, right in a row) on my way home from rads today and since today was 12 of 30 I was able to scratch 12 of them...It's a good thing I don't buy these things all the time, what a waste of money - I got 2, yes 2 out of 12 that won $2.00 each - not very good odds...Maybe my mistake was buying the "Red Sox" tickets?  They aren't doing too good either - LOL...Oh well, it'll be fun to see if I win any more...Maybe I can get a martini at the end of all the rads if I win 3 more...

    Susan: you are an inspiration - we're right in the same schedule except I'm have 25 full breast and 5 boosts - she tells me that the boosts will be at the end unless my skin starts acting up - then she'll insert the boosts and finish with the whole breast...

    msjag:  You go girl - 3 to go?  Yaaaaa Whoooooo

    Aimeemac:  More than sadness, at the beginning I was just plain pissed off - Now, I'm just going and dealing with it and trying to be cheerful thru it all...and counting down the days...sorry you feel that way...but now you're more than half done - maybe "better living thru chemistry" is the way to go...

    Ginger:  you are a hoot!  My RO told me that 1 in 100 have their breast swell and stay like that - maybe you will be that 1???  Good luck on those beads...

    Speaking of flashing, I went for my treatment today and tied the johnny at the top and waist and didn't realize I was giving everyone a show as I sat in the waiting area with the middle opening up - no wonder those guys were so attentive :-)  Like there's anyone that hasn't seen my boobs at this point? 

    Hugs to all,

    Rita

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011

    Hi Ladies..........I had my 2nd Rad today, which I said above..............both ysterday and today I felt a little sick to my stomach....that never happens to me............did any of you ever have that happen........everything you read says it shouldn't since your not having your digestive track zapped, unless its just  an oddity..........Nothing horrible, just queezy...............Although I was up at 4am this morning, so I had 4 hours sleep on 2 days of Rads, and have not laid my head down today at all.........maybe i should try a nap, but i don't want to do that either, and then not be able to sleep tonight.................Maybe its nothing, or paybacks for the tiuamisu I ate after eating grilled cheese, roasted peppers, and chocolate milk for lunch........Yea, and come to think of it, I ate "sardines" yesterday..............ok, don't yuck me.........its Omega 3's babyeeeeeeeeeee.

    Love you ladies.

  • BlueLily
    BlueLily Member Posts: 60
    edited April 2011

    dang duckyb1 !!!! I want to lunch with you ... well maybe minus the sardines~ LOL!   Hopefully just a bit of anxiety + indigestion.

  • sagina
    sagina Member Posts: 1,219
    edited April 2011

    Hi everyone, 5 down of 33, but ~ I have a large seroma, right where the incision is on top of my boob, I thought for a minute I was growing a third one....Anyway, I am now officially on hold, yes that holding pattern we get put in when the plane can't just land yet...I see the RO every Tuesday through treatment ~ their rules and thank goodness!!!!  He called my surgeon while I was in the exam room, that serious?  I am to report to radiation tomorrow but not have treatment until they get a hold of the surgeon.  Can seromas wear you down? I didn't have a temp....

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011
    Oh and I forgot to add the bag of Lays potato chips I ate too.......Just a 1oz. bag, but I'm sure that didn't help......My daughter told me when she heard what I ate... "Mom you deserve to feel queezy, are you nuts"...........................Damn it was good though.Wink
  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011

    Heeeeeeeeeeeyyyyyyyyyyyy Ladies...................maybe my luck is changing........remember my 33 scratch off tickets..............did # 3 today................damn I won another $15.00 on todays ticket...........that is $18.00 total.........I won $3.00 Monday.........0. on Tuesday, and $15.00 today.........yowza yowza...............This is fun, and I still have 30 more tickets to scratch.....................Hope the Rads go as well as my gambling habit.....hahahahhaha

    Rads are good so far, but I'm not getting euphoric yet........its only the 3rd fry..........everyone is so great. going to see am LE specialist on Monday......shirt sleeve is getting a little snug on the lumpectomy side.........just a precaution, suggested by my RO.  she's a sweetie.......hugs ladies

  • ReadingMama
    ReadingMama Member Posts: 573
    edited April 2011

    Ducky - that's great!!  congrats on the win.  I still haven't done this, but I like Rita's idea of buying all 34 and then opening 16 at once since today will be #16!

    Gina, sorry about your seroma and having to put rads on hold.  I'm not even sure what that is, so sorry I can't offer you any advice.

    I had this 1 tech I don't really like yesterday and Mon. She is not friendly, doesn't smile, no chit chat and yesterday I felt out of alignment, I mean I know my tats were lined up, but my back didn't feel straight...

    Question - are you ladies covered for the radiation?  Some of you have commented about seeing yourselves in the mirror on the ceiling or in the reflection on the machine, so I wondered if the Rad techs leave you incovered?  For me, the uncover me to line me up and then cover me back up again for treatment.

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