THEY HAVE NO IDEA!!

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  • hopeful34
    hopeful34 Member Posts: 1,569
    edited April 2011

    hahahahaha....sorry this just makes me laugh.  I can totally relate.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011

    Ladies your so right.........It reminds me of times when I was younger, and I had 6 children, and they were all close (my fault), and I would be with a group of women, or even just one woman, and I would hear someone with just 1, or 2, possibly more kids complaining about how it was so tough, and she could get nothing done, or had so much wash, or had to cook for so many..........I would say.................Hey, when you have more then 6, I will feel sorry for you, until then, your complaints fall on deaf ears...................Of course that always got a laugh, but little did they know I was not kidding...................I feel the same way about people who want to talk about their bad headache, or the cold they have, or the sinus infection...............I k'now those things hurt, but honey they are going away.................Walk in my shoes and then tell me how bad you feel about what is wrong with you ..........Maybe we are wrong, but there are those times when you just think.............stop whining, and get on with your life...................I am................Hugs.

  • somanywomen
    somanywomen Member Posts: 872
    edited April 2011

    Just checking back in to say to all that visit this topic I started almost a year ago, come vent whenever need be...It's been about a year and a half since my lumpectomy, rads, etc...and I don't talk so much about my BC experience to those around me as I did when it was consuming my every thought, but I still need to feel as though I am not alone so I come here to be with those that truly get it!!!...Everytime we go for our checkups, bloodwork, mammos, ultrasounds, etc., we hold our breath and I don't know about you guys, but I almost cry everytime..The relief of just hearing that all's well just takes me back when all wasn't so well and I lose it.....

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011
    somanywomen - OMG how true is your statement....just a relief, a good cry and thank the lord above things come out okay...I no longer dwell on what used to comsume my thoughts and life at some major points within the last 5 years...moved on with many things and may more to get through, but oh well, one day at a time!Wink
  • LiveFreeinNH
    LiveFreeinNH Member Posts: 40
    edited April 2011

    Just read some of this thread for the first time, and I was wondering if anyone had talked about how others deal with Your cancer. They have no idea but, we have no idea what they are going through. I think of the time when I was clueless about how to act toward somebody whose husband was dying of cancer(I was still clueless) I didn't know what to say so I  probably said some very dumb things because I was scared of it. I know it was a lousy excuse but we must just not take stupid remarks seriously because as you say," they have no idea". Some day they will and they, too, will be sorry. I have the entire spectrum, from someone I don't even know sending me cards and presents, to my very best friend(I thought) not even calling me. They all handle it differently. I have decided to try to let it go. FInding humor in it helps too. Kinda like blonde jokes. Maybe that should be a new thread. What did the Non-cancer person say to the cancer person ...

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011
    LiveFreein NH...............That's an easy answer to the question on your proposed thread.............................Probably Something Stupid............hahahhahhaTongue out but a great idea, would be interesting to see how many idiots there really are out there.........kind of makes you think of the old saing "Silence is Golden".........
  • Cyborg
    Cyborg Member Posts: 848
    edited April 2011

    I am so tired of crying ... Alone.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011

    Cyborg...................I too live alone, my husband died very young, and I never remarried..I do have 6 children, but you can't expect them to always be the ones responsible for "lifting you up", so I know what you mean about crying alone.......I did much of that too.........

    Know you may be crying, alone, in reality, but actually you have a unbelievable source of comfort right on this website..........I don't know what I would have done without these ladies.....They have been my rock, backbone, spirit, friend, when I needed one............They are here, and they listen, and they help...............Even if they can't solve your problem, they will give you a huge hug, which will make you feel loved.............Never cry alone.....................Hugs to you.

  • Merilee
    Merilee Member Posts: 3,047
    edited April 2011

    Its called PTSD

    People would not bat an eye if we all had a car accident that chopped off our chests, then needed intensive debilitating medicine to recover from that, with the chance that the medicine may only work temprorarily.

    If someone attacked us and chopped off our breasts then poisoned us, and threatened to come back an get us at a later date, no one would have a doubt about us having PTSD, they would expect it.

    But some how because it is BC people don't see it the same way.

  • 37antiques
    37antiques Member Posts: 643
    edited April 2011

    Impressive Merilee, very well said!

    (((Cyborg)))

  • LiveFreeinNH
    LiveFreeinNH Member Posts: 40
    edited April 2011

     It has meant so much to me and I have only found it in the past month or so. It is a place to go when I feel so alone in this. and I have never been rejected., only spported, understood, prayed for , and informed. but we are all alone at times.

    I am praying for you Cyborg

  • jteach
    jteach Member Posts: 199
    edited April 2011

    Cyborg

    You are not alone.  Many of us are still crying.  It's a mourning of our lost selves.   I have heard You're not the same person.  CORRECT!  I will never be the same.  However, I have gained courage, fearlessness, because nothing minimal even makes me flinch anymore.  There's a lot that I love about my new self   Please know that we are here for you.  This new you can be wonderful.

    ((((hugs))))   Janice 

  • hopefulhealing
    hopefulhealing Member Posts: 722
    edited April 2011

    Cyborg, this is all so fresh for you yet. It takes a long time to go through the layers and complexities of this disease. It affects from a clinical disease aspect and a body image aspect (that I personally believe is downplayed by so many) a spiritual and the emotional aspect of self.

    I am a year and 4 months out and I still cry once in a while. Just not every day and not with the intensity I had. Like all grief I guess the pain is there but softenend. There is a layer of sadness that will underly things for a long time I think. 

    The women here really get it. It is why we help and support one another so well. I hope you will be gentle with yourself. I hope you will find peace today.

  • cothi76
    cothi76 Member Posts: 45
    edited April 2011

    Cyborg, I totally feel you. I'm 34 single, o kids and I do feel alone. Although I have great family and friends around me they cannot understand what it is to go through this. From the time I got diagnosed to everyday. I got alot of 'it couldn't get any worse' and it seems to get worse. At least you can cry, and let it out. I have issues, its very hard for me to cry. My brain is so cluttered with decisions and information that I can't. I've been reading posts on this site for the past 5 hours and we are definetly not alone. Hugs!

  • Flopsie2
    Flopsie2 Member Posts: 13
    edited April 2011

    Here's my 2 cents worth.  When I was diagnosed with anal cancer - I waited with the men for my turn to receive radiation and chemo.  The women that were also waiting in the same space wouldn't even look at me.  Don't get the wrong idea - the ladies talked among themselves because they shared a common bond - breast cancer.  Once the men realized my cancer treatment was more like their own, they included me in their group and talked to me about their fears, pain and worries.

    Now I've been on both sides of the room - neither are any fun and I wouldn't wish "cancer" of any kind on my worst enemy.  Noone can walk in our shoes - feel the way we feel and we have  earned the right to feel it all.  I'm not excusing bad behavior by those who just don't get it - just not wasting a minute on trying to understand them!!   Ladies - cry, scream and throw things if it makes you feel better and get to the other side of cancer.  Hugs, healing and love to you all!!! 

  • LiveFreeinNH
    LiveFreeinNH Member Posts: 40
    edited April 2011

     The world can be so insensitive. Take care of yourself.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited April 2011

    Flopsie 2...............you go girl................enough said.

  • BonnieK
    BonnieK Member Posts: 655
    edited April 2011

    My 6 month appointment with the onc is coming up in a week or so -- it's been two and a half years since treatment ended, though I will continue to take Femara for another 3 and a half years.  Every time I see the oncologist I get SO anxious, but so far, so good.  Since my dx I lost a breast and 11 lymph nodes, had 6 surgeries, developed mild lymphedema, had 2 implants removed due to capsular contracture (am wearing a prosthesis now), retired early because of health problems and fatigue, developed painful osteoarthritis in most joints and was recently dx'd with hearing loss (will be getting hearing aids).  I'm definitely not the same as before, but this experience has made me aware that I'm tough as an old boot -- we need to be, right?

  • ddd
    ddd Member Posts: 82
    edited June 2011

    I am no longer tough.  I have been trying to get my life back for eight years now.  No one could tell from looking at me that I'm not the same person or that I and am sick. I thought I was tough all this time.  But I don't know what to do anymore because I don't have a life that fulfills me.

    I guess I am giving up and the illnesses have won.  I've reached the breaking point mentally and physically.

    It all started with rheumatoid arthritis, next was breast cancer with double mastectomy, next was thyroid cancer with total thyroidectomy, now I am trying to save my uterus from hysterectomy-happy doctors.  My life revolves around pills, blood tests, etc.  Can't keep it all straight anymore, much less go to work, take care of a household...oh, and we are trying to finish the second story of our house but I am the only one who can see that everything gets done right.  In other words, my husband is useless.  He loves me but can't seem to help me in the ways that I need.  I probably need an anti-depressant, plus I can't sleep more than about twice a week.  I have no energy to find a doctor who might work with me, I usually to have to try out several...but my husband won't help even though I have asked.  

    So the chronic pain, chronic depression, and chronic insomnia will probably do me in...and I have lost any inspiration for life and living.

    I need to get this off my chest tonight.

  • somanywomen
    somanywomen Member Posts: 872
    edited June 2011
    WOW.....ddd, you sound mentally like where I was at when I first started this topic about a year ago...A  bc diagnosis is bad enough, but boy, you can't seem to get a long enough pause to catch your breath...I think depression is a gimmie with all that you have gone through lately..Sometimes, it is worth the time to ask around and find a real caring doctor and sounds like it would be very benficial in your instance...Years ago I was told that I had a possible aneurysm after a brain MRI (was having wierd sensations in my head and scalp, turned out I needed a mouthguard because some dental work got my head out of whack) but while I was dealing with the thought of the aneurysm for about a year (my dentist finally figured it out) anyway the only thing that would help me get some sleep was a very old drug called Trazodone, worked like a charm...But there might be something to help you until you can feel that you have some control of your life back...You cannot do this until you can get some rest and I also find that nice peaceful walks on the beach is amazing therapy...Best to you
  • duckyb1
    duckyb1 Member Posts: 13,369
    edited June 2011
    ddd............Please find a Dr. who can help you . ...............My husband died of cancer 20 years ago, so I can't help in the husband dept. other then to say.....don't depend on him..........you have come so far....don't give up now ...........I am dealing with LE right now , and have cried just trying to put the bandages on myself, but I won't let this get me......................oh I have many bad days, and I am tired too of acting like the "brave little soldier"...........I think that is our mistake......we think we should put on that "I'm great" face, therefore people think we are great, when the truth is we are dying inside of whatever they do to us , the fear of the unknown, and fear of what next SE is going to get us........................yet.................we do go on, and this website is proof of it...............take a day at a time.............isnt' that all we really can do .................you pray for me............and I'll pray for you.........Cry 
  • PearlGirl
    PearlGirl Member Posts: 549
    edited June 2011

    Ladies....I haven't posted here in months but often read your messages. I sympathize, empathize and understand. On the 22nd of June, exactly 1 yr since I began chemo, I will have what I hope to be my last IV treatment. It has been over a year since dx and surgery so most everyone thinks the bc ordeal is behind me. They have no idea how this haunts you and how it has changed me inside and out. Am trying hard to focus on the good stuff, kick energy vampires to the curb, and get back in shape. I have reluctantly accepted that I am mortal and have come to the notion that I must make the best of what I have to work with!  I hate cancer and all that it brings with it. Except for bc.org and all of you. Hugs.  Bon

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited June 2011

    I hear ya!! Noone knows what we go through inside our heads with all the worry.  If by chance someone asks why your worried, duhhhhhhh!  Most peoples attitudes is anyone one can get cancer but they just dont get it that once you do have it chances are higher for a recurrance or mets.  So fortunate for this sister club because this is what got me throught the beginning and will also get me through to the end.  Love to you all!

    hugs to ya!

    AJ

  • somanywomen
    somanywomen Member Posts: 872
    edited June 2012
  • somanywomen
    somanywomen Member Posts: 872
    edited June 2012
  • StillKicking
    StillKicking Member Posts: 115
    edited November 2011

    Well, take my word for it, everybody around me knows all about breast cancer.  My constant whining keeps it in the forefront.  If my joints are aching, they are going to know about it.  If my lymphadema is acting up, they are going to hear about it.  If all the medicine for side affects gives me constipation, you got it, i'll discuss it at length. 

    I can get away with this because 1) I'm the boss and 2) except for one lady, only family works at my office.   Of course, I have noticed people saying more and more that I should stay at home and take care of myself.  Mummm, could they possibly be tired of hearing my complaints for almost 4 years?   Frankly, I don't care.  I'm a single woman and i've got to complain to somebody.  Pookie the cat doesn't appear to care.  Everyday it is something else to treat.  I have no intention of keeping it to myself.  I will admit that family listens and have been great.

    If nothing else, I guarantee that everybody gets the mamograms on time now!

  • StillKicking
    StillKicking Member Posts: 115
    edited November 2011

    Thanks.  You just gotta laugh at some of the issues we have.

  • nycmom
    nycmom Member Posts: 61
    edited November 2011

    You are right. Of course I had no idea either. I still remember telling someone I was having chemo and radiation and she said,  "oh, I thought they were the same thing." or saying to someone when her sister was diagnosed that now it was part of her family history and she had to mention it to her doctors and she asked, "even without the gene?" And, right, some people's expressions of care or concern (or lack thereof) were disappointing. But really no one could say the right thing to me then - either they minimized it or wrote me off as a goner.

  • odie16
    odie16 Member Posts: 1,882
    edited November 2011

    Just finished reading this entire thread and can relate to so many of the postings. I am nearing the end of my reconstruction and know everyone thinks I will be good as new then. I want to go back to my normal boring life but am terrified of the unknown. (future)....Very few understand the ongoing concern and how we have to adjust to the new normal. I know I am definitely not the same as I was pre-BC........

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