Symptoms prior to diagnosis

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Anonymous
Anonymous Member Posts: 1,376

Hi everyone, I was disagnosed on 14 March 2011 with IDC, 2.7cm, stage 3, grade 3, 5 positive nodes of 23 and LVI.  I had a right radical mastectomy on 5 April 2011 and I am healing pretty well.  I will probably not begin chemo for another week or so.  My question to anyone who has experienced this or has knowledge of it is - prior to your diagnosis, did you experience all over bodily itching and hair loss?  I experienced this for about four years prior to me finding the lump in my breast.  The Drs could not pinpoint the reasons or consider cancer.  Now, I'm wondering if the cancer was there all along.  Just curious.  I guess if it stops after treatment, then that's an indicator.  Thanks! 

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Comments

  • bdavis
    bdavis Member Posts: 6,201
    edited April 2011

    I did NOT have any symptons and still don't... If I hadn't found the lump I never would have known I had cancer.

  • starbeauty
    starbeauty Member Posts: 327
    edited April 2011

    Marcya - Hugs to you...  My stats are similar to yours... and I had no clue... nothing to give me any idea there was something bad buried in my right breast.  Mammogram found it...

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

    Ladies, thank you for your responses.  It's just something that I have been speculating for a few years now, but because of my age (41) the Drs thought I was a hypochondriac of sorts.  I kept telling them that I know my body and itching and hair loss was not something that is supposed to happen daily for years, but because they couldn't find any outstanding information in my bloodwork, they dismissed me.  Until now.  Although it doesn't change anything, I can't help but wonder if we could have caught this much sooner had they treated me and not my symptoms.   

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited April 2011

    I felt absolutely fantastic when my lump was detected.  No symptoms at all.  That is why now, I can't take too much comfort in the fact that I am feeling really good again. The little voice inside my head says "Yeah, but you felt really good before...."

  • rathbone
    rathbone Member Posts: 4
    edited April 2011

    What kind of cancer did you have?  Have you only had a lumpectomy and not a mastectomy?

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited April 2011

    All over itching and loss of hair sounds more like a liver issue and would have nothing to do with breast cancer! Ladies on here who have those symptoms have them due to treatments they are on. Totally no link at all.

  • pj12
    pj12 Member Posts: 25,402
    edited April 2011

    Actually I have read that unexplained itching is sometimes a forewarning of cancer and my DH (an MD of the old school was taught that in med school). I had weird itchy skin for a few years prior to IDC early stage BC. I really thought I was allergic to something in toilet paper as that "area" itched like crazy. Stopped itching as soon as I began treatment for breast cancer and has not come back in spite of very dry skin sue to Arimidex and or Tamoixifen. Just saying......

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

    I fell ill about three and a half years ago, lost half my hair, developed hypothyroidism, and suffered from extreme fatigue and horrible PMS symptoms. I traced it back (I believe) to heavy metal poisoning from a water dispenser -- GE brand, made in China. I took it apart and was horrified to find the hot water tank clogged with metal corrosion. I had been drinking two pots of tea a day made with that water. 

    I just had a blood test for copper and my levels are elevated. High copper is associated with breast cancer.

    You may want to look into your metal levels, which could account for both hair loss and itching.

  • pj12
    pj12 Member Posts: 25,402
    edited April 2011

    Purely anecdotal but...

    Localized itching as a harbinger of breast cancer?

    Journal of Family Practice, July, 2004 by Josette McMichael

    12Next

    A 34-year-old, previously healthy nurse whose mother and maternal aunt had breast cancer presented in January 2003 complaining of itching of her left areola and the area just lateral to it at the 3 o'clock position. The itching had begun 6 months ago, stopped, and recurred. She reported no other symptoms.

    Examination yielded normal findings without skin changes, palpable masses, or lymphadenopathy. She was treated with hydrocortisone 1% cream and was asked to return in 2 to 3 weeks to discuss further evaluation if the itching had not resolved. At the time, she was working overseas as a humanitarian aid worker and unable to get a mammogram or other evaluation without leaving the country. She did not return for a follow-up visit, though the itching continued intermittently.

    About 2 months later, the patient discovered on self-examination a mass in the left breast lateral to the areola at the 9 o'clock position. She was due to go home to the United States in 2 months and deferred evaluation. In the meantime the breast mass doubled in size. Upon returning home, she had a mammogram (negative finding) followed by ultrasound and a needle biopsy. Pathology examination revealed a 1.8-cm mass positive for ductal carcinoma with local micrometastasis. Results of node biopsies were negative. There was no evidence of Paget's disease.

    Since her diagnosis, both her mother and sister have tested positive for the BRCA gene. The patient herself declined testing. Initially, the patient underwent lumpectomy followed by chemotherapy. After her lumpectomy, the itching resolved. After counseling concerning the BRCA gene and cancer risk, she elected to undergo bilateral mastectomies in October.

    Could itching be a warning sign of possible cancer, especially in a patient at high risk? Pruritis has been well described as a presenting symptom of Paget's disease of the breast, malignant nevi, and of other cancers. (1-3) Itching may be localized to the area of cancer or more generalized. (2,3) Both itching and pain involve activation of a peripheral group of C nerve fibers, and itching can originate anywhere along the afferent neural path. I hypothesize that this patient's itching was caused by nerve fibers in the breast being affected by the growth of the breast mass.

    Could itching be the presenting symptom of other types of breast cancer as well? Have you observed this phenomenon? If there is indeed a connection between such itching and breast cancer, would a more aggressive evaluation of unexplained itching lead to earlier diagnoses and decreased morbidity and mortality from cancer?

    Let me know if you have also seen this in your practice.

  • lonekazoo
    lonekazoo Member Posts: 2
    edited April 2011

    I still can't get my wife to participate yet on this forum, so I'll reply for her and try to get everything right.

    She started to have strange itching and swelling on her right arm in January of 2010.  She talked to the Dr. who ran some tests and decided it was Lupis due to slight elevated numbers (can't remember the name of the test).  She showed the Dr. a lump that was developing under her armpit, and was told it was a symptom of Lupis. She was on a treatment for Lupis for several months, until during a followup visit she was told that her levels were normal and they didn't think she had Lupis after all. 

    She was pleased to be told she didn't have Lupis, but still annoyed by the problems in her right arm.  During a visit for a sinus infection early last December, the nurse looked at the lump and scheduled her for an immediate Ultrasound, and later needle biopsies on two lumps.  Found out two days after Christmas that it was multifocal BC.  This was a full year after her first visit for the itching and swelling. I'm extremely grateful to that nurse, but of course time was lost in getting this treated. She is currently undergoing Neoadjunct chemotherapy (TACx6), on her 5th treatment for stage IIIc, ER+/HER2- IDC.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2011

    I have Invasive Ductal Carcinoma.  I only recevied a right mastectomy due to the microcalcifications. 

  • tcam3472
    tcam3472 Member Posts: 22
    edited April 2011

    I had no symptoms of cancer in my left breast at all...until I noticed blood on my bra and realized it came from my nipple.  Thank God for that clue.

  • Lindy323
    Lindy323 Member Posts: 57
    edited April 2011

    I had itching in my breast occasionly...I say "in" because it felt like the itch came from the inside of my breast and scratching on the outside didn't help. I also felt very tired alot but figured it was due to getting older. Don't know if these are actually symptoms of cancer, though I sometimes wonder....

  • Marple
    Marple Member Posts: 19,143
    edited April 2011

    I too had itching decribed by Lindy323 exactly.  An itch you couldn't scratch.  This started months prior to my finding the lump.  When I discovered the lump I also had dimpling over the area if I raised my arm up.

  • jteach
    jteach Member Posts: 199
    edited April 2011
    No symptoms at all.  I felt like a million dollars.  Now I feel like about $1.50.  Laughing  Janice
  • mumito
    mumito Member Posts: 4,562
    edited April 2011

    I never had itching but had unexplained pain between my shoulderblades for almost a year beforeDX.I am sure it was my bodys way of letting me know that something was very wrong.I just wish i had listened earlier.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited April 2011

    Itching in or on a breast can be an indication of IBC as well. But say a itching leg? Nope.

    I agree about the heavy metal poisoning too! Of course! I knew of a great stain glass artist that developed cancer due to the metals she had to use for her craft.

  • pj12
    pj12 Member Posts: 25,402
    edited April 2011

    jteach, Love the million dollar/$1.50 analogy :)

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited April 2011

    OOoooh, as a Canadian, I can say that the $1.50 makes me feel like $1.59!!! (For so many years we've been less than the US dollar, it's been nice to be higher for a while).

  • pj12
    pj12 Member Posts: 25,402
    edited April 2011

    But of course a million bucks is not worth as much as it used to be either. :(

    So I could say "used to feel like a million-two but now I feel like 91 cents." :)  Doesn't sound as dramatic, does it? 

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited April 2011

    My only "symptom" just prior to my diagnosis was extreme fatigue (I was 44).   I didn't know why I was so tired all the time.

  • nikola
    nikola Member Posts: 466
    edited April 2011

    Same as fearless one. I was very tired for at least 6 months before being diagnosed. I had to take nap each day which I never did before.

  • christine47
    christine47 Member Posts: 1,454
    edited April 2011

    I had no symptoms prior to my diagnosis.  Went for annual mamogram and mass was found.  Had extreme generalized itching following my axillary node disection, called surgeon and thought I was allergic to pain meds, the next day I was as yellow as a banana.  My liver enzymes had gone to 8 times normal.  They determined I had acute hepatitis from anesthesia, fortunately this resolved over several weeks.  I can hardly wait to have surgery again.   I used to feel like a million  bucks too, this week a nickel, up from a penny last week.

  • pj12
    pj12 Member Posts: 25,402
    edited April 2011

    Wow  Christine47, that must have been terrifying! So glad the hepatitis resolved, Do the docs associate it with a certain type of anesthetic used? Definitely one to be avoided if so.

  • LtotheK
    LtotheK Member Posts: 2,095
    edited April 2011

    Well, I say that I feel better AFTER cancer than I did before.  Diagnosed at 39.  I feel like the vitamin D was huge:  I was 17 at diagnosis, and even after a year of 5,000 IU still only at 49.  I had joint pain, chronic bad sleep and always tired.  I have always thought I might have had what some naturopaths refer to as estrogen dominance.  My body was always on a period rollercoaster.  I'm so sad to be in menopause so young, but I didn't realize what a slave my body was to the hormone cycle.

  • christine47
    christine47 Member Posts: 1,454
    edited April 2011

    They are still working to figure this out, I was at a teaching hosptial, so I am going to be topic for a paper (wonder if I get a copy).  I had my 1st surgery at the same hospital BMX with TEs earlier the same month, because of nausea post op the anesthesia was different.  They are having me meet with several anesthesia docs and an allegist before I have my exchange surgery.  I hope they have a plan.  Evidently this is a rare occurence and usually occurs from inhalation type of anesthesia (halothane).  I quess I will get more info at consult visits.

  • gillyone
    gillyone Member Posts: 1,727
    edited April 2011

    no symptoms whatsoever

  • christine47
    christine47 Member Posts: 1,454
    edited April 2011

    LtotheK,

    My vitamin D was 10 at diagnosis, shocking since I am an outdoor lover and thought I had plenty in my diet.  I am now up to 39, I am taking 50,000 IU/week.  How high are you trying to get to?

  • LtotheK
    LtotheK Member Posts: 2,095
    edited April 2011

    Hi Christine,

    I know naturopaths and even some forward-thinking oncologists think 60 - 90 offers protective benefit.  I was on 50,000 for a few months, then my naturopath put me on 5,000 IU a day.  I'm climing a wee bit every test, but it's a long road!  I started D supplementation upon diagnosis last summer.

    From what I understand, the diet isn't where you get the benefit.  And it seems like some people don't absorb from outdoor exposure, especially at the northern latitudes!

  • christine47
    christine47 Member Posts: 1,454
    edited April 2011

    Looks like I have a way to go, I believe I am to stay on the 50,000 per week until I get higher.  I did learn from an endocrinologist friend that the best time to take the D is with a fattier meal, since it is a fat soluable vitamin.  Is the 5,000 IU a rx or otc?  So wish someone would have checked my D level sooner.  I live in NC, plenty of sunshine, guess I do not absorb very well.

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