Chemo starting in December 2010

Options
1343537394043

Comments

  • sammolisa
    sammolisa Member Posts: 180
    edited April 2011

    Doc is putting me on Celexa today for the hot flashes.   I shoulda asked for it a long time ago.  I went to my pcp today because of a cough that wouldn't go away.   Talked to him about all my problems - chemo brain, neuropathy, loss of balance. etc - he is sending me to a neurologist.   Guess we will find out how the celexa will help.   Tho with the chemo brain I'm not sure if I remember all he said lol. 

    Grats to all our graduates!!!!  I am so happy for all of you! 

    Time for a nap!

    Hugs to all.

  • christine47
    christine47 Member Posts: 1,454
    edited April 2011

    Hey Ladies,

    I am a Jan girl, but read your threads to see what is ahead, thanks and congrats to all of you who are done, done, done!  I have my 5th TAC tomorrow and will finish on April 28th.  Can not wait.

    I took Celexa several years ago following short bout of depression after fertility treatments and pregnacy loss at 30 weeks gestation.  Really worked well, and eventually I stopped.  I went back to doc (psyciatrist office, not onc)  after crying spells with BC diagnosis and she started me on Lexapro (next generation drug, that came out after Celexa went generic).  I am no longer crying watching Little House on the Prarie re-runs and Halmark commericials.  Husband and family much happier too, still have my moments, but big difference!  Also gave me Ambien, a good nights sleep sure helps too.  Good luck to you all.

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited April 2011

    sammolisa, we can keep eachother updated on the celexa train. cause we both got it today! lol! i had to go to my pcp today too. for what i think is another case of strep throat. although the rapid test came back negative, he said those have a high false negative rate. so he gave me a broad spectrum antibiotic and told me if i don't start feeling better in the next day or two, then take them. saves another trip to the doc, or the ER since it will be the weekend!

    it has been 7 months since i saw my pcp, he apparently had no idea what was going on.... my onc office had been sending my bloodwork and all to my gyno (she was the one i went to when i found the lump in my breast) so when he saw me today he was shocked! plus my age. he just couldn't believe it. he said my cancer HAD to be genetic. i told him "nope, wrong again!" cause my genetic testing came back negative. it was a jaw dropper let me tell ya!!

  • karebear76
    karebear76 Member Posts: 288
    edited April 2011

    My sister and mom are on celexa. It works well for them. I am on zoloft. My dr just upped mine (doubled it actually) and I am already starting to feel the difference. 

    Today I went for my last post chemo blood work and ended up getting a transfusion. My numbers were borderline but because I was feeling weak and dizzy so we decided that would be the best thing. 

  • LisaMomOfFour
    LisaMomOfFour Member Posts: 465
    edited April 2011
    I'm done I'm done I'm done!    Will my hair magically reappear in the morning, after a good nights sleep?  Wink
  • AnnetteS
    AnnetteS Member Posts: 180
    edited April 2011

    karebear, would you mind sharing what your numbers were that prompted the transfusion?

    Lisa, yes, get a good night's rest and in the morning you should have your beautiful chemo curls.  Wouldn't it be nice if it worked that way?  Congrats on being done!

  • Lawleigh
    Lawleigh Member Posts: 56
    edited April 2011

    well girls it seems we are all wrapping it up and moving on.  Some have gone on but a few of us remain.  Had my 10th taxol today, 2 more to go.  Then off to Radiation.  They unblindfolded my clinical study today and I was in fact getting the drug vs the placebo that is all good. 

    Struggling a little with the mixed emotions of being done and now what?  Anxious to get radiation started and done so that spring and summer can be filled with fun outdoor activities.  I also am figuring that about mid june I will be delivering my Grandson to his father in Guam after having had him for 5 months while my Air Force Boy got settled in Guam right when the Japan tragedy happened.

    I hope all is well and the transition out of this is smooth for all.  My thoughts are with all of you.

    Leigh

  • hopefortomorrow
    hopefortomorrow Member Posts: 193
    edited April 2011

    Smiling Lisa-I hope you wake up with lots of hair!  I'm happy for you that you are done now! Two more treatments for me and I am looking forward to it.

    Well I will be staying on the Zoloft I have been taking. The doctor I talked to thismorning and he explained the working aspects of Zoloft, Celexa, and Lexapro...(next generation drugs) and for me it seems to be best to stay with the Zoloft. He did say the Celexa might be a bit stronger. The three being similar it sounds all good to me what I am hearing here!

    I'm filled with steroids tonight, can you tell..it's 2:06am! lol

  • karebear76
    karebear76 Member Posts: 288
    edited April 2011

    Annette: My numbers were 8 and 26 for the first transfusion. For the one yesterday they were 8.7 and 26. something so I was borderline. Since I was tired and dizzy we decided to do the transfusion and I feel stronger and better today.

    My hands and feet are still very tingly (last chemo was last week so I still have time before that stops) but I have had very weak legs too. It is frustrating because I want to drive and do things but can't. 

  • spartina
    spartina Member Posts: 68
    edited April 2011

    Hi all- Spartina here and I had a great day. I went to a PT yesterday who specializes in women with problems from masectomy and lymph node dissection.  About a month ago I started having terrific pain and range of motion problems in my affected underarm and shoulder.  Scar tissue and cording was developing.  She worked on my underarm with massage and today it feels so much better and what's more is that I now have hope that it can get better! 

    I have two more taxol treatments, next one is Monday.  Peace to everyone. 

  • bambi380
    bambi380 Member Posts: 44
    edited April 2011

    TAC is DONE! On to the "sunburn" May 1 ....

  • karebear76
    karebear76 Member Posts: 288
    edited April 2011
    Woo Hoo for being done Bambi!!!!!!Smile
  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited April 2011

    woo hooo!!!!

    congrats! it's such a milestone!

  • AnnetteS
    AnnetteS Member Posts: 180
    edited April 2011

    Here is a bit of irony.  My 20 yr old daughter threw me a "Yay, you are done with chemo party."  It was wonderful.  My cake said, "Let the new journey begin"  It was very sweet.

    The next day my arm became quite swollen and painful with no injuries.  I guess my new journey includes LE.......

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited April 2011

    annette, we had some friends do that for us a week ago. it was super sweet. sorry bout the LE, let us know how it goes.

    how are all you sistas doing? i know alot of us are on our break or in rads, or getting ready for rads. i think i may be starting by end of april. kind of nervous. i'm going to try to get my rads appts made for morning. that way i have to get my body into the habit of going to bed earlier, and getting up earlier. this 3 am to bed and noon to get out of bed isn't gonna fly when i go back to work!!!

    hugs to all, hope all are doing well!!!- angel

  • LisaMomOfFour
    LisaMomOfFour Member Posts: 465
    edited April 2011

    Just thought I would check in to say hi to everyone.  Still in the throes of the bone pain from my final taxol treatment, but looking forward to feeling better in the next couple of days, and relishing the fact that chemo is in the rear view mirror now!  How great that we are all finishing up. 

    I'm now on the April rads thread....  going for my simulation on Monday, so we'll see what that brings.  My plastic surgeon said that if I need to have chest wall radiation, then the risk of implant failure is around 50%, I'm not so happy about that, but one step at a time, I guess.  

    The weather here got very hot this weekend, very unseasonable, and that wig was SO uncomfortable.  I really hope my hair grows in enough to shed the wig by July......  

    Hope everyone is doing well.

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited April 2011

    i started taking a b complex vitamin in addition to my mulitvitamin, and i have had lots of good energy the last few days!! yippee!

  • sammolisa
    sammolisa Member Posts: 180
    edited April 2011

    Grats to eveyone finishing!!!  Onward march into rads!!!  The light at the end of the tunnel is getting brighter!

    Doc gave me a new pill called Metanx - it's some kind of vitamin supplement that includes  B6, B12 and folic acid   that helps with the nerve problems. (no energy boost for me tho)  I am still getting alot of joint pain and sharp pains in my toes and feet.  Nothing like during chemo,  but concerning.     Anybody having balance issues?

  • hopefortomorrow
    hopefortomorrow Member Posts: 193
    edited April 2011

    Hi everyone,

    I just want to thank those of you who have finished for coming back and checking in. I haven't posted much, but I still read. It would be kind of lonely around here otherwise!

    I just have two treatments left- but I hate to say I am really feeling awful. Taxotere pains, nausea, exhaustion, dry mouth, mouth soreness, heartburn(which I think is just an extension of the dryness) nail pain intensifying, and hair root ache! I have been doing all the recommended remedies for the side affects, but not much is helping. My hair is growing-but I found a taxotere thread and some of the ladies said after their treatment hair fell out!!! That will be a real kicker if that happens! I hope I will be lucky! Two weeks. Thats all. Counting down.

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited April 2011

    balance problems? yes

    i walk into stuff all the time. abouot 4 years ago i had middle ear surgery. i had a perforated eardrum and bacteria got through and ate away at my middle ear bones. had awful tinnitus in my left ear. after that surgery it susided, but a couple weeks into taxol it came roaring back. i'm pretty sure it's nerve related this time. i have definitely had balance issues!

  • hopefortomorrow
    hopefortomorrow Member Posts: 193
    edited April 2011

    I have always been a little clutzy-I have broken my right ankle in a fall and another time my right shoulder in a stupid fall. I have been a little wobbly lately and had to steady myself but it hasn't happened frequently enough yet for me to really say, wow something is wrong- but I have wondered after the wobbles happened!

  • karebear76
    karebear76 Member Posts: 288
    edited April 2011

    Hey all. I am headed to surgery 1 wk from today!!!! I feel ok about it but my oldest son is having a hard time. He cried about little things all day today at school. Cry   I told him that I would be ok and that I would be home the next day. He seemed glad that I would be home the next day! I hope that eased his fears. poor kid!

    I was wobbly for awhile and then I had a horrible ear infection!! I was sobbing in pain and we had to go to the ER. I am still on antibiotics and my ear feels plugged but isn't hurting anymore!!

    I still have the tingles in the hands and feet 2 wks after my last chemo. I hope that stops soon. It is annoying!! 

  • nolaa
    nolaa Member Posts: 76
    edited April 2011

    karebear - my son (4) is starting to have problems too and I asked a case worker how to deal with the impending surgery.  She said to take a doll or stuffed animal and act out with that what will happen including what kind of bandages you'll have (ask your surgeon) and even balloons for drains if you're going to have those.  She said it helps them disassociate the process from you to make it more concrete and less emotional.  I'm definitely going to do it with my 2 and 4 year olds.  It sounds like a great idea.  I mentioned surgery briefly already and my son freaked out, so I'm going to wait for only a few days before to reelly get into the details.  Time is just too abstract for kids at this age.

  • hopefortomorrow
    hopefortomorrow Member Posts: 193
    edited April 2011

    It really touches my heart to hear about your children! Mine are older, 13 and 16, so it was a little easier. My surgery was was not complicated so I was in outpatient care and home the same day. I must say the schools have been awesome with my children. Both the Jr High and High school have kept an eye on them. My daughter in High School talked with a counselor there that had a mom with liver cancer when she was 16. She gave my daughter the offer to come down to her office when she can't concentrate in class or has worries etc..

    Karebear it sounds like you and pretty connected if you know he was crying at school. I think it is great that you have the communication and that helps to help him.

    Nola it sound like you have a great caseworker giving good advice.

    I wish both of you the very best and will keep you in my prayers!

  • karebear76
    karebear76 Member Posts: 288
    edited April 2011

    I am so thankful for the school and teachers that my kids have. They have been amazing! It really helps me to know that they are being cared for and not just taught at school! The principal is a 13yr survivor and that helps a lot too!!

  • hopefortomorrow
    hopefortomorrow Member Posts: 193
    edited April 2011

    I love running into survivors, or relatives of survivors. One particularly inspired me..I went to the Dermatologist with my daughter and at the dek the girl has a tatoo on each wrist. One was just a pretty celtic looking bracelet type, but I noticed the other wrist was encircled mt pretty swallows. On the back of her wrist was a pink ribbon. Well long story short, her mom is a stage four survivor of many years! I felt like that day she just happened to be there to encourage me! 

  • nolaa
    nolaa Member Posts: 76
    edited April 2011

    tonight we were looking through photos and my son saw a picture of me and my parents from graduation (I received my PhD in May 2010).  He asked who the person in the photo was.  Me.  I started crying so much.  My kids don't even recognize or remember the "old" me when my hair was long and red instead of short and gray.  THis F-ing cancer has taken so many things from me. I just hate it.

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited April 2011

    I was at a fundraiser this morning for Relay for Life, and my boss's daughter said hi ( she is 2 or 3) to everyone. when my boss brings her over to me to say hi, she runs!!! she got scared!!  (no wig, no makeup, no eyebrows!)

    so nolaa, i understand what your going throgh!

  • nolaa
    nolaa Member Posts: 76
    edited April 2011

    anyone else's hair coming back a totally different color?  How are you dealing with it?  Suggestions would help because I'm not dealing well at all. 

  • AnnetteS
    AnnetteS Member Posts: 180
    edited April 2011

    No hair coming back here, but I expect it will be grey if it comes back....

Categories