Chemo June 2010
Comments
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ok, so i have to tell you something funny! When grneyd5600 said she was wearing "pearls" to her son's wedding, I assumed she was being funny and talking about her new boobs because she was having her exchange surgery before the wedding. But based on everyone else's comments, I now realize she was just talking about regular pearls. I think it's really funny :-)
My freezer is full of icecream, and my fridge is full of yoghurt - i'm ready for the oral surgeon :-)
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that is funny latte! i had my wisdom teeth out, it was pretty easy, i hope do have no problems..
gin,Happy Birthday!!!
sorry im so late, everyone is sounding good! im so glad! i went to San Fransisco last week and guess what i bought????? hehehe a brand new set of PEARLS hehe, they r so pretty!! bon you inspired me.. well i have more bad news, my girlfriends husband died Friday of a heart attack, out of the blue. he was 45, it is just heart breaking... im so tired of death,cancer,chemo... we all have been hit so hard!!! im ready for a break!!
I have my appt set up with my surgeon for the reconstruction and other mastectomy, Mat 11, im not sure how im feeling about it but i know i want it done and over..
love and big hugs!!!
chey
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Good morning. I am sitting in the waiting room of the radiology center awaiting my MUGA. Had 1st injection already and have about 15 minutes before the call me back in to inject the radioactive tracer and then do the scan. So thought I'd read old posts and visit with my favorite group of friends!
Hope this week looks bright for everyone and that you get to do something fun.
Latte...how did the dentist visit go? Hope you aren't in too much discomfort and have been indulging in ice cream. It's medicinal,right?
Chey....How chic...new pearls! That's great. Wear them in good health. I may have to buy myself a new strand,too, one of these days. I have loads of them but some are yellowed from years of loving wear. I haven't the heart to part with those so they sit in a drawer and are admired often.
My cold has let up somewhat but not the cough. All thus hacking and spitting (lovely visual) is getting to me and tough for business. It's difficult to hide a choking fit from clients. But I forge on. Had hoped to carve out some personal time to do taxes, clean house, sort closets and file forms, but I usually end up working instead because someone needs something yesterday. No rest for the weary I guess.
Wishing you all good news! Love and hugs, Bon -
I just found this thread on new research that shows D3 and Melatonin act synergictically to kill cancer cells. Now I can justify increasing my doses. Very interesting. Here is the BCO thread with the research:
http://community.breastcancer.org/forum/79/topic/767331?page=1#post_2336615
Bon- Don't work too hard ....though it may be safer than vacuuming in pearls! About those aging, yellowing pearls in your drawer. They say the color and luster improves with wearing. They need the oils from the skin. If you aren't wearing them, store them inside a glove that you have worn....oh yeah, you live in Florida. Have any white gloves left over from dance class? I do! Every proper girl in Kentucky took Cotillion dance class in 1965!
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Dmom, i do love the ruby slippers, it reminds of my grandmother, we used to make a big deal of the movie watching it on tv once a year when i was little..
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chey- My son and I still love the Wizard of Oz. When he was only 3 he made me watch it over and over and over. He loved the wicked witch because "it scares me so good". As for me "there's no place like home, there's no place like home". Home is many things, and this thread is certainly one of mine.
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Dmom i always giggle when i see your avatar. I live in Kansas City on the Missouri side but only 2 miles from Kansas and I moved here from Long Island New York 2 years ago. I don't tickles me funny kind of ironic.
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Latte, you gave me a good giggle about the pearls.
Gin2ca, isn't the lymphedema wrapping fun? It gets easier with time but your arm feels like an elephants leg.... I wouldn't worry about cancer cells being moved. They don't do massage on anybody in active treatment for that reason.
Chilli, congrats on the biopsy results. That must have been a relief.
Kitty, congrats on the MRI and NED.
Jackie, I will be thinking about you on the 19th. I hope it goes well with an uneventful recovery. Have you chosen your dress for the wedding yet?
Bon, loved the pearl info. I liked the tear drops from the moon. Your picture is great. I would buy a house from you. Hope your MUGA is good and the cough improving.
Just got back from the Dr. and my breast cancer tumor markers are normal, not elevated any more. I have a mammogram on Friday too. It is the first time in a year that I can finally allow myself to think I am cancer free for now. Doing the happy dance today. Time to go buy a string of pearls I believe.
Love to you all, Mimi
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Mimi...YOU GO GIRL!!!! Congratulations on the clean tumor markers. Now go buy those pearls!
Today the MUGA tech had a hard time getting the leads on and functioning. She joked and asked if I even had a heart? Made me think of that Tin Man...I do have a red slipper key chain, among other WOZ trinkets! (And now after chemo I most often feel like the Scarecrow and wish I had a brain). A few years back we used DMom's same avatar as our pix for our high school reunion...'There's No Place Like Home'. I won't mention what number reunion it was but suffice to say that I could be the Mom of many of you.
Love you lots! Bon
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MIMI I am So so happy for you !!!!!!!!!!!!!!!!!!!!!!
Chey- It just seems like you get whacked with more bad news. I am thinking of you and Jackie and Latte and anyone else who is facing exchange surgery.
Bon- How long have you had that cold ? I am beginning to think you should see a pulmonologist to check for asthma. Didn't you have the flu or bronchitis earlier ? I am worried about you. I am sure you know how to take care of yourself. Forgive me if I sound like an over protective mother.
Tmarinna- How exciting to be having a new grandbaby. I hope you are not run ragged by your other grandchild in the meantime.
I splurged and had my hair colored at a salon on Saturday. I'll post a new avatar when I get a chance. I prefer the brown. But, I am now frustrated because my hair is curling up in this humidity and looks even shorter than it did.
Carrol2- I live on Long Island.
Hello to anyone I missed !
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Latte - I have to have my wisdom teeth out - so curious to hear about your experience. Chey said it wasn't so bad for her. TMarina - Thanks for your nice words - hope allergies aren't too bad. Everyone - I had lunch yesterday with a woman who was diagnosed with Stage 3 BC (dense breasts - mamm didn't see them, etc.) and she is doing fabulously 20 YEARS later. It made me feel good - we'll all get through this.
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JFV where on Long Island do you live? I live my whole life in North Bellmore except for 6 years i lived in Wantagh and 2 years ago moved here to Kansas City. How has your treatment been there? What hospital do you go to? I just heard from my mother in law today that her doctors office had their safe stolen. As much as I miss good pizza, bagels, the beach and NYC I have a better quality of life here.
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Hi Carol ! I live in Bayville. It's North Shore of Nassau County. Near the Suffolk border. It is very expensive here as you know. Our house and yard are teeny tiny. But, there is water right at the end of our road. Bayville is surrounded by the Sound and Oyster Bay Harbor. I got most of my treatment at Long Island Jewish in New Hyde Park. I am doing follow up at North Shore in Glen Cove. L.I.J. has the "Monter Center" which is across the street from the hospital. It has Oncologist offices, a lab and two huge chemo rooms in it. It was like the Kmart for cancer. One stop shopping. It was always crazy busy. Does your Mom still live on LI ?
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JFV no my parents moved to Florida liek most Long Islanders when my dad retired back 1989. They could not afford to stay there. They sold their house and bought a "manufactured Home" in a senior citizen community. Dad dies 6 years ago. About 2 years after he died we realized mom was not taking care of herself and got her into an assisted living home in Port Charlotte Florida on the west coast. Since then mom got her second run in with breast cancer after 30 years, had her second mx, we are thinking it was many years since her last mamogram I think she jsut stopped getting them after a while. She never had any radiation or chemo but this time they put her on aridimex. Later we discovered she had lymphoma which showed up as these awful sores on her face, and she had radiation on her face which was awful. I was diagnosed in June and my last visit was right before that on mother's day. I have not told her I got BC I probably wont. These days she is unclear what is going on a lot of the time. She forgets things. I figure no need to upset her. Hopefully I can go see her this winter after all my recon is over.
Treatment in KC and any medical attention has been very different from Long Island. I was so used to having trouble getting appointments and sitting in waiting rooms forever, and then getting the bums rush through my appointment. Now I get a lot more attention, I can usually get appointments pretty quickly except for some of the specialists who take medicaid, and the docotrs are willing to sit and talk and answer all my questions most of the time.
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Carrol- So sorry your Mom had been through so much. So sad for you not to be able to share the journey with you. Hope you can see her soon and get comfort from her even if she isn't quite the same Mom you remember. My parents are in their mid 80s and pretty with it and live nearby so I was able to share with them. No matter what your age sometimes you still want your Momma. I am so glad you are getting good care in KC. As you say it can be tough here on LI with the long waits and the fast pace. One of the reasons I switched hospitals was because I was tired of getting lost in the shuffle. The one I use now is much smaller and friendlier.
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Latte - I just read your post about the pearls. That was funny! Glad I made you laugh!
Ok I have been in battle with a rash since last Thursday. It consumed my arms on the underside and my thighs. Some would say it is because of all the weight I gained and those area's are "rubbing" now. But bless my Onc he knew better! Anyway, they have pumped me with predisone and are applying cortisone multiple times a day. We are hoping we can eliminate the rash before Monday so I can still go with my surgery on Tuesday. I cut my visit to NYC short because I knew I needed to be back to the comfort of my medical team and not just a "walk in" med center.
I did get to participate in the Bridal shower for my DIL which was wonderful. I am so blessed to be getting not just a wonderful DIL but I adore her family as well. Count down to wedding begins as tomorrow marks the 30 day prior mark. Oh and son #1 (the groom) turns 25 tomorrow. Wow, how did that happen??
I hope everyone has a good day!
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Jackie, i hope the get that rash under control and keep it away. Hope and pray your surgery goes really well and healing is quick and painless.
Latte, I am praying that you are feeling all better and having no dental issues. I hate going to the dentist almost as much as going to my onc.
Carrol, My mom had BC too but cannot remember that me and my sister had BC recently because she now has dementia. I know what you mean about not being able to share that with her. It is sad but my mom's days are full of confusion and lots of sleeping.
Mimi, I really am not enjoying the LE wrapping and all the other stuff that goes with it. It is very time consuming and annoying, but I guess it could be worse. My LE has gone down a little but it makes my arm feel like its on fire when it is wrapped and then about 7 hrs after it is wrapped I get a horrible itching all around the elbow and I simply cannot sleep withthe wrapping's on so I take them off at bedtime. All of the manual drainage and exercises are also a royal pain. I work 10 hr days and drive an hr each way to work and go to therapy for an hour before work so I am not sure when I would have time to do all the other stuff but I am trying to get some of it in. Thanks, for asking!!!!!!!
Hello, to everyone else and please keep posting for it helps me keep my sanity to read about all of you and what is going on in your lives. I think of all of you every day even if I don't get to post(hence the explanation above about my time limits).
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Goodness Gin - you are busy!!! I hope you are taking some time to pamper yourself. Besides all the work on the LE. I am truly sorry that you and Carrol are going through this without the support of Mom. I know that must be terribly hard.
Latte, I hope you are better soon.
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grneyd5600 yes i am going through this without mom. My sister who is 12 years older than me has really been been there for me, flying out for both of my surgeries. My husband is a tough love kind of guy and not very compasionate even though i know he loves me and cares it does not always feel that way. I also have some great freinds and neighbors that have been a great help too.
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hi everyone,
thanks for the wishes - i am doing fine. i still have stiches which are supposed to hopefully dissolve next week - hope they do because they are quite annoying at the moment.
glad to hear everyone's updates.sorry to hear about the LE issues some of you have.
i had my first post-tx mammo and US last week - left side was fine, right side was BIRADS 2 but they are not worried - they think it is just "leftovers" from the lumpectomy that are showing up as weird tissue etc. they just want to do another one in 6 months to compare but are not worried.
next week is holiday time here, my daughter finished daycare today for 10 days, so we are going to go about an hour north and stay with friends next week for a change of scenery. so I won't be online for a while. Happy Passover and Easter to those celebrating!
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Ladies, Just found out my oldest aunt and also my namesake passed away in her sleep Friday morning. I am glad she did not suffer but will miss her a lot. She was one of the sweetest people I have ever known and always prayed for me and my family. She was an inspiration to me all of my life because of her goodness. She would have been 89 on her next birthday. She had just had a checkup with her Dr. and was given a clean bill of health and did not take any meds. She also exercised every day. What a lady!!!!
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Ginny... So very sorry about your Aunt. My thoughts are with you and your family.
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gin2- So sorry about your Aunt. Sounds like she lived life on her own terms and left peacefully on her own terms too.
About this stinkin' weather.....it can stop now, really! It is raining like crazy and cold. The forecast says rain all week. The older I get the more I think my outlook depends on the weather.
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Hi Ladies, gin2, sorry to hear about your aunt,.
OK, have i mentioned how much i LOVE music? I bought this cd last week and am loving it! Cheers me up everytime i listen to it. Michael Franti and Spearhead - The Sound Of Sunshine Coming Down. So for all those stuck in rainy cold weather, like it is here today.( or just needing a pick me up) . take a trip to the beach and enjoy!! I challenge you to listen to this and not be at least a little cheered up
http://www.youtube.com/watch?v=KqgHosrqJ8o
( p.s. don't mind the 20 sec advert at the beginning,)
Diagnosis: 4/15/2010, ILC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2- -
Gin
Sending lots of love, thoughts and prayers your way. Remember my saying - the wind on your cheek is really the flutter of angel wings. You will forever have a special angel so feel the wind!!!
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Gin- So sorry about your Aunt's passing. The LE therapy sounds awful. The routine sounds worse than radiation !
grney- Hope the rash is gone and you are ready for surgery.
Latte- glad to hear you are on the mend and getting a Vacation.
Chili- Thanks for sharing the song.
Dmom- I was in CT last night I hear the NY area got really wupped by wind and rain.
Went to a family wedding and brought my parents along. We were able to see an 89 year old cousin who we haven't seen for years so that was good. We took my mother to a Doc in the box while there. She brushed her arm on a table corner during the reception and gave herself a HUGE cut. Since she takes blood thinner she bled all over the place. No stitches. Just a tetanus shot. I told her I'm gonna wrap her in bubble wrap when we go out in public from now on.
Have a PET scan tomorrow and I can't eat any carbs or caffeinne today. The lack of junk food is making me crankier than usual. I will get my results by Wednesday. I am already worrying. Hope my kids can survive my crabbiness ! Holiday greetings to all !
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Oh, Joan. You have given me my laugh for the day! The thought of a poor older woman bound up in bubble wrap has me giggling! Quite a visual. Glad your Mom's cut was minor in the scheme of things and that you got to be out and had some fun.
And to show you what a good friend I am, I will have carbs for you tonight! In your honor I will eat double my daily carb portion! What a pal, right? -
Wow Joan, no coffee or carbs? What they put us through! I would be cranky too. Put your thoughts elsewhere today, somewhere pleasant and lovely, and have trust that your angels are lookiing out for you.
I had my first mammo Friday (ouch) and will get the results tomorrow. Otherwise they are doing no scans for followup.
Ginny, so sorry about the loss of such a wonderful woman in your life. In time you will figure out how to manage the LE with the minimum of care that works for you.
Dmom, go ahead and whine about the rain. It's snowing here today. Will spring ever arrive? I want to go back to Galveston and the beach!
Carrol2, my husband is the same. I know he cares very much but wasn't much help and had difficulty dealing with this. (he lost his last wife to BC and I raised her children). My daughter was there for me and was my rock. We have such a close relationship now. A salute to my close friends for all they did.
Love and Hugs to All, Mimi
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Oh Bon, me too (giggle) I am going to make chocolate cupcakes with frosting and will eat some for Joan so she doesn't starve. What good friends we are.
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Ladies,
Rash is gone - Yay! That prednisone is wicked stuff. One minute I am "drippy" and next I am ready to rip somebodies head off. Good thing I finished it up yesterday. I should be set for surgery on Tuesday. I am a bit nervous - guess that is normal after all we have been through, right?
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