Showing the scars

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I had a BMX with no reconstruction in February after a recurrence in the breast that I had had radiation for IDC back in 2009.  Healing has gone well, and overall I think I'm adjusting OK to what still feels like a huge loss and change (thanks in part to all the great info and support here and on breastfree.org). 

The one thing I'm still struggling with, though, is being comfortable having my husband see my scars/chest.  I just haven't been able to do it yet, and we're now 6 weeks since my surgery.  It makes me sad, because we're so close and it feels so wrong and unfamiliar to "hide" part of my body.  But it just still looks so yucky to me -- areas where I'm concave, and the side that had radiation is healing differently than the other side, etc. -- that I have this irrational fear that somehow he'll be repulsed by it, even though he's assured me he won't be and we've looked together at many photos of other BMXs, even just after surgery, so he knows what's in store.  And we both feel comfortable with the decision not to reconstruct. 

I'm wondering if others who chose no reconstruction also waited to show their partners, too (at least till things healed up more?), or if it's just going to get harder the more I wait.  For those that are years out from your surgery, do you usually cover up during intimate moments, or are you comfortable showing all?  Or any advice or experience you're willing to share -- I'd love to hear it.  I know deep down that it will be OK once I show him, but for now it feels so scary.

Comments

  • BoobsinaBox
    BoobsinaBox Member Posts: 550
    edited April 2011

    Dear Seagan,

    What you are feeling is perfectly normal, if not exactly rational.  I read two books last week that someone had given me after my bilat in 2006, no recon.  (Yes, 5 years later!) One of them deals in depth with her inability to show herself to a man.  My husband saw my chest the same time I did, though neither of us expected it.  I thought there would be a big gauze bandage over my new wounds, so when the surgeon came in and looked, I glanced down that first day.  Wow!  There were the scars, as he had glued them together, and there was nothing but the bloody glue and a bunch of iodine on my chest!  I remember thinking, "If I had known, I wouldn't have looked, but I'm glad I saw them, and I don't have to dread it!"  So my husband saw my scars at various times, but I have found that I still try to have something on when he is around.  My scars are not awful, though they are a lot wider than I had expected.  I think the glue doesn't work as well as the steri-strips.  But finally they are fading.  I take a long time to fade from red to pink, and eventually they will be more skin-colored.  Anyhow, I think it is hard for us to feel comfortable showing what we are not happy with.  I'd recommend that you let your DH see them in a non-sexual encounter, and then when you get more comfortable (obviously that can take years for some of us), you might want to move on to more exposure.  I imagine your husband loves you for who you are and not what is on your chest, and trusting him to continue to love you and want you will give you both peace of mind.  That's just my 2 cents worth.  Scary is normal!

    Dawn 

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited April 2011

    I actually had my boyfriend take a look at my post-surgery chest before I did. He has a much higher tolerance for gore than I do. When he assured me that it didn't look so bad and wasn't, in fact, "gory," I took a look. He was right. Not so bad. It's really been a non-issue for us.

    It sounds like you and your husband have a good relationship, and he's looked at mastectomy photos (my boyfriend did, too), so he knows what to expect. I would bite the bullet and show him. You might be pleasantly surprised!

  • sespebadger
    sespebadger Member Posts: 249
    edited April 2011

    Hi Seagan,

    I agree with what both boobsinabox and celtic-spirit said. I had BMX no recon last July. I had my husband help with drains from day one, so he saw. I needed the moral support. I was worried he would find me unattractive. He assures me he still finds me attractive. If I were you I would let him see, as boobsinabox suggested, at some non-sexual time to begin with. I would just start getting dressed in front of him. After surgery I had rads, and eventually I felt well enough to get back to having a little fun in my life, if you get my drift. I was nervous at first, but got over that pretty quick. I wear some kind of pretty camisole whenever we are intimate. I just find it prettier than my chest. The scars do heal, but slowly, in my opinion. If you wait until it looks all better, you might be waiting a while.  We enjoy our intimate life just as we used to. Healing and feeling good about yourself takes time. Give yourself time to heal, but think about letting your husband be part of that healing. Best wishes to you.  

  • JanS
    JanS Member Posts: 20
    edited April 2011

    I'm going to sound like others who have posted, but here goes.  Let him see your chest.  Dress/undress in front of him.  He's seen pictures and has an idea what you look like.  Sounds like he's supportive of your decision not to reconstruct, and that won't change.

     I had unilateral MX in July 2010, and guess I look a little lopsided, although I really don't think of it that way.  My DH saw my chest and scar right after surgery, he helped with drains initially until I could do it myself.  And I simply continued to dress/undress in front of him like I did before surgery.

    My DH just told me last week that my scar has lost its redness.  I have a scar on my knee that actually looks angrier (redder) than my MX scar!  Probably because my knee was exposed to sunlight while the scar was healing.  So here's looking at the bright side: no sunlight means the chest scar will fade faster!

    I like what sespebadger said "let your husband be part of the healing".  That has worked for me.  Good luck, I'm sure all will be well.

  • CarylC
    CarylC Member Posts: 230
    edited April 2011

    I have the opposite issue.  My boyfriend is afraid to look at my scars.  He doesn't want to see them because he's afraid he might be grossed out or disgusted and he doesn't want to feel that way and he doesn't want to hurt me.  So for the past month since surgery, he's avoided me, we've not spent the night together, not even to just sleep together which is something we used to do all the time on weekends.

    At least he was able to tell me today, I felt better once I knew what was really going on.  I'm not sure what to do to make him more comfortable but I worry that the longer we wait the worse it will be. 

  • BoobsinaBox
    BoobsinaBox Member Posts: 550
    edited April 2011

    CarylC,

    Has he seen pictures of others, so that he is afraid of a reality, or is he just imagining what it might be like?  It really is better to know what is going on, and maybe having told you, he will become ready.  Waiting is not all bad.  The scars do fade with time, and you have more time to adjust.  For now, perhaps you can do more together now that he has told you his problem, and if he doesn't come around, you will find out he may not have been the best man for you.  I'm betting he will handle it well eventually.  He sounds like a decent person, just scared.  Good luck!

    Dawn 

  • seagan
    seagan Member Posts: 166
    edited April 2011

    Thank you for all the wonderful support and thoughts.  It has helped me enormously.  I was especially moved by the idea of letting my husband be part of the healing -- that just made me cry, it felt so wise and true.  I also realized that I was feeling very alone as a result of keeping this from him.

    It took me a while, even after I had decided I wanted him to see sooner rather than later, to get up the nerve do actually do it.  (I was thrown off, too, by my onc ordering a bone and CT scans for this week -- agh!)  But last night, we did it.  I had him feel my chest first, with a t-shirt still on, just so he'd know the terrain, as it were.  Even that was incredibly emotional, but in a good way -- needed tears.  Then I showed him my full chest, and he held me, and we both cried.  Mostly from relief, I think.  It was like we were re-joined after being sadly separate in this one painful area.

    Thank you again for helping me through this. 

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited April 2011

    I'm so glad to hear that things went well! Your husband sounds like a really nice guy. You both must feel a lot better now.

  • sespebadger
    sespebadger Member Posts: 249
    edited April 2011
    seagan, So glad to hear that you had a good experience with your husband. I remember thinking a lot about how I looked and mourning the loss of my breasts during the first months after surgery. I remember wondering if I had done the right thing. I really am over that now, I think because my energy is finally back (I had chemo before the surgery and rads after) and it's been nine months. I definitely think I did the right thing. When I stretch at night I feel my breasts and am hopeful I can catch any recurrance. I hope you have clear results from your bone and CT scans.

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