Connecticut Girls

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  • lynniea
    lynniea Member Posts: 611
    edited March 2011
  • lynniea
    lynniea Member Posts: 611
    edited March 2011

    Trying to put the post up to the Breast Cancer Race On May 7th

  • kjbrown92
    kjbrown92 Member Posts: 115
    edited March 2011

    I could do the Blue Oar or Coyote Blue. They're right in my neck of the woods. I'm having my exchange surgery a week from today (4/4). By May I should hopefully up for a meetup.

  • lynniea
    lynniea Member Posts: 611
    edited March 2011

    I would love to get togeather with some of you.  Keep me in touch.

  • flash
    flash Member Posts: 1,685
    edited March 2011

    okay, how about may?  what weekends are good?  usually sundays are better than sats for a meetup. Anyone want to do the mothers day if you don't have other commitments?

  • lynniea
    lynniea Member Posts: 611
    edited March 2011

    Can't that weekend have walk in the park.  Can do sundays if it is early enough I have church at 3pm

  • lynniea
    lynniea Member Posts: 611
    edited April 2011

    Not much happening here.  I had my second chemo and had DR visit Just want to let you know it shrank from 8X8 to 3.25 X 3 I Praise God for it.

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited April 2011

    Lynniea-thats awesome!

  • lynniea
    lynniea Member Posts: 611
    edited April 2011

    Thanks every little bit helps

  • karebear76
    karebear76 Member Posts: 288
    edited April 2011

    Lyynniea that is AWESOME!!!! Praise God!!

  • lynniea
    lynniea Member Posts: 611
    edited April 2011

    Thanks ladies it helps when you have other ladies that have gone before you.  I have my 3rd on Wednesday

  • Claire82
    Claire82 Member Posts: 684
    edited April 2011

    Hi all :)

    I have my exchange on Thursday. Buttt I have this awfulllll cough! I'm so afraid it won't be gone. This is day 8. I thought for sure I would have beat it by now. Dang it.

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited April 2011

    Hi Claire-wow the day is finally coming. I started feeling sick right before my exchange too. I took a ton of Vit C, Cold ease (zinc) and airborne. I'm telling you I loaded up on it and it really helped. You have to boost your immune system. Your going to be fine and even if you have a little cold or cough they should still be able to do the surgery. We will be thinking of you! I know it was a long road for you to get to here but its going to be all so worth it!

  • lynniea
    lynniea Member Posts: 611
    edited April 2011

    They changed mine till Thursday didn't want me to go 3 days early because of the toxicity levels.  Not like I have a lot going on my daughter is going with me now so that's one good thing.  I pray all is well Claire and you can get it done.

  • karebear76
    karebear76 Member Posts: 288
    edited April 2011

    Surgery next week for me. I finished chemo 2wks ago. I am ready for this to be done and over with.

  • lynniea
    lynniea Member Posts: 611
    edited April 2011

    We will pray everything will go well with surgery.  I am still a little groggy from chemo Hope everyone has a nice weekend if I don't get on.

  • singlemom1
    singlemom1 Member Posts: 434
    edited April 2011

    Hi everyone, I am new here and very happy I found this board. I was originally diagnosed with DCIS but after the lumpectomy they found Invasive papillary carcinoma which is a very rare type of tumor. Leave it to me to the "rare one":). It is still considered IDC but just a subtype.  My BS is Dr. Brady and she will be presenting my case on tuesday morning. She stated everything is on the table - masectomy,chemo,radiation and hormone tx but she wants to present it first and obtain feedback before we discussed further tx. She stated that less than 1% are diagnosed with this. I am looking to go to Dana Farber for a 2nd opinion. Has anyone else been there? Any recommendations for Doctors????

    Sending my support to all of you brave women!

  • lynniea
    lynniea Member Posts: 611
    edited April 2011

    Hi singlemom I was disnosed in Jan and am on my third chemo tx.  I have been blessed with great droctors and didn't get second opinion.  Welcome to this group even not the best one to join.  They did chemo first because mine was large and wanted to shrink it first.  I thank God that I have not been very sick and it has shrunk more than half already.  You have a great group of women here with prayer and support.

  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited April 2011

    Hello Connecticut Girls!   I had no idea we had a thread!   The "active topics" listing is quite helpful in this case.

    Singlemom: you can PM me if you have questions.  I went Smilow all the way and have been very satisfied.  As for seconds, a lot of people go to Cancer Centers of America in Philly.  If you call, they send you the train tickets then they you stay on their campus for a few days and they review your case.   They take any and all insurance and charge you nothing.  Best of luck...you have a lot of things to consider.

    I am glad we have a state thread...I will put it on my favorites list.

    We can all celebrate as we had BEAUTIFUL weather here today!   

    Night all-

  • Claire82
    Claire82 Member Posts: 684
    edited April 2011

    I started off at Hartford Hospital and ended up finishing at Sloan Kettering in NYC. Sloan is amazing - I had my exchage yesterday with the most wonderful plastic surgeon. I can't wait for the bandeges to come off.

  • 1WonderWoman
    1WonderWoman Member Posts: 2,065
    edited April 2011
    Claire: a woman on my chemo thread worked at MSK and speaks highly of them.   I was very tempted to go to a plastic there but the drag of chemo and making me so very tired washed out my energy to take on such travels!   Good for you, however.  In long, I think what I wish to impart is if I had a bit more energy I probably would have hiked to MSK as well.
  • karebear76
    karebear76 Member Posts: 288
    edited April 2011

    SingleMom: I went to Dana Farber for my 2nd opinion. They were phenomanol there!!! It was an amazing place just to walk into.  I had Karen Anderson as my oncologist and Susan Troyan as my surgeon. They are excellent to talk to and answer any question you have. They both will take their time with you and don't rush anything!! If I didn't love my drs here I would so go there!!

  • lynniea
    lynniea Member Posts: 611
    edited April 2011

    You have to go where you feel comfortable at. 

  • singlemom1
    singlemom1 Member Posts: 434
    edited April 2011

    thank you all and specifically Karbear for the feedback on Dana Farber and the doctor recommendations. This is all so scary and not knowing what is ahead. You all seem so strong! 

  • lynniea
    lynniea Member Posts: 611
    edited April 2011
    Singlemon1 When I first found this place I was very scared also but once you start your treatment everything seems to make sense.  I found the worst part is the waiting and not doing anything and waiting for test to come back.  I have had 3 chemo treatments and mine has shrunk more than Half.  Also I found God has been a light in the mist of the storm.  Many people have many ways to deal with tough thing.  I trust God and he has been great to me.
  • singlemom1
    singlemom1 Member Posts: 434
    edited April 2011

    lynniea - I am glad that your tumor has shrunk more than half! That is wonderful news. How has the chemo been so far? I have heard from many people that once you start the tx it will get better, and I am hoping that is true. I thought everything was all set and I was already starting the tx but then I find out its a new game and everything is back on the table. I should find out on tuesday at least what the HTFD team is recommending. Do you mind me asking if you have node involvement?

  • sweetie2040
    sweetie2040 Member Posts: 817
    edited April 2011

    Karebear-wow your surgery is almost here.I remember talking to you a while about Drs.

    Lynniea-so happy to hear your tumor is shrinking!

    Singlemom-I had Dr Brady as my breast surgeon and I think she is top notch! I did get opinions from two other Drs. and I did call Dana Farber. In the end I thought Dr. Brady was just the perfect Dr I was looking for. She is exclusively a breast surgeon and well known and respected in CT. I felt very confident having her do my BMX and she did a wonderful thorough job.I know she will work with you and it great they will discussing your case. I think that whole group is awesome and very up to date on procedures and options.

    Claire-I know you had your surgery on Thursday, wondering how your doing?

  • flash
    flash Member Posts: 1,685
    edited April 2011

    lynnie- great that it's down to 1/2!!!!!

    singlemom- it does get better.  hugs from the southwest corner

  • karebear76
    karebear76 Member Posts: 288
    edited April 2011

    lynnie: That is so great that your tumor has shrunk so much!!! I had the same results and by the end of tx my dr can't feel anything!!! I hope you have the same results!!

    Surgery is THURSDAY!!! I am anxious but mostly just want to get it done and over with. My mom and sister come on Wed. so I am excited about that. At least we can enjoy each others company for 1 day!! 

  • lynniea
    lynniea Member Posts: 611
    edited April 2011
    Singlemom I had every test in the book for node involvement and they all came back negative I thank God for that.  My surgeon was a little worried and wanted the sentinel node biopsy done which is 95% accurate for node involvement it also came back negative.  You will feel much better when you have a plan.  My sister and Aunt are cumming for my next treatment  on the 27 of April.  I hope everyone has a nice Easter.  We are having ours on Sat so all the kids can come down and be with us to.  Have a great day.

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