Taxotere is a nightmare

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  • TonLee
    TonLee Member Posts: 2,626
    edited March 2011

    I iced my fingers starting the second treatment.  I have acrylic nails over my nails, and I don't have any pain or anything.

    However, I didn't ice my toes, and while they look normal at #5 they started hurting..so for #6 I'm putting a bag of peas over my socks!

    No one ices at my cancer center that I've seen, so they all think I'm a little looney.  I don't care...I'm doing it.

    Dread losing the eyebrows, but already have gaps so I know it's coming...

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited March 2011
    Feeling a little sorry for myself tonight... trying to balance SE of neurontin (foggy brain, not thinking clearly, dry eyes, dry mouth, drowsy, dizzy) against finger pain/tingling/not able to do anything with hands when I don't take it.  Fingernails sore, worse with being in pool for physical therapy, balanced against need to MOVE to keep the rest of the body's aches & pains at bay (this nail thing is just so different than the fingertip stuff, I just disagree with the MO that it is also neuropathy...).  Such a nice day today, such a crappy mood I'm in.  Tonlee, I say ice away - being a bit looney is better than this!  Thanks for letting me vent a bit.  I am thinking of selling my piano as it just reminds me of how much I have lost. Cry I just hope this resolves, don't know if I can endure 2-3 years of this, don't know if I will "get used to it" as the MO says.
  • kallimom
    kallimom Member Posts: 54
    edited March 2011

    Just repolished my nails...if I can call them that....there are several ugly looking nails under the polish....so far only one has lifted off and there are 4 others that are dead....but they seem to be growing out without lifting...so we will see. Guess they don't tell you this just in case it doesn't happen...mine were red, like they had bled underneath...then turned dark...then a dead white looking color....not nice...good luck with the icing...had not heard about that.

  • Anniemomofthree
    Anniemomofthree Member Posts: 608
    edited March 2011

    Hi there - just finished # 4 of 6 TCH.  I iced and the nurse had not seen it before. I am SOOOO thankful that all the ladies mentioned this (thanks Lago, Tonlee!).  I started with peas on my toes and fingers on TCH #2. So far, I have the pink/light brown stripes on each nail. Someone said that you can actually see the lines of each treatment. They seem like it is all mashed together. I don't think they will lift...thinking not, but like everything else on this journey, would not be surprised if they did!

    Two days out and I am so tired too.  Haven't had this before.  I can totally relate to all the posts.  Feeling a bit sorry for myself.  Think I need to go to bed!

    Annie

  • lago
    lago Member Posts: 17,186
    edited March 2011

    n3ypb if your fingernail beds are sore then it doesn't sound like neuropathy it sounds exactly like what I had/have… and if you get it as bad as I did it sucks. This is sign that your fingernails will lift possibly fall of and ooze.  I don't remember if I posted links to pictures on this thread. If interested let me know. The toe one is gross.

    Has anyone heard from Tracie?

  • shooshoo23
    shooshoo23 Member Posts: 96
    edited March 2011

    I've been thinking about Tracie too. Hope all is well. 

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited March 2011

    I think Tracie is on a 5-day vacation - I think her last post was on the 12th, so she should be back tomorrow or the next day.

  • TonLee
    TonLee Member Posts: 2,626
    edited March 2011

    N3,

    Don't get rid of your piano!!  The pain you're feeling, the neuropathy may go away, and it may be sooner than 2-3 years. 

    I've heard two things about fingernails besides icing them during treatment. 

    1.  Keep them painted (something about light not being a good mix with the chemo).  Some women recommend black polish.

    2.  Keep "coating" the nail hardener.

    This is why I have acrylic nails.  They are painted (usually red or dark mauve) and thick.  I haven't had a bit of trouble.

    A few days ago  while working in the garden my thumb acrylic came loose, I gently took it off.  It's just been about four days, (been busy haven't had time to go in and get it fixed) and guess what?  My thumb nail is now SORE.  Not really bad, but I can tell a difference.  So in my case, I think the acrylics saved my nails as much as the peas.

    (And yes my Onc said I should take them off so he can monitor my nails.  I told him no.  I'd monitor them and if there was a problem I'd take them off.  Everytime I go get fills (when the polish is off, I check them and so far so good.)

    My #6 on Tuesday...I'm icing my toes for sure!  They don't hurt, but the underside of my feet feel like I have two inches of dried mud on them.....thick, heavy....ick.

  • tracie23
    tracie23 Member Posts: 598
    edited March 2011

    Hi Girls, I am still here... I was away for a few days in a cabin in Texas hill country. Had a very nice time I wish I didn't have to come homeFrown. I am going to the onc today for a follow up from my last chemo I guess I will find out when I get my port out.... I also have to deal with the insurance company.  Thanks for thinking of me.

  • Omaz
    Omaz Member Posts: 5,497
    edited March 2011
    Welcome back Tracie - glad you had some much-needed relaxation time!!
  • marjie
    marjie Member Posts: 1,134
    edited March 2011

    Tracie - hope you enjoyed your R&R!

    TonLee - I'm surprised they let you keep your acrylics on.  They had to be removed for surgery and treatment here.

  • TonLee
    TonLee Member Posts: 2,626
    edited March 2011

    I took off the polish for surgery, but refused to take them off for treatment.

    I've refused a couple things, so I think they just roll their eyes and go with it.

  • christine47
    christine47 Member Posts: 1,454
    edited March 2011

    I am recieving Taxotere in combination with my AC, I have had 3 rounds, tomorrow in #4.  My nails look ok, but I feel like I have a million little paper cuts, but skin is intact.  Anyone else experience this?  No numbess in fingers, but back of heels, with burning too.

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited March 2011

    Christine, the paper-cut sensation COULD be neuropathy, so be sure to talk to your doc before you get next round.  If it IS neuropathy, they may want to reduce dose.  If it's NOT neuropathy, the doc still needs to know to figure out what is going on.  Don't ignore it!  Best wishes tomorrow - is this your last one or are you on 6 cycles?

  • christine47
    christine47 Member Posts: 1,454
    edited March 2011

    Thanks Linda,

    I have 6 cycles, so tomorrow I will be 2/3 done.  I mentioned my heels to him this week and he said we will watch that, but my fingers were not sore at that time, so I will tell his nurse before we start.  I usually get the taxotere last.  All the meds just make me worry like crazy, steriods don't help that crazy feeling either.  Just keep telling myself I will be done at the end of April.  Did you have TAC, any lasting SEs?

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited March 2011

    Tracie, welcome back! Hope you are refreshed!

    TonLee, I'm glad to know I'm not the only one who refuses to do things "by the book"! I actually got a "breast cancer BDU (BC-battle dress uniform)", a camouflage outfit to wear to each chemo session - kept the MO and all the nurses entertained.  I had to do something to get a positive mindset, so my mission was "Survive to Enjoy Life" and I have to keep coming back to that for each day's tasks and thoughts.  I will change my picture one of these days when I can get it uploaded - I looked pretty tough!! Wink

    And to everyone else, today was a better day than yesterday, thanks for your listening, and may you each be filled with loving kindess toward yourselves.

  • TonLee
    TonLee Member Posts: 2,626
    edited March 2011

    N3,

    I love love LOVE the cammo idea.  And would really enjoy pics :)

    I took that sort of approach in a way.  Every chemo, I dress well, wear all my tinkling silver jewelry, my heeled boots.  Chemo took my hair, and now I'm getting sun spots!, and gave me chemo vajayjay, but I refuse to give up anything else without a fight.

    On my sicker days, when charity is beyond me, I wonder if all these young men (RO, Onc, BS, etc) actually enjoy watching vibrant attractive women be torn into sickly looking old women.  I wonder when they meet us if they don't already imagine how we're going to look bald, with age spots, rashes, breastless, without nails.  And if they wonder to themselves how our sex life is now because it's all downhill from here.

    Then I come out of my chemo fog and feel bad for thinking about the men who are working to save my life that way.

    But I kept my acrylics. :)

  • bdavis
    bdavis Member Posts: 6,201
    edited March 2011

    today for the first time, I put nail polish on, not just nail hardener... I am in St John and just wanted a little pizazze... I have heard the chemo prevents the polish from staying on.. anyone have that problem??

    And I was a little nervous about sitting at the beach etc, swimming with no hair... I leave the wig in the room, and wear a bandana both at the gym and at the beach/pool... and a big brimmed hat... seems to work and no odd looks... Although as a blond, I do envy all the sun-bleached blondes on the beach... thinking "I remember when..."

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2011

    bdavis - I have kept polish on my toes without a problem and just kept painting the hardener on my fingernails.  I do polish with dark on tx day but then remove it when I get home.  I am jealous of you in St John!  I have a picture of Trunk Bay as the background on my phone and my daughter and I encountered a 5 ft barracuda while snorkeling there!  I touched my daughter's flipper and pointed at the barracuda and she took off like a bat out of hell and left me to be eaten!  She redeemed herself by spending the night in the hospital with me during my BMX. 

  • Omaz
    Omaz Member Posts: 5,497
    edited March 2011
    SpecialK - My daughter and I were snorkeling in Kealakekua Bay in Hawaii and we also ran into a big barracuda!
  • coni111852
    coni111852 Member Posts: 419
    edited March 2011

    Hi ladies it's been a while since I've posted I hope everyone is doing well, lately tax is kicking my butt, I'm a lot more tired than before. I've been taking neaulasta as well and WBC were 7.3 last treatment which was Friday the 11 th on Sunday I got my neaulasta. I was ok on the weekend on Monday when I woke up I had a bit of sore so decided to take a nice warm shower...as soon as I got out of the showe the whole room was spinning, my heart felt weird, I felt like I was going to pass out. I really though I was going to call 911, out of all the times was alone, it really scared me. So I don't know if is taxotere or neaulasta. My home nurse was coming to change dressing on piccline she checked bp it was 105 she though it may have just dropped. I think neaulasta drops my bp and I get fast heart beat so I'm thinking of skipping last needle.....I mean with the numbers I have I'll be ok I think and my mastectomy is not 5 wks after last chemo I'm praying it's enough time to get back WBC to normal or close to it. My throat feels like I have something there, sometimes it's sore and burns..soo tired but just one more and I'll be done....



  • marjie
    marjie Member Posts: 1,134
    edited March 2011

    coni - my heart/pulse was always weird for about a week or so after each tx.  I just forced myself to relax and rest - it's hard not to let it scare you for sure!  My onc never seemed too concerned about it and my MUGA is staying at/around 65.

  • lago
    lago Member Posts: 17,186
    edited March 2011
    Coni I too felt my breathing seemed different right after chemo and I did retain tons of fluid. My onc wasn't worried either. I had a MUGA before treatment but I haven't had once since. I do think though if you feel light headed that is something your must report to the onc.
  • Omaz
    Omaz Member Posts: 5,497
    edited March 2011
    lago - I know we all talked about this earlier, but did you ever ask your onc why she didn't do a post-chemo ECHO or MUGA?  I am going for my third next week (ECHO).
  • lago
    lago Member Posts: 17,186
    edited March 2011

    I see my NP in 6 weeks (3 months after last chemo). I could ask then. Not sure when I see my onc again. I might be scheduled to see the NP because my onc will be out of town or now that I'm finished with chemo or they just alternate for the first year.

  • tracie23
    tracie23 Member Posts: 598
    edited March 2011

    I saw my onc the other day and they said they don't want to keep radiating me if it is not necessary. So it is really a wait and see game for me. since they took the tumor gave me the aggressive chemo and it didn't spread....They also said they will see me in 6 months. Who knows

  • lago
    lago Member Posts: 17,186
    edited March 2011

    Tracie it is typical to see your onc every 6 months and your BS every 6 months alternating. This would mean that you would be seeing either your onc or BS every 3 months I think for 1-3 years. I'm still doing Herceptin so I will see the onc/NP I think every 3 months till Herceptin is done. My BS still wants to see me every 6 months.

    Granted every case is different. We have a very different diagnosis so it may not be the same.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2011

    omaz - we were done snorkeling but we were a long way out and swimming straight back in to the beach.  The barracuda was swimming straight out to sea.  My daughter was just ahead of me so her feet were just to the left of my arm.  I didn't realize how big the barracuda was until he was almost next to us and that is when I touched her fin.  He was swimming with his mouth slightly open and I could see all those teeth!  Like an idiot I was wearing a necklace and earrings but luckily I had a high-necked one-piece on.  I tucked the necklace into the bathing suit and covered my ears with my hands and swam as fast as I could.  I looked like a crazy woman, but what else is new!

  • coni111852
    coni111852 Member Posts: 419
    edited March 2011

    I did echo before but didn't do muga... Last chemo my bp was 80/ 35 and heart 120 they didn't seem concern either??? told them about dizzy and lighthead they didn't seem concern. One of the home nurses said maybe I need it hydration called pdn she said no....I've notice that after neaulasta my bp drops soo screw it telling onc not this time it's last one and I don't even go out so I can get sick....

    I'm just scared of fainting or something... But just one more that's all i keep telling myself...

  • tracie23
    tracie23 Member Posts: 598
    edited March 2011

    coni, it is great you only have one more to go YEAH!!! The next to the last tax for me was awful I was in bed for the whole 3 weeks until the next chemo. Hang in there it does get better. The only major side effect I am having right now is very sore sore sore muscles all over it hurts to sit , stand, bend over etc... I hope you have a good weekend and get through all the taxoterriable stuff

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