Taxotere is a nightmare
Comments
-
I iced my fingers starting the second treatment. I have acrylic nails over my nails, and I don't have any pain or anything.
However, I didn't ice my toes, and while they look normal at #5 they started hurting..so for #6 I'm putting a bag of peas over my socks!
No one ices at my cancer center that I've seen, so they all think I'm a little looney. I don't care...I'm doing it.
Dread losing the eyebrows, but already have gaps so I know it's coming...
-
Feeling a little sorry for myself tonight... trying to balance SE of neurontin (foggy brain, not thinking clearly, dry eyes, dry mouth, drowsy, dizzy) against finger pain/tingling/not able to do anything with hands when I don't take it. Fingernails sore, worse with being in pool for physical therapy, balanced against need to MOVE to keep the rest of the body's aches & pains at bay (this nail thing is just so different than the fingertip stuff, I just disagree with the MO that it is also neuropathy...). Such a nice day today, such a crappy mood I'm in. Tonlee, I say ice away - being a bit looney is better than this! Thanks for letting me vent a bit. I am thinking of selling my piano as it just reminds me of how much I have lost.
I just hope this resolves, don't know if I can endure 2-3 years of this, don't know if I will "get used to it" as the MO says.
-
Just repolished my nails...if I can call them that....there are several ugly looking nails under the polish....so far only one has lifted off and there are 4 others that are dead....but they seem to be growing out without lifting...so we will see. Guess they don't tell you this just in case it doesn't happen...mine were red, like they had bled underneath...then turned dark...then a dead white looking color....not nice...good luck with the icing...had not heard about that.
-
Hi there - just finished # 4 of 6 TCH. I iced and the nurse had not seen it before. I am SOOOO thankful that all the ladies mentioned this (thanks Lago, Tonlee!). I started with peas on my toes and fingers on TCH #2. So far, I have the pink/light brown stripes on each nail. Someone said that you can actually see the lines of each treatment. They seem like it is all mashed together. I don't think they will lift...thinking not, but like everything else on this journey, would not be surprised if they did!
Two days out and I am so tired too. Haven't had this before. I can totally relate to all the posts. Feeling a bit sorry for myself. Think I need to go to bed!
Annie
-
n3ypb if your fingernail beds are sore then it doesn't sound like neuropathy it sounds exactly like what I had/have… and if you get it as bad as I did it sucks. This is sign that your fingernails will lift possibly fall of and ooze. I don't remember if I posted links to pictures on this thread. If interested let me know. The toe one is gross.
Has anyone heard from Tracie?
-
I've been thinking about Tracie too. Hope all is well.
-
I think Tracie is on a 5-day vacation - I think her last post was on the 12th, so she should be back tomorrow or the next day.
-
N3,
Don't get rid of your piano!! The pain you're feeling, the neuropathy may go away, and it may be sooner than 2-3 years.
I've heard two things about fingernails besides icing them during treatment.
1. Keep them painted (something about light not being a good mix with the chemo). Some women recommend black polish.
2. Keep "coating" the nail hardener.
This is why I have acrylic nails. They are painted (usually red or dark mauve) and thick. I haven't had a bit of trouble.
A few days ago while working in the garden my thumb acrylic came loose, I gently took it off. It's just been about four days, (been busy haven't had time to go in and get it fixed) and guess what? My thumb nail is now SORE. Not really bad, but I can tell a difference. So in my case, I think the acrylics saved my nails as much as the peas.
(And yes my Onc said I should take them off so he can monitor my nails. I told him no. I'd monitor them and if there was a problem I'd take them off. Everytime I go get fills (when the polish is off, I check them and so far so good.)
My #6 on Tuesday...I'm icing my toes for sure! They don't hurt, but the underside of my feet feel like I have two inches of dried mud on them.....thick, heavy....ick.
-
Hi Girls, I am still here... I was away for a few days in a cabin in Texas hill country. Had a very nice time I wish I didn't have to come home
. I am going to the onc today for a follow up from my last chemo I guess I will find out when I get my port out.... I also have to deal with the insurance company. Thanks for thinking of me.
-
Welcome back Tracie - glad you had some much-needed relaxation time!!
-
Tracie - hope you enjoyed your R&R!
TonLee - I'm surprised they let you keep your acrylics on. They had to be removed for surgery and treatment here.
-
I took off the polish for surgery, but refused to take them off for treatment.
I've refused a couple things, so I think they just roll their eyes and go with it.
-
I am recieving Taxotere in combination with my AC, I have had 3 rounds, tomorrow in #4. My nails look ok, but I feel like I have a million little paper cuts, but skin is intact. Anyone else experience this? No numbess in fingers, but back of heels, with burning too.
-
Christine, the paper-cut sensation COULD be neuropathy, so be sure to talk to your doc before you get next round. If it IS neuropathy, they may want to reduce dose. If it's NOT neuropathy, the doc still needs to know to figure out what is going on. Don't ignore it! Best wishes tomorrow - is this your last one or are you on 6 cycles?
-
Thanks Linda,
I have 6 cycles, so tomorrow I will be 2/3 done. I mentioned my heels to him this week and he said we will watch that, but my fingers were not sore at that time, so I will tell his nurse before we start. I usually get the taxotere last. All the meds just make me worry like crazy, steriods don't help that crazy feeling either. Just keep telling myself I will be done at the end of April. Did you have TAC, any lasting SEs?
-
Tracie, welcome back! Hope you are refreshed!
TonLee, I'm glad to know I'm not the only one who refuses to do things "by the book"! I actually got a "breast cancer BDU (BC-battle dress uniform)", a camouflage outfit to wear to each chemo session - kept the MO and all the nurses entertained. I had to do something to get a positive mindset, so my mission was "Survive to Enjoy Life" and I have to keep coming back to that for each day's tasks and thoughts. I will change my picture one of these days when I can get it uploaded - I looked pretty tough!!
And to everyone else, today was a better day than yesterday, thanks for your listening, and may you each be filled with loving kindess toward yourselves.
-
N3,
I love love LOVE the cammo idea. And would really enjoy pics
I took that sort of approach in a way. Every chemo, I dress well, wear all my tinkling silver jewelry, my heeled boots. Chemo took my hair, and now I'm getting sun spots!, and gave me chemo vajayjay, but I refuse to give up anything else without a fight.
On my sicker days, when charity is beyond me, I wonder if all these young men (RO, Onc, BS, etc) actually enjoy watching vibrant attractive women be torn into sickly looking old women. I wonder when they meet us if they don't already imagine how we're going to look bald, with age spots, rashes, breastless, without nails. And if they wonder to themselves how our sex life is now because it's all downhill from here.
Then I come out of my chemo fog and feel bad for thinking about the men who are working to save my life that way.
But I kept my acrylics.
-
today for the first time, I put nail polish on, not just nail hardener... I am in St John and just wanted a little pizazze... I have heard the chemo prevents the polish from staying on.. anyone have that problem??
And I was a little nervous about sitting at the beach etc, swimming with no hair... I leave the wig in the room, and wear a bandana both at the gym and at the beach/pool... and a big brimmed hat... seems to work and no odd looks... Although as a blond, I do envy all the sun-bleached blondes on the beach... thinking "I remember when..."
-
bdavis - I have kept polish on my toes without a problem and just kept painting the hardener on my fingernails. I do polish with dark on tx day but then remove it when I get home. I am jealous of you in St John! I have a picture of Trunk Bay as the background on my phone and my daughter and I encountered a 5 ft barracuda while snorkeling there! I touched my daughter's flipper and pointed at the barracuda and she took off like a bat out of hell and left me to be eaten! She redeemed herself by spending the night in the hospital with me during my BMX.
-
SpecialK - My daughter and I were snorkeling in Kealakekua Bay in Hawaii and we also ran into a big barracuda!
-
Hi ladies it's been a while since I've posted I hope everyone is doing well, lately tax is kicking my butt, I'm a lot more tired than before. I've been taking neaulasta as well and WBC were 7.3 last treatment which was Friday the 11 th on Sunday I got my neaulasta. I was ok on the weekend on Monday when I woke up I had a bit of sore so decided to take a nice warm shower...as soon as I got out of the showe the whole room was spinning, my heart felt weird, I felt like I was going to pass out. I really though I was going to call 911, out of all the times was alone, it really scared me. So I don't know if is taxotere or neaulasta. My home nurse was coming to change dressing on piccline she checked bp it was 105 she though it may have just dropped. I think neaulasta drops my bp and I get fast heart beat so I'm thinking of skipping last needle.....I mean with the numbers I have I'll be ok I think and my mastectomy is not 5 wks after last chemo I'm praying it's enough time to get back WBC to normal or close to it. My throat feels like I have something there, sometimes it's sore and burns..soo tired but just one more and I'll be done....
-
coni - my heart/pulse was always weird for about a week or so after each tx. I just forced myself to relax and rest - it's hard not to let it scare you for sure! My onc never seemed too concerned about it and my MUGA is staying at/around 65.
-
Coni I too felt my breathing seemed different right after chemo and I did retain tons of fluid. My onc wasn't worried either. I had a MUGA before treatment but I haven't had once since. I do think though if you feel light headed that is something your must report to the onc.
-
lago - I know we all talked about this earlier, but did you ever ask your onc why she didn't do a post-chemo ECHO or MUGA? I am going for my third next week (ECHO).
-
I see my NP in 6 weeks (3 months after last chemo). I could ask then. Not sure when I see my onc again. I might be scheduled to see the NP because my onc will be out of town or now that I'm finished with chemo or they just alternate for the first year.
-
I saw my onc the other day and they said they don't want to keep radiating me if it is not necessary. So it is really a wait and see game for me. since they took the tumor gave me the aggressive chemo and it didn't spread....They also said they will see me in 6 months. Who knows
-
Tracie it is typical to see your onc every 6 months and your BS every 6 months alternating. This would mean that you would be seeing either your onc or BS every 3 months I think for 1-3 years. I'm still doing Herceptin so I will see the onc/NP I think every 3 months till Herceptin is done. My BS still wants to see me every 6 months.
Granted every case is different. We have a very different diagnosis so it may not be the same.
-
omaz - we were done snorkeling but we were a long way out and swimming straight back in to the beach. The barracuda was swimming straight out to sea. My daughter was just ahead of me so her feet were just to the left of my arm. I didn't realize how big the barracuda was until he was almost next to us and that is when I touched her fin. He was swimming with his mouth slightly open and I could see all those teeth! Like an idiot I was wearing a necklace and earrings but luckily I had a high-necked one-piece on. I tucked the necklace into the bathing suit and covered my ears with my hands and swam as fast as I could. I looked like a crazy woman, but what else is new!
-
I did echo before but didn't do muga... Last chemo my bp was 80/ 35 and heart 120 they didn't seem concern either??? told them about dizzy and lighthead they didn't seem concern. One of the home nurses said maybe I need it hydration called pdn she said no....I've notice that after neaulasta my bp drops soo screw it telling onc not this time it's last one and I don't even go out so I can get sick....
I'm just scared of fainting or something... But just one more that's all i keep telling myself... -
coni, it is great you only have one more to go YEAH!!! The next to the last tax for me was awful I was in bed for the whole 3 weeks until the next chemo. Hang in there it does get better. The only major side effect I am having right now is very sore sore sore muscles all over it hurts to sit , stand, bend over etc... I hope you have a good weekend and get through all the taxoterriable stuff
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team