Shoulder Pain?

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Arayasunshine69
Arayasunshine69 Member Posts: 50
edited June 2014 in Stage III Breast Cancer

Hi Ladies, Hope you're all having a great weekend!  My shoulder has been bothering me.  I had lymphnodes removed on my right side, but my left shoulder has bothering me, for weeks!  I  have started to do more cardio at the Y, (Eliptical machine) and my walking on the treadmill (I swing my arms back and forth like a pendulum) I get all my ivs in my left arm, and because of having slight lymphedema on my right side, I seem to over compensate on my left side, I do all my heavy lifting, including carrying my 18 month old daughter.  Could this be pain, from all the compensating, drug SE's, arthritis pain, or do I have a genuine reason to be concerned, and call my onc asap?  ooooor am I being silly, because every pain I have, I think "cancer" ?  Thanks!

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  • jenn3
    jenn3 Member Posts: 3,316
    edited March 2011

    Kellie - Remember the two week rule.  And.........is it constant and getting worse or does it come and go?  Is it there one day, then gone for a few days?  I don't want to say never, but generally if it's cancer the pain won't go away, but get worse.  It does sound like you may be over compensating, could be arthritis, SE's or a pulled muscle.   However, if you are concerned, call your dr or onc - peace of mind is very important.

  • thegood5
    thegood5 Member Posts: 478
    edited March 2011

    Kellie, I am having the exact same problem, only on opposites sides from you.  I just sat in the recliner a little while ago with a heating pad on my shoulder.  My husband thinks it's because I overdue it with my right because I had a SNB and 2 lumpectomy's in the past 2 weeks.  It feels like it could be arthritis, and I sometimes get this feeling in my knees....a really bad burning kind of feeling.  Hope it goes away for you soon! 

  • TifJ
    TifJ Member Posts: 1,568
    edited March 2011

    I have been looking for a thread like this! I posted a thread about shoulder and arm pain and only received 2 responses. My left (opposite my mx) shoulder and upper arm really hurt. I had my infrcted port removed on that side in early jan. The incision was left open to heal on its own, so i favored that arm for about 6 weeks. The incision has closed up and have now had the pain for about 3 weeks. My PT (for range of motion on the mx side) thinks it may be an inflamed bicep tendon from not using it for  a while. I have been icing it and taking Advil, but it still really hurts. Of course, my thoughts drift to mets. I am going to call my Dr. tomorrow and ask for an x-ray, scan or something just for some peace of mind. Can an X-ray detect mets? It doesn't hurt until I move it. I can raise it straight up with no pain, but out to the side is a killer. Let me know if any of you get aome answers to your pain!! Thanks!

  • krcll
    krcll Member Posts: 343
    edited March 2011

    I read that one of the SE's of AIs is a tendency to problems in the rotator cuff. I have been on Femara for nearly a year now and have been having rotator cuff problems. After the first 2 months I tried to be very careful with that shoulder (non-cancer side)- not to carry my purse on that side, not to pull a suitcase or lift things on that side, etc. The pain went away after about a month of being careful. It has now come back again but I'm not worrying this time about it being mets. Could it be the SE's of AIs for you, too?

  • jennyboog
    jennyboog Member Posts: 1,322
    edited March 2011

    I have this also.  The day after my BMX while in the hospital my right shoulder (opposite side) was killing me.  I told the dr and nurses it hurt worse than my BMX, my DH actually went and bought me a heating pad for the hospital.  It has gotten better but still bothers me every now and then.  Mine feels like bursitis, which can be aggrevated by all we've gone through.  I hope it gets better for you and try not to let "cancer brain" take over.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    From the New York Times Personal Health Column:

    February 28, 2011

    For Tendon Pain, Think Beyond the Needle

    By JANE E. BRODY

    Two time-honored remedies for injured tendons seem to be falling on their faces in well-designed clinical trials.       

    The first, corticosteroid injections into the injured tendon, has been shown to provide only short-term relief, sometimes with poorer long-term results than doing nothing at all.       

    The second, resting the injured joint, is supposed to prevent matters from getting worse. But it may also fail to make them any better.       

    Rather, working the joint in a way that doesn't aggravate the injury but strengthens supporting tissues and stimulates blood flow to the painful area may promote healing faster than "a tincture of time."       

    And researchers (supported by my own experience with an injured tendon, as well as that of a friend) suggest that some counterintuitive remedies may work just as well or better.       

    A review of 41 "high-quality" studies involving 2,672 patients, published in November in The Lancet, revealed only short-lived benefit from corticosteroid injections. For the very common problem of tennis elbow, injections of platelet-rich plasma derived from patients' own blood had better long-term results.       

    Still, the authors, from the University of Queensland and Griffith University in Australia, emphasized the need for more and better clinical research to determine which among the many suggested remedies works best for treating different tendons.       

    My own problem was precipitated one autumn by eight days of pulling a heavy suitcase through six airports. My shoulder hurt nearly all the time (not a happy circumstance for a daily swimmer), and trying to retrieve something even slightly behind me produced a stabbing pain. Diagnosis: tendinitis and arthritis. Treatment: rest and physical therapy.       

    Two months of physical therapy did help somewhat, as did avoiding motions that caused acute pain. The therapist had some useful tips on adjusting my swimming stroke to minimize stress on the tendon while the injury gradually began to heal.       

    The following spring, although I still had some pain and feared a relapse, I attacked my garden with a vengeance. Much to my surprise, I was able to do heavy-duty digging and lugging without shoulder pain.       

    Could the intense workout and perhaps the increased blood flow to my shoulder have enhanced my recovery? A friend, Richard Erde, had an instructive experience.       

    An avid tennis player at 70, he began having twinges in his right shoulder while playing. Soon, simple motions like slipping out of a shirt sleeve caused serious pain. The diagnosis, based on a physical exam, was injury of the tendon that attaches the biceps muscle of his upper arm to the bones of the shoulder's rotator cuff.       

    He was advised to see a rheumatologist, who declined to do a corticosteroid injection and instead recommended physical therapy and rest.       

    "I stopped playing tennis for a month, and it didn't help at all," Mr. Erde told me. "The physical therapist found I had very poor range of motion and had me do a variety of exercises, which improved my flexibility and reduced the pain somewhat." After two months, he stopped the therapy.       

    Then several weeks ago, after watching the Australian Open, he thought he should do more to strengthen his arm and shoulder muscles and decided to try playing tennis more vigorously. "The pain started to drop off dramatically," he said, "and in just 10 days the pain had eased more than 90 percent."       

    A Frustrating Injury

    Tendinopathies, as these injuries are called, are particularly vexing orthopedic problems that remain poorly understood despite their frequency. "Tendinitis" is a misnomer: rarely are there signs of inflammation, which no doubt accounts for the lack of lasting improvement with steroid shots and anti-inflammatory drugs. They may relieve pain temporarily, but don't cure the problem.       

    The underlying pathology of tendinopathies is still a mystery. Even when patients recover, their tendons may continue to look awful, say therapists who do imaging studies. Without a better understanding of the actual causes of tendon pain, it's hard to develop rational treatments, and even the best specialists may be reduced to trial and error. What works best for one tendon - or one patient - may do little or nothing for another.       

    Most tendinopathies are precipitated by overuse and commonly afflict overzealous athletes, amateur and professional alike. With or without treatment, they usually take a long time to heal - many months, even a year or more. They can be frustrating and often costly, especially for professional athletes and physically active people like me and Mr. Erde.       

    In a commentary accompanying the Lancet report, Alexander Scott and Karim M. Khan of the University of British Columbia noted that although "corticosteroid injection does not impair recovery of shoulder tendinopathy, patients should be advised that evidence for even short-term benefits at the shoulder is limited." Like the Australian reviewers, the commentators concluded that "specific exercise therapy might produce more cures at 6 and 12 months than one or more corticosteroid injections."       

    Treatments to Try

    Now the question is: What kind of physical therapy gives the best results? Most therapists prescribe eccentric exercises, which involve muscle contractions as the muscle fibers lengthen (for example, when a hand-held weight is lowered from the waist to the thigh). Eccentric exercises must be performed in a controlled manner; uncontrolled eccentric contractions are a common cause of injuries like groin pulls or hamstring strains.       

    Marilyn Moffat, professor of physical therapy at New York University and president of the World Confederation for Physical Therapy, prefers "very protective" isometric exercises, at least at the outset of treatment until the tendon injury begins to heal. These exercises involve no movement at all, allowing muscles to contract without producing pain. For example, in treating shoulder tendinopathy, she said in an interview, the patient would push the fists against a wall with upper arms against the body and elbows bent at 90 degrees.       

    In another exercise, the patient sits holding one end of a dense elastic Thera-Band in each hand and, with thumbs up, upper arms at the sides and elbows bent at 90 degrees, tries to pull the hands apart.       

    "The stronger the shoulder muscles are when the tendinopathy calms down, the better shape the shoulder is in to take over movement without further injury," Dr. Moffat said. "You don't want the muscles to weaken, which is what happens when you rest and do nothing. That leaves you vulnerable to further injury."       

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    I just want to add that I'm in AGONY with my shoulder.  It's going on 5 months! Yikes!  Several months after my surgery, I had pain and noticed that I had axillary web syndrome.  As it subsided, I continued to get pain.  I had an MRI and found I had a small rotator cuff tear, tendinosis, an entrapment and a tiny bone spur in a very bad spot --whatever THAT means!  I previously had shoulder, elbow and pinky surgery on the other arm.  When I underwent the breast surgery on my "good" arm, I knew I was in trouble.  I now have TWO awful shoulders, because the other one is not behaving.  I've had physical therapy for several months and I ice, ice, ice baby which ever shoulder is hurting the most, at any given time.  I couldn't sleep the first three months because of stiffness and pain.   I am SLOWLY getting better.  I do the strengthening exercises that Jane Brody mentions and I do stretching.  I will NOT consider surgery because the last time I had shoulder surgery it took two years to get back my range of motion.  I think the key to recovery is strengthening the shoulder blades. 

     I can only imagine how much lifting you are doing with a toddler.  My thoughts and prayers are with you.  If it makes you feel any better, I feel your pain!  Hang in there!

  • thegood5
    thegood5 Member Posts: 478
    edited March 2011

    made a Dr. appt about my shoulder...he is sending me for an x-ray in an hour, thinks it's my rotator cuff...we'll see.  Always something!

  • americanpinay
    americanpinay Member Posts: 338
    edited March 2011

    Kellie - I have the same exact problem. Pain on my left shoulder started while on chemo and it's been coming and going, coming and going. Auggh. I think it's because I overuse my left arm. I had lymph nodes removed on the right so can't use that for blood draws, to check BP, or to carry groceries and luggage. It drives me nuts because sometimes I cry out in pain when I forget and move too fast or overreach with the left arm. I mentioned it to my onc during my last visit but he does not seem concerned about it because (1) it is not new pain and (2) I just had all sort of scans and nothing is showing up on that area. I agree with Jenn, remember the two-week rule.

    thegood5 - I hope you get good x-ray results today. Take care.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    x-ray's are meaningless.  You need an MRI to find a rotator cuff tear or tendonosis.

    This is from wikipedia:

     Common medical studies used in diagnosing a rotator cuff tear include X-ray, MRI, double-contrast arthrography, and ultrasound techniques. A normal rotator cuff tear usually goes undetected with an X-ray, although bone spurs, which can pinch the rotator cuff tendons and result in a tear, can be captured.[10] Moreover, if bone spurs are present, it suggests chronic severe rotator cuff disease. Double-contrast arthrography involves injecting contrast dye into the shoulder joint to detect leakage out of the injured rotator cuff.[11] Arthrography and ultrasound are used, but depend heavily on the experience of a radiologist. The most effective and common diagnosis tool is magnetic resonance imaging (MRI), which can sometimes tell how large the tear is, as well as its location within the tendon. Furthermore, MRI enables the detection or exclusion of complete rotator cuff tears with a reasonable accuracy and is also suitable to diagnose further pathologies of the shoulder joint.[12]

  • TifJ
    TifJ Member Posts: 1,568
    edited March 2011

    Voraciousreader- Thank you for all the info! It sounds like many of us have shoulder and/or arm issues. I just came from my Dr. She initially scheduled an MRI, but my tissue expander has a magnet in it so no MRI- she is now faxing over an order for a CTscan.

    krcll- I am triple negative so I don't get AIs. The Dr. thinks it may be a nerve issue, a tear or a simple strain. She doesn't think it is cancer related as the pain only occurs when I move certain ways, but is ordering the scan for my peace of mind.

    thegood5- yes, it is always something!! Hope your x-ray shows nothing serious

    jennyboog- It really is hard not to let "cancer brain" take over. Now that I have seen the Dr. I already feel better even though I don't have any answers yet.

    I hope everyone has a nice Monday. It is cold and snowy here in Missouri, then supposed to be 70 by Thursday-crazy mid-west weather!!

    Tiffany

  • thegood5
    thegood5 Member Posts: 478
    edited March 2011

    x-ray came back fine...Rx: vicodin, heat, and rest

  • TifJ
    TifJ Member Posts: 1,568
    edited March 2011

    good- Great news!- hope it heals quickly!

  • americanpinay
    americanpinay Member Posts: 338
    edited March 2011

    thegood5...that's good news about the x-ray results...hope the Rx resolves your shoulder pain...

    tifj...good luck on your CT scan..

  • 116
    116 Member Posts: 108
    edited December 2012

    I am sorry you are in agony, and I can understand based on your previous surgery that you are reluctant to do that again, however I was in agony with a bad shoulder that kept me from sleeping for months due to bone spur, entrapment, and small tear. I finally had the surgery, had no trouble with range of motion, and it was the best thing I ever did. I got my life back again and can now brush my horse again with our being crippled up for days later. I would suggest asking your doctor what the difference would be between your last surgery and this one because frankly a bone spur is a bone spur and it will not probably go away. I was sorry later that I waited so long and I hate to think someone else suffers like I did. It was awful and needless. Also in the process of trying to strengthen my shoulder I only made it worse since essentially my shoulder was bone on bone due to bone spur. Best of luck to you.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2011

    If the shoulder pain is with your computer mouse arm, try lowering your mouse and mouse pad below the keyboard level (give it one week). Perhaps use it on a lower table below your computer desk. I had this agonizing problem, and my ortho doc said he had the same problem. He lowered the mouse pad...it worked for him and me.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    Giddyup --- I have an appointment with my internist this afternoon to discuss my treatment options.  I know if I go to the orthopedist, he's going to want to schedule surgery, again.  He already told me to schedule the surgery so he could take a peek inside.  The last time I had the surgery, the MRI missed a lot of the bone spurs, so I really needed that surgery.  I am just such a wimp when it comes to all of this surgery.  Enough is enough already.

    LauraGTO - It's great that you mentioned ergonomics.  I also have sciatia and adjusting the seat in my car as well as placing a rotating foot rest under my feet at my desk, makes a world of difference.  I also type with an ergonomic keyboard. 

    I'm also embarrassed about having more arm surgery.  It seems like every other year I'm in some kind of sling or cast.  My pinky surgery WAS THE WORST!  They had to graft bone and use coral to rebuild the finger...it took close to a year!  A pinky, for goodness sakes!  I have it over The Bionic Woman, hands down! LOL!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2011

    voraciousreader - Ergonomics...That's PRECISELY the word I couldn't think of when I keyed my post. My chemo brain is STILL sad. Embarassed It's amazing how a few simple adjustments, CAN make a difference. Thanks for sharing. Here's one place that sells supplies:

    http://www.ergostoreonline.com/

    Best wishes with your surgery...hopefully this will be the last one?

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    I just returned from my internist who thought I was doing better since he hadn't heard from me in awhile. After examining me and realizing my arm was terrible, he gave me terrific advice. He told me to go back to the orthopedist and ask for another MRI to see if I am improving or worse. I thought that was a great idea because MRIs sometimes miss things and it should tell us if the tear is healing. My appointment with the beloved orthopedist is on Monday. Stay tuned. Hope everyone's shoulders will be feeling better soon with all these tips.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2011

    I am having the exact same problem - massive pain in my right shoulder three weeks after a unilateral mastectomy and lymph node dissection on the left. It is excruciating, and hurs so bad it has even tempted me to take some of the leftover Vicodin from my surgery. (Fortunately, I have only succumbed to taking Tylenon and Advil). The pain spreads from my spine up through the muscles of my upper back, along my shoulder, up my neck, and even up into my head/scalp.

    In the past two weeks I have tried an osteopath, a chiropractor, a physical therapist, and a massage therapist, but none has really helped. I've found that rubbing it myself and using a vibrating massager helps just as much, if only temporarily.

    Given the number of posts here, this seems to be a common issue!

  • TifJ
    TifJ Member Posts: 1,568
    edited March 2011

    Still waiting for the Drs office to fax over the order for a CT to the imaging center. I guess since they are not in pain, they really don't care how quickly this gets done. If it doesn't get done by tomorrow, I will go through my cancer center, everything gets done in a timely manner there.

  • thegood5
    thegood5 Member Posts: 478
    edited March 2011

    windlass...I say take the vicodin!  that's what my Dr. told me to do to help my shoulder!

  • Arayasunshine69
    Arayasunshine69 Member Posts: 50
    edited March 2011

    Hi Everyone!  Sorry for my late response...After I started this thread, I went to visit my sister who lives 5 hours north of me, and I just got home a couple of hours ago.  I am sad to see that this is a common issue amonst us.  I haven't read all the comments yet, my 18 month old is pretty busy, and when she goes to sleep tonight, I will come back and catch up on my reading. =) Because I visit my sister, I haven't been to the gym since Monday, and I was hoping my shoulder pain would resolve, so I could blame the increase in exercise, but it still hurts just the same.  I see my oncologist on Thursday, so I'll be sure to report my pain to him, and hopefully it's just that I do use this arm for everything and nothing else.  A friend asked me if it were possible, that I use that arm for all bloodwork, ivs, etc could that be why it hurts so much...Anyways, thank you for your replies and I will read and post back, hopefully tonight. 

    Cheers!

  • Arayasunshine69
    Arayasunshine69 Member Posts: 50
    edited March 2011

    Hi Ladies!

    I'm having another bad day...all my joints hurt.  My shoulder pain has been constant, and yesterday I noticed some tingling in my hands and fingers, as well as some pain in the elbow.  I see my oncologist on Thursday, and I hope he can shed some light on this for me.  I'm so frustrated.  =(

  • jennyboog
    jennyboog Member Posts: 1,322
    edited March 2011

    I'm not sure if you mentioned this or not....but are you on arimidex?  I am and I'm having the same problem with the elbow & fingers.  I hope your dr has some answers for you, let us know what they say.

  • clariceak
    clariceak Member Posts: 752
    edited March 2011

    For those of you with shoulder pain after a masectomy, you may want to read this from another bc poster.  It's one of those things that isn't mentioned by the surgeon, but is more common than you  may realize.

     http://butdoctorihatepink.blogspot.com/2011/03/post-mastectomy-problems.html

  • Pure
    Pure Member Posts: 1,796
    edited March 2011

    My friend who had stage 3 bc got Rhemotodi Arthiritis after diagnosis... ( ignore the horrible spelling)

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    Just returned from orthopedist. I threw in the towel and agreed to surgery. I asked if we could at least do another MRI to see if my tear is improving. He said that there are at least six things that can be causing the shoulder pain and the MRI can only show a few of those things. Also, when I had my last shoulder surgery on my other arm, the MRI missed many of the bone spurs that were causing my pain.



    I am going on six months of sleepless, painful nights. This wimp is ready for relief and will do whatever it takes to feel better.

  • TifJ
    TifJ Member Posts: 1,568
    edited March 2011

    I had my CT scan on Friday and have not heard any results so I called my Dr. She , of course, will not be in until Wed. so they wouldn't give me the results- even though they have them!!  The nurse did say that they would have received a call from the radiologist by now if something very concerning (bone mets) showed up. I hope that is true. Still, I would like to know what is causing my shoulder and pain!!

  • Arayasunshine69
    Arayasunshine69 Member Posts: 50
    edited March 2011

    Hi Ladies!  Another stiff morning, complete with painful shoulders, elbows, hips, legs and knees and with tingling hands for me!  I can't wait to see my oncologist on Thursday, I have so many things wrote down that I need to discuss with him.  Thanks for posting the link about Frozen Shoulder, Clarice. I will mention it to my onc.   Tiff, you will have to keep us posted on your results when you receive them.   Someone else suggested, a pinched nerve?  Just when you think that your knees and legs and hips are hurting from joint pain so badly, and think the pain can't get worst, something else starts to hurt and give us problems.  I'm so sick of this.  I hate joint pain!  I was diagnosed with Arthritis in my knees, lower back and hips, in 2007, now the pain is tenfold, and It really $crews with my head!  Just after I was diagnosed with Arthitis, I was able to get to a healthy weight, and had less arthritis pain, I was even able to stop taking my pain meds.  But now...I am going to ask my onc for stronger pain meds...right now I take Tylenol 4's and they don't even take the edge off the pain.  Today I'm going for an Echocardiogram.  Hope they find a good vein right away, and don't have to poke my poor arm with more then one needle.

    Cheers!

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