Anyone from Montreal, Qc?

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  • Tundra
    Tundra Member Posts: 136
    edited February 2011

    Hello everyone,

     Hum... I seem to have somehow missed this thread. Nice to see some Montrealers on here.

     I'm a Montrealer too and was diagnosed in mid-December.  I'm 35.

    Sending goodness to all of you...

    :-)

  • my560sel
    my560sel Member Posts: 1,065
    edited February 2011
    Hi Marie! Nice to see you on here. I hope you're doing well !

    Tundra, Welcome to our Montreal gang! I hope you're treatments are going well 

    Hopefully we can get a get-together going sometime soon - it would be nice to catch up on everyone's news!

    Terri

  • Ma_rta
    Ma_rta Member Posts: 20
    edited February 2011

    hai can i join? i living in montreal too, i'm 36y/o



    finally i got phone call from jean talon hospital, will have surgery on tuesday next week



    have good night everybody



    marta

  • annettek
    annettek Member Posts: 1,640
    edited February 2011

    Man, I want to join as an honory member since Montreal is one city I have not yet made it too and plan on visiting as soon as I can..I have met so many wonderful people from there over the years and the city appears quite beautiful and steeped in history...

  • Ma_rta
    Ma_rta Member Posts: 20
    edited February 2011

    hai annettek,

    nice to meet u :-)

    marta

  • my560sel
    my560sel Member Posts: 1,065
    edited February 2011

    Marta, Good that you have a surgery date...I hope everything goes well. Ask your Dr's lots of questions. Make sure to bring someone with you when you have your Dr's appointments. It makes it easier to remember what they are telling you, write your questions down before you go. Let us know how things go when you are feeling up to it. Best of luck to you.

    Annettek, Welcome!  We'd love to have you!

    Terri

  • Ma_rta
    Ma_rta Member Posts: 20
    edited February 2011

    terri,

    i send u private messege, do u want to check/reply ?

  • Linda-Renee
    Linda-Renee Member Posts: 31
    edited February 2011

    HI again,

    Well, I went before the tumour board last Friday, hoping to get an answer as to whether or not I needed chemo but was told by my oncologist (Dr Dalfen at St Mary's) that he had ordered a ki67 test and that it came back with a higher score than anticpted (25) so they (Dr Dalfen and the tumour bord) have requested an oncotype test to be done in the US. I see Dr Dalfen again on the 7th of March, so will not know about treatment until then. I am trying to look at this extra time as a gift and have been trying to go to the Y every day or two. It really helps!!!

    I'll keep you posted.

  • olivieri
    olivieri Member Posts: 47
    edited February 2011

    Hello Montreal ladies,

     I haven't posted in awhile either  and I am happy to know  that everyone is keeping  well and getting on with life .  Welcome to our newbies.  Ladies , everything is very overwhelming at the beginning of your journey , but once you have a treatment plan in place it does get better . This site really helped me,  and Terri especially was a wealth of knowledge during my newbie stage. It really helped me to meet someone in person that was going through the same thing as me, and I would love to pay this forward and help  someone else that  may need this type of support. 

    Linda ,  I live in  Kirkland and  I also joined the Y today , I have been having a really hard time getting in some exercise so hopefully this will help motivate me.   I work though , so I plan to go downtown during lunch , and maybe one evening or a Saturday morning  in Pointe Claire.  Maybe we could coincide one of our exercise days in Pointe Claire and meet. 

    Montreal Ladies, we should all plan another coffee date soon .

    Take care and keep in touch!

    Sylvia

  • Leslie1010
    Leslie1010 Member Posts: 5
    edited February 2011

    Hi, I'm new here. I was diagnosed on January 4th, surgery on January 17 (Dr. Otaki from the Ville Marie Breast Center) and have just seen Dr. Dalfen from St. Mary's hospital on Friday. I am so stressed out as Dr. Dalfen is sending me for an MRI to check up on suspicious spots on my liver. He said treatment is more quality of life treatment rather than cure if the spots are cancerous. I am SOOOOO stressed out. I just turned forty, I have ten kids (all from the same father) and had just separated three months before the diagnosis. I was just starting to think that I was going to get my life back and then this diagnosis. My ex is incapable of taking care of the children (child protection is involved). I NEED to live. I am going to check back on the previous pages to see what you all think of Dr. Dalfen. He has prescribed TAC chemo, 6 rounds, every three weeks. Then radiotherapy and hormones. I will be doing research on the forums to read about everyone else's story. So far I have just been encouraged by all the stories and the FIGHT that you all have in you. I am really trying to hold on to my sanity right now, it just seems like there is too much going on. 

  • my560sel
    my560sel Member Posts: 1,065
    edited February 2011

    Linda-Renee,

    The oncotype test is a very valuable tool in determining if chemo would be beneficial to you or not. Especially since your tumor was 3.5 cm with no node involvement. I had the oncotype test done because although I didn't have any node involvement, my tumor size was right on the borderline (.9cm). The waiting is the hardest part, really. Once you know what treatment you're going to get and for how long then things will sort themselves out. It really is a relief to start treatment and to know that you're doing everything you can to fight his daarn disease. Exercise is very important so joining the Y is a great start! I wish I had a Y near here to go to. I really should start doing something because I gained 10 lbs since being diagnosed. I was on Tamoxifen for 2.5 months and went straight into menopause. Hot flashes, moodiness and weight gain, yup, just what I needed.......lol

    Hey Sylvia, nice to see you back on here !!!!! 

    Leslie, everything is always so overwhelming at the beginning. I feel for you and your situation, I know it can't be easy for you right now. You have ten children...WOW, if that's not inspration to stay positive I don't know what is! Try and take things one day at a time. Your Dr is sending you for an MRI - how did he see the spots on your liver ?

    We are all here for you, lean on us for support. This site was a Godsend for me at the beginning when I was so confused, scared and worried sick. The ladies on here and the other threads are amazing, really. We are all on the same journey so we know how you feel. We can help you get to peaceful place in your mind where everything is not so scary and overwhelming. YOU ARE STRONG AND YOU CAN DO THIS. Think positive thoughts and trust your instincts. Read as much as you can and inform yourself on the things you can do to boost your immune system and what to eat and what not to eat to stay healthy. There's so much information out there........

    Regards to all,

    Terri

    PS: We should set up a coffee date soon....meet the new ladies!

  • Linda-Renee
    Linda-Renee Member Posts: 31
    edited February 2011

    Hi Sylvia,

    That sounds great! I am not working at the moment, so am flexible as to when to meet - let me know when you next are going to the Pte Claire Y. Take care and hang in there.

     Linda

  • Linda-Renee
    Linda-Renee Member Posts: 31
    edited February 2011

    Thanks Terri! I feel as if I am in good hands. When my family doctor found out that I was being followed by Dr Dalfen at St Mary's his reaction was that I was in good hands and that I should do whatever he said. He is normally sceptical, so I found his reaction very reassuring. I also gained weight after menopause but managed to lose it all later. It now seems to be creeping back, largely do to the fact that I am not as active now that I am not working. When I was going through menopause, the worst thing was the mood changes, which I didn't seem to be able to predict or control. I really thought I was losing my mind. My gynocologist gave me HRT, which I was unable to tolerate so I tried very herb etc I could find and the only thing I found that helped was soya milk, which I still drink (very small amount) daily. I now strongly suspect that the mood issues are linked to the sleep disruptions. At around the same time, I was diagnosed with severe sleep apnea (I stopped breathing about 57 times an hour, which didn't leave a whole lot of time for sleep... No wonder I was bitchy!). I think that if I had to go through this again, I would try to address the sleep issue first and foremest. Good luck. My heart goes out to you. When I learned that I would have to take Tamoxifen, my greatest fear was that I would go through menopause again, but apparently you only go through it once.

    Leslie, I also had Dr Otaky and am now seeing Dr Dalfen. They are both really good and both have a reputation of being extremely thorough. Good luck to you - maybe I'll see you one day on the 5th floor at St Mary's...

    Linda

    Love and positive energy to all!!!

  • johnrazor
    johnrazor Member Posts: 6
    edited March 2011

    I understand how u feel about not making mistakes.I felt the same way.The surgeon I wanted at the jewish was on vacation..after checking around ,i was directed to DR. siyui who i thing is fabolous.

    vaginal yeast infection cure

  • Leslie1010
    Leslie1010 Member Posts: 5
    edited March 2011

    Thanks Linda and Terri! This site is amazing. I am still trying to learn how to navigate my way around it through the chemo fog. And it's hard to type as I have a huge migraine (from the chemo?) and not much feeling in my fingertips after only one treatment. I'll be checking that out it if is normal on all these threads. See you around!

    Leslie 

  • Linda-Renee
    Linda-Renee Member Posts: 31
    edited March 2011

    Hi to all,

    Got the oncotype score - 17, so no chemo! Have started tamoxifen and will begin radiation soon. 

    Cheers,

    Linda

  • olivieri
    olivieri Member Posts: 47
    edited March 2011

    Hello Linda-Renee,  

    Happy to hear about your oncotype score . You are on the road to recovery ...   Hang in there and before you know it you will be all done with your treatment .

     I  usually go to the pointe claire Y  on Thursday evening.  I did a zumba class last Thursday with my daughter .. and had great difficulty keeping up with the class.... Hopefully i will make it tomorrow evening... assuming the weather cooperates ...

    Hope to see you there one day .

    Take care !

      

  • my560sel
    my560sel Member Posts: 1,065
    edited March 2011

    Linda-Renee - Great news about your oncotype score! Your rads will be finished before you know it. If you have any questions about Tamoxifen, there's a Tamoxifen thread on this site and it's quite informative.

    Sylvia: Zoomba eh! That sounds exhausting!  Good for you ongetting out there and doing something - now if I could just get motivated............Frown

    Terri

  • Ma_rta
    Ma_rta Member Posts: 20
    edited March 2011

    hai everybody ^-^

    i get my result from result of my lumpectomy, my doctor suggest me to have masectomy, i'll have it by next week, i'll write my result (in french) if anybody want to give opinion or probably have similiar result as mine please don't hesitate to share with me

    type histologique : Carcinome papillaire infiltrant avec differenciation mucineuse, multifocal

    dimension tumorales : 1,1cm de diametre maximal

    grade histopronotisque : 2/3 (grade combine de Nottigham)

    distance entree la tumeur infiltrante et la marge la plus proche (sur le specimen de mastectomie) : 1mm

    invasion lymphatique/vasculaire : non identiffe

    type de CCIS : papillaire et papillaire solid, sans necrose, avec foyers de carcinome micro-invasif, grade nucleire 2/3 (contigent intracanalaire massiff, diffus) marge la plus proche : 0mm

    Classificaation tnm : pT1c NX MX

    please anybody can explain to me ?

    tomorrow, i'll go to meet doctor to consult at Ville marie clinic

    marta

  • my560sel
    my560sel Member Posts: 1,065
    edited April 2011

    Hi Ladies,

    We're planning a little coffee/tea  get-together for April 14th at 1pm. We usually meet at Starbuck's on Monkland Ave since it is central to where everyone lives/works. Sylvia and I will be there for sure and you're all welcome to join us for a chit-chat. Please let us know if you plan on coming.......

    Terri

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2011

    Greetings ladies,

    New on the block....I really wish I had found you at the time this journey began in the fall of 09 !!

    I underwent lumpectomy with revision of margins for second tumor, same breast.  Had six TAC treatments at St-Mary's then begun on Tamox and 16 +4 rad treatments at the Jewish.  OUF !!!!  Finished radio last July and have since been recup.  Am doing well although I wish my hair would grow a whole lot faster,(still wearing the pesty wig Kiss)  and am finally using the re-bounder (have had it for 10 years !) could not get into it, tried on reggae, latino, rock, but electro is working, can't stop !

    I would highly recommend to anyone new on our common path to ask questions and get answers.  I am made to feel that everyone is soooo busy, but I urge you gurls to take your turn at your doctors' offices and to do as much research as you can before you see them.

    Leslie, my heart goes out to you.  I hear bad luck always rings twice, I lost my job six months prior to diagnosis and the new owner of the building where I live is trying to evict us so that she can jack up the rents.  YOU ARE NOT ALONE.  You can ask me anything you want.  I firmly believe that your children will give you all the strength you need to get through this :)

    Fight on !

  • Ma_rta
    Ma_rta Member Posts: 20
    edited April 2011

    hai everybody,

    hopefully i can meet all of u on 15th april, my MX will be next week thursday

    marta

  • my560sel
    my560sel Member Posts: 1,065
    edited April 2011

    Sorry ladies but I have to change the meeting date at Starbuck's  to Thursday April 14th.....hope that's OK.

    Terri

  • YoYo44
    YoYo44 Member Posts: 203
    edited April 2011

    Hi Ladies,

    Nice to see things are going well.  So far so good for me but have not been on the boards since last November and have been busy with work.

     Just waiting for some follow up chest x-ray and bone scan results.  Had the exchg surgery last December (so/so-darn rads!).  But improving by the day.

    I will try to join in for coffee but not sure I can make it.  Thanks for organising again Terri.  Will try and call in the next little while.

    Take care everyone!

  • Linda-Renee
    Linda-Renee Member Posts: 31
    edited April 2011

    Hi everybody,

     I will be starting radiation on Tuesday April 12th and my time slot will be 7:45, so I will be able to come for coffee on Thursday. I look forward to meeting you all!

    Linda

  • Ma_rta
    Ma_rta Member Posts: 20
    edited April 2011

    hai everybody,

    last week i did my MX right breast, hopefully i can join all of u on 14th april

    marta

  • YoYo44
    YoYo44 Member Posts: 203
    edited April 2011

    Hi Ladies,

     Sorry, I won't make it after all.  Changes to my plans for work that day.

     Have a good coffee and I will catch you next time!

    take care

  • my560sel
    my560sel Member Posts: 1,065
    edited April 2011

    Yo, Sorry you won't be able to make it. I owe you a phone call.... hope everything is OK with you. I'll call you this week, promise!

    Linda, Sylvia and anyone else who can make it tomorrow for coffee- see you there! Starbuck's on the corner of Monkland and Old Orchard

    Terri

  • Linda-Renee
    Linda-Renee Member Posts: 31
    edited April 2011

    Hi,

    I am really sorry to do this but I have a really nasty cold and cough, which I was hoping would be gone by now but which seems to be getting worse. It takes all my will power to stay perfectly still and not cough during radiation! I think it would be best not to come for coffee this time. I am so sorry - I was really looking forward to this...

    Linda

  • my560sel
    my560sel Member Posts: 1,065
    edited April 2011

    Linda,

    Sorry you can't make it!

     If there's only Sylvia and I going then maybe we'll postpone to another day when there will be more of us. Does anyone else plan on coming tomorrow?

    Terri

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