Connecticut Girls

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  • karebear76
    karebear76 Member Posts: 288
    edited February 2011

    Emme That is great!!! 

    I will be looking at surgery in April/May and we have decided that after the 5 yrs of meds we will be taking out the ovaries, Unless Dr. White talks to the board and they think that it would be better to take them before then. I am fine with either.

    3 more taxol treatments and this phase will be done!!! 

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  • flash
    flash Member Posts: 1,685
    edited February 2011

    great to hear it taxol is almost done.

    wohooooo.

    since spring is coming, how about planning to meet where we first met along the river?  maybe a late march weekend?

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  • sweetie2040
    sweetie2040 Member Posts: 817
    edited February 2011

    Flash-what is the town and location?

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  • Claire82
    Claire82 Member Posts: 684
    edited February 2011

    The Blue Oar in Haddam?

    I'd wait til May - March can be cold by the river and no inside seating. I'm not sure they open before May.

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  • flash
    flash Member Posts: 1,685
    edited February 2011

    yah, i was referring to the blue oar.  everything I know of is in my neck of the woods and no one seems to want to come west or south. at least haddam was sort of central.  anyone have any ideas??????????

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  • Claire82
    Claire82 Member Posts: 684
    edited February 2011

    there is a great tex/mex place called coyote blue in middletown

    i love it!

    http://www.coyoteblue.com/main.shtml

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  • mimi791
    mimi791 Member Posts: 92
    edited February 2011

    Hi Girls:

    Good to hear we are all getting through this lovely winter :)  I agree that Coyote Blue is a fun place, small but fun with fabulous margaritas and very easy to get to off route 9.  I would certainly be in for a night out.

     Karebear- hang in there...it's almost over!!!

     Mimi

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  • Claire82
    Claire82 Member Posts: 684
    edited February 2011

    someone pick a day and time

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  • lynniea
    lynniea Member Posts: 611
    edited March 2011

    Hi ladies I am from Norwich CT newly diagnosed in Feb.  I get my port in on Wednesday the 9th and start Chemo on the 16th.  I will bet getting AC----->T. for 8 weeks every 2 weeks.  I am scared but excited  at the same time to get the show on the road.  I will come to this thread again to support all from  Connecticut.  Thanks for the invite.

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  • karebear76
    karebear76 Member Posts: 288
    edited March 2011

    Lynniea: Welcome. Sounds like you have the same treatment plan I am on. I just had my 2nd taxol treatment. I found that if you look at the treatments in 2 phases it really helps. Just focus on the A/C part right now. So you are 1/4 of the way thru! Keep your chin up and visit and vent as needed. The ladies here are great!!

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  • lynniea
    lynniea Member Posts: 611
    edited March 2011

    Thanks we all need the support we can get.  I have not been sleeping well the past couple of days.  I will have my first AC on March 16Th.  I would love to get togeather with some ladies from Ct. 

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  • sweetie2040
    sweetie2040 Member Posts: 817
    edited March 2011

    Lynniea-hello and welcome to our CT group! Sorry to have had to meet you this way, but we are all here to support you in any way we can.

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  • Jojo66
    Jojo66 Member Posts: 24
    edited March 2011

    Hi Everyone,



    Just finished treatment on Dec 2nd, had exchange Jan 24th and hysterectomy yesterday, and started Arimidex today. I'm exhausted.

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  • lynniea
    lynniea Member Posts: 611
    edited March 2011

    Thank you all for the CT group.  Sometimes it good to see people face to face when you are going through this.  I would love to get together when you all do.  Please keep me in touch when you all get together I would love to meet you.

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  • sweetie2040
    sweetie2040 Member Posts: 817
    edited March 2011

    JoJo-wow you've been through a lot of activity in a short period of time. Hope all is well and try to get as much rest as you can. Your body has been through a lot and you need time to really recooperate. Wishing you the best.

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  • lynniea
    lynniea Member Posts: 611
    edited March 2011

    Went to a chemo teach today very emotional day.  Lot to take in an hour her went over the first phase which is the worst she said.  They have a support for wigs and will see her on the 16th.  What did you all wear when you lost your hair.  I have my port put in tomorrow at 7am.

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  • Claire82
    Claire82 Member Posts: 684
    edited March 2011

    I wore a wig, scarves, hats. PITA all of them :)

    It's nice you have someone to go to help you understand chemo.

    Fortunately I didnt need a port. My nurse found four veins that would last the process.

    GL tomorow!

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  • karebear76
    karebear76 Member Posts: 288
    edited March 2011

    I wear hats most of the time. I have a wig but it itches so I stick to the hats!! I do have a couple of scarves too that I like.

    I have a port also. It is so much easier. My veins stink. GL tomorrow!! 

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  • lynniea
    lynniea Member Posts: 611
    edited March 2011

    Thank you all.  I am trusting God he will see me through all of this.  Write later

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  • Emme
    Emme Member Posts: 205
    edited March 2011

    Welcome Lynneia and JoJo! Glad you found us...Sorry you're one of us.

    Things change so quickly with me..since the last time I posted My herceptin tx have been suspended until further notice.  My ejection fraction is down from 68% to 48% in six months.  The Gyn refered me to a cardiologist to be cleared for the hysterectomy surgery.  I passed the stress test but she put me on a beta blocker. Time will heal all wounds, right? 

    The robotic surgery is out, I have too many adhesions, so they are going through to abdominal wall.  A little longer recovery..but I will get there :)

    Friday I am headed to NC to visit my daughter.  I am so excited! I will be good to be in a little warmer weather for a few days. 

    I'd love to get together any plans yet? flash? claire?

    Sending love and prayers!

    Emme

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  • lynniea
    lynniea Member Posts: 611
    edited March 2011

    Hi ladies Port surgury today.  Keep me in your prayers.  thanks

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  • sweetie2040
    sweetie2040 Member Posts: 817
    edited March 2011

    Emme-oh honey you have so much going on. Yes it will get better. Hang in there. I know your a very strong woman. It's all going to work out. How great you get to go see your daughter! I hope you have a wonderful visit with her. How old is she? Does she like living in NY?

    Lynniea-thoughts and prayers are send your way along with hugs!!

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  • mimi791
    mimi791 Member Posts: 92
    edited March 2011

    Hi Lynniea and JoJo:

     Welcome to the best club you never wanted to belong too.  I had 4 rounds of AC and 12 rounds of Taxol + Herceptin followed by 28 radiation treatments.  I have a port and even though my last Herceptin treatment was in October of 2010, I still have the port...just in case....  I have had expanders, and exchange, a staph infection.... and one un-reconstructed side....so if anyone has any questions, PM me and I will be more than happy to lend an ear. Purchase Senekot and Immodium in equal amounts and don't be afraid to use them :)  The one thing I learned was that it wasn't nearly as bad as I imagined it would be.

     xoxo,

    Mimi

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  • lynniea
    lynniea Member Posts: 611
    edited March 2011

    Thanks ladies I made it through the port and senatail node biopsy.  I was there for 12 hours the dr had other surgery and I had to go down to nuke medicine.  I came out with flying colors.  Praise God.

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  • lynniea
    lynniea Member Posts: 611
    edited March 2011

    How about the UCONN guys. 

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  • lynniea
    lynniea Member Posts: 611
    edited March 2011

    I finished my first chemo.  Got headache from nausea medicine and nausea  It feels good to have started.  One down Yea

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  • sweetie2040
    sweetie2040 Member Posts: 817
    edited March 2011

    Lynniea-I hope you feel better and get some rest. You have a very positive attitude, what a great inspiration you are are!

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  • lynniea
    lynniea Member Posts: 611
    edited March 2011

    Thanks Sweetie I owe that all to God.  Go to DR. for shot today.  Still a little nausea but took another pill seems a little better.  My cousin signed us up for the Breast walk in New Britain my 2 cousins might come and run in it.  It is May 7Th

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  • sweetie2040
    sweetie2040 Member Posts: 817
    edited March 2011

    Lynniea-yes I agree. God is good and faithful! Where in New Britain is the race? Is there a website? My husband does a lot of local races and marathons and sometimes I go and walk them. Maybe I can go and If I do could meet you ladies there.

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  • lynniea
    lynniea Member Posts: 611
    edited March 2011

    It is at walnut hill park

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