Are BFFs or friends letting you down when you need them most?
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I agree I am glad this thread got started too. I havent had treatment yet - that is TBD...so far my closest friends have been very supportive. One sister in law who lives minutes from me called me when I was first DX and nothing since. I dont expect people to call all the time and in fact dont want them too. I am sure all of us are as sick of talking about our condition as people are of hearing it. I sent this same sister in law a giftcard for her 50th birthday Feb 11. Not received even a thankyou card...gotta wonder. I do understand people have their lives and our Dx should not be the focus of their lives but a phone call every now and then would be nice. I agree too -no cards. My office workers have not been that supportive with the exception of one and that is because her mom was dx too. I havent worked on the job that long but still you would think the manager, who is new, would at least send a card or flowers. My job is kind of a commuter kind of job. It isnt 8-5 and it is nights and people come and go a lot with different shifts. Still I know what I would do if it was one of them. Not a major deal - just saying. At least we all have each other.
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I said this before on another forum but it bears repeating: Having a cancer diagnosis is like going through grief. People don't know what to say or what to do when someone close to you dies, so they often just ignore it and leave you alone. They are afraid to upset you, because if they do they don't know how to handle it. (I don't think we teach our children how to handle these situations, but we should! I know my parents did not teach me.)
After my father passed away, I felt like a leper when I returned to work. No one said anything to me, not an I'm sorry, not a How are you doing? (I was a manager, so maybe that played into it, I don't know.) It wasn't until the end of my first day back to work that the guy I got along with the least came in to my office and gave me a hug, and of course I broke down. But that was the end of it. Business as usual from that day forward, with everyone. "Buck up little soldier and carry on" is what I told myself. And that is what I'm telling myself again. (At least I have a forum here to complain about it! Thank you!) ;-)
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Great thread! Here's my story of my so called BFF.
The day I received the news that I had BC, I called. Like BFF would. She was in Newfoundland finishing off her Christmas vacation and promised me that she would be there for me, from the beginning to the end. My husband had just started a new job, (one day before I was diagnosed) so he couldn't come to all of the appointments with me. She told me she would step up and come with me. I told her the times of all my appointments, chemo dates, etc., and all she said was "I have to get back to you and check my calendar and see if I can drive you. She was presently on LTD for a bad back, so it wasn't her work that she had to worry about. Not once did she call me back and tell me if she could take me or not. I was very hurt by this, thinking that this was her way of dealing. But this was not the case.
I was told from a mutal friend that she thought that I was over-reacting when I called her and cried. Losing a breast is no big deal - she just has to get over it. She actually said to me that there is no cure for her bad back like there was a cure for breast cancer. You go through breast cancer once and then that is it! I couldn't believe that this woman that was sitting in front of me was saying this to my face. I had to bite my tongue and ask her to leave. I haven't called her since. I think she was and is a very insensitive person and no BFF would ever say that.
So, I have in the past few months, decided to get rid of all of the negative people in my life, and to tell you the truth, things have been a lot easier.
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KIM I am so sorry she if I may say so.. had no right to say that.. it IS a big deal a very big deal.. people can be so insensitive. She obviously has no idea what cancer is .. my Onc even said you can be in remission for life butonce a cancer pt always... you have the right idea clear way all the negatives not only do we need to fill out bodies with positive good things too but also our hearts!!!
Hugs to you
Maria
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I totally understand what everyone is saying. I was majorly surprised that only one of my friends came to see me while I've been recovering from the lumpectomy (my BFF, who also drove 30 miles to pick me up and then the 20 miles to my doctor appointment so her BFF status is completely safe lol). The only flowers I received were from my two sisters (none from work). I had one other friend stay in touch but otherwise...crickets!
The older sister (by 5 years) came and stayed with me (read: cooked for me...I'm sorry she's gone lol) while I recovered and awaited the pathology results. Poor sis saw more of my boobs in 7 days than she ever saw when I was a kid!
I had one other friend offer to bring me dinner (had my sister's cooking so we passed lol) and maybe two emails checking on my progress but really...no one called let alone visited, which I found fascinating!
These are the times when you find who your real friends are, without a doubt...and God bless my sister for being there 100% for me!!
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You know, from what I gather on these posts, and from what I feel about Pink October, I wonder if people don't consider breast cancer life-threatening anymore. Perhaps that explains some of the cavalier behavior. And then there are just jerks. I feel like it's too bad I wasted so much time on a couple of them.
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LtotheK: i think you may be on to something there! Many people look at breast cancer as a curable disease, and yes, all that pink may lead people to think that. While there HAVE been great strides in beating down this disease, the fact remains that no one is ever "cured" and we must try and out-run BC's shadow the rest of our days. That is the part that no one can understand unless they have been in our shoes or touched by cancer in some way. Hey, this thread is already helping me to understand some of the people around me! ;-)
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OK. I'm such an introvert I only even HAD one friend at the time I was diagnosed (well two if you count her husband). I once would have classified her as a "BFF" (we had been friends for 20 years) but not anymore. She was "sorta with me" through the waiting to be diagnosed, being diagnosed and staged, through chemo and AIs. I say "sorta" because while she offered to do things like come to doctor appointments and chemo with me, with the exception of one time, she couldn't get off work or leave the kids or whatever, but, she helped me buy my wigs, gave me the pre-chemo haircut and she DID call and email regularly to ask how I felt and how my treatment was going.
Well, last summer I made a "bucket list" decision (I'm Stage IV after all) to move to another state to live closer to my boyfriend, who I'd been seeing long distance for over 7 years, and, who, incidentally, she and her husband fixed me up with. My Pack Rat (boyfriend LOL) and I spent a couple months doing "pre-moving" -- I'd pack boxes, brought some with me to his house when I visited him, and on alternate Friday nights he'd come down with his pickup truck and take all the boxes I'd continued packing, until we got 80% of my stuff up to his house (which was in the right state LOL). "BFF" and her husband were supposed to help us on Moving Day, to get the rest of my stuff out of the apartment and into the Budget moving truck my Pack Rat rented for big stuff like the bed, dresser, computer desk and remaining boxes -- SHE OFFERED to help as soon as I told her I was going to move, which was 3 months prior to the actual date -- and I gladly accepted. BUT...
A week before Moving Day, she backed out, angry with me for what to ME was a bizarre reason that I couldn't understand at all (to me, it was like she suddenly got this bug up her butt). I'll mention that this was the "first fight" we ever had. This left us F---ed in a really big bad mess with the move but OK (sigh) my Pack Rat and I actually somehow barely made it work without them and "only" had to begin the interstate drive (him driving the Budget truck, me following in my car) 3 and a half hours later than we would have if "BFF" and her husband hadn't backed out of helping.
A week and a half to two weeks after the move, she sent me an email telling me about her new job situation (cool, but also this was part of the reason her "reason" for backing out of helping with the move made no sense), asking how I felt, if I liked my new doctors, AND... "how did the move go?" (Well DUH how the hell do you THINK it went when we had two-man jobs but only one man and one disabled woman?!)... OK, I probably should have said something but didn't; I decided to ignore it and only comment on her job, ask how her hubby was, and let her know I hadn't yet seen the new doctors. When she emailed back, she made this snippy comment and I "exploded" about both "how did the move go" from the last email and the snippy comment in this one. I told her "when you get the bug out of your butt, let me know."
I didn't hear from her again OK, fine. It's a good thing I'm not that much of a socializer, because now I don't have any friends at all except for my Pack Rat.
But there's still an unresolved part of this thing -- my Pack Rat grew up being best friends with her husband, and they also live a stone's throw from my Pack Rat's parents' house, where we go for Christmas. We used to stop at their house and then go to the parents, and my Pack Rat actually got presents for them, but we didn't hear from either of them. My Pack Rat has been meaning to call the guy for months (their Christmas gifts are still in my car!) but keeps forgetting (but he has chemo brain without chemo anyway!). Well, we'll see, I guess.
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I think LtotheK and Rennasus have a strong point there....Pinktober (their 90% CURE), and the media, may have contributed to why some of our friends and family think we are "overreacting" to a breast cancer diagnosis. I even saw last week on a Canadian news channel how Stage 4 Breast Cancer is now basically in the same category as Diabetes...
I was shocked....
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I get the picture but as English isn't my mothertongue - could someone please explain the abbreviation BFF to me?
Sarah
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Sarah BFF is a slang term for Best Friends. Actually its Best Friends Forever. Teen girls used the slang and its now part of everyone's life. I dont like saying BFF but its easier than typing out best friend all of the time.
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I think you're right about "Pink October". When I told my Dad that I had BC, he said to me that "it's easy to fix today". I believe that many people think that BC is only about to be able to keep the breasts or not.
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I agree too that breast cancer is looked upon that way too.. so many people although I am sure well meaning have said oh youll be fine its curable now... ummm no my onc said they never say cured they say remission....
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I found one thing that worked for me...I asked my friends to
do one short-time related thing they could help me with, one on
one...many just didn't know how to help and were afraid it might
be a long term commitment of helping. so for instance, I would have
one friend just take me to chemo and drop me off and go on and
another just pick me up and drop me at home. We had a short time
to visit but it was time contrained. They were a big help and they
felt helpful plus we had a chance to talk..
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I think another factor is the desire for things to get back to "normal." I was surprised that as soon as the "clear margin/clean nodes" answer came through everyone (family and otherwise) felt like life would "get back to normal" and we were done. Uhhh..I'm nowhere near done. As much as I would love to be able to "get back to normal"...I'm just starting and there is no "normal" to get back to! I'm at the bottom of a big hill I've yet to climb and I will need their support all the way through!
Don't get me wrong: I feel very blessed to have caught it early...and I truly feel for those who will go through more than I will. But ALL of our lives are now changed, permanently. We are all in a lifelong battle no matter where we start on the path. We all have to go through YEARS of difficult treatments with long term side effects! We all have to live in some level of stress and fear..and we are are likely going to age less gracefully as a result. Nope...there is no "normal" anymore for me ..or for those who love me.
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Lena: Just want to let you know how sorry I am that your friend & her hubby bailed on you when you needed 'um most! This whole cancer thing has such a "charge" to it for everyone involved. Here's hoping you and Pack Rat find some loving friends in your new city. Check out a local support group for BC patients/survivors... that is on my to-do list.
SoCalLisa: Thanks for sharing how you made people's offers to help work for you! It's a great idea. It requires a little more energy on our part to coordinate, but you make use of your 'friend' resources while also getting in some one-on-one time. Fabulous idea!
Everyone: I started this thread so we would all have a safe, supportive place to rant about our disappointment with our friend(s). (And I continue my rant below!) But I have been pleasantly surprised at the insight that has come popping through as we let out our frustrations. It is helping me understand why so many people react so oddly to our diagnosis and how I can try to turn the tables around a bit in my favor.
My rant of the day: I just wrote out a list of people I need to send thank you cards to — folks who sent me food or flowers, or took me out to lunch or dinner (once I was able to get out of the house). To my surprise, my list was longer than I realized! ;-) Then I noticed a few notable exceptions: two close friends and my two step-kids. (I think I'll save the "so how DO you teach kids to be appropriately compassionate?" rant for a separate thread!)
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I feel this way too. It's like life just goes on normal for them and here you sit fghting for your life and no one even calls. My friends don't call as often - I guess once the shock was over with they just got back to their life. It's hard for me to sit home alone every day (I am on short term disability through chemo) and have little contact with people that I normally talk with a lot. I just try to stay busy. I cook, bake and go to the gym. I am disappointed in some of my friends and family. My husband's brother and wife have not even seen me since this started three months ago...haven't even called me or sent a card. It's just odd in my opinion especially since they live 30 minutes from us. I have one friend that has seen me twice in 3 months since this started. She hasn't called me in a month. I think people just don't know what they should say or do. The friend that is the best is the honest, sarcastic one. She never makes me feel like she feels sorry for me. She listens and supports and finds a way to make me laugh. When I get really cranky I say "cancer bitch" is out. Sometimes she just calls and asks if "cancer bitch" can make a phone call to her boss to put him straight. I always say "cancer bitch is available to you any time...give me his number". (sorry for the B word....that's what we call it...didn't mean to offend anyone). I have realized that most of these people don't know what to say, what to do and if/when they should call. I think they ignore the situation out of fear of not knowing what to do. I don't think they don't care and I don't think they realize they are letting us down. I guess that is all they are capable of. Maybe we should write a thread on what people should and shouldn't do when a loved one has BC. Too bad most people won't read it...... Just know you are not alone in this.
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My ex-husband is my former BFF's lawyer....so, on Sunday when we were doing a child exchange, my ex just happened to be on the phone with her, so he gave the phone to me to talk. It was the first time since November that I'd heard from her. She told me she lost her phone and all her contacts and you know what....that is what really upset me. It is beyond ridiculous - we've known each other 35 yrs. You could have found the number....even asked my ex.
She called my cell yesterday - I haven't responded.
She has her excuses....had some serious issues lately - doesn't deal with stress well at all. Obviously she isn't able to deal with my diagnosis. I need to call her and let her off the hook for being here for me, and tell her I'm fine.
But I don't want to.
I don't even know why I'm posting this....I am conflicted and change my mind about it a lot. But I'm glad there are people who understand here.
I have a best friend that can't deal with the fact that I might die soon and I do understand. I am with my situation better than she is dealing with hers, and that makes her feel badly. I understand that too.
I just don't feel like being the bigger individual, right now.
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MDG: My thoughts exactly. It's good you have one friend you can rant to! And it's unfortunate your sister-in-law doesn't know what to say or do. I too am home alone all day, and it's been good that I can heal without worrying about work (I left my management position to take care of my mother, who no longer drives and had health issues. I couldn't juggle working my high-stress job and caring for her, so I gave up my career. Turned out to be a wonderful thing, I actually hated that job! But I digress.). Maybe if I made more of an effort to call people first it might put them more at ease? But why should I do that in my time of need?
PaminWV: I too don't feel like being the bigger individual right now, dammit! What do I do, call friends and say "hey, don't be afraid to call me, I'm fine!" Because I'm not fine! So then do I call people and say "hey, you haven't been in touch probably because all this makes you uncomfortable but I'm calling because I need to tell you how much cancer sucks." Yeah that would go over well!
It's a Catch 22. That's why these threads are so important.
I guess the best we can do is to be fully present for our friends and family when they go through difficult times — because we *know* what it's like! And maybe that is the cosmic point of going through all this cancer crap ... so that we pay it forward without looking back.
I have not *yet* checked out my local hospital's BC support group, but I will start a thread here about that because I am interested to see what you all think of those groups and if they help you more or less than these threads do.
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I really do appreciate your putting up this thread, Rennasus - I do feel better just from typing that out. I am not sure what I'll do yet but I sure appreciate a place to vent.
I feel like I could just be ok with it all if I tell her I'm disappointed in her, but that I understand because I do. But I am just SO MAD that she told me she lost her phone (although I don't doubt the truth of it) - mad that she used that as an excuse not to call. Seriously, we know 100 people in common, as we've known each other 35 yrs or so. If she had just said "I'm sorry I haven't been there for you." it would all have been ok. Believe me, like every one of you, I now fully understand how being emotionally shaken can really send you off the deep end. Sorry to dwell, but I am fatigued right now and it makes me feel less philosophical and more p'd off about it all. -
Plus, I'm sorry about the address, and the italics in my former posts. I am beginning to believe that BC.org, Safari and a Macbook don't make for a great posting combo on this site. Again, sorry, this time for being OT!
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I am so glad I found this thread. I have been feeling this way for over a year now. I was diagnosed with Stage IV on January 7th 2010. I was 32 years old when I was diagnosed. I called my friends to tell them my diagnosis and they said they would visit and they never have. The only time I talk to them is when I call them. I have learned that you have your friends before cancer and then you have your friends after cancer. My cousin that I hadn't talk to for years calls me every week and sends me cards all of the time. It is really surprising who ends up being there for you. I feel truly blessed for the friends that I do have in my life. I am also blessed by the ones that cancer has brought into my life. Like the wonderful ladies that I have meet in support groups that I go to that we do something once every two weeks together. I have a family and my health to worry about. I don't need to waste my time worry about the ones that aren't there for me anymore. It has taken me a year to get here but I am happy that it doesn't bother me anymore.
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Totally in with all this. I lost friends during my diagnosis and treatments. But I also gained friends. It was such a surprise who went to bat for me and who just freaked out and ran away.
It was a blessing really! I had my moments of sorrow for their attitudes and then just swept them and their toxicity right out of my life! Then, all those who backed me up, well, I owe those people and I never forget them and I make sure to do special things for them.
I also make it my business to support others with serious illness and not to run from them but to run towards them and do what I can. All of it was eye opening and has brought me great experiences with REAL friends.
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You ladies are so right, and I too am so grateful for the folks who unexpectedly stood beside me and have stayed there.
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Sadly, ladies, my friends have all been wonderful - it's my sister who is being an idiot. I sent out over 30 thank you notes after my BMX! I didn't realize just how many people wanted to help and I've had several say "please, call me, if you need anything". My sister, however, is going through IVF for the 3rd time after 3 miscarriages. She acts like I got BC to take my parents' attention away from her! She is my only sib and 15 months younger than I.
She was so self-centered and narcisstic that she called the day before my surgery (on Monday) and wanted me to fax her the BRCA results (negative) which she HAD TO HAVE before Thursday in order for her insurance to pay for her to get it. Or, she was going to have my DH get the docs to send it to her. AS if he and I had nothing else to do or think about but fax her stuff. I fired off a nasty email to her so now she is being a pain in the #@$. She won't speak to me without her hubby on the phone, won't have a normal conversation with me, just says repeatedly "we're so sorry you have to go through this". DUH. I don't know what to do about it. She will want me to apologize and say that of course I realize she was just upset about my DX and that is why she did that, but I'm not in that place yet. She was DX with a melanoma about 6 years ago, so this is something that she has been through to some extent. Surgery was the cure for her, though. It is really bothering me more and more, but I don't feel like I should have to be the "bigger person", as someone else said. If she were "only" a friend, I would have dumped her a long time ago, and that makes me sad.
She offered to come down but when I threw out a weekend she said she'd have to see, it depended on where they were in the IVF cycle. And, she's probably pissed because they had their third anniversary this week and I forgot. I talked to my parents that day and they told me, so I was able to call them, and boy that was a bunch of laughs, NOT. She had sent us a gift card to wine.com for ours.
She is also completely insensitive to the fact that due to cervical cancer and a radical hysterectomy I can't have kids and she goes ON and ON about getting pregnant and how many of her friends are on IVF and blah, blah, blah. I can empathize with her about it, but it's hard to be really sympathetic when she is such a B**&^ about the IVF to me. She never stops to consider that I can't ever have kids. Not that I want a pity party, just some understanding.
Anyway, it does show you a lot about who people really are. Glad I can vent to you ladies. Tired of talking about it with DH.
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I "only" had DCIS (hence "gold lining" - the early dx helped me escape the worst of many of your stories) but I did have a lumpectomy and mastectomy (separated by 2 months) with the pain and drain, and all of the surgical fun. I have periodically updated my "email" friends, but only one of them (a professional friend with BC in her family) ever asks before I offer info and actually DID anything concrete to help. The woman I consider my best, oldest friend works across the street from my breast clinic, yet hasn't offered to come for any of my appointments as a supporter.
While my (university) students organized a wonderful card / tribute notes and sent flowers (eventually, but you know, herding cats and all) and I got the perfunctory auto-flowers that are burped out by HR, my immediate colleagues didn't send any flowers, cards, offers of help, even email. Two months after I disappeared from the corridors, when it was clear my lumpectomy wasn't just cosmetic surgery and I was now up for a mast, they organized a self-congratulatory "donation in my name" to the cancer society. (Or at least the secretary collected money and informed everyone it had been donated, ahem.) No individual or group card, or notes, even, except one who had BC in her family. They way they communicate "take care of yourself and rest" comes across a lot like "and let us shift your pay onto long term disability so we can spend your salary budget on new furniture".
Minimal help on request from my adult siblings. I can't tell my parents as my father's condition took a turn for the worse when his younger brother developed an aggressive cancer and because of his mental state at this point, he would ruminate and make himself sicker out of all proportion to my clinical condition, and I don't want to burden my mother with having to keep it from him. I went through Xmas hugs with drain "grenades" hidden in the small of my back and had my fragile incisions squeezed open by people I couldn't tell.
My teen daughter and husband would bring me a glass of water, order take out, empty a drain, let me have the whole bed, let me have the whole sofa, or whatever I would ask, but sometimes I want someone to just feel for me, to empathize, to take the time to just be there to understand how betrayed I feel by my own body, or mad at the inefficiency of the hospital, or the egregious technique of the homecare nurse, or whatever has me going at any particular time. What I need is not a favour you can specify and then they can execute. I'm physically well at the moment (10 weeks post uni-mast and pre-prophy mast/recon) and have even run a half marathon, but emotionally I still am feeling that let-down of absence of caring. In fact, although I was proud of myself for finishing the run, it was also a "nobody helped me and I made it" kind of feeling that was tearful and symbolic of this whole journey. Like a lot of you have posted, I'm not a help-seeker, but wouldn't it be nicer if people helped?
(The most caring I feel is here, and not even in what people respond to me. I feel cared about and understood even when I read other people and see "my experience" alongside other people's avatar.)
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Goldlining - your last paragraph really hit home with me ...
I feel so bad for my DH right now ... talk about crappy friends ... those SOB's had no problem taking advantage of him when the world was a happy place. Now, they are no where to be found!
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BIG HUGS to everyone here! Thanks for unloading. It feels good, doesn't it?
Goldlining, what you said is so true: What we need during this journey is not a favor we can specify and then have our friends/family execute — we just need some validation and someone who will listen now and then. We don't ask for much!
thefuzzylemon, I hadn't thought about the affect that our situation has on our better half's social life too. Interesting and true! If I were a betting woman (and well, OK, sometimes I am!) I would bet that if we asked our DH's if they ever feel "lepor-like" they would pause, think about it a minute, then agree. I'll ask my DH tonight.
Here's my metaphor for today: It's like our safety net has a hole in it and it's being ripped apart — not by strangers but by people we know and love. Yowza!
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Thanks Ren. It'll be interesting to see what happens, actually. As I mentioned, I'm more than a little bit introverted and don't really care to go out all that often -- and I'll bet that staying in the house most of the time probably isn't the best way to meet people. LOL!
My Pack Rat has his cousins nearby (I'd describe my present relationship with them as uncertain -- but that's actually way better than it was a few years ago LOL!), and there's his neighbor he sometimes hangs out and does Projects with (they help each other out a lot with car and home improvement stuff) and some guys in town he knows but rather than being friends he sees or goes out with a lot, they're kind of more like acquaintances and they all chit-chat when they see each other at the general store or auto garage or wherever, unless there's something going on with the town politics, then he and his fellow Rabble Rousers pitch in and do stuff. I enjoy hearing about all that through my Pack Rat but I moved to a different town, so I don't belong in his town's politics except to listen to the stories he tells me after the fact. I've met them when at the general store and such, but that's about it. The only people I know thus far (in my town) are the five next door neighbors (three of whom are "kids" in their 20s and one of whom speaks very little English, but I get along OK with the other one, who my Pack Rat actually knew from a previous job) and the landlady. But, I only just got here in October, and the combination of me not being all that outgoing, the fact that I'm usually tired, and winter in the Northeast being what it is, well, as I mentioned, it's a good thing my social needs are as minimal as they are and I'm not used to a lot of social contact anyway. ;-)
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Hang in there girls! I'm hoping someone, somewhere will do something nice for you today that makes you smile, if only to hold open a door or something.
I have a chance to "pay it back". A lady that I ride wtih is having her hip replaced this week, and I'm going to make up a casserole for her this weekend. I am making a bunch of food for my family to freeze, etc. so it will work out great. She sent me Edible Arrangement, great gift, and engineered a visit to my house wtih two other ladies. Her DH doesn't cook, so I think this will be a help. I didn't ask her if she needed anything, I'm just going to do it, as others have said, the non-specific help offers are difficult.
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- 101 Family and Family Planning Matters
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- 26 Furry friends
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- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
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- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
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- 586 Alternative Medicine
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- 775 Diagnosed and Waiting for Test Results
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- 50 Immunotherapy - Before, During, and After
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- 591 Pain
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- 109 Welcome to Breastcancer.org
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