Diagnosed with TpIIa, NO, MO, Grade I, ER/PR+, Her2-

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Antigua
Antigua Member Posts: 63

Radiation for pTIIa, NO, MO, Grade I, ER/PR+, Ner2-

Sisters Let us discuss extensively our treatments. I am s/p lumpectomy with  2 sentinal nodes dissection.. Wil be treated with Radiation and Tamoxifen. Talk to me about your experiences with these treatments.  I am now about to start my RT . 

Diagnosis: 12/4/2010, IDC, 3cm, Stage IIa, Grade 1, 0/2 nodes, ER+/PR+, HER2-

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  • Rachel1966
    Rachel1966 Member Posts: 100
    edited March 2011

    Mine looks like yours... 3cm, stage IIA, grade 1, 0/10 nodes and  ER/PR +, HER2-

    I had bilateral mastectomy followed by 4 TC chemo and now on Tamoxifen for 5 years.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    Sorry to hear about your diagnosis. Make sure your doctor requests the oncotpe dx test. While you are waiting for the results... Check out the 2011 NCCN treatment guidelines for breast cancer. Keep in mind age matters as well as whether or not you are pre or postmenapausal. Treatment protocols will also vary depending on how much risk vs benefit you are comfortable with. Also important in making decisions involves tour overall health.



    Good luck.

  • Antigua
    Antigua Member Posts: 63
    edited March 2011

    Rachel1966 - My doctor did not offer me any chemo, I wonder why.  I will be having radiation to the breast alone, followed by Tamoxifen.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    If you are premenopausal and are scheduled to take tamoxifen you should discuss with your doctor the SOFT trial. That trial is ongoing and trying to determine if ovarian suppression with tamoxifen or an AI is as effective as chemo. Make sure to request the oncotype dx test.

  • Antigua
    Antigua Member Posts: 63
    edited March 2011

    Voraciousreader _ it is good to hear from you, I am 61 and post menapausal with a TAH, I will ask the doctor to do the oncotype text, is NCCN the website address.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    Postmenapausal women are usually prescribed an AI. Fin ou why you doctor is recommending the tamoxifen. If you do a google search for NCCN 2011 guidelines breast cancer... You will be directed to the NCCN website. Register and then read about what they recommend for your type of bc. That should be a starting point of discussion with your doctor.



    Btw... My mom is a retired ob/gyn nurse.... Who practiced at a Brooklyn hospital!

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    What is a TAH?

  • jdeking
    jdeking Member Posts: 408
    edited March 2011

    total abdominal hysterectomy

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    Jdeking... Live and learn. Thanks!

  • Antigua
    Antigua Member Posts: 63
    edited March 2011

    I will discuss the Tamoxifen with my doctor since I have not started to take it as yet, I am waiting until my radiation is completed.

  • Rachel1966
    Rachel1966 Member Posts: 100
    edited March 2011

    antigua - why radiation if no node involvement?  I was told I did not need radiation because I had no nodes.. I'm so confused.

    My oncotype testing was 26 which is according to my oncologist, right smack in the middle of "we don't know if chemo is beneficial or not", your decision. Because I'm 44 and have a 2 year old, I decided to give me all the best possible chances I could.

    But now I"m confused as to why radiation was a no for me but a yes for you even though there's no node involvement.  

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    Rachel 1966..Antigua had a lumpectomy and for women under 70 who have lumpectomy the standard of care includes radiation. Since you had a mastectomy, your standard of care is different. As you and she can see, there are many therapies. Hope you are doing well.

  • Rachel1966
    Rachel1966 Member Posts: 100
    edited March 2011

    voracious..... thank you for the explanation.

  • memory
    memory Member Posts: 106
    edited March 2011

    Antigua, my onc told me that Grade 1 cancers generally do not respond well to chemo, and that if the cancer is also estrogen positive, then hormone therapy is the treatment of choice. Then again, my oncotype score was 12, and the results also told me that I'd derive zero benefit from chemo. So for me it's been surgery and tamoxifen.

  • Antigua
    Antigua Member Posts: 63
    edited March 2011

    On 3/2/2011 I had to cancel my CT planning appointment because I ate.  You see, I was due to get an IV contrast was supposed to be NPO 6 hrs prior to treatment. 

     I rescheduled my appointment for 3/3/2011, I asked for a later time, but they insisted I must come in at 10:00am.  It was a horrible day, I had to wait for 3 hours before I was seen and that was after I got upset reminding them I am diabetic and was becoming hypoglycemic.

    My veins are not very visible, which I explained to the CT team, and asked them to get someone good with IV insertion.  The first stick from the nurse I screamed, even though I am a nurse myself, the second stick I  started crying ..  They decided to cancel the contrast.

    I am claustrophobic, but did believe, because I had CT Scan before that my head would be beyond the donut. I tried 3 times but could not tolerate the feeling of being compressed.   When they started the CT Scan I had to ask them to remove me because they insisted my head must be directly under the donut, and I felt I was going to die.

    They finally called my RO and he gave me Benadryl IM and Ativan p.o.  In about 45 Min's I was able to complete the CT Scan. The RT gave me 2 tattoos. and said he will call me next wee.

    I then asked him to please let me see the Radiation Machine because if the procedure was anything like the CT Scan, I would have to have a mastectomy.

    He took me to see the radiation machine, and I will be able to tolerate it, because it will not en-cave my head.

    This was not a very good first experience about radiation.

  • Antigua
    Antigua Member Posts: 63
    edited March 2011

    Hi Memory - Thanks for the information about chemo, I guess that is why my doctors neer mentioned it.  Are you having any RT. and exactly what is the oncotype, and is the result on your pathology repost.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    For stage 1 and 2 er+ breast cancers many doctors are requesting the Oncotype Dx test. Do a google search and read about it. You can also do a search here on the breastcancer. Org website and learn more. Basically it is one more tool that doctors use to get an idea whether or not you could benefit from chemo. It also gives an estimation of future distant recurrence. While most Grade1 breast cancers usually will be of low risk of distant recurrence, the 0ncotype test looks at a number of markers on your tumor and can determine your risk of recurrence.

  • Antigua
    Antigua Member Posts: 63
    edited March 2011

    In preparation for RT, I purchased calendula cream and lotion today, also miaderm cream.  I now have to purchase my 100% Aloe vera gel.  I will be in controll of my skin and its outcome.

  • Antigua
    Antigua Member Posts: 63
    edited March 2011

    I got my prescription for Tomaxifen from my BS. But I decided to take them after I have completed my RT.  Did anyone take Tomax with radiation, and what were the SE's.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    Gee. My doctor prescribed the Tamoxifen to take after I completed radiation.  That's a good question.  I asked my doctor if I should take it earlier, but he said that was how he did it.  I think physicians might vary in when they will start a patient on Tamoxifen.  I assume if you get a side effect while doing two treatments together, you may not know which one is causing the side effect, so it might be best to do the treatments consecutively rather than concurrently.

    Good luck with your radiation and Tamoxifen!  Hope you don't have any side effects.  I'm happy to report that I did well with both.

    Suggestion about the radiation.  You might get tired after a few weeks of treatment.  I found that exercising....taking long walks....really kept the fatigue from happening.  I had little fatigue.  Drink a lot of fluids too!

  • Rachel1966
    Rachel1966 Member Posts: 100
    edited March 2011

    I was given my prescription for Tamoxifen after my chemo was completed. I asked the question why and the oncologist said because it's easier to see what side effects belong to which drug, either chemo or tamoxifen..

    I've been on it since Feb 23rd and for some very mild hot flashes, I'm doing okay. I had aches the first few days but that seems to have dissipated. I don't know at what point the side effects i.e., hot flashes, night sweats, possible blot clot - if you were to have those, when would they occur?

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    Like with any other drug, side effects can manifest at any time. Since blood clots, especially in the legs are the most serious side effect, you should discuss with your doctor what those symptoms are and always be alert. Some women might experience side effects after a few days.... While some may never have any. I feel well and taking the tamoxifen hasn't affected my quality of life. Sometimes I get a mild flush, but that's about it. Considering my normal body temp is 97.... The flush actually feels good. Good luck, Rachel. Sounds like you will do well.

  • Antigua
    Antigua Member Posts: 63
    edited March 2011

    My Rad Tech called me today, and we made an appointment for my 2nd simulation and planning sestion tomorrow 3/9/2011.  He said it will be done in the actual radiation room.

    I will have my first RT on thursday 3/10/2011.  He will tell me tomorrow how many TX i will have tomorrow.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    Antigua... The sooner you start.... The sooner you will finish! Good luck!

  • Antigua
    Antigua Member Posts: 63
    edited March 2011

    voraciousreader - Today was extremely pleasant, I met all the Rad techs, and they seemed very nice.

    I did my simulation and took my pictures, the procedure lasted between 10 - 15 minutes, they said I did very well.  You see I stayed very still.  I will be getting 28 regular treatments.  The rad tech said that the RO will tell me how many boosts I will receive.  He believes it will be between 5-7.

    I have all my loobing supplies and I am ready to go.  My time scheduled will be at 12:45pm daily.  Starting on 3/102011.  I will be counting down.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    I found the rad techs, nurses and doctors to be very supportive.  I just had one small problem.  One of the loob supplies was burning my skin, DAY 1.  It seems that I was allergic to it.  Once they changed the loob...I was fine.  I also had a total of 30 something treatments.  It flew by.  I'm glad you're off to a good start!  Hang in there!

  • Antigua
    Antigua Member Posts: 63
    edited March 2011

    Hi Voraciousreader and Brilandgirl

    I my first treatment today. 1/28 I arrived at 12:16pm  the Tx along with me dressing was over my 12:35pm. I did loob up before I put my clothes on.  The machine was a bit close to the area of my sternum but bearable.  then it went to the right side where my 2nd tatoo is  and zaped that area.

    I do not know if anyone else feel this way but with the 1st zap, I felt some pressure on my ribs, my Husband was very surprised when I finished.  I bought a scratch off ticket today and won a $1.00.  I will be doing this every day as a game to play. to pass the time.

    Briland girl thanks for all your help with what creams worked for you.  The staff was very nice, they even made sure I got my sick leave noted and faxed it off for me.. 

  • Antigua
    Antigua Member Posts: 63
    edited March 2011

    2nd day of RT. 2/18. A few patients were ahead of me today.

    So it gave me time to have the RO adjust my Sick Leave Note.  They wrote that could work if given light duty.  But my job is a 12 hr shift at night,  we have no light duty.  It is either you are there to work or out sick.  Therefore he had to relieve me from work until further notice.  He was so kind he said it is no problem.

    It took minutes from the time they called me in up to the time I returned to the change room.  Today the pressure on my rib cage was not as intense.  I did remember to loob up before I left.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited March 2011

    Did you remember to buy your lottery ticket?  You have to start planning for the future, for when you win!

    I know it must be difficult for you to not work.  My mother was an ob/gyn nurse and her patients meant so much to her.  I hope you can head to the library and find some good books to read during your "down" time...  Here on the breastcancer.org website, there's a book lovers club.  Perhaps you can read the thread (just do a search -- book lovers club) and find some books that might interest you while you're passing the time.  I know how important my books were to me while I was doing radiation.  I passed the time in the waiting area reading.  Had I not brought my books, I would have probably been stressed.

    Good luck!

  • Antigua
    Antigua Member Posts: 63
    edited March 2011

    Voraciousreader -Good to hear from you, yes I did buy a scratch off yesterday and I won $1.00, so I used it to buy a ticket today but won nothing.

    I am going to stick with the scratch off, because I am very cheap and can only afford to loose like $1.00 per day. LOL. It is a game for me, my husband is on he ask to do the scratch off, so we are having some fun.

    I am the night charge nurse of Labor and delivery, that is why I said there is no light duty on my job. I am very happy you were raised by a nurse, so you know what I am talking about.  I will check out the book club.

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