Stage II Forum

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2011

    Welcome braveheart...sending you a big hugggggggggggggggggggggK

  • jan508
    jan508 Member Posts: 1,330
    edited February 2011

    Mybails:

    Thanks for putting this into perspective for me.  88% does sound better...

    Jan

  • Rocket
    Rocket Member Posts: 1,197
    edited February 2011

    Hi Jan508, I'm in Winterville, NC. 

    Ladies, as for the anger and fear part, I struggled with both.  I think they are both stages in the grieving process and BC gives you a lot to grieve about.  I too felt rage, like Granny D.  I was furious with my gyn. who missed diagnosing my BC and didn't recommend any other tests for the three cancerous tumors that were in my breast for at least 5 years with normal mammos.  You could feel all three tumors and I had pointed them out to him at every yearly appointment to which he reassured me that they were simply fibrocystic breast tissue - NOT!  I could have died from BC had I not insisted they try to aspirate one which showed the cancer.  I was angry at my surgeon for lying to my husband about my lymph nodes.  He stated that they accidentally came out when he removed my breast tissue and later contradicted himself when he was asked at a subsequent appointment and said it was standard procedure with multi-centric disease.  Needless to say, neither are my doctors any longer.  I, like Granny, could go on and on, but I'm just over a year from my original diagnosis and I've gotten past most of the anger.  I struggle with a lot of other health problems too, so I felt angry at God as well.  Thankfully God is big enough to take my anger and love me just the same.  Yes, I've since repented of that anger and I have forgiven those that have hurt me.  That's not to say that I trust those doctors anymore however.  As for the fear part, I think that will always be there.  Not a day goes by that I don't think about BC returning.  Every test or procedure terrifies me.  I'm doing my best to leave things in God's capable hands, but I struggle.  It's not as bad as when I was going through chemo or rads however.  All this to say, that I think it's perfectly normal to struggle with all of these emotions.  They are all part of the BC package.  I  know that I'm very glad to have you Ladies to vent to, cry to, and learn from.  I feel very supported here and unafraid to share my deepest feelings.

  • starbeauty
    starbeauty Member Posts: 327
    edited February 2011

    Rocket  - you said it so well... it is a daily battle of emotions... that are on a roller coaster ride of drugs... with only NED to hold onto.  I too am grateful for all the support on this site. 

  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2011

    I think we just need a guroup hugggggggggggggggggggg.

    Stay strong my sistas.Lets pray for NED forever.

  • Rocket
    Rocket Member Posts: 1,197
    edited February 2011

    I agree - group hugs all around!

  • supersally
    supersally Member Posts: 351
    edited February 2011

    Hi girls,

    I'm new to this particular forum.  I had my BMX with TEs on 1/31.  Pathology revealed I'm stage IIa, tumor was 1.7 cm with a micromet in 1/7 lymph node, 3 mm.  My BS said I would likely need chemo due to that and the fact I am 40.  She has sent off tumor tissue for Oncotype test.  Anyone here with any advice or comments?  I am seeing BS and PS tomorrow.  Praying she refers me to oncologist so I can get on with any additional treatment necessary.  Thank you!

  • Rocket
    Rocket Member Posts: 1,197
    edited February 2011

    Hi Barbara, I'm sure your BS will refer you to an oncologist.  My only advice would be to keep a record of everything.  Get your pathology report if you haven't already and write down any questions you have regarding treatments to ask the oncologist.  If you have specific questions along the way, there are so many ladies here who have great wisdom and advice as they've been through it all.  Just take one step at a time.  We're here for you.

  • shells43
    shells43 Member Posts: 1,022
    edited February 2011

    Welcome SuperSally and Braveheart~

  • toni30
    toni30 Member Posts: 252
    edited February 2011

    Barbara: The oncotype score will provide you with lots of information.  If you have a low score, chemo is not advisable - in fact, it can even have a negative impact on your prognosis. So take your time and consider all of the data - and don't hesitate to get a second opinion.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2011
    when i started this journey the first thing the sistas told me is to bring a tape recorder when you go to the dr.i never regretted it.you may get your questions answered and remembered but you cannot remember everything.And do get a second opinion.I did not and I WAS SOOOO SORRY. Good luck and God bless....hugggggggggs K
  • luv2trav
    luv2trav Member Posts: 39
    edited February 2011

    I everyone...my results came back today and I was told I am Stage 2a,,,,can I join your thread?

    thanks Cool

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited February 2011

    Luv2trav ~ welcome ~  sorry you had to join us.  WE have almost the same exact diagnosis except I was not HER+.  HANG tough.  Do you know if you are having chemo? 

  • Lovelyface
    Lovelyface Member Posts: 674
    edited February 2011

    toni -  I haven't posted anything on this thread for a while.  Hi everyone!  Where is the oncore score on your reports?  Is that the same score they give you on your pathology report after surgery.  I have a score of 7, but not sure if that is the oncore score. where did you get yours from?  Thanks.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited February 2011

    Hi luv2trav:  I love to travel too!  Welcome!  I'm sorry you have to be here though.

    Lovelyface:  I received a seperate report from my onco with my OncoDX score listed on it.  The pathology reports were on different reports.  If you can't find it, it should be in your records and you should be able to call and get it faxed or e-mailed or mailed to you.

  • luv2trav
    luv2trav Member Posts: 39
    edited February 2011

    I am meeting with the oncologist on Wednesday...will find out the next step then!

  • Lovelyface
    Lovelyface Member Posts: 674
    edited February 2011

    bcincolorado - thanks for the infor.  I will ask my oncologist for my score.

  • Malou
    Malou Member Posts: 14
    edited February 2011

    I just received my oncoDX score of 14which was considerably lower than expected.  CMF has been recommended.  Does anyone have any experience with this?

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited February 2011

    CMF is the chemo regimen?  I had ACT  ~ Arydramycin, Cytoxin and Taxol.  I think that's what they were called.  I had 16 weeks of chemo, every other week for a total of 8 treatments.  Not fun but it is doable.

  • LadyinBama
    LadyinBama Member Posts: 1,132
    edited February 2011

    Welcome Luv2travl.

    Malou: I think there is a CMF thread somewhere. A member called "englishteacher" on my July mastectomy thread did CMF. You could PM her and ask about it.

  • ToriGirl
    ToriGirl Member Posts: 1,188
    edited February 2011

    Hello ladies..

    Can not believe I hadn't seen this thread until now...glad to have found it.  I hope you don't mind one more chiming in....although, I wish it was under different circumstances like over a cold beer and nahcos!

    I was dx June 2010, IDC, 1.1cm, Grade 3, Stage lla, ER+PR+Her-, 1/11 nodes, no LVI, Ki-67 6%.  Had lumpectomy in August of 2010.  I had 6 treatments of T/C which ended in January and now currently in rads....

    doing the best I can to take it day by day....hoping and praying things just keep getting better and better...

    Hope to get to know you all!

    peace and prayers,

    Tori

    "DE COLORES!" 

  • LadyinBama
    LadyinBama Member Posts: 1,132
    edited February 2011

    Tori: Odd ... I was told that the KI score and the grade were indicative of how fast cells were growing. My KI was 27 and my Grade was 2. But your KI score was lower, 6; and your Grade, higher, at 3. How were these numbers explained to you?

  • ToriGirl
    ToriGirl Member Posts: 1,188
    edited February 2011

    LadyinBama--let me check my paperwork again...I've typed it so many times, maybe I had it wrong...yikes!

    Tori 

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited February 2011

    Grade is determined by how fast the cells are multiplying, how different the cells are from normal and one other thing that escapes my mind right now.  The KI score is a measure of a protein associated with tumor aggressiveness (more aggressive tumors multiply faster). 

  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2011

    Welcome ToriGirl...you will get lots of info from these ladies.Come back often to vist.Perhaps we can have a cup of coffee from across the miles.

  • sapphirelilac
    sapphirelilac Member Posts: 13
    edited February 2011

    hi

    just wanna know what meds are we gonna take after the 5 year tamoxifen?

    tnx :)

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited February 2011

    I was reading on another thread that her onco told her 5 years of tamox and then they were going to put her on an AI after that for 5 years.  As far as I know, I'm just 5 years on tamox and then done.  My SIL's grandma went through bc stuff about 10 years ago at least and still won't go off, even though onco said she could.  She is too afraid to stop taking it.

  • sheila888
    sheila888 Member Posts: 25,634
    edited February 2011

    HI...I'm just jumping in to tell you I saw my Oncologist yesterday and he wants me to stop taking Femara.

    It will be 5 years next month.

    I wasn't easy with the idea but...he will see me every 4 months.

    Good Night

    Hugs to All My Sisters

  • Resting
    Resting Member Posts: 215
    edited February 2011

    Well THX Grannydukes for getting this thread up and running again.  I have a good book you might like reading re: anger. It's a historical novel (not a self help - I hate self help books) --it's not to long about 250 pages. Called "Island of Saints" x Andy Andrews. Hanven't finished it yet but I am well into it. Good story - deals with anger and forgiveness. Setting - is WWII. Anyway, that's my input. You certainly have had your share if heartache and anger is understantable to say the least.

    Did any of you read the article Sentinel Node Dissection Poses No Breast CA Survival Hazard. In BCO research and news section. It's interesting and to late for me but makes me wonder.....

  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2011

    thanks ECT...i did a lot of reading on the anger.Did you ever read the book THE SHACK???wonderful book on forgiveness and releasing the anger.Sure it works for a while but every once in a while it kicks up its ugly head again and everything surfaces.Im workin on it for yrs.

    on another note I did read the article on the SN disection...It was interesting BUT too late for me too.Everything about this giant monster is should I shouldnt I....Will we ever know if we did the right thing??????

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