Well this makes me depressed..

Options

Comments

  • everyminute
    everyminute Member Posts: 1,805
    edited February 2011

    well - here is my take away....more than 90 percent of lymph node positive women survived at least 5 years....

    The tumors were early, at clinical stage T1 or T2, meaning less than two inches across. Biopsies of one or two armpit nodes had found cancer, but the nodes were not enlarged enough to be felt during an exam, and the cancer had not spread anywhere else. The women had lumpectomies, and most also had radiation to the entire breast, and chemotherapy or hormone-blocking drugs, or both.

    The study, at 115 medical centers, included 891 patients. Their median age was in the mid-50s, and they were followed for a median of 6.3 years.

    After the initial node biopsy, the women were assigned at random to have 10 or more additional nodes removed, or to leave the nodes alone. In 27 percent of the women who had additional nodes removed, those nodes were cancerous. But over time, the two groups had no difference in survival: more than 90 percent survived at least five years.

  • Christine2000
    Christine2000 Member Posts: 176
    edited February 2011

    I am struggling with lymphedema ( and after neo-adjuvant chemo my lymph nodes were all clear) so this is really breaking my heart.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited February 2011

    Whoa ... but I am grateful for research ...

  • americanpinay
    americanpinay Member Posts: 338
    edited February 2011

    Christine,

    Sorry to hear about your LE struggle. This whole bc thing could be sooooo depressing sometimes. I guess we just have to find comfort in that we made treatment decisions based on what we know at the time we needed treatment.

    Take care and hope you feel better soon. 

  • Kathleen26
    Kathleen26 Member Posts: 210
    edited February 2011

    This was a very interesting article, thanks for posting it.

    I had a six inch mat of cancer in the axillary area, which was reduced by neo-adjuvant therapy down to about two inches, so they probably would have ended up removing it anyway.  I haven't had any problems that I can blame on LE yet, but it is obviously a huge concern for me.   

    Hopefully they are trying to research how to cure/better control that for those already suffering for what was thought to be the right thing to do.   How distressing for those like Christine to see this, but how many of us would have agreed to forego the node surgery while this study was going on?

    Since I had my chemo, another doctor told me that the chemo regimen I received probably would not be given to anyone with ER+ cancer within the next two years or so, and my rad onc told me straight out that the boost they were giving me was not proved to help prevent recurrence, so clearly we are all enduring a lot of cancer treatments that may be more harmful than helpful.   Some days modern medicine looks suspiciously like voodoo--doctors believe in it, so they do it, but the science may not be as solid as they like to think it is.

  • NattyOnFrostyLake
    NattyOnFrostyLake Member Posts: 377
    edited February 2011

    Kathleen,

    On the bright side, you seem to have really straight-shooting, honest doctors. Many of us have had a hard time getting the track record for our treatments out of these guys.

    thefuzzylemmon, I'm glad for the research also. Anything that moves us forward.

    I wish I had known more about the needle biopsies seeding the cancer, tho. I had to find that out myself.

  • queenie9556
    queenie9556 Member Posts: 3
    edited February 2011

    HEY SHERRI,ARE YOU STILL ON YOUR ANTIHORMONAL?? IF NOT WHEN DID YOU STOP...IF ON,FOR HOW LONG??THANKS,CANDY

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited February 2011

    Sherry, you said,  I am now hearing that stage 3 women with ILC are being treated with neoadjuvant antihormonals to shrink the cancer and then also adjuvant antihormonals. No chemo!!

    Do you or does anyone else have a link for this? I ask because I had read that neoadjuvant had a bad track record with ILC and I didn't want to do chemotherapy but my onco insisted.

    In the end I dropped out after only 2 infusions as my instincs were screaming at me to stop.

    I'd love to have the reassurance that I did the right thing.

  • geocachelinda
    geocachelinda Member Posts: 223
    edited February 2011

    Neoadjuvant chemo was considered with me when I was first diagnosed with my Stage 3 ILC but quickly ruled out due to the fact that the tumor was so large and there was lymph node involvement.  I will be getting it after surgery.. I had surgery Friday btw

  • apple
    apple Member Posts: 7,799
    edited February 2011

    it is nice that we are progressing.  Sad that we are on the 'wrong side'.

    There is a topic entitled 'Don't look back, Seriously' in the lymphedema forum.  I cannot get it to link properly.

  • jennyboog
    jennyboog Member Posts: 1,322
    edited February 2011

    Well, I wish I would have read this article about 3 wks ago...before my BMX.  My arm hurts and I'm hoping it's not LE and just surgery & I know rads is only going to make it worse.  Thank God for medical advances though...as bad as we got it the ones before us had it way worse.

Categories