Taxotere is a nightmare

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  • marjie
    marjie Member Posts: 1,134
    edited February 2011

    shooshoo - my surgeon told me not to be surprised by different pain and sensations that may occur even as long as 6mths to a year out of surgery.  Your nerves are still regenerating, but I would still check it out for peace of mind.

  • lago
    lago Member Posts: 17,186
    edited February 2011

    I was told by my surgeon it really takes a year to heal from this kind of surgery.

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2011

    Shoo Shoo... I am sure it is just nerves, but I agree, get some peace of mind.

  • EricaH
    EricaH Member Posts: 41
    edited February 2011

    Hi All - I just wanted to post after having my first taxotere treatment on Thursday, Feb. 10.  After doing the 4 AC I now how 4 taxotere (once every three weeks) - I read about how hellish taxotere is and was very apprehensive; but I've been very pleasantly surprised.  I felt 'myself' the day of treatment, a little tired the day following (received Neulasta that day).  I am now at the end of Day 3 and feeling really OK - just a little tired and a slight headache. 

    I am drinking a LOT of water - I think that is really key.

    Good luck everyone!

  • lago
    lago Member Posts: 17,186
    edited February 2011
    Erica I hear AC is worse than Taxotere. To be honest I didn't really have to many problems till tx4 and even tx 4 wasn't too bad. TX 5 & 6 haven't been fun but still doeable… granted I'm glad I'm not doing any more!
  • paintedlady
    paintedlady Member Posts: 252
    edited February 2011

    My heart goes out to all of you ladies. I am getting taxotere and cytoban plus an injection of neulasta. I had my third dose a little over a week ago. My last does is on Feb.23 rd. The first two doses weren't that bad. I was very tired, had some bone pain and some chills. With this third dose, I felt like I was having a continual nightmare: All the symptoms I mentioned were greatly intensified plus there was nausea, vomiting and diarrhea. Hopefully, the last dose will have less intense side effects, but that probably just wishful thinking.

    My thought for all of us is "this to shall pass"

  • lago
    lago Member Posts: 17,186
    edited February 2011

    Paintedlady if you know when you will get the nausea and diarrhea start medicating just before.  got the worst constipation the 2nd tx ( with hemorrhoids). After that I started medicating the night before with Metamucil. What a difference! Granted each time it would get a little worse (move slower) for a few days but at least things were moving and I never experienced full blown constipation. Seriously that time I got it I thought I was going to have to go to the hospital.

    Imodium is good for diarrhea.

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2011

    I just had Tx 2 of 6, and it was very similar to tx 1... I felt fine for the first two days (day of tx and day after) and then Neulasta on day 3... Last time I didn't take Claritin and had more achiness than this time, but this time, I had more heartburn and fatigue... but that is for day 4 and day 5 to a lesser extent.  Last time, I felt FINE one week post tx, so time will tell if its the same this time... I agree, that drinking LOTS is a big contributor to feeling ok. I also had some constipation this time, but nothing that needs medicating.

  • coni111852
    coni111852 Member Posts: 419
    edited February 2011

    Bdavis I hope u feel good soon, I'm due for second one Friday praying that SE will be less for all of us!!!

  • tracie23
    tracie23 Member Posts: 598
    edited February 2011
    Hi girls... My eyes are do bad today I can barely see.... they are so blurry and watery uuuggghhhh there is nothing more frustrating than not being able to see. You all were talking about the DR. saying AC is worse than Taxotere I don't know where they got that???? I would do AC over and over before doing this ever again. I would be down for about 5 days and than I was great for 2 weeks on Tax I am lucky to have 2 or 3 good days before the next treatment.... Thankfully this Thursday is my last Taxotere !!!!! I am so happy.... hopefully I can see by than Laughing.
  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited February 2011

    Hi Ladies -- I check into this thread from time to time to see if I can provide any useful advice -- but you guys have covered it all!  I had 3xFEC and 3xTAX (last tx July 2008).  My onc said Taxotere would be a walk in the park.  Huh?  Some walk!  Some park!  I think a lot of oncs say that because they know that Taxotere/Taxol do not cause vomiting, and for some reason they think that's absolutely the worst symptom. 

    I never felt like stopping tx with FEC, but I can't tell you how many times I threatened to stop the TAX tx.  As Tracie says, you're lucky to feel half decent for a few days between tx, but the lack of tastebuds, the constantly running nose, the feeling like being hit by a truck, the thrush etc. just never let up -- until 2 weeks after my final tx!

    So, I have no advice for you, but I'm sending you all my sympathies.  We who have gone before you are the only ones who really know what it's like, and I'm sure we all send you many hugs and warm wishes for a successful END to your trial by taxotere!

    Linda

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2011

    I think its an individual thing... because I have only have a couple of bad days on Taxotere, and they aren't that bad... it seems that most people who have trouble with Taxotere were on something else first, so maybe its the combination... A cumulative effect... I had my second tx of Taxotere on Tuesday and today feel fine... the only days I didn't feel fine were Friday and very tired Saturday (and Neulasta was on Thursday so that contributed)... Probably too much of any poisin will eventually get to our bodies... I feel for you cause I am thankful I only have a couple of bad days and can't imagine only having two good days... Of course, I have a total of 6 tx, so 4 more to go... we'll see how I fare.

  • Lee7
    Lee7 Member Posts: 657
    edited February 2011

    bdavis- What are you using on your lashes and brows? Can it be bought at a store or is it that prescription one..Latisse?

  • Lee7
    Lee7 Member Posts: 657
    edited February 2011

    Had another question for everyone...

    I want to buy the L-glutamine to help ward off neuropathy. What am I sppose to get? I've seen tablets of 500mg, in with all the vitamins at the store but I've read other using a powder form that you mix in juice or water and is quite stronger. What's the recommendations on this?

    Thanks! 

    Lee

  • Lmflynn
    Lmflynn Member Posts: 373
    edited February 2011

    Hi Lee, I don't post on this thread much...but I had such good success with l-glutamine though I'd share. After my first TC I had neuropathy in fingers and some in foot. Read the boards and went and bought B6 and l-glutamine...Tx 2,3 and 4 no neuropathy....I use the powder form and take a tsp each night with H2O. I am 4 weeks PFC and do not have any lingering numbness, tingling or pain. I also added icing my fingers and feet during Tx. I used frozen peas...and only iced during the taxotere. Hope it helps...Lisa

  • Lee7
    Lee7 Member Posts: 657
    edited February 2011

    Lmflynn,

    Is the powder form all the same strength? HOw about the B^?

  • Lmflynn
    Lmflynn Member Posts: 373
    edited February 2011

    Powder seems to be the same..I've bought two kinds at Whole Foods and tsp is same. B6...is all different but I use the 50s....I did this b/c I take a multi too with some B6...

  • lago
    lago Member Posts: 17,186
    edited February 2011
    I use 500mg and get it from the Vitamin shoppe. You really should check with your onc before taking this. You don't know how this will interact with other meds or conditions you may have that I don't.
  • bdavis
    bdavis Member Posts: 6,201
    edited February 2011

    I read somewhere about getting B12 shots.. has anyone done that?

  • marjie
    marjie Member Posts: 1,134
    edited February 2011

    Lindasa....your comment "Some walk!  Some park!" made me LOL and snort my gingerale out my nose.  Last tx was Feb 2 and I am just going into my third day stuck in bed...I really think that the effects are cumulative.  Next visit to my onc I am definitely going to be asking about vitamins and supplements now that I am done chemo.

  • LadyinBama
    LadyinBama Member Posts: 1,132
    edited February 2011

    Tracie: When I started Tax, my onc. told me to get some natural tears eye drops; he knew that taxotere causes eye problems. He told me to use them 4 or 5 times a day for about 5 days after treatment. I still had tearing, but not as much. Tearing, weird as it seems, comes from dry eyes. I guess the drops also help flush tax out of the eyes. You might try that. I also developed, after last treatment, tearing that was more like crying and the eye doc put me on steriod eye drops for about 3 weeks. It cleared up after that. I feel for you, I hated  the tearing!

  • Omaz
    Omaz Member Posts: 5,497
    edited February 2011
    I concur with Lady - my onc nurse told me the same thing about dryness and to use the drops a lot.
  • tracie23
    tracie23 Member Posts: 598
    edited February 2011
    Hi Girls  !!!!   HAPPY VALENTINES DAY  I hope everyone has a very special day Laughing
  • lewing
    lewing Member Posts: 1,288
    edited February 2011

    The title of this thread caught my attention, because it pretty much summed up my attitude toward taxotere.  I'm another one of those who sailed through dose dense A/C, then felt like I'd slammed right into a brick wall when I started taxotere.  I would have gladly traded a few moments of queasiness for the all-over body aches, burnt mouth, sore fingernails (I never knew fingernails could ache!) and general yukkiness that was taxotere.  So, I'm here to commiserate.  You all who are still in the middle of treatment *will* get through it.

    It may be slightly reassuring to know that the effects aren't always cumulative - at least, they didn't seem to be so for me.  My last round of taxotere was actually my easiest.  It may have been psychological - I was so freaking glad to be DONE - but it felt real, and I was grateful for that.  I hope it's the same for you all.

    L

  • lago
    lago Member Posts: 17,186
    edited February 2011

     .

    ♥ ♡ ♥ ♡ ♥ ♡ ♥ ♡ ♥ Happy Valentines day everyone ♥ ♡ ♥ ♡ ♥ ♡ ♥ ♡ ♥

    Ugh need to see the dermatologist today for my finger. Waiting too see when they can fit me in. Why does this crap always happen to me over the weekend. Today makes 1 month since my last chemo…but it's not over yet Tongue out

    If you want to see my scary finger: linky

    Hope everyone else is doing OK.

  • Omaz
    Omaz Member Posts: 5,497
    edited February 2011
    Lago - Looks almost like a blister.  Nice ring!
  • lago
    lago Member Posts: 17,186
    edited February 2011

    Yes there's fluid in there. If it started draining like my toe I wouldn't have this problem.

    Thanks. I included the ring because I wanted to balance out the grossness of my finger. Tongue out

  • tracie23
    tracie23 Member Posts: 598
    edited February 2011

    OMG !!!! lago that is so awful.... boy I may complain about all my side effects but that would make me cry. I am so sorry. I did read your legs are getting smaller Whew.....hopefully your doc will be able to help you out. And I dig the ring as well

  • marjie
    marjie Member Posts: 1,134
    edited February 2011

    Iago - I agree!! I was totally distracted by your ring, love it :). I hope the drs figure something out and your fingers and toes get cleared up soon.

    I'm totally wiped out this time around - I can barely get out of bed, just weird.  My eyes are running so bad it's extremely difficult for me to see, tried the eye drops but it seemed to make it a lot worse for me.   Today I decided "mind over matter" and got my butt up and into the shower, dressed and put some makeup on...took me two hours and then I had to sleep again lol.  DH is getting kind of worried but I think maybe by the end of the week I will be turning around. Just keep telling myself 'last time last time last time no more no more no more'!

    Oh yes and Happy Valentines Day ladies !

  • lago
    lago Member Posts: 17,186
    edited February 2011

    Finger update. I was instructed to take the nail polish off my fingers before I see the dermatologist. That got my finger to expode… yuk. Anyway the dermatologist doesn't feel it's infected so we are holding off on the antibiotic (Yay!) He said to soak in warm water with a tea bag, I need to call him on Thursday with an update. Currently still hurts and using it can start it to gush. 

    Good news is several nails have started to grow out. I may end up only losing 1 or 2 nails.

    marjie I had to stop reading except online for a while. Anytime I looked down my eyes watered. My eyes aren't 100% yet but I only have the issue in the wind.

    tracie23  SE, no matter which ones are a PITA. Don't think mine are worse then yours. Remember I still have most of my eyebrows and eyelashes and no never any nausea. Many women would trade with me in a second.

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