New type of LE Garment

Options
2456789

Comments

  • Binney4
    Binney4 Member Posts: 8,609
    edited February 2011

    Nordy and Journey, thanks for the help. That sounds like an excellent return option -- wow! Nordy, looking forward to your report!Cool

    What would we all do without each otherSurprised!
    Binney

  • kira66715
    kira66715 Member Posts: 4,681
    edited February 2011

    Binney, you are THE expert--but I still don't understand why off the shelf Juzo gloves use the european compression class 18/21 mm and their sleeves use the US 20-30

    In my experience, I needed to be in CCL 1 for both the Juzo glove and sleeve--yet they're technically difference mm of mercury of pressure.

    I tried to look it up in the International Best Practices guidelines, and they just say that there's no standardization:

    To
    assist comparison, therefore, garment
    packaging and studies involving
    compression garments should state the
    pressure ranges and the testing method
    used to determine the pressures.

    Joe Zuther wrote in his blog:

    At the current time there is no national standard for compression classes. However, compression is very similar between the different manufacturers

    So, frankly I'm confused, I don't think it's as simple as just mm mercury compression, as different fabrics and weaves have more "containment"--so for me to wear CCL 1 in Juzo, my glove is 18/21 mm and my sleeve is 20-30 mm. 

    Okay, to confuse myself more: I logged into the medi site, and the medi 95 gloves that I use off the shelf are CCL 1 20-30mm, but if I submitted a custom glove order, it's the European compression classes.

    I emailed the medi rep I met at the NLN to try and get an explaination.

    Any expert fitters out there to explain this to us?

    Help!

    Kira

  • SleeveNinja
    SleeveNinja Member Posts: 178
    edited February 2011

    I tired the ab band for my truck but my swelling extends too high up.  I also didn't like the bands at the top and bottom - I think it would work better without the bands.  It depends where your swelling is. (Meanwhile, I await the tee shirt . . .)

    The Armcare1 is very light compression.  

    I just want to repeat that the single and double arm sleeves are TOTALLY different.  Both are wonderful (IMHO) - but very different.  I also think both are entirely different from all the other compression sleeves.  The shoulder/back band is the least of it -- it's the very amazing fabric (and finishing).  You might respond a little differently to the amount of compression than you do w other  compression sleeves -- I do.  They all feel a bit "lighter" to me than other sleeves of the same class -- maybe they are, or maybe the comfort level makes them feel lighter, or both???  I don't rule out magic. Smile  I can't recommend them highly enough.

  • kira66715
    kira66715 Member Posts: 4,681
    edited February 2011

    Ninja, they sent me fabric samples, and the fabrics for the single arm is very different from the silver wave fabric for the double arm. It's very interesting fabric--very stretchy and has the "wave" woven into it.

    Kira

  • kira66715
    kira66715 Member Posts: 4,681
    edited February 2011

    So, I emailed my contact at medi:

    I just had a compression class question: are the European CCL1 (18/21mm) the equivalent of the US (20/30mm) for upper extremity. I notice with the medi 95 it's the US standards, and any medi custom glove are the European. I don't think it's as simple as just mm of mercury, but assume fabric qualities are important.


    And his response:

    You are asking a very good question. The answer is that medi had to change all upper extremity garments to the following:

    · CCL I - 15-21 mmHg

    · CCLII - 23-32 mmHg

    Lower extremity are 18-21 mmHg. All manufacturers that produce or sell products in Germany had to do this.

    The flat knit garments in 15-21 mmHg will feel as strong as the 20-30 mmHg circular knit garments because of the thicker, stiffer material. You are correct in your analysis.

    I hope this makes some sense--it's a European standard, and I know the medi off the shelf items are made in the US.

    Binney??? Please explain further.

    Kira

  • SleeveNinja
    SleeveNinja Member Posts: 178
    edited February 2011

    Kira-  That's right. The wave texture is supposed to have a massage effect. It leaves little zig-zag/ chevron marks in your skin after you take it off.  It's obviously different than the usual compression sleeve fabric.  The single arm fabric may appear less unusal (especially in a small swatch which is what I imagine you have?), but it feels very different from -and a million times better than- other sleeves.  

  • kira66715
    kira66715 Member Posts: 4,681
    edited February 2011

    Ninja, everyone who wears these sleeves loves them. I love the fact that the bilateral ones are marketed to triatheletes.

    As someone who wears gloves, I wish they'd make gloves....

    Kira

  • SleeveNinja
    SleeveNinja Member Posts: 178
    edited February 2011
    If enough people love them, I hope they will too -- but not until after they make a tee shirt for truncal LE Wink
  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2011

    So glad to hear about these sleeves! I'm thinking the bilateral with the silver wave fabric would be terrific for me for flying. I see they also recommend for post surgery, which is something I'll ask my LE therapist and surgeon. Sounds like they are relatively easy to don, but I'm wondering if you need to be able to raise your arms above shoulder height to do it. That will probably be a no-no for me for a couple weeks post surgery when I have my implants removed. I want a matching glove, too, and I'm sure I'll want the tee shirt for truncal LE once I'm flat. I've never been able to find a tank that fits me well. Maybe having no implants will increase my options.

    Kira, this US/European compression class thing is interesting. For flying, I wear a Jobst sleeve size small, 20/30mmHg. The glove I wear with it is by Medi - Mediven. When I recently ordered a new sleeve and glove and had to give the glove sizing info to my dr, I found the packaging difficult to interpret, as it's primarily in German with a few words in English. I believe it's a CCL 1, but three sets of numbers appear in a small space. They are: III / CCL 1 / 724, and then there's another product number below that reads 2011-12. I really dislike the bulkiness of this glove, and the fabric pills so easily. I've only worn a handful of times, so I can only imagine how quickly it would need replacing if worn daily. It doesn't look very nice next to the sleeve either.

  • Binney4
    Binney4 Member Posts: 8,609
    edited February 2011

    Kira, the Medi guy is talking about three different variables:
    compression class
    fabric
    method of manufacture

    All of them affect the fit and feel of our garments. The StepUp-SpeakOut section on flat-knit and circular-knit explains the difference in the way they're made:

    Most off-the-shelf garments are "circular knit," which means they're knitted continuously in a circular pattern that results in a roughly cylindrical shape with no seams. Custom made garments, on the other hand, are most often "flat knit," or cut to the proper size from a flat piece of knitted fabric and seamed into shape. Circular knit garments are generally lighter in weight, and many people prefer the seamless look. Flat knit garments can be cut from a wide range of breathable fabrics and may include such features as zippers or extension panels to ease joint flexibility.

    And this about fabrics:

    The fabric used in your garment may be soft (like Juzo's "Varian Soft") or sturdy (like Jobst's "Elvarex"), or somewhere in between. It may feel flexible or stiff, smooth or rough. All these factors add to your sense of the fit of your garment, and to its effectiveness for you as well. An experienced fitter takes fabric choice into consideration in order to provide you with the garment best suited to your specific needs. A compression sensitive person may need a softer fabric to prevent her fingertips from turning an unhealthy shade of purple, while a person who tends to develop fibrosis easily may do better with a firm and sturdy fabric –even if they both require the same compression level.

    What we feel as "comfortable" has to do with all those factors, and with the way they meet our individual needs, so no one version will do for all of us. That's part of why it's so hard to find just the right garments.

    Of course the other reason it's so hard is because we also need a smart and experienced and empathetic fitter to wade through all the possibilities and come up with the right combo.

    And, for what it's worth, it's one of the main reasons we started StepUp-SpeakOut -- so we all could do some "comparison shopping" and know what's out there besides whatever the local fitter stocks. There are a WHOLE lot more choices now than there were even six or eight years ago.Cool

    Now all we have to do is wade through all this and get what works best for us!Surprised

    Onward!
    Binney

  • hymil
    hymil Member Posts: 826
    edited February 2011

    Tina: "Medi" code  III / CCL1 / 724

    III is the size : Range from II - III - IV - V - VI - VII (2 to 7 in real money)

    CCL 1 is the compression class (18-21 mm Hg)

    724 is their product code that distinguishes, sleeve (only) from combination sleeve (including hand) from {all-in-one sleeve with hand and shoulder cap}, and whether also it has a top grip band or not, and whether it's std or long, hope that helps.

    So, III / CCL 2 / 743 is a size 3, higher compression, sleeve with shouldercap but no hand.

  • kira66715
    kira66715 Member Posts: 4,681
    edited February 2011

    Tina, I checked and the Medi glove style #724 is the medi 550 glove, and I got one by mistake and HATED it--they're bulky, and on purpose they put less compression in the fingers:

    http://www.bandagesplus.com/prd/33/849/Mediven-Glove.html

    Mediven Glove with Fingers

    20-30mmHgCCL1=20-30mmHg #724

    CCL2=30-40mmHg #723

    Specifically designed to work in conjunction with the Mediven armsleeve, this glove with fingers is made from an air permeable skin-friendly knit. Gradient compression from the fingers (50% compression in fingers) to the wrist ensures physiological lymph flow. Made from 86% Polyamid (nylon) and 14% Elastan (spandex) in Germany.

    I like the medi 95 glove, which has full finger compression to the first joint:


    Medi 95 Glove 20-30mmHg w/Compressive Fingers

    CCL1=20-30mmHg #760

    CCL2=30-40mmHg #761

    The Medi 95 glove has compression in the fingers to the first joint. Designed to work in conjunction with the Medi 95 armsleeve, the glove is soft and durable.

    Just checking on-line, Bandages Plus is so much more expensive than brightlifedirect or nulifemedical....

    Tina, I tried on that Medi 550 and shipped it right back.

    Oh, and Hymil clarified it: III is the size (also known as 3) and 724 is the style, and CCL1 is the compression class. Try a medi 95 in a III sometime, you might prefer it.

    Kira

  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited February 2011

    I spoke with Susan Callison yesterday when I phoned in to reorder a bilat silver wave sleeve (couldn't remember my account log-in for sizing).  She was terrific and I mentioned

     [1] truncal compression for those of us with LE that is in the upper back and axillary (the band just will not work for me since my LE is in the upper back area),

    [2]  gloves and gauntlets

    Susan indicated that they are looking into both in the future.  I let her know how much we love the products and that we have a thread just for her products and she was quite pleased. Susan is also a BC survivor and has LE.

  • Lmflynn
    Lmflynn Member Posts: 373
    edited February 2011

    Thanks for the info ladies, I ordered a bilat sleeve today. I haven't experienced lymphedema as yet, but about to go back to work and travel extensively so thought I should do my best at prevention. The service was wonderful..ordered online and already shipped. Will let everyone know how it works/feels when I receive it.

  • kira66715
    kira66715 Member Posts: 4,681
    edited February 2011

    Just discovered the bilateral sleeve is also sold by a company legluxe:

    http://www.legluxe.com/category/shapewear/compression-sleeves/

    So, the bilateral sleeve is considered compression/slim wear.

    Kira

  • carolyn77s
    carolyn77s Member Posts: 3
    edited February 2011

    Lymphedema Sleeve Company has a 30 day return policy. I was told they donate the returned sleeves (if newish) to women that cannot afford the sleeve (but only througha therapist that request a free one)

  • carolyn77s
    carolyn77s Member Posts: 3
    edited February 2011

    When I donned the sleeve I could pull it behind me and downward, bunch up the second sleeve (like panyhose) to slip the other sleeve on in place. The donning gloves make all the difference to move the fabric into place too. Good luck!

  • hymil
    hymil Member Posts: 826
    edited February 2011

    It's like coming home from a long long hike in hard boots and putting your slippers on.

  • KS1
    KS1 Member Posts: 632
    edited February 2011
    OK - I'm convinced.  I'm going to buy one of these puppies.  The question is which puppy.  Do I have this right? :  The bilateral sleeve is 15/21 and has a wave like knit (silver wave).  The unilateral sleeve Armcare class 1 also has 15/21 compression, but a different texture than the bilateral sleeve.  The unilateral Armcare class 2 has 22/33 compression, and has the same basic texture as the Armcare 1. Here's my situation:  My LE upper arm is achy, but minimally swollen (the greatest inter-arm difference is 1 cm in the upper arm).  My LE hand has mild swelling, plus other nerve/blood flow issues.  I currently wear a custom Juzo class 1 Soft 2001 sleeve (with a microfine 20/30  or a custom barton carey glove).  It sounds like the Juzo class 1 custom sleeve is a 20/30, so the class 2 armcare would be closer to the Juzo.  but I am wondering if maybe my hand would do better with lighter arm compression.    Suggestions?  KS1
  • hymil
    hymil Member Posts: 826
    edited February 2011

    Can only speak for myself here as obviously everyone's arm is different. I just finished my second day with the bilateral wavy sleeve, light compression. No problems in the other arm, no problems in the hand that I had when they gave me a medi-sleeve without a hand, and all the aching in the upper arm has gone. I did go up to the medium size and I think that helped. I think it's one of those "Less is More" situations, the very gentle approach being best. I did laugh at the little ripple imprints all over my arms!

    Hope you find what's best for you.

    So we need to work on getting them to make a long-sleeved tee-shirt now, right?

  • SleeveNinja
    SleeveNinja Member Posts: 178
    edited February 2011
    KS1-You have it right:  The the bilat is a "toning" sleeve not a LE sleeve.  It has light compression and a zig-zag (wave) texture that designed to provide some kind of massage action.  Both Armcare sleeves are smooth and they are meant to be LE compression sleeves.  The manufacturer uses the European compression designation.  I wear the heavier Armcare (I wore class 2 custom Juzo) and the Wave.  You might even find you like different sleeves at different times.SmileKiss

    hymil -  well, the tee could have long or short sleeves - it could even be sleevless.  All 3 would be good. Yes yes yes!!!!  SmileSmileSmile

  • Journey
    Journey Member Posts: 905
    edited February 2011

    Tees of all three sleeve styles, YES Please!! I just got my two sleeve styles in last night and donned the toning one and wore while hanging out at the house. Very comfortable! I worry it will be a bit hot as the weather warms up since the fabric is a little thick. Any experience with this in the warmer weather / climate?

  • SleeveNinja
    SleeveNinja Member Posts: 178
    edited February 2011
    Yes, well, any sleeve is hot in summer Cry . . . . .   It's not super hot but it ain't bare skin neither.  No choice for my LE arm, but I don't like to have my normal arm covered in summer.   Part of the appeal of the Wave, especially this time of year, is the coziness of the 2 sleeves.  Don't worry, the Armcare is awesome.Smile
  • Nordy
    Nordy Member Posts: 2,106
    edited February 2011

    I still haven't gotten my sleeve!!! I called on Thursday and they said it would be here Friday... but we were out of town and it was not here when we got home today! :(  I hope it comes Monday... They said there have been shipping issues with all the adverse weather on the east coast!

  • cookiegal
    cookiegal Member Posts: 3,296
    edited February 2011

    I got it!!!

    I tried on the one arm sleeve last year at YSC....I purchased the two arm bi-lat sleeve...it runs larger though........

    the very good news is that it is not too large on my lower arm (This is a problem since my swelling is all above my elbow, my LE was concerned that no sleeves would fit.)

    I probably should have gotten a medium...my back is kind of loose.

    I have had very good luck with using the silver wave on my breast, so I am hopeful it will be good on my arm. The owner says she has heard the silver wave works very well on lipa(o) dema. So here is hoping.

  • Nordy
    Nordy Member Posts: 2,106
    edited February 2011

    Cookie - I got mine too! I wore it today and wore it to PT to show my therapist - she loved it and called her hubby in to take a look. They will probably contact the company and see if they can get some samples of some of the other garments they have. They were really excited.

    SO, here is the verdict. I LOVE wearing this sleeve (I got the bilateral silver wave 15-20 mmhg). It is comfortable, and guess what - my arm was smaller than normal when I took it off tonight. My LE therapist loves it because it has the waves in it and having texture really helps with fibrotic tissue. It fits my unaffected arm fine, but is a little big on that side (obviously). But here is the thing that I think I am really going to like about it (but of course I have to test it biking to see for sure) that is it is actually cool. I don't mean the look of it (although that is fine as well) - I mean the temperature. I wore it under a short sleeved shirt today thinking it would keep me warmer, but it actually had a cooling effect on my arms. Which is GREAT - but I needed to wear a light sweater today for warmth (if I had just dressed for the winter season, like I normally would, it would have been fine). SO, thus far, I give it two thumbs up!

  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited February 2011

    Cookiegal - the back is pretty loose on me too, I just did a quick hem down the middle of the back to take out some of the slack...

  • cookiegal
    cookiegal Member Posts: 3,296
    edited February 2011

    I actually went ahead and ordered two more, a one arm, and a two arm in a smaller size. I start therapy next week, so I want to give them some choices what I should be wearing.

  • kira66715
    kira66715 Member Posts: 4,681
    edited February 2011

    Cookie, the owner of lymphadema sleeve co has a great return policy, so you can return the one that's too large.

    Kira

  • SleeveNinja
    SleeveNinja Member Posts: 178
    edited February 2011

    cookie- I take a size medium in the single arm and size small or medium (I have both, both are fine - not all that much difference) in the Wave.

    I am soooo excited that people are trying these . .  and liking them. 

    Kiss I just luv 'em!!!!

Categories