Really Scared

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Tommilyn
Tommilyn Member Posts: 6

I was just informed that I have been staged a 3c.  I am scared to death.  Been a 31 year old mom of a 2 year old and dealing with all of this is really frightening.  Is anyone else in my situation?

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Comments

  • beacon800
    beacon800 Member Posts: 922
    edited January 2011
    Sorry to hear your diagnosis and you are totally reasonable to be scared.  One thing, I have seen many reports from women on this board with your dx who are alive and well years later.  It is doable and they have great stories to tell.  Try and take it as easy on yourself as you can.  God bless you.
  • everyminute
    everyminute Member Posts: 1,805
    edited January 2011

    I know it is scary but the good thing about us stage 3ers is we get it all - no grey areas with us - we get everything and the kitchen sink and many, MOST, of us do very well for years and years....read the pinned post at the top of the stage 3 board (stage 3 over 5 years) and there is a success stories board as well (I think on the inspiration page). 

    I just met a woman last night that was diagnosed Stage 3 (I think - she said the docs told her she was stage 4 but it was a large tumor in her breast and "many" nodes) when she was 36 - she is now 46 and started running last year. Her grandchild just had a baby! 

    Take it one day at a time and come here for support.  Realize though, women who are doing well years and years later are out running and taking care of grand children - not posting here!

    Good luck!

  • anonymice
    anonymice Member Posts: 532
    edited January 2011

    These ladies are absolutely right, and you have every reason to be as hopeful as you can.  The hopefulness is hard to come by at first, but then you realize that they are doing amazing things every year - not things that might save our grandkid's lives, but stuff that is saving our lives now.  

    Also, chemo sounds so, so scary but I am having it now and the side effect drugs are absolutely amazing!  

    There is so much hope and more every month, and you'll learn so much so quickly and most especially that this is NOT a death sentence.  

    It sucks that you are so young, but look under the forum index and you'll find groups of ladies in your age range and, unfortunately, younger as well. 

    (((Hugs)))) to you.   

  • AgentMo
    AgentMo Member Posts: 72
    edited January 2011

    I am also only 33 and here I am with breast cancer Stage IIIa. I am also really scared. Unlike you, I  do not have children and most likely due to my diagnosis I won't have them in the future either. This is breaking my heart. I think you can draw so much strength because you know you are also doing it for your child. I don't think you can switch to being hopeful straight away, so the best way to deal with your situation might be simply to do what you are told to do simply because someone says so. I wish you all the best for your upcoming treatment.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2011

    First, here's a huge hug for you, Second, I confirmed yesterday that I, in fact, was a Stage III and not what I wrote on my profile, oops, sorry.  I also had a 10X14 cm tumor in my right breast, now almost 5 years out (Mothers day is my Anniversary date) and my numbers and such couldn't be any better, I will be posting my STORY when I hit that date and am happy to say, just stay positive, fight the fight and give it your all, I have 2 sons, had been going through abuse then as well with my X, ran my own Landscaping Business and had more on my plate and did it all alone, I traveled back and forth to WI from IL (5 hr round trip) for all, chemo, surgery, rads, more surgery, and more and more surgery, I rode my motorcycle, worked, lived, exercised, had as much fun as I could have but I never stopped being ME and always had my 2 sons as my REASON to live and to get thru it all....now they are 12 and 16 and have become such well rounded young men, they know that their mother did as much as she could, even lying in a bed more than being up and around, nothing was easy and simple and it made me stronger....I had my days too, don't we all, but just keep kickin this thing in the you know what and keep living....I understand and by all right you should feel like you do, this site will help with support, to vent, to bounce things off of women like you and I who can totally relate when others cant's and won't.

    Expect many changes around you, friends, family, co-workers, children, partner, etc. it's going to happen and YOU will do just awesome!!!

    We're all here for YOU and always will be.....PM me if you would like. 

    Innocent

  • LindaLou53
    LindaLou53 Member Posts: 929
    edited January 2011

    Tommilyn you have come to the right place to find women who understand what you are feeling and who can also offer insight and advice on getting through treatment. You are right it is very scary, especially where you are now, newly diagnosed and just beginning to navigate the many decisions and emotions that a cancer dx presents.



    Now is the time to focus on being as aggressive as you can in fighting this disease. Your tumor pathology is of concern but also not unlike very many women on these boards who have successfully made it through treatment and are now many years out living good, happy lives.


    You will have many treatment tools available to you since your pathology should respond to surgery, chemo, rads and hormonals. My suggestion would be to hit it with the big guns now and thoroughly discuss all the options with your oncologist.



    Surround yourself with supportive, positive family and friends. Enlist their help to accompany you to doctors appointments as a second pair of ears when you are feeling overwhelmed. Don't be hesitant to ask for help with your childcare and home duties when treatment has you feeling worn out. Now is the time to devote the bulk of your energy to yourself and your treatments. Come here often and ask anything on your mind. No question or feeling you are having has not already been thought or felt by most of us here.



    As hard as it may be to believe now, you CAN make it through this! Yes it will be scary and overwhelming and frustrating, but day by day you will get through. One day you will be here like many of us on these forums, several years out living rewarding lives again, but never forgetting the journey it took to get here.

  • Pure
    Pure Member Posts: 1,796
    edited January 2011

    Hi there,

    I am 3c diagnosed when I was 36 and pregnant with my 4th child. He just turned one, I am doing great and you will too...Right now take it minute by minute until you can take it hour by hour then day by day. Take baby steps, have hope and fight. As you go through chemo nourish your body with healthy food and exercise and come here to us to talk. We will all be here for you!

    You can do this and we will help when you can't.

    Hugs!

  • Letlet
    Letlet Member Posts: 1,053
    edited January 2011

    Hello, I am not stage III, I am stage IIb but I am 31 years old and I have a 5 year old daughter and 2 year old son. I was diagnosed last year and yes I was scared! I am almost done with chemo, something that I thought would never come. The fear comes and goes but you learn how to go after it with a baseball bat in your head!!! It will not go away but you will learn to live and deal with it. I am doing all that I can to be alive for my husband and kiddies and that helps me deal with things.

  • Ellie1959
    Ellie1959 Member Posts: 316
    edited January 2011
    Hi -I'm a Stage III survivor - 5 years now and believe me I was scared to death. My oncologist told me I had an aggressive cancer and he wouldn't relax till I hit my 2 year mark - well he's relaxed now. It's hard to believe but down the road you will start to feel like a survivor - I wouldn't even say the word for the first year I was so afraid of jinxing myself. Just think of the surgeries, chemo and radiation as weapons - yes, they can suck but that is because they work. Not to sound trite - but I really believe "that which doesn't kill us makes us stronger" - Hang in there - no one is a bigger baby than me (ask my husband and kids if you don't believe me) and I made it - and you will too!Kiss
  • kim40
    kim40 Member Posts: 904
    edited January 2011

    Hi there, first of all, welcome to the club that no one wants to join!  You will find great support from these ladies on the board.  They have been there for me every step of the way.

    Being scared is a normal reaction.  I was scared out of my mind when I was first diagnosed.  It doesn't feel like it right now, but it will get easier.

    One thing about being d/xed with Stage 3, the kitchen sink and then some gets thrown at us.  We get the full meal deal, and I see you are Her2 positive, so you will be receiving Herceptin as well.  Herceptin is what we call the "mircale drug" and has kept many of us alive and kicking.

    I'm just over 2 years from being d/xed.  I check in with the girls every so often and then I disappear for a while, as I am out living my life!

    Hang in there.  You will get through it.

  • weesa
    weesa Member Posts: 707
    edited January 2011

    First of all, it is totally okay to be frightened; we all were. And honestly, I still am, maybe not as acutely as I was at first, but there is a chronic scariness there, buried under a lot of good things.

    Your fear will give you energy and motivation to hit this thing hard. We will all be here with you for the trip.

  • somuch2live4
    somuch2live4 Member Posts: 2
    edited January 2011

    It is okay to be afraid, I am 29 years old, and also have small children, 3, 5, & 8. Some days are better than others. On those days I feel like, 'gosh I don't want to get out of bed', my children give me motivation. Use your 2 year old as your motivation. Don't think of the what ifs. It will drive you crazy.

    I haven't had surgery yet, so I'm unsure of my staging, but I always think to myself, I don't have cancer, cancer has ME! YOU WILL WIN!

  • littletower
    littletower Member Posts: 333
    edited January 2011

    So much great advice on this board I'm not sure what I can add. Except that we've all been in that place filled with constant fear. And many of us still visit on a regular basis! Be easy with yourself, put one foot in front of the other, take in as much love as you can, block out the silly, negative people (it's remarkable how insensitive some people are, that's their problem, don't let them make it yours), watch stupid TV when you can, and you will get through this. Like the women say, there are loads of positive stories on these boards and an equal amount of wisdom. Use this resource and whatever other resources are offered to you. Hugs to you.

  • pip57
    pip57 Member Posts: 12,401
    edited January 2011

    It is definitely a scary place to be.  I realize that I am just echoing above posts but it is so true that there are so many positive stories out there.  Don't put too much stock in the stats.  Most are out of date and treatment has changed dramatically in the last few years.  Yes, you will have the kitchen sink thrown at you.  But that means you don't have to weigh the pros and cons so much as if you were a lower stage.  It needs to be done, IMHO anyways.

     I wish I was near you to help you with your 2 year old.  Please learn to ask friends and family for their help.  They will become another component of your treatment plan.  Sending hugs. 

  • Kathleen26
    Kathleen26 Member Posts: 210
    edited January 2011

    It IS frightening, and you shouldn't be sorry to admit that.   Take up everyone's offers of help that you can, and don't try to do it all.   You'll find out quick who your real friends are, by who's really there for you when you say...yes, as a matter of fact, there is something you can do.   With a toddler, you've got to make sure you're carving out enough time for you to take care of yourself...so you can get through this and take care of your little one.

    My onc said to me on the first day I met with him: this is serious, but "doable".

  • jenn3
    jenn3 Member Posts: 3,316
    edited January 2011

    It is overwhelming to find out you've been diagnosed with cancer, and stage III.  Like the many other women have said - the drs will throw everything at you, surgery, chemo and radiation.  Again, like the others said, take it one day at a time, distract yourself, watch a silly movie or if all else fails have a piece of chocolate.  I know it's hard and we've all done it, but try to stay away from and not focus on statistics, it will drive you crazy.  Make sure that while you're searching the internet for valid information stay with legitimate sites. 

    This is the time when you ask for and accept help, you will need it.  Don't try to handle it without help......the simple act of someone cooking a meal, weeding a garden or taking your child for a few hours to play will help you and your family.  And.......suprisingly enough chemo is doable, there are many, many meds to offset the SE's and help you get through the bad days. 

    This is a wonderful place for support, help, rants, questions and just rambling on a bad day.  I couldn't have gone through all of this without these boards and women. 

  • elmcity69
    elmcity69 Member Posts: 998
    edited January 2011

    These courageous ladies have said it all, so my two cents is, I'm praying for you.

    Take it a day at a time. Hell, there were days when I took it 5 minutes at a time, because that was all I could manage. it is YOUR journey. You, and no one else, gets to decide how you handle it.

    My children are 9 and 12. I just tell myself every day I'll be planning their college graduation parties and then some.

    hugs

    j

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2011

    Tommilyn,  Everyone here will help you with your fear.  We've all experienced it and still do.  You're in a great place.  Hugs to you.

    image

    Barb

    "A Hug From Pooh" Print

  • negirly
    negirly Member Posts: 318
    edited January 2011

    I was 38 at Dx (but my cancer had most likely been there for years)... Listen to the ladies here.  They are right.  You can and will get through this.  For me the worst part was loosing my hair but it does grow back.  Be aggressive and trust your doctors.

    Hugs

    Karyn

  • mcsushi
    mcsushi Member Posts: 174
    edited January 2011

    I was 30 at dx and I'm turning 32 in a few weeks. I coming up on 1year since diagnosis and I remember all too well how freaked out I was to find out I was stage 3. It's hard but certainly not hopeless. I finished treatment in the fall and I'm doing great. Just reinforcing what everyone else is saying, we were all where you are and we made it by taking it one day at a time. You'll get there too!

    ~Colleen 

  • Hope_M
    Hope_M Member Posts: 261
    edited January 2011

    I hope that my story encourages you! 

    I was 39 at diagnosis (IIIC) with 12, 10 and 4 year old sons. 

    I celebrated my oldest son's 20th birthday last fall, and my middle son turned 18 last Friday.  In April, our youngest will enter his teens!

    I will be 47 in March and an 8 year survivor in May.

    The treatments are actually beginning to be a dim memory.  (Although my memory is so bad now that most of them are dim!)

    Good luck and God bless!

    Hope M.

  • Tommilyn
    Tommilyn Member Posts: 6
    edited January 2011

    You all have inspired me to stay positive and fight this head on.  I begin chemo on 2/18.  They are doing AC + T, then Herceptin.  I cannot put into words how grateful I am to have all your support and suggestions.  Lots of love to all of you.  I will definitely be utilizing this site frequently now.

  • Gitane
    Gitane Member Posts: 1,885
    edited January 2011

    I'm a bit late getting here, Tommilyn, but I just want to add my love and support.  Nothing I could say could add to the wonderful ladies here.  Just know we care. G.

  • anonymice
    anonymice Member Posts: 532
    edited January 2011

    Great, Tommilynn!  You will start getting better in just a few weeks.  I always hesitate to post this since it's a bit TMI, but I have just finished my 4 cycles of AC and on to Taxol and Herceptin, and have not thrown up, been in significant discomfort, lost a night of sleep, or had even one really bad day.  And I have a "tender tummy", too - nice way of saying I hurl easily, lol.  Feel free to PM me if you have any questions or anything.

    My oncologist told me with the great side-effect drugs they have today, 10% will still feel quite unwell, 20% of people will feel pretty much absolutely fine, and 70% will feel well most the time, with a down day here and there.  

  • DCMom
    DCMom Member Posts: 624
    edited January 2011

    Dang lost my long post, but ditto on what everyone else has said.  You are getting the best stuff and it will not be as bad as you expect (movies are all about the drama :)).  Try to exercise throughout your chemo.  I hit the elliptical every day.  I liked to visualize my blood pumping the meds all over my body to get every stray booger.  It also helps to minimize depression and will start good habits for the rest of your very long life!

  • anonymice
    anonymice Member Posts: 532
    edited January 2011

    DCMom is so right, I think.  Start off exercising, push yourself to do it (obviously within reason).  It makes all the difference in the world.  I am experiencing the bad part of that now - a month off of my regular routine of an hour of walking every day - and I can feel the difference.  It's easy to slack off but it statistically proven to make your treatment work better and help keep it from coming back.  I am all for enjoying life every day and if I want a banana split I will certainly have one, lol...but don't slack on exercise.

  • kimber3006
    kimber3006 Member Posts: 586
    edited January 2011

    Tommilyn - I just wanted to chime in a welcome, too.  I was diagnosed over a year ago at age 39 with a 4 year old son.  I remember the first thoughts that came to my mind and how scared I was.  I also remember how much better I felt after I found this board and these wonderful women.  Like DCMom I hit the elliptical every day except chemo day during treatment.  It felt good to be able to DO something to help myself in such a big way.  The emotional stuff at the beginning is the toughest part, I think, way harder than chemo.  You'll be on your way to getting well soon!

  • faithfulheart
    faithfulheart Member Posts: 544
    edited January 2011

    Dear Tommilyn,

    I was dx a 3C at 41, my son was 4 my daughter 8. I've been married 21 years, it took us 11 to have our babies, so I am a little older mom. My very first words were, I am a mom . I have kids to raise, you got the wrong gal !  I know it is so scarey, I second these wonderful ladies, one day at a time. There are days it's hour to hour. Its been 16 months since they took out my cancer,

    they through the big guns at me, and thats what you want my friend,   you are young and you can and will handle it!  You will be in my prayers, I believe in the power of prayer!!  Your 2 year old will

    give you the strenght and the will to fight, and you will win this battle. I am so sorry you joined the club nobody wants to be a part of.  I will tell you these sister's are the strongest you will find. They have helped me so much!

    Come here we,  are all here for you!,

    May God bless you with lots of peace !!!!

    stephanie

  • lkc
    lkc Member Posts: 1,203
    edited January 2011

    Hi Tommilyn,

    Just reading this .as I am so busy living my life AFTER BC.

    Dxed, May 05  Stage IIIC . lots if nodes, blah, blah blah. I am well and back to " me".

    my advice is  take good care of yourself now . This is your time.

    Tx will go quickly.

    Do not serach the web, data is old, out of date and scary.

    come here often for support and accurate information.

    you will get through this and we'll help you.

  • Cat123
    Cat123 Member Posts: 296
    edited January 2011

    Sending you a big cyber hug!  I'm scared too.....the oncs never told me my stage but I know from the 'details' that I am stage III.  I think it's best to not think of the stage as I don't really believe that it is a  predictor at all.  I have read great stories about women like us....sometimes with very large tumours, lots of lymph nodes, who are alive many, many years later and other stories about Stage I or II sisters who don't fare so well.  I think doctors 'stage' as best as they can for treatment purposes but it doesn't mean anything in terms of longevity.  I am currently doing dose dense ACT....3 sessions so far with minimal side effects.  I was sitting next to a woman the last go round....she must have been around 70 ....her bc was already stage 4 when she was diagnosed with mets to her bones.....that was 9 years ago!  She is still going strong.  I think eating right, exercising, reducing stress helps alot too.  i have also been trying to go for hour long walks during chemo or a light workout dvd.  When I get scared and down....the women on this board help so much!  Don't forget....as we are going through this right now....there are new treatments being tested so some other new treatment will come out in the next two years.  My onc has suggested I go on a trial for Metformin (the diabetes drug) as early trials indicate that this drug can keep bc from coming back!

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