Emotional Issues From BC PTSD?
How has BC affected you emtotionally. Anyone with PTSD from the surgeries and scarring? I just wanted to see if I"m alone in feeling like this.
I had PTSD due to severe trauma in my childhood, and did not get diagnosed until another severe trauma in my adult life triggered a major depression and panic attacks. Getting therapy and some help to modulate those feelings with an antidepressant and antianxiety meds. was what helped me to heal. The thing is that with PTSD, you can have the most beautiful home, strong marriage, and wonderful kids, but even so the symptoms can persist inside. Then came the bankruptcy DH had to file after losing his business. The day before was the cancer diagnosis. So in the year of diagnosis surgery and treatment, DH and I faced bankruptcy, breast cancer, loss of our beautiful home we raised our children in, and a difficult move to a smaller rental home. This year was a tremendous year of loss of two things a women holds dear. Her breasts and her home. It is very painful to even type about it let alone speak about it. Dealing with the breast cancer has been that much harder. Thanks, for listening.
Barb
ShanagirlDiagnosis: 1/13/2009, IDC, 5cm, Stage IIIa, Grade 1, 2/18 nodes, ER+/PR+, HER2-
Comments
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PTSD is my middle name, I think, and I can't imagine how most survivors don't have it, in varying degrees.
Somedays, I cry without "reason" - hearing a song my son loves, or watching my daughter ride her skateboard in front of the house. Thinking back to when my children were babies and I didn't have cancer. I don't even like looking at pictures of myself before my diagnosis, because all I can think is, "I didn't have cancer then". And I wish like hell I could go back in time.
That being said, most days I feel positive, healthy, and happy. I have an amazing husband, circle of girlfriends, and wonderful co-workers. My doctors are a wonderful bunch, too.
I think PTSD is part of the territory. I wish there was more talk about it, however. Much is written about cancer and depression, but honestly, I think I've had PTSD symptoms as strongly as I've had depressive.
Anyway, my long way of saying: you're not alone. I'll say a special prayer for you today.
hugs
janyce
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Barb,
I second what janyce said, I have a really hard time looking at pictures pre bc. Its like looking back and thinking if I only had known maybe I could have done somthing different!
The kids another big trigger! My son turned 6 yesterday, got his big boy haircut, When my husband and my dad wheeled in his new bike, and he jumped for joy, I felt like an emotional basket case! I want to see them grow up so bad. I thanked God all day yesterday. I thanked him because I was seeing my son turn six. My daughter will be 10 in april, she's a tween, I will be here to see that too! So I guess what I am trying to say is, yes I can so relate to PTSD!
However, I will pray for all of us that each day will get easier and easier!
Group Hug
stephanie
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Hi Barb,
Thanks for posting about PTSD-I don't think it's talked about enough, IMO. It has been over 2 years since diagnosis for me, and I still am going through feelings of PTSD_fear, anxiety, horror, regret...not all the time, but things can set me off, like seeing a photo of myself pre-breastcancer. Sometimes when I'm talking about growing older/retirement, etc. there's a little voice in my head that says, "if you live that long."
We recently almost put our house on the market and to move to another house, not even another town, just another house, and I had a little breakdown. It brought up intense fear and uncertainty, which is related to the PTSD. Change is hard for me to handle-I've recently been offered a better job with more responsibility, and I'm really afraid of the change.
Best wishes for our serenity and healing,
Cat
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I had PTSD due to severe trauma in my childhood, and did not get diagnosed until another severe trauma in my adult life triggered a major depression and panic attacks. Getting therapy and some help to modulate those feelings with an antidepressant and antianxiety meds. was what helped me to heal. The thing is that with PTSD, you can have the most beautiful home, strong marriage, and wonderful kids, but even so the symptoms can persist inside. Then came the bankruptcy DH had to file after losing his business. The day before was the cancer diagnosis. So in the year of diagnosis surgery and treatment, DH and I faced bankruptcy, breast cancer, loss of our beautiful home we raised our children in, and a difficult move to a smaller rental home. This year was a tremendous year of loss of two things a women holds dear. Her breasts and her home. It is very painful to even type about it let alone speak about it. Dealing with the breast cancer has been that much harder. Thanks, for listening.
Barb
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I felt traumatized during treatment (never a big fan of needles), but really, I went back to being happy-go-lucky "me" within months of treatment ending. Sure, I have moments when I'm pissed about the tamoxifen and oophorectomy turning my midsection into mush (I could lay off the ice cream; that would help, too!), and I wonder if certain aches are more than they seem. I can honestly say that driving the local interstates here scares the bejeezus out of me far, far more than having an onc visit, xray, blood work, etc. Change has been a constant in my life, as have hard times, so having bc seemed like just another battle to slug my way through.
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My diagnosis was so detrimental to our finances that I get panic attacks when I walk past a bank or the mailbox. No kidding! Dealing with cancer affects so many facets of our lives... I hate when I get caught up in financial worries, but this is part of my "new normal".
It is comforting to me to read how others struggle with the day to day issues that add stress onto our already stressful lives. All I hear from well meaning friends is how grateful I must feel that my health is good... I am grateful, but the other struggles in life continue and are pushed a little deeper because of my medical issues.
Thanks for letting me rant, Jackie
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Sherri ~ Thank you for your kind words.
Celtic ~ How true is that! "BC seemed like just anotehr battle to slug my way through"
jdootoo ~Yes other stresses are felt more deeply when BC and all it's issues are there.
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my experience of this life (after 58 years) is that stuff happens. if you live long enough...things are going to come your way that rock your boat. it is all very traumatizing. being diagnosed with cancer is traumatizing...going through aggressive treatment is traumatizing. but, there are other things that happen in life that are also very difficult. i think that having a life threatening disease is the bottom line when it comes to trauma, i also think..and have experienced...that you reach deep inside to work through this stuff to get to the otherside.
i liked what Celtic said; you just keep slugging the battles. my experience is just that; you keep slugging away...getting back on the saddle ....otherwise...you just really don't have much at all if you give up. life is life. each day is each day. that is really all we have. when i am alive....all i want to do is enjoy my loved ones...my pleasures...and the moment. that is really all we all have;' cancer or no cancer.
hang in there. do one day at a time. never give up.
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Check out this thread- we have been sharing our experiences dealing with post BC depression- slightly diff than PTSD- but the core of it is how hard it is to get past the BC emotionally
http://community.breastcancer.org/forum/102/topic/759882?page=15#idx_448
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I had emotional issues before diagnosis, but during treatment...and after...I never experienced anything like it before. I was 35 when diagnosed... I would be in the car, and suddenly, woosh! I was back in the hospital. Many times I had to pull over, and "re-live" events in my head..sick to my stomach. It was like I was only vaguely aware of the reality everyone else was in...the images and feelings in my head were so overwhelming. I had nightmares too, but not until chemo and rads were over. The nightmares, I felt, were my subconscious processing the whole thing.
My chemo and rads were over summer, 2010. Going back to grad school after everything, and with no hair, was *extremely* difficult. Seeing everyone who I had known when I had been diagnosed...being in the same places...Hearing people complain about what I now feel are trivial issues...I was/still am over emotional. Overwhelming. That's the best word I can use to describe it...But I concentrate on my work...
AND...it HAS gotten better!!! Each time I face another thing that reminds me of the past, I experience it...cry...move on. And my emotions are lightyears better than they were a just a month ago. I truly believe that the psychological stress we go through during this event does not last forever.
I drew a lot...that helped...and I prayed. Still have issues, but doesn't everyone? So greatful that life is here...and yes...there should be more studies on PTSD and cancer survivors.. I extend sincere empathy and good wishes to you all...may we all feel better ASAP.
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Barb...I have not been Dx with PTSD, but I believe that is is an appropriate description for me....I have made an appt with a therapist who specializes in EMDR (eye movemovement desentization ) which is a Tx for PTSD...when I google PTSD, I'm not sure that I fit the cirteria, but then again, I do....I don't have a full range of emtions....can't cry, don't really feel...well other than anxiety and anger....I need to get some resolve....so I'm hoping that this therapist can help...I think that between the BC and the resulting loss with work all add up to PTSD...I'm not sure I ever truly mourned the BC....I was stoic through Dx and Tx.....but its been soooo hard since finishing Tx....maybe its all just cumulative.....I'm sorry that you lost your house....Hugs,
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Karen, maybe the stress of it all has made you numb inside. I am that way, I disconnect or dissociate from the painful feelings,even. But then I also get feelings and flashbacks of the stressful events that make me feel upset and anxious inside. But I don't cry either. It stays bottled up as anxiety, I guess. I know it sounds terrible, but I feel more pain and anxiety over the loss of my home, more so than my breast. Is that nuts or what?
Barb
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Wow, I thought I was the only one that didn't cry much. Barb, I like you tend to diconnect, or disasociate too. And things seem so anticlimatic for me as well, when I should be thrilled or happy I don't feel much of anything anymore. I've been this way for a long time too, and think some of it is PTSD after the some major life tragedies. And BC is just one of the latest in a string of "bad" things that have happened to me. I just have to remind myself a lot of how many GOOD things have happened too. It can't be good to dwell on the bad s$#t all of the time.
Love you,
Sharon
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wow!! i'm NOT alone!! yeah.. big time PTSD diagnosed YEARS before b.c... but after tx... doing als(i,m er+) it just is like WAY worse!! i spent years going to therapists, etc. to deal with my childhood stuff; only to discover that post tx. bc is the biggest BEAST i've ever tangled with!! i'm much older,than most of you (being 60 last march) ; my kids don't want to deal with my cancer.. their STILL testing there mother?? they don't get that they'llbe "watching " me for my whole life now. I have another chronic, incurable disease, and they're just burned out...my life is my grandchildren now. But, yeah, back in therapy, with a guy who specializes in bc survivors. mostly, i think it'll take time. and LOTS of it... was really glad to read all your posts.. wishing you all good health mental, and physical... 3jays
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I get very emotional even now. Weirdly, if I start to recall certain traumatic moments, like the last moment in the OR before the anesthesia took me out, I will feel tingling sensations across my chest where they did the surgery. Mind and body...so powerful.
This bad experience has made me a little more thoughtful. I definitely know that most of what I worry about (that isn't health related) is just crap and I don't need to worry about it, it's just a habit. But I still am a hypochondriac. I often think I have some new horrible thing wrong with me. It's very frustrating.
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Shana,
I don't know how anyone could go through the stuff you've gone through and not get PTSD. I hope that you find some good medicine to help you out, and that life starts going your way again. We've all been through so much. I think it's amazing that we find ways to be optimistic in our lives and find new ways to be happy.
Big Hugs
Bobbie
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