ER/PR+ gals, what are you eating/not eating?

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mdg
mdg Member Posts: 3,571
edited June 2014 in Stage I Breast Cancer

I just wish I could find some good, solid information on nutrition relative to my BC DX.  What resources have you found helpful in your search for safe foods?  I did the free nutrition consultation offered by the American Cancer Society, but I did not get that much from it.  Quite frankly I am very healthy (other than BC) and am a fitness professional.  I have had good nutrition habits for years and years and I still got BC. The nutritionist didn't offer too much more than I was already doing. I have been reading some information on estrogenic foods on this website:  www.foodforbreastcancer.com and was wondering if anyone else has read this website.  Any thoughts about the foods listed to eat or avoid for ER/PR+ BC?  I just feel like there is such a lack of information that seems reliable. 

I went to the grocery store yesterday and felt paralyzed....I don't know what to eat anymore that won't potentially kill me.  How are you handling diet/nutrition?  Anyone find other resources that were reliable and helpful?    I just want to do what I can to be healthy - not be a freak the rest of my life. 

And by the way.....giving up wine just stinks!  I know everything in moderation and that alcohol is not recommended after DX of BC, but come on!  How are you going to take a girl's wine and her boobs?  Some kind of sick joke hu?  I have not had much wine since DX so I had a glass last night.  I couldn't even enjoy it.  It felt like I was poisoning myself with every sip...... guilt and fear all in a little glass of wine?   Before I just use to get "tipsy" and laugh a lot. 

Comments

  • REKoz
    REKoz Member Posts: 590
    edited January 2011

    Hi Maria- Guess I'll start since no one has chimed in yet. Of course you know that you will get several perspectives on this. There are those that have completely changed their diets, eliminated meat and/or diary, gone vegan, vegetarian etc. You're bound to find valuable info. on the "Natural Girls" thread.  Some won't do much of anything different reasoning that there are thousands of things both controllable and uncontrollable that could have caused their bc.

    I've made changes, mostly with the thought of avoiding those things that fuel estrogen since I was 90% + ER and PR. I'm sure that there are those that think I don't do enough but as long as I am comfortable, that's all that matters. Giving up dairy is NOT an option for me. Milk and butter are too important to me as is the 1/2 and 1/2 in my coffee and just about any cheese. So, I compromise by buying these items organic now. That alone really adds up $$$ which I don't have! Also meat, I do eat less and purchase organic WHEN I CAN. Some weeks, that's not possible so the best I can do is moderate. Same with veggies and fruit which I can never seem to eat enough of. I have also been using organic as much as possible when it comes to make up, lotions, shampoo, hair color etc. Seems many of these products have chemicals that encourage or even produce estrogen.

    Lastly but not necessarily estrogen related is that I will no longer microwave ANYTHING in plastic. I firmly believe the reports of the plastic chemicals leaching into the food. If it comes frozen in plastic, I transfer it to glass. I thought I'd be better in my conviction not to stand right in front of the micro when cooking. My impatience weekness has me right there watching! So many things you do without thinking! I am improving at recognizing that and moving when I do!

    Oops, one more thing I've changed is getting the natural cleaning products. I believe there is something to be said for the long term effect of all those chemicals breathed in or seaped in through the skin.

    Otherwise after 2 years, I believe I have moved on as much as one can after going through this without over obsessing that it will come back. I do what I think may be of benefit to keep it away while not denying myself the things I love. And I pray....a alot!

    My best to you,

    Ellen

  • InTwoPlaces
    InTwoPlaces Member Posts: 354
    edited January 2011

    Read the book "Anti Cancer - A new way of life" by David Servan Schreiber, MD,PHD.

    It's a really good read and talks a lot about what to eat and what to avoid, but also about chemicals and about mind/body.

    This book really changed my way of thinking.

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited January 2011

    Maria.... I know this is all new, but my counsel would be to relax.  The truth is that most of us really don't know what the factor that caused us to get breast cancer.

    I suspect you are doing most things right.  And I know you are scared.

    With the exception of soy and flax, the diet we should be eating post treatment is the one we should be eating anyway so no major changes.  If you were living on Cheez Doodles and orange soda, I would be saying something else.  But I don't think you are.

    I thought long and hard on this topic about a year ago.  My conclusion was that the worst would not to have my cancer return, but to give up everything I enjoy in life, and then to have it return.  So I contunue to eat as before.  I drink wine too.....just couldn't give it up, although I did for chemo.

    One funny thing.  A number of years ago, I tried to up my fruit and veggie servings to nine a day.  My body just couldn't handle the excess fiber.  So concluded I was fine as things are.

    Just had some brie and an apple for an early lunch prior to heading out for a walk.

    Feel better.....and enjoy life.  - Claire

  • Gitane
    Gitane Member Posts: 1,885
    edited January 2011

    I've been buying good quality oil, that is Expeller Pressed Canola Oil (and there' s a mayonnaise made with it, too), and First Cold Pressed Extra Virgin Olive Oil. I think Spectrum is the best brand.  Here in California it's sold at Whole Foods (aka whole paycheck!), and Henrys.  In addition I buy organic, grass fed meats and organic dairy and eggs.

  • tougherthanithought
    tougherthanithought Member Posts: 454
    edited January 2011

    Hi!  I echo what many have already said.  Pre-BC I ate healthy most days, exercised and enjoyed wine in moderation.  I do little differently, now, except buy organic more often and have switched some of my beauty products to less hazardous ones.  I have enjoyed wine for years and still do a couple times a week.  If I give up everything that brings me pleasure, I would not be a happy camper, so I say try not to get too hung up on being perfect.  JMO

    Sherrill

    ps: As I write this, I am enjoying a lovely glass of French redWink

  • D4Hope
    D4Hope Member Posts: 352
    edited January 2011

    I stopped eating all meats and dairy that had growth hormones added to them. Organic is expensive but worth it. Byrnes Dairy also has a hormone free milk.

  • calamtykel
    calamtykel Member Posts: 1,187
    edited January 2011

    I really like that website - foodforbreastcancer!  I have been using it a LOT these past few months!  I have made some changes. No more red meat for my family except for the kind with no hormones/antibitoics, etc added - and even then only like once a week (especially since it's so expensive!) .  I have cut my own meat consumption WAY back- even chicken.

    I eat lots of eggs (since we have our own laying hens) and I agree with whomever said that about milk -I tried - I cannot give it up.  We get our milk from a raw milk dairy and it's so good!    I tried, but I can't go without it.  I used to make all my own yogurt, etc.  I have cut down on milk, but I still need it in my coffee.  The studies that were done on milk werent' done on raw milk, so I don't know if I'm being "safe" or not - of course, in hot coffee, then its pasteurized by the heat anyhow.......

    Speaking of which, I switched completely to organic coffee about a year ago when the regular kind was giving me headaches, but I also got a stainless steel percolator for making it in - no more paper filters and plastic coffee makers.  I don't eat much sugar but then I haven't for about five years now anyway, and no artificial sweeteners (never did those anyway either.)  

    I have stepped up on the sprouts - I've been growing broccoli sprouts, and I eat a lot of broccoli rabe.  I really love it cooked with olive oil and salt and pepper!  I could eat it every day.  I also make kale shakes (they're a little harder to get down) but throw a few frozen cranberries and they're not so bad!  Cooked kale is good also.  It's surprsingly sweet. 

    I see a nutritionist and he has me on a shiitake/ganoderma mushroom supplement - both are highly recommended by foodforbreastcancer.  And I buy white button mushrooms whenever I can.

    I agree about the chemicals - I'm trying to avoid them also.....it's not always easy.   There's also a lot in makeup, shampoo, soaps, lotions, etc.  I just use plain raw coconut oil for a moisturizer and have been using Dr Woods castile soap for washing my hair (peach fuzz right now) and body. 

    I think you could REALLY drive yourself crazy with all of this and I most certainly do at times.    And a lot of it comes down to the money - organic can be SO expensive!!  With four kids and we're already on a super tight budget it's never easy.   You can do everything right and still get bit again.  :(  You have to enjoy your life also and not live in the shadow of guilt and fear for everything that goes into your mouth.  :)    Cause anxiety isn't good for us either!

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited January 2011

    I was diagnosed Jan 3 of this year, still in the process of seeing the specialist/surgeon, deciding on treatment, ect.  I'm already reading the "Anticancer" book I got from the library; very informative.  Will make some dietary changes: more citrus fruits, purchased organic milk & eggs.  The milk tastes so much better than the "regular" milk at the store.  I'm not a big milk drinker, but I use it in cereal & cook with it.  I am lactose intolerant, but the organic milk does not disagree with me like the un-organic kind.  Not sure why.  Also not sure which stores sell organic stuff, found some at Krogers but not Walmart.  Have not found a place that sells organic meat, so I have eaten much smaller amounts since diagnosis.  

    Sugar was a big thing for me.  Yesterday we celebrated my son's 18th birthday, I allowed myself a slice of cake; it was the first sugar I had for almost 2 weeks.  Cheez-Its were a favorite treat of mine, but I won't be scarfing them down any more.  I was always aware that nothing should be microwaved in plastic, and I always stored food in the fridge in non-plastic plates & bowls, so some positive habits are in place.

    For the posters who use organic makeup, lotions, shampoo, hair color, ect.,can you please supply name brands that you use and/or where you find them?  I would like to become more organic-minded when I use these kinds of products as well.

  • susand
    susand Member Posts: 226
    edited January 2011

    I really liked the Anticancer book and after reading it purchased the Foods that Fight Cancer book that it recommended...its great and more specific with dietary recommendations. A database i'm using to find organic/safe cosmetics and all skin products is: http://www.cosmeticsdatabase.com/.  Calamatykel mentioned organic coffee which if you drink coffee or tea is a great idea.  Apparently those crops are heavily sprayed with pesticides.  I also wash my fruit and veggies with a mixture of half vinigar/half water to remove wax and pesticides.  The mixture is also a great, innexpensive, natural way to clean counters.  I see an integrative oncologist (in additional to my regular oncologist) who said that a combination of 30 minutes of exercise everyday (the way he put it is MAKE time for it, like it is a 4th meal) with 5-7 servings of fruits and veggies incorporated in your diet is the best thing we can do to help ourselves.  I try and do everything in my power to stay healthy.  I think that is the only way that if a recurrence every occurs for my I wont blame myself and say "I wish I would have done this or that"  Also, I think a few glasses of red wine a week is fine.  Unfortunately for some reason wine and arimidex dont mix for me.  I just end up feely dizzyEmbarassed

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited January 2011

    susand, thank you for recommending "Foods that Fight Cancer".  I am going to get it.  I'm still reading "Anticancer" but in doing so, I kept thinking it offers fabulous insights and gives good overall information and direction, but I am one who benefits from more specific instructions, too.

    Also, thank you for the safe cosmetics website, I've bookmarked it and plan to look further into it soon when I have time.

  • motherofpatient
    motherofpatient Member Posts: 240
    edited January 2011

    I think the food issues depend on your ER, PR, and HER2 status. From the sites I have been reading (MD Link, Doctors Guide to the Internet, and BC's Ask the Experts) soy raises estrogen, the issue with dairy is what do they feed the cows, cooked is better than raw for veggies and fruit due to bacteria issues, antioxidents compete with Herceptin for binding to the site necessary to block the HER2 so 2 docs told my daughter to avoid them especially A,C, and E and green tea.

    On the other hand, the BC Experts recommend whole grains, legumes, broccoli, cauliflower and whoe grain oats whcih are thought to block estrogen.

    My sister raises all natural cows and from what she says, regular meat producers feed cows chicken litter - yes, chicken litter called fauter(not sure of spelling). Makes me think about becoming a vegan.

  • susand
    susand Member Posts: 226
    edited January 2011

    Motherof patient, I am HER- , so I do not know enough and have not read about anitoxidents competing with Herceptin.  I am ER/PR+. My oncologist did tell me not to incorporate too many antioxidents and green tea into my diet durning chemotherapy.  She felt that if they worked too well  they may kill of the drugs used for chemo.  My diet durning chemo was much different including more protiens.  As soon as chemo was finished I started with the anticancer diet and deffinately organic Japenese sencha green tea.  Lots of veggies, friuts, whole grains.  I cut out white flour and sugar.  And yes...organic organic organic...especially when it comes to things that are not cooked.

    ThedivinemrsM, I think you will like the Foods that Fight Cancer book.  Anitcancer was a great book.  It made me feel empowered but it did leave me thinking "how do I do some of these things?"  The two books work well together.  I hope you are doing well with this uninvited journey. Susand.

  • revkat
    revkat Member Posts: 763
    edited January 2011

    I eat food. Mostly plants. Not too much.  (fromMichael Pollan)

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited January 2011

    I buy hormone free organic milk and free range, omega 3 eggs.   I can't afford to shop organic, but I make a point to at least buy the hormone free stuff - natural chicken and grass fed beef when I can afford it.

    I have given up trying to give up soy - it's in literally everything.  

  • ScienceGirl
    ScienceGirl Member Posts: 207
    edited January 2011

    No milk / dairy, low protein, no soy, lots of cruciferous veggies, whole grains, little sugar.  I'll probably make myself insane with this and who knows if it will really make any difference, but at least I feel like I'm doing something.  (and I've lost 25 lbs in less than 3 months, that's my BC silver lining)

  • toni30
    toni30 Member Posts: 252
    edited January 2011

    I dropped soy milk in my oatmeal and switched to almond milk, which I actually prefer.

  • jan508
    jan508 Member Posts: 1,330
    edited January 2011

    I try to eat healthy, exercise daily and I have a glass of wine with dinner..I am trying the parben free route...

    Everything in moderation? 
    I don't know anymore..this could drive you nuts!

    Jan

  • marbletop
    marbletop Member Posts: 26
    edited March 2011

    I know what you mean about the wine, I used to have two glasses every night before I was diagnosed. Now, I basically lay off, but have my occasional glasses every other week or so. I eat lots of organic salads, I have a vegetable juicer, eat chicken , fish, and no red meats.I also lay off of sugar. Due to Arimadex or just getting older I have a lot more aches and pains. I have always been an exerciser and still exercise religiously. I guess everything in moderation is the name of the game. Not always fun. This disease definitely changes your life! After four years, I'm still trying to figure things out. Good luck to you.

  • marbletop
    marbletop Member Posts: 26
    edited March 2011

    I know what you mean about the wine, I used to have two glasses every night before I was diagnosed. Now, I basically lay off, but have my occasional glasses every other week or so. I eat lots of organic salads, I have a vegetable juicer, eat chicken , fish, and no red meats.I also lay off of sugar. Due to Arimidex or just getting older I have a lot more aches and pains. I have always been an exerciser and still exercise religiously. I guess everything in moderation is the name of the game. Not always fun. This disease definitely changes your life! After four years, I'm still trying to figure things out. Good luck to you.

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