December 2010 Rads

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited January 2011

    Iowa Sue glad your appt went well and I know what you mean about waiting but it is probably better for everything to heal before you have the next surgery.  My simulation was aobut 5K, my planning was billed at about 12K but I think my insurance only paid 8K of that.  I just found out that each of my rad sessions is about a thousand but I pay a copay of $30 each time instead of the deductible and 20%.  That will save me quit a bit but also does not go towards my decutible.  oh well at least it is less out of pocket for now but if I have surgery to fix my smaller boob then I would be better off the other way.  oh well I'll just deal with it as it comes.

    ageorgiadeb-I have not heard of aloe vera cream he probalby meant gel.  Make sure it is 100% not perfumes or added vitamins to it.  I have been using cream since the first day. My RO gave me a prescription cream but there are plenty of good things out there to use.  I use my cream, aloe vera after treatment because I like the coolness it gives my skin.  I have just added aquafor at night.  It is greasy so I would not want to use it during the day.  I started the 1st of DEc and right before Christmas ended up with a really bad itch.  Keep me up all night.  Used Hydrycortisone at first until that was not enough.  Then used a steriod cream that I had  over Christmas break and then they prescribed Kenalog for me and that has worked well.  If you have an itch just don't scratch and break your skin open.  Good Luck maybe they will give you more information

  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2011

    ageorgiadeb - Another good cream for itchy skin is Topicort - it is by RX only.

  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited January 2011

    Georgia deb - they do mean gel, but you need to find 98% pure aloe gel.  Do you have Trader Joe's?  It is available there.

    The question about underwire bra's - my rad onc said until you are not comfortable, you can wear a bra with underwires.

  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited January 2011

    Wow! I am grateful that I am Canadian...I have not seen a bill for anything...have no idea how much the breast cancer navigator, surgeon, oncologist, technicians etc. charge...I cannot imagine having to worry about how to pay for it on top of worrying about whether or not the cancer will revisit.

    As for the aloe vera gel, I bought mine in a big bottle at the local grocery store...used it liberally for the entire radiation event and then switched to eucerin cream once the radiation was over. I peeled and all those fun things but now, three and a half weeks post-radiation, my breast looks like mine again! Even wore my fancy, underwire bra today for te first time in months....things are looking up! (literally)

    All will be well folks.

  • mullaney55
    mullaney55 Member Posts: 6
    edited January 2011

    I just finished radiation on 12/23. I wasn't really tired until the last week and still now....although during the daytime hours, I'm fine. I used the gel my hospital gave me and cornstarch. I stopped the cornstarch around week 5 as my skin started to crack a bit in one spot from the dryness. No pain or soreness...just a slight itch. I'm two weeks post and all symptoms are almost gone...turning pink again! :)

  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2011

    mullaney55 -Congrats  on finishing rads.  So glad you made it through.

    The rad fatigue will hang around for awhile so be prepared.  I am 5 weeks post rads and the darn fatigue still gets to me.  I don't know what creams you were using during rads but keep using them for awhile.  The skin will get back to normal soon.

  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2011
  • toni30
    toni30 Member Posts: 252
    edited January 2011

    Debbie:

     My folks didn't tell me to use anything unless it got red but I ignored them and they later complimented me on how good my skin looked!  I use aloe vera gel (bought at Whole Foods) and Aquaphor, starting on Day 1.

    Good morning ladies - It's snowing in the Northeast.  Hope everyone had a good weekend with time off for our tired boobs.

  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2011

    toni30 - My moron of a rad onc would not let me use anything.  Thank goodness I ignored him as well and took the advice from the wonderful ladies on the Nov rads group.  I could have been in worse shape than I was.  Sometimes we have to take matters into our own hands.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited January 2011

    mullaney-congrats on finishing, I am doing the happy dance for you.  I will be finished in a couple of weeks and cannot wait.

  • Teklya
    Teklya Member Posts: 435
    edited January 2011

    I agree, living in Canada where all our medical treatments and appointments are covered by our medical program is unbelievable; I feel so blessed to be here.  I cannot imagine how I would make it through this horrendous time dealing with tests, diagnosis, surgery, post surgery, chemo (including neupogen shots) and now radiation and all that entails.  Not to mention the upcoming follow up appointments I will require and even think about a financial cost involved.  This expereince has been difficult enough to get thru without worrying about how I would pay for this care.  I applaud all of you for doing so.

    take good care and just breathe. . .

    Teklya

  • IowaSue45
    IowaSue45 Member Posts: 586
    edited January 2011

    Canadians- your health care sounds wonderful, I don't know much about it. I am wondering how much say you have in your care or do you have to do what your Dr. wants to do? For example Mx, bilmx or lumpectomy. Reconstruction - do you have a choice in what you can get? How many radiation tx. My RO said that more and more radiation tx are doing 3wks verses 5 1/2 so he told me that if 3wks is as good as 5 1/2 wks why do 5 1/2. I said 3 wks is fine with me. So he totally left it up to me, I just wondered if they give you the freedom like that or is there a standard that they use. The US is trying to come up with new health care and it is kind of scary.

  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited January 2011

    I read read read before all my appointments and went in armed with questions and information. We all agreed in my case that alumpectomy, radiation and tamoxifen was the way to go ...in Nova Scotia, the breast cancer clinic is amazing. They have two 'Navigator's' who push your file through ...I had no more than 10 business days between first mamo, second, biopsy, meeting with the surgeon and then surgery..and then another two weeks befor emeeting the surgeon again to get results...longest wait time was to meet the radiologist and oncologist and start radiation..but because we were all on the same page and it was pretty obvious that I was not going to have to do chemotherapy, I did not start radiation until 3 months and a bit after surgery...

     If I had said to the surgeon...'I want these puppies gone!' , that would have been my choice...while shewas happy that I did not want that option, since she said a lumpectomy is as good as a masectomy in my case...she also said at our post op meeting I took a lot as you requested...to make sure the margins were fine...but if when you hav ehealed there is a difference, we can easily get you on the reconstruction list to even things up! How would you feel about being a C cup?'

     So, all this to say I had choices....initially I had a male surgeon but he was going on holiday...told me he and the other male doc were the best but oh well, they were both going on vacation...also reached into my gown to cup my breasts and say to the medical student "see she will still have good cleavage"....so despite our wonderful healthcare system..there are still arrogant idiots out there. Fortunately, I ened up with a straight from the hip female surgeon that I will insist on again if I have to go through this journey again...

  • IowaSue45
    IowaSue45 Member Posts: 586
    edited January 2011

    That is good to know, I had often wondered if you had choices with your great health care system, if it changes here in the US I hope it is good.

  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited January 2011

    I hope so too Sue...I cannot fathom having to pay for all of this on top of all the other worries..knowing that everyone in that waiting room was being cared for equally regardless of station in life etc. also brought me a level of calm...

  • Sherryc
    Sherryc Member Posts: 5,938
    edited January 2011

    Sandeeonherown--glad you were able to make a decision that you feel good about.  I guess all healthcare systems have their good and bad.  Here in the US even with good Health care it still cost us.

  • Lynn18
    Lynn18 Member Posts: 416
    edited January 2011

    Hello ladies, I found out today I will have 34 tx total, 6 boosts at the end. I just finished #19.

    I still don't have a lot of redness, and my doctor said they do like to see that.

    I think I am starting to feel the fatigue.  My doctor said that the fatigue is related to how your immune system reacts.  He said even patients that get a small part of their body radiated still get the fatigue.  I thought that was interesting. 

    Hope everyone has a great week. 

  • FaithFollower
    FaithFollower Member Posts: 49
    edited January 2011

    Happy Monday -- 3 more to go! I can't believe it.  Last week was the worst - had to take a day off and take percoset for 3 days! Now I have a dry peel but can hardly wait til I can use some deodorant - peee-uuu!  Keep lubing those boobies aka goobies!

  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2011

    marriedblis - 3 more to go!  That is  piece of cake.  Get ready to do the happy dance.

  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited January 2011

    Did #13 today, slightest hint of rash.  Saw the rad onc and he says I look great, the rash is not significant at all and isn't bothering me.  He says he can tell I won't get a big burn at the end.

    He put me in touch with a naturopath to help me with my vitamin, supplement and dietary questions.  Also to help me rebuild my blood post-chemo. We talked about  my frustration with weight gain since chemo, he said that is totally expected and that chemo resets your metabolism.  He said it will take me a year at least to get it off.  Awesome.

  • toni30
    toni30 Member Posts: 252
    edited January 2011

    Hi Ladies: Two tx to go - and feel like I'm crawling across the finish line. Fighting a cold and took the day off. Raincitygirl - That's the first time I heard that rads affects metabolism.  Fascinating.  Would love to hear what the neuropath tells you.

  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited January 2011

    toni30, Sorry I wasn't clear - chemo affects metabolism.  I will see the naturopath on Friday :)

  • Sherryc
    Sherryc Member Posts: 5,938
    edited January 2011

    marriedblis and toni30 how awesome you are both almost finished.  Will be doing the happy dance for you both at the end.

    Lynn18--I am also having some fatigue. Not bad take a nap every day when I get back from rads and then I am good to go for the evening and sleep lots on the weekends.

    Raincity-would love to here what the naturepath has to say.  Keep us posted.

    I had 24 today.  I have 4 reg and 6 boost left.  I can see the end is near.  I had an appt with my MO today and told him I had not started my tamoxifen yet because the RO did not what me too.  He wants me to wait for two weeks after Rads to start.  MO was ok but wants me to start as soon as I get the Ok from RO.  He also gave me a copy of my BRCA test which was negative thank goodness. I don't understand why he wants to see me every two months.  All he does is blookwork and checks my tumor markers.  Every two months is going to get old.  I thought I would have a reprive when all this was over and get a 3 month check.  Maybe he will switch after I finish rads.  I hope so.

  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited January 2011

    Hi IowaSue,

    The adrenal gland product is SRTS (ooh..the combination of letters ,,STRS?,,my naturopath now makes her own so not sure if I have the order of the letters correct)...but if you mention it to your naturopath or at a health food store, they shold know...you could also call it adrenal support....It helped me immensely in the spring just prior to my diagnosis and the three weeks prior to radiation...I had been feeling like someone had stuck a straw in my chest and was slowly sucking out my air...(likely due to lack of sleep...having a hard time sleeping still) . I honestly don't think I would have had my regular energy if I had not gone on it first. I did not feel any physical fatigue during the raditaion treatment..but emotionally I was a basketcase...as long as things went as I had planned,I was ok..but the two days my battery was not charged on my mp3 player, I wept through the session....completely out of my control...can't imagine what I would have been like had I not recharged my battery first!

  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited January 2011

    Friday ladies, I will report on my naturopath and will ask about adrenal gland support.

  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited January 2011

    raincitygirl: good for you...I am on it now and am about half way through...exercizing helps alongside it.

    For those of you who are almost finished your rads....CONGRATULATIONS!!!! I felt like an emotional basketcase my second last one..had started the day off energized and ready to do the dance but then fell apart that afternoon...emotional fatigue..relief that phase was almost over? who knows...but expect the unexpected and then celebrate!

    My skin was great throughout all 16 sessions and so I did not take them up on the offer of  cortisone offered on my last appointment...but I was back at the clinic 5 days later asking for it...my skin went from a bit pink but fine to peeling, itchy and sore...especially under the arm. My radiologist said that this is typical for a couple of weeks after radiaion is finished. The aloe no longer worked so I switched to eucerin cream and used the cortisone in between eucerin doses...

     Now, one month post radiation, my breast is almost back to normal...well..the new, slightly lopsided and smaller normal..just looks like I was sunbathing with one breast out of my suit! Itch is all gone and the swelling is also dropping so...progress!

    Good luck with your last couple of sessions. BREATHE>

  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2011
  • Lynn18
    Lynn18 Member Posts: 416
    edited January 2011

    SherryC: I am just a few days behind you.  I just had #20 out of 28, then will have 6 boosts. 

    My fatigue is not too bad either, but the naps really help.  My doctor said it may take a month or two after the end of rads to get back to normal energy levels.

  • toni30
    toni30 Member Posts: 252
    edited January 2011

    I guess I didn't realize until today (talking to the tech) that the radiation actually keeps working after you are done.  That's why the SEs can get worse.So even though I am on the boost rads (targeted to one area) , my overall breast is still getting pinker. Wow.

  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2011

    toni30 - The radiation keeps going up to 2 weeks after rads and the fatigue can linger much longer.  I finished rads on Dec 3rd and just now am feeling really good - no leftover fatigue.  You will want to keep using your creams at least 2 - 3 weeks after rads.

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