I was just diagnosed this morning
This is really scary. The news was sort of like a freight train hitting me. My first reaction is concern for my new husband and my son. Is that normal?
Comments
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I would say "welcome to the group" but I know you don't want to be here - like all of us. I am sorry you are joining us. I joined only a few weeks ago. I too was (and still am worried) for my husband and young son. This whole thing IS scary. Please feel free to post any of your thoughts, concerns and questions as everyone on this board has been so supportive, understanding and helpful in the past few weeks to me. It has really allowed me a place to go for support until we chose to tell family and friends what was going on. All I can say that since I got diagnosed, I have begun worrying about everything under the sun! You are normal, I assure you!
I am sending a big "cyber hug" to you and some prayers for good health!
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Thank you mdg. That means a lot to me. I look forward to communicating with fellow 'sisters' during this journey
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Hi Mindy...I just wanted to say Hi and welcome to the best place for support and help. Totally normal reaction...sending you a big cyber hug too...LowRider
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Mindy,
Your feelings are so normal. I worry about my 18 year old high functioning autistic boy on a daily basis and hope everything turns out ok.
Do yourself a favor, I learned this from a counsellor, as much as your mind wanders into the worst case scenarios, snap it back and think of positive things. I didn't think it possible but I am able to do it now.
Also, the best advice that I was give by my oncologist and breast surgeon is to not dig too deeply into the Internet on your condition and think the info you are getting is all correct. A lot of what's out there for you to read is old stats and there are a lot of treatments now that weren't available back then.
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Hey Mindy, welcome to the club no one want to belong to! You will find so much helpful information and so much support here, from people who truly understand as we have all been where you are now.
As the next few days and weeks progress, you will be getting a lot of information. Bring a friend, if possible, to your docto appointments, bring pen and paper to write notes on or a tape recorder that you can go back and listen to later.
Good luck and as you know more about your diagnosis, please continue to keep us up to date. Today, I know it is overwhelming but you will get through this!
Susan
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Dear Mindy:
Welcome! None of us want to be in this club but you have chosen well when posting on these forums. The sistas here are the BEST!!! You will gain alot of knowledge from here that will be helpful in your journey, and yes, it is a journey.
First...breathe!!!
You have to wrap your head around this for it is all consuming in the beginning. Once you have your official diagnosis and have a plan it will be easier.
My advice is to take your DH or someone with you to all appointments (or bring a tape recorder). Take notes, ask questions! Get a 2nd opinion.
We are all here for you and will offer all the support and encouragement you will need.
((((((((((((((((((HUGS))))))))))))))))))))
Jan
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Dear Mindy,
I'm so sorry to hear about your diagnosis. I'm an employee of Memorial Sloan-Kettering and am writing to share some resources that may be help you better cope with your diagnosis and upcoming treatment, and talk with your son about your situation.
The National Cancer Institute and American Cancer Society both offer good information on managing the emotional effects of cancer and treatment:
NCI: http://www.cancer.gov/cancertopics/coping/emotionaleffectsACS: http://www.cancer.org/Treatment/TreatmentsandSideEffects/EmotionalSideEffects/index
The American Cancer Society provides guidance on finding support programs and services in your area: http://www.cancer.org/Treatment/SupportProgramsServices/index
Livestrong may also be of help finding one-on-one support: http://www.livestrong.org/Get-Help/Get-One-On-One-Support
Another excellent resource is Cancer Care. They offer free on-line support groups and individual counseling. CancerCare social workers can also guide patients and family members to counseling and support groups in their own communities. You can reach them through these links: http://www.cancercare.org/get_help/counseling.php and http://www.cancercare.org/get_help/supportgroups.phpYou might also be interested in reading the following pages from the National Cancer Institute and the American Cancer Society, which offer advice on how to talk to children about a cancer diagnosis and how to provide security and stability for them during this difficult time.
http://www.cancer.org/Treatment/ChildrenandCancer/HelpingChildrenWhenaFamilyMemberHasCancer/index
http://www.cancer.org/docroot/CRI/content/CRI_2_6X_Dealing_With_Diagnosis.asp
http://www.cancer.org/docroot/CRI/content/CRI_2_6X_Dealing_With_Treatment.asp
http://www.cancer.gov/cancertopics/when-someone-you-love-is-treated/page6
I hope this information is useful and wish you the best of luck finding the support you need. -Esther
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Dear Mindy. You will feel like that for a while but eventually you will come to terms with it. This is a great site for support, information and courage. It is funny how we seem to worry more about those around us than ourselves. I too felt the same. It's really helpful to talk about it and we're here for you. Blessings to you!
RegalBeagle
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Mindy: You've got some good tips here already. These boards are a wonderful source of info you don't get elsewhere. If your diagnosis permits, take your time on deciding what steps to take next and explore all your options to pick what works best for you. I too had a "new" husband; I was diagnosed 7 months after we married. It's tough on them too, but we are hanging in there.
(((HUGS))
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Mindy - I think everyone here would agree that those first few weeks after diagnosis are just about the worst part of the entire breast cancer journey. Once you meet with doctors and get a "game plan" in place, it really gets a lot better.
I second what everyone has said about taking someone with you to all appointments to take notes as you get more information and weigh your options. My husband and I would write down all the questions we had ahead of time - then during our visits he'd take notes on everything the doctors said, then before the visit was over, my husband would review the list of questions to make sure everyone of them had been answered at some point during the visit.
It looks like Esther has given you some excellent resources about talking with your kids - I don't have kids so I didn't have to deal with that part of it.
Also, I would strongly urge you to get a consultation at your nearest NCI-desiginated cancer center, preferably one with a Breast Center. A lot of the major university hospitals are NCI centers. There is a world of difference between a general surgeon who might operate on a leg one day and a breast the next day and the doctors at a Breast Center who deal with nothing but breast cancer all day every day. Even if you don't get your actual treatment at a Cancer Center, getting a second opinion consultation at such a center will help you learn about your options and help you become an educated patient. Here's a link to the Cancer Center search on the NCI site: http://www.cancer.gov/cancertopics/factsheet/NCI/cancer-centers Most of these centers give expedited appointments to newly-diagnosed patients.
Good luck - it really does get better as you go along.
Finally, take a deep breath. While this all seems very urgent to you now, chances are that the cancer has been there for months if not years, so you have time to take a few weeks to do your research, get second and even third opinions, before making your treatment decisions. Don't feel that you have to rush into any decisions before you're comfortable.
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Hi everyone I also have been newly diagnosed in Dec. had biopsy dcis with microinvasion low grade thats all i know so far.Seeing differant surgeon next week about sentinel node biopsy. every thing in my life has changed so fast I dont seem to be able to really grasp it all yet. ive been reading alot of these discussions and it has really helped.
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Brooks6331:
Sorry to hear you had to join us, but you have come to a haven that will supply you with all you need - educational as well as emotional. This is the hardest time for you - right now, but it will get easier and somewhat less frightening. You have a good prognosis, so I am sure, once everything has fallen into place, you will conquer this! Keep us posted on your progress, we all care and are here for you too.
Linda
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I was just diagnosed yesterday afternoon and yes, I think your feelings are normal. In the 30 plus hours I have known this, the most difficult and stressful aspect of it has been telling our children, ages 23, 20 and 11 (all still living at home). (((HUGS))) to you and prayers for you as we work through this challenge together.
Nancy -
Mindy and Nancy: My heart goes out to both of you and your families. What a very difficult thing to have to tell loved ones.
As the other ladies indicated above, we're here to help you deal with this, so feel free to vent and ask questions.
{{{HUGS}}}
Julie
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Linda thanks for your kind words, tring to send a reply to you. Having trouble fiquring this out. I also have a microinvasin so i quess that puts me at stage I so far Dr. hasnt said i quess waiting until we have all test done also i havent asked. For sure radiation maybe chemo . Thanks again
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brooks6331: I'm sorry you were diagnosed with this. Good luck with your appointment next week.
Julie
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Hugs to you, I was diagnosed in the beginning of December. All of my last available brain cells drained out my big toe and if it weren't for a doctor repeating stuff over and over, I wouldn't have gotten it. This forum has been incredibly helpful so far. I did go see a Christian therapist and it really helped. I've been crying a lot, its a part of it. As mom's we feel that we have to strong for everyone, but this is our time to lean on others. You might try www.cleaningforareason.org - if they have available agencies in your area they will clean for you once a month. It is worth a try!
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