Memory loss and brain not working right

Options
Steph3605
Steph3605 Member Posts: 9

I've been finished with radiation therapy since June.  I started out with chemo, (A/C and taxol) and started having memory loss problems and problems thinking clearly then.   I started having a really hard time putting two and two together with alot of things people would try to explain to me.  Its not so much that I'm just not intelligent enough to get it, I'm just having a really hard time comprehending things that I know that before, I would have been able to comprehend easily. My onco said this was normal when I was in chemo and that most likely it would improve once I was out of treatment.  However, its not improving.  And its getting really frustrating at work, when someone is trying to tell me something and I just dont understand and I tell them I'm not understanding what they're trying to say.  People are starting to treat me and talk to me like a five year old and its really starting to bother me, especially when they start getting really condesending and talking down to me. I need to know if this is normal, and if any one else has had this problem, how they're dealing with it.

I'm also having neuropathy problems.  The tinglin in my feet and hands.  My doctor is treating that with Neurontin.  We've also tried Lyrica.  Neither seem to help much.  I work on my feet all day walking around on concrete floors.  By the time I get off work, my feet sting so bad its like walking on a bed of nails.

And lastly, I'm having problems with swelling in my breast.  To the point that I've had to go out and buy bras to accomodate the one large, swollen boob.  Is swelling like this normal?  Its almost as if its permanantly swollen to some degree...but if I do alot of moving equipment and heavy lifting, the swelling is worse.  I've tried to stop doing as much of that, but the swelling just will not go all the way down.  It looks like I have two totally different size boobs.  The whole boob swells, not just swelling where I've had the surgeries at (lymph nodes removed, lumpectomy). And its rather firm, but very.....lumpish.

If anyone can give me any ideas to help me with any of this, I'd appreciate it.  Or let me know if this is something I should really be concerned about.  I saw my surgeon when it first started swelling and she said she wasn't overly concerned, that I was probably just over-doing it at work.  If thats the case, I don't understand why the swelling doesn't completely go down when I've been off work for a couple of days or why the swelling would be so massive.

I don't know what to do.  With everything going on, I feel like I'm losing my mind.

Comments

  • Gingerbrew
    Gingerbrew Member Posts: 2,859
    edited August 2013

    Hi, I hope the info I can provide, taken from these boards, is helpful. Ginger

    Swelling of one breast is a symptom I would call to my doctors attention right now.  You are all healed right? Then the exent of swelling you describe  needs attention by a doctor.

    Neuropathy has a long list of symptoms , not just numbness.

    Memory loss has section under side effects on the main menu. I have copied it here for your convenience. 

    Memory is your mind's ability to keep and remember information. Everyone has mild memory loss from time to time. You go to another room to get something, only you forget what you needed when you get there. Maybe you can't find your car keys one day and your glasses the next. These occasional memory lapses are normal signs that your brain is a little overworked.

    But memory loss also can be part of a bigger problem that's more serious than just misplaced car keys. Ask yourself the following questions. If you answer “yes” to them, ask your doctor to evaluate your memory loss.

    • Does the memory loss cause difficulties in your daily living? If you're unable to do things that you used to do with ease, such as balancing your checkbook or remembering how to drive to a friend’s house, consider contacting your doctor.
    • Do the memory lapses occur on a frequent basis?
    • Are you constantly repeating yourself in conversations or unable to recall conversations?
    • Are you forgetting names or faces of people you should know, like family or close friends?
    • Do you often feel confused?
    • Is the memory loss getting worse over time?

    Some types of breast cancer treatment can affect your memory:

    • chemotherapy (this condition is sometimes called "chemo brain" or "chemo fog")
    • radiation therapy
    • hormonal therapy:
      • Arimidex (chemical name: anastrozole) 
      • Aromasin (chemical name: exemestane)
      • Femara (chemical name: letrozole)
      • tamoxifen
      • Evista (chemical name: raloxifene)
      • Fareston (chemical name: toremifene)
      • Faslodex (chemical name: fulvestrant)
    • ovarian shutdown or removal

    There are other treatment side effects that can affect your memory, including trouble sleeping and fatigue.

    Memory loss also can be a side effect of other medicines, such as steroids, anti-depressants, sleeping pills, and pain medications. Talk to your doctor if you think a medication may be contributing to your memory loss.

    Managing memory loss

    If your memory loss is a side effect of breast cancer treatment, try the following tips to help stimulate your memory:

    • Exercise your brain by keeping mentally active with word puzzles, reading, and any other activity that makes you think.
    • Keep a note pad nearby to jot down things you have to do and ideas you have.
    • Use a calendar to keep track of upcoming events and appointments.
    • Take a buddy with you to doctor appointments. Another set of ears can help you remember as much information as possible.
    • Build a routine and stick to it so you have a familiar plan of action to do things in a step-by-step manner. Tell your family and friends about your routine for additional support.
    • Admit you’re forgetful if you can’t remember someone’s name; there’s no need to be embarrassed.
  • worldwatcher
    worldwatcher Member Posts: 205
    edited December 2010

    Gingerbrew

    I have had the burning, tingling in my feet for years.  No one has been able to give me a cause for it, and it is not related to my diagnosis of BC.

    I have found that applying Icy Hot pain stick to my feet at bedtime and wearing socks alleviates the burning and itching enough so that I can sleep, and the infrequent sharp, stabbing pains are usually taken care of with one Tylenol 500 mg. tablet.

    Since you have had no luck with the RX method, perhaps the topical will give you at least some help.

    Good luck.

  • southernmel
    southernmel Member Posts: 1
    edited January 2011

    I completely understand.  I was diagnosed in 2005 and started chemo Jan.2006.  My cocktail was:  taxotere, carboplatin and herceptin.  I took this cocktail for 6 months and herceptin for a full year.  I, too, am having problems at work.  My manager doesn't seem to understand that sometimes my memory doesn't recall the most recent changes in policy.  Family and friends notice the memory difficulties, as well.  I took arimidex for three years and that hasn't helped, either.  It is now 2011 and I am still having difficulties with short term memory.

  • Lowrider54
    Lowrider54 Member Posts: 2,721
    edited January 2011

    My 'chemo brain' faded fully in about a year post end of chemo.  Most of it came back after 6 months but I was always a bit on the dippy side so not too many noticed when I regained most of it and was just 'forgetful' for the next 6 months.  Making lists was a must although I stopped making lists when I was going through chemo - I had one list...blah, blah, blah...repeat. 

    The breast swelling is definately something to get addressed right away. 

    On the footies...I would put ben-gay on at night and heavy socks.  I lived along so I wasn't chasing anyone out of bed..lol.

    gingerbrew has some very good tips...good luck!  And try not to worry - the mind is amazing!

    Hugs...LowRider

  • CrazyKitties
    CrazyKitties Member Posts: 180
    edited February 2011

    I researched this in 2 journals written by oncologists and tested----you can take Acetyl L carnitine supplements for memory loss. NO ISSUES with cancer treatments, NONE!!!! After 2 weeks, IT WORKS!!!

Categories