December 2010 Rads

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  • Barbcard2
    Barbcard2 Member Posts: 71
    edited December 2010

    Latte: Sorry to hear about the postponement.  But by all means stay on this board. Yesterday I had a meltdown alone at home, but feel somewhat better today.  I guess my life (and everyone else's) will never be the same as BC (in the sense of Before Cancer) but you'll come through.  Just being on this board is a positive step.  Shalom, Barbara

  • GIJan
    GIJan Member Posts: 7
    edited December 2010

    Grannydukes, The rad ladies always offer me a warm blanket which I happily take. After getting positioned on the table, I am covered completely by a nice warm blanket fresh from the blanket warmer that's in the room. Does your clinic have these kind of coverings available? Hope things go well for you.

  • rachel5738
    rachel5738 Member Posts: 920
    edited December 2010

    I have my simulation tomorrow and the original plan by the RO was to start the actual rads first week of January. Thanks to everyone for detailing out their experience--hoping that my simulation goes off without a hitch and radiation can start pretty soon--looking forward to getting it done. I am not looking forward to having to go to hosp every day--after finishing chemo 4 weeks ago--I have enjoyed not visiting the hosp!

  • localgirl
    localgirl Member Posts: 39
    edited December 2010

    Sherryc -  A little of both - I came to it on my own after doing some research on how it has helped to boost immune function and combat the effects of fatigue and other symptoms usually associated with cancer treatements (nauesa and dry mouth in particular for those going through chemo).  I asked my RO about it because I had heard good success stories and they said absolutely yes, and if I didn't already have an outside person, there was a full-time person on staff at MDA.  

    To me, I look at it as one other thing I can do to help myself in this battle.  Just had my first one yesterday and it didn't hurt at all and the time passed so quickly.  I'll let you know how it goes!  If you google cancer and acupuncture (or radiation and acupuncture) you get a ton of info - let me know if you want some help finding resources.  

  • jo1955
    jo1955 Member Posts: 8,543
    edited December 2010

    rachel5738 - Enjoy the break and holidays.  

  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited December 2010

    Back from TX #1- a piece of cake today.  Met also with NP to discuss skin care, etc.  They recommend Aquafor or Eucerin (made by same company and essentally the same product).  Next would be the xilair (not sure of spelling) and then hydrocortisone.  If that isnt successful, they wil go to other prescriptions.  I have done acupuncture in the past and love it.

  • jo1955
    jo1955 Member Posts: 8,543
    edited December 2010

    raincitygirl - Congrats on finishing #1.  Use the Aquaphor 3 times a day.  I know it is greasy, but it worked well for me.  When I got off work each day, I took the bra off and wore a big tee shirt. 

    You will do great. 

  • soulswithin
    soulswithin Member Posts: 154
    edited December 2010

    Hi all, done with #10. Anyone a little sore yet? I am.

    Barbcard, I will laugh in the rad room tomorrow thinking about the Ms. Liberty statute! lolol . Thnx for the precise rendition of us all. haha

     Hope you are feeling better. I have very few around me, my daughter 400 mi away. When I'm grumpy I'm probably better off alone, lolol. I know how you feel, except it was my best friend who couldn't even call me. And like most of us, this is ALL TOO DIFFICULT to have to also deal with a difficult friendship. Some people think its our job to make life better for them. I am done with that.Tongue out. My pride is storing up alot of energy for when I am through with all these voodoo treatments and off the emotional roller coaster. Be strong!

  • Barbcard2
    Barbcard2 Member Posts: 71
    edited December 2010
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    RADIATION

    (For everyone's amusement)

     by Barbcard2

     

    I’m the Statue of Liberty

    knocked flat, right hand

    grasping a cold strap

    where once my torch

    lit the way for all who would enter,

    my crown split, more gaps than teeth, body

    twisted into position

    for the rays that will cross,

    frolic,  burn through my flesh

    laid out on a rusting metal slab

    while Rudolph the Red-Nosed Reindeer

    plays over and over

    from the hollow harbor below.

     

     

     

     

     

  • Barbcard2
    Barbcard2 Member Posts: 71
    edited August 2013

    For everyone's amusement: my "Radiation" poem, part of series I began since dx.

    I'm the Statue of Liberty/ knocked flat, right hand/  grasping a cold strap/where once my torch/ lit the way for all who would enter/my crown split, more gaps than teeth, body/twisted into position/for the rays that will cross,/frolic, burn through my flesh/laid out on a rusting metal slab/while Rudolph the Red Nosed Reindeer/plays over and over from the hollow harbor below."

  • Barbcard2
    Barbcard2 Member Posts: 71
    edited December 2010

    For everyone's amusement: my "Radiation" poem, part of series I began since dx.

    I'm the Statue of Liberty/ knocked flat, right hand/  grasping a cold strap/where once my torch/ lit the way for all who would enter/my crown split, more gaps than teeth, body/twisted into position/for the rays that will cross,/frolic, burn through my flesh/laid out on a rusting metal slab/while Rudolph the Red Nosed Reindeer/plays ovr and over from the hollow harbor below."

  • Barbcard2
    Barbcard2 Member Posts: 71
    edited December 2010

    Sorry for the repetitions and what appears to be deletions. :))

  • yellow78
    yellow78 Member Posts: 82
    edited December 2010

    Good Morning!

    I go for number 8 today.  So far everything is okay.  I did noticed that I am starting to get a little red.  Is that possible? Just saw my RO on Monday and he said everything looked good.  So I am hoping the redness won't get too bad.  Has anyone had this happen so soon?  Thanks, Jenn

  • jo1955
    jo1955 Member Posts: 8,543
    edited December 2010
    Jenn - Yes, it is possible.  Everyone is different is how their skin reacts to rads.  Some of it will depend on how light skinned you are.  If you are using creams. keep it up and take good care of the skin.
  • michelekb
    michelekb Member Posts: 28
    edited December 2010

    Hello I hope everyone is doing well. I have been catching up with old post since I have been busy interviewing for a job. I am a nurse, and I had to take a leave of absence when I got cancer because the treatments made me so sick. I am ready to go back, but my old hospital does not have anything in my specialty available. I interviewed at another hospital Monday morning. They offered me the job Monday afternoon. The new job is actually where I have had all of my cancer treatments and surgery. I am really excited.

    They want me to do orientation the week ofJanuary 10th, but I will still be in radiation that week. I will probably have to wait until the next orientation which is the 24th. I hate that radiation is making me delay starting by two weeks. I really want to get back to work for my mental health. I love nursing!

    I have a question for everyone. Does everyone turn red from breast radiation? I have had 12 treatments so far. I am using Miaderm 3x daily. My skin is perfect so far. When the nurse saw me yesterday her comment was just wait until next week and you'll be pink and red. It really kind of burst my bubble., Is it true that everyone gets red and has a bad skin reaction?

  • rachel5738
    rachel5738 Member Posts: 920
    edited December 2010

    I had my radiation simulation today--it was easy and went pretty fast. Took about 30 minutes--people were great and made sure I was comfortable. I have 4 tattoos--they didn't hurt--maybe my pain threshold is high after all those IV chemo's. Now they said the planner will reconfirm the treatment plan and I will start either first week or 2nd week of Jan. They told me to start with the cream now 3X a day to get my skin ready. Hoping that I won't have skin problems.

  • jo1955
    jo1955 Member Posts: 8,543
    edited December 2010

    michelekb - Not everyone turns red  - you may turn pink but I think that happens to everyone. Shame on that nurse for bursting your bubble.   What you need to do is prove her wrong.  Keep using the creams and taking good care of the skin.

    CONGRATS on the new job.  Sounds like you will be very happy.  I worked through everything.  Took a week off right after surgery but other than that, I was at work everyday.  My rads were late in the day - I asked for that - so I did not miss much. My boss is amazed I was able to do it.  I told him it was the focus I needed and knew that I could take off if I felt the need.

    The ladies here and on other threads were a tremendous help.

    rachael5738 - Glad the simulation went well.  It is good advise to start using the creams now.  It not only gets you in the habit but will help if you get the skin reaction.  Hope all goes well and you don't. 

  • Latte
    Latte Member Posts: 1,072
    edited December 2010

    i'm back in the December timeline - saw the rads onc today and he said we should go ahead with my planned start date of this Sunday Dec 26th. my breast incision is not yet closed, but it's already 6 weeks after surgery and he doesn't want to postpone rads any longer. he said the hole in the incision will still close during rads but may just take longer.

    hope those of you who are celebrating have a good Christmas and a nice break from rads over the long weekend.

    Barbcard - love the poem!

  • Barbcard2
    Barbcard2 Member Posts: 71
    edited December 2010

    Latte: I'm glad you got clearance to start the rads. Here in the States everything closes down for the holidays; far as I'm concerned that only prolongs the treatment.  Interesting about the BRCA gene. I've never been tested for that and now it would be pointless.  Rather mysterious in any case: something to do with "inbreeding" back in the "shtetls" of Eastern Europe?  Good luck--and that goes for everyone.  Keep us up to date!

  • Barbcard2
    Barbcard2 Member Posts: 71
    edited December 2010

    michelekb: How rude of that nurse! I've run into similar problems with some of the personnel at my rad center, especially their so-called social worker, who had the nerve to say I was reading the wrong books! (I've started Mukherjee's "The Emperor of Maladies," a history of cancer treatments from the ancient Greeks to the present and high on the NY Times list of the year's top ten books--not morbid, just factual.)

  • toomuch
    toomuch Member Posts: 901
    edited December 2010

    I just got home from my first radiation treatment. All the lining up took longer then I expected but everyone at the center is so nice and professional. My breast actually felt warm from the inside during the treatment. I was surprised. I met with the radiation oncologist after and she told me to expect to see a sunburn after 3 weeks. Also told me to start using Calendula lotion twice a day now.

  • FaithFollower
    FaithFollower Member Posts: 49
    edited December 2010

    Happy Hump Day Ladies! Only 1 more treatment this week -- woohoo. Like others, I'm glad its a short week.  Had a post-op f/u w/my surgical oncologist today. It was nice to see her. She's very analytical and reassured me that my treatment plan is just right. Wrote an Rx for a diag mammo once rads are completed and then will order an MRI. Once those results are back and clear, she'll take out my port. This is the same plan my onc subscribes to.  Finally remembered to get a copy of my planning CT scan and saw that a note was made about an "enlarged heart."  Surgical onc said its probably nothing, but shld see if onc wants me to do an ecko. More tests ahead-ugh...BUT 18 rads down -- 12 to go!

  • toni30
    toni30 Member Posts: 252
    edited December 2010

    michelekb and Jenn - I am nearly halfway done and my doctor today was surprised at my breast - she said, 'It doesn't even look like you are getting radiation."  And I am very fair-skinned. I told her that I use a cool compress, aloe vera and Aquaphor - thanks to the advice from the ladies on this board.  I told her that the nursing staff in her department was not helpful.  So follow this advice and you may be fine. Happy to have a short week - I can sleep in on Friday - woo hoo!!

  • FireKracker
    FireKracker Member Posts: 8,046
    edited December 2010

    hello ladies....who said they got a warm blanket..wow.thats great.all i get is my gown covering everything up.but im not that cold now that im wearing lined gloves.

    someone else said the room was hot.thats not supposed to be.its supposed to be real cold.dont sound right to me.that should be questioned.

    did #6 today.so far so good.glad for the 4 day week this week and next.

    27 more to go BUT WHOS COUNTING.

    if i dont get back before Christmas.everyone enjoy the Holiday.God bless.

    huggggggggggggs

    k

  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited December 2010

    I also am given warm blankets, quite nice but the room at my facility is not that cold.  Did #2 today, 33 to go.  There is a shortage of Aquafor locally and so have to order it online.  I just ask for samples every day.

  • susantm
    susantm Member Posts: 184
    edited December 2010

    I am always offered a warm towel over my arms. Some days I accept it; other days I'm warm enough without, but I appreciate the offer. It usually depends how long I had to stand outside waiting for the light rail. That towel feels really nice when my hands are cold.

  • jo1955
    jo1955 Member Posts: 8,543
    edited December 2010

    Sleep well ladies

     

  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited December 2010

    G'night all, off to lube my boob.

  • Latte
    Latte Member Posts: 1,072
    edited December 2010

    raincitygirl - love that rhyme!!!!

     barbecard - only reason for you to be checked for BRCA now is if you have children (girls or boys) because it is impt for them to know whether they need to be checked too (and maybe if you have siblings as well...). I was only checked after I was dx, but I have a 2 yr old daughter so it was impt for me to know for her, and also my siblings are now being tested too.

  • starling
    starling Member Posts: 76
    edited December 2010

    Hi everyone. I have been reading all your posts, but haven't posted anything myself. I can't say why, but I have been a little depressed lately and just don't know what to say. It has been so hard for me to get into anything, even with the holidays here. My rads have been going ok. I am very pink and itchy but have been managing with the creams my Dr has given me. Today is my last rad. My last 2 were boosts and this is a final boost. I am trying to be happy, but I have this feeling of dread and I can't seem to shake it.

    Anyway I wanted to thank all of you for all the posts and good info you have put on this thread. I will continue to read and post when I am ready. Have a wonderful holiday whatever you are celebrating.

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