wife with liver mets - I want to be a better husband
My wife and I have 4 children ranging from ages 8 to 19 years old. My wife was diagnosed 7.5 years ago, just after she almost died during childbirth with our youngest daughter. She metastasized 3 years ago this month, mostly liver some bone. She's been through many rounds of chemo, radiation treatments, double mastectomy, pulmonary emboli from surgeries, etc.She is Her2 positive so Herceptin has been a lifesaver and Tykerb (despite the side effects) has kept her CA 27/29 below 25. We have not seen progression in about 6 months and scans are next week.The eight year rollercoaster has been hell but the past 3 months we've been blessed with a fairly "normal" period. Of course, the recent passing of Elizabeth Edwards weighed heavily on my wife as I'm sure is the same for everyone touched by this disease here. There was a period of about 2 years where I was not the most supportive husband. I'm not talking about cheating, or being a workaholic or anything like that. I just had a hard time being there emotionally for my wife. In recent months things have improved but I want it to be better, I want it to be the best for her. Things seem like they can change very quickly and eventhough we are stable now she keeps making this point and it's scaring me. My question, for the husbands and wives here is what can I do to be there for her, what does it mean to "be there", what do I do to "be there" ...? Thanks and Peace.
Comments
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Hi kenny and welcome- Im so sorry that your wife is going thru this. You may not of been there for her before which is sad but im glad that you are honest about it and want to be there for her now- Just be there emotionally for her and try to understand what she is going thru make sure she knows you love her and care about her make sure she has your support not just emotionally but physcially too maybe cooking for her, laundry housework all the things that she cant do physcally as well. Since your wife has mets you might want to try the stage 1V forum im sure they will give you a lot better advice than me. You might also let her know this is a great place for support with wonderful caring woman on here who would help her tremdously maybe she would come here herself it might help with what she is going thru.
Debbie
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Hi Kenny
I think it's great that you are aware you may not have 'been there' as you would have liked...however, be kind to yourself, cancer or chronic illness happens to the whole family, not just the person experiencing the illness, the stress of your wife's treatments, the uncertainty, the children....wow, you are all doing very well in my opinion. I mean, you must have looked after the kids, and they were very young initially.
I dont have cancer but my sister does....only your wife can tell you what 'being there' means to her. I know for my sister it meant/means that she wanted her husband present emotionally with her when she was really struggling...she wanted him to hold her, sit with her, support her decisions and choices....to understand and accept her fears...I guess it's a big ask....I encourage you to talk to your wife, ask her to forgive you for the times you feel you werent 'there' for her (she might have a different view, maybe you have done better then you think)...and ask her how you can support and love her now.
Only she can tell you. I try to just stand with my sister, whereever she's at. I think we (as supporters of loved ones) are bound to fail and be the brunt of all sorts of emotions...I think we have to accept the anger, the frustration, the grief...whatever our loved ones are feeling, and just let them know it's okay for them to feel how they do...I dont tell my sisterto 'be strong' or 'have faith' or 'fight' or anything, I just try to be present with her in the moment....
gee, I hope that helps...someone here directed me to this site which might be helpful...hospicenet.org, it has some useful info...I also encourage you to accept any counselling on offer through hospice or whatever, grief and loss stages etc., my sister is stage four,her health is holding atm but it is right on the edge. It is the hardest thing to listen to her fears and be unable to do anything....but I remember that it is soooo much harder for her to experience....just be kind to yourself too. bets wishes for the future and Christmas.
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Tough questions, Kenny, Fortunately for me, when I had cancer 3 years ago, my wife set a great example for "being there", and I was a very difficult patient. Basically, if you really care, it shows and she'll know that you are there for her and you'll know what to do for her. At least I hope that that's the way it works as my wife comes home from the hospital tomorrow and I will need to be there for her.
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Whatever has happened in the past, Kenny, let go the guilt, You are here for her today, and you will be there for her and the children in the future. No woman can ask for more than that! I would just say probably to help her enjoy the present as much as she is able, build great family memories when you can for the tough times ahead, make sure she knows you will not abandon her and she can rely on you, that the children will have you there and she doesn't need to fear about the future. We hear about so many ratbags who run away when the going gets tough, it is inspiring to read from one like yourself committed to making the best, and being the best. Thank you.
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Hi Kenny,
It's awesome that you want to be more supportive. My hubby was very supportive of me because he had cancer too. I worked full time throughout my treatment. He did laundry, cooked, did the dishes & took out the trash.
Sometimes I wished he would just talk to me about about anything, without me having to start the conversation.
My recovery has been slow, I still tire easily so he still does a lot around the house. He gets up early to fix breakfast & to make sure I get out of the house with everything I need. This really means a lot to me.
I haven't always been the nicest person to get along with during treatment but he has stuck it out. As he stated, "I married you in sickness or in health." I was there for him when he was sick & now he is here for me since I've been sick.
God Bless you both! NJ
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Wow Kenny,
I can tell you that you are probably there for here more than you think..I am impressed...My husband wouldn't dream of going to a cancer board to look for ways to improve himself! The previous posters have given you great advice. I, myself, would like it if my husband would ask me how I was doing and if there was any way he could help.
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What does it mean to be there for her, guess i never really answered that Kenny, sorry.
I think the main thing is be there physically and mentally, and really listen to whatever she says. With all your attention. Even if its the exact oppoistie what she said last night, we do change our minds when we are under stress or adapting to change, sometimes she might try a new idea on you while she sees how it might happen... I heard a saying once; "How can I know what I think, till I hear what I say?" Things that scare me, lose a lot of thier power when I say them out lod and they dont [seem to] scare you, or they do but you stay with me and hug me despite the fear and we maybe cry a bit together and promise we will see it through... Harder is to also listen to what is not being said but maybe crying out to be heard, maybe by visual signs, heavy hints, practical situations, like, do i need to ASK you to lift this for me, can't you see i'm struggling? Often we can be unreasonable and expect others to be mindreaders and know our needs and fears, "being there" lets her practise asking for help, once she can explicitly ask you for what she needs, it then gets easier for her to ask other people too when you aren't around, lots of us have been fiercely independent before we were hit by illness. The biggest unasked question is probably Do I Matter, and Do you Really love me - Of course you do, but you can't tell a woman too many times, say it often and in as many different ways as you can! With little gifts maybe, with thoughtful actions, with gesture and especially don't forget, with words! Changed body image after surgery can be devastating to anyone's self esteem so any way you can build her up and let her know how much she is loved and valued will be so much appreciated. There are do-ers and talk-ers in this world, every one has their own personality and their own way to give and to recieve love, google for the Five Languages of Love {Gary chapman}, it's an approach i met recently and you will quickly identify how you best relate to each other and discover new ways to express your love. Wishing you both all the best. Hope that's some help.
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Hi Kenny,
What a wonderful husband you are and I bet it shows and that you are being there. I agree about not feeling guilt. I was in my late teens when my mom got bc and have always felt guilty I didn't do more, I was at that really self-centered stage. My dad was with her and just being there (hanging out in her room) was support (my dad was an absent minded professor, so I know he wasn't always mentally present as his thoughts were in books a lot). She was cured of bc but years later got ovarian. Dad would just sit with her and hold her hand. Also he went out to the garden almost every day and brought in a flower for her. I don't know how much they talked. My mom didn't say much as her ovarian progressed. At that time I would just sit with her and talk about me (still self-centered). Then I would just sit with her. I tried to make sure she was comfortable, got pillows for her, went to the grocery store looking for things she might like to eat. I just hung out with her and tended to anything she asked for.
Now this year, I got the bc diagnosis (March) and these are the things my husband has done that have helped me:
1) When I have a "melt down" and start crying my head off, he says he'll sit with me till I feel better and he hugs me and asks what I'm crying about. I cry because I don't want to die because I love my husband and family and have had a great life, and I cry and because I miss those who have already died and would like to see them again. He's not afraid to talk about death with me. We are both people of faith and believe that death is not the end. So he will reassure me that whatever happpens I will be okay. That is really nice. Just to have someone hold me and say everything is going to be okay.
2) He helps me with cleaning up the kitchen and doing housework when I don't feel up to it.
3) He drives me all over the place. So sweet, even when I can drive myself.
I just feel his love and that is being there.
I wish you all the best! You sound like a great husband!!!
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I am so sorry for what you and your family are going through right now.
As a single mom recently diagnosed, I don't have anyone there for me at least in the intimate way that a husband can be there for his wife. Some things that I would find comforting (which would probably apply to most women) would be someone to just listen to me when I need to talk no matter how irrational I may be at the moment, to hold me when I am scared, and may I suggest telling her that you feel that you haven't been there for her in the past, and that you feel that you want make some changes and really be there for her as you move forward. Ask her how she feels you could be a better husband, and ask her what she feels you can do for her to really be there for her during this process. Opening the lines of communication is a key factor in creating and improving intimacy in a relationship, and by letting her know how you feel may lead to some very very good conversations between you and your wife.
Good luck, all my best to you and your family...
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