December 2010 Rads
Comments
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Hello Ladies - Well I'm due to see my onc first thing in the morning. Kinda anxious - really don't know what comes next other than perhaps starting Femara. He is really good and I am sure he will answer all my questions before I have to ask. Let you know what happens.
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toni 30-ouch on 6:30 am that would be a hard one. I had lots of marks when they were getting me ready but they use the tatoos now and do not mark on me anymore.
Mrs Nice sorry your xclair is not covered. Someone made a mistake on my prescription of it and I ended up with 6 tubes for $100 so I use it often. I thought maybe it was early Merry Christmas to me. I have heard mixed reviews on the Emu Oil so swear by it and others were not impressed. I have not tried it.
I have had 7 tx so far and my skin is starting to change. Under my breast it is starting to look like a rash but it does not itch or anything. Saturday after having my bra on for 4 hours I went to put on more cream and my breast was completly red from the rubbing so I have offically quit wearing a bra. I got the nipple protectors in that my rad onc suggested I get and they are wonderful. They stick to the skin so if you have a t-shirt on your don't see the nipples so you can't tell I am braless. Of course it helps that I am small breasted. And they help with the fact that my nipples are very sore, gives a little protection. So 7 down and 28 more to go. Hope everyone has a good week.
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s it really necessary to be tattooed can you request not to be?
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beljmc45-I read one post where someone requested not to be tatooed and to be marked up instead. You will just have to talk to your rad onc about that one.
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My simulation is scheduled this Wednesday, 12/15. Hope to start 12/20 - 25 + 8 boosts.
About how long does the simulation take?
Your new friend, Jacky
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Welcome Jacky, mine lasted about an hour with markings and CT scan. The table is hard and bothers some people. I did not find it all that bad. Good luck. Glad you joined us here but hate that you have to be here with us. This is a great group of ladies that are very supportive.
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beljmc45,
I was not tattooed at all. I was marked with paint pens, and the marks were covered with clear stickers. That is the way my RO does it. I would have refused tattoos. There are other methods that can be used. I just didn't want any more permanent marks on my chest. I have enough from the bmx and the port.
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3 down, 29 to go, including boosters. I worry re driving to the rad center this time of year: a half-inch of snow and the entire DC area closes down (except for the politicians)... I've already developed a habit of shopping at this very expensive deli after the rads. Well, we're supposed to treat ourselves well, right?
je1957--I agree with SherryC re the simulation. About an hour; the actual rads so far have lasted a much shorter time, maybe 15 minutes. Good luck.
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Depends on you and your Onc. I am still in Chemo, receiving weekly Taxol plus Herceptin treatments and I began rads last week. My Onc said some chemo mixes w/rads and some doesn't. Plus he said age (I'm 37) and health matter, I went into all this pretty healthy and am handling chemo well (with a nasty weight gain, which I remind myself is good). BTW, my rads are for mets to my ribcage and not breast, so I only need 13 treatments.
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Went to see the onc this morning. Don't have to go back for 4 months. Got my RX for Femara plus a 30 day sample to try before I have to fill the RX. Had labs & a exam done - everything is fine. Will have a mammo in June when it is time for me to go to the gyn for the annual thing.
Now that I have a plan, gonna relax and enjoy the holidays.
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jo1955 - I hope the Femara works for you this time. Let us know how it goes. Congratulations on everything being fine! Nice that you don't have to see any Doc's for 4 months.
I just finished #24 of 30 rads today. 6 left now. My boosts are included in each rad.
Looks like my next mammo will be end of June. Surgeon said 6 months after rads are finished is when he does the next mammo. I did read on the John Hopkins site that the standard of care is mammo every six months on the affected breast for 2 years, normal once a year mammo for the other breast and after two years once a year for both breasts.
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Valgirl - WOOHOO on almost done. Seems like every doc does things differently. My onc told me today that I would not need a mammo until June and if that was clear - then annual. Should I question this? It seems like I have read on all the threads that everyone is getting the 6 mos mammos for 2 years.
I do trust my onc - hubby has been with him for 5 years.
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Went to my first rad treatment today, pretty uneventful, although the computer had to re-booted, so I have a feeling these machines break down a lot. My breast feels tingly and warm already - I put cold compress on it and used aloe vera. Jo - seems like a good result from the oc - congrats.
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toni30 - As much as we want to put cold compresses on something warm - I would advise against it. Just use the aloe vera. I did the cold compess (was not told I couldn't) and ending up having skin problems later during rads. Had to stop for a few days. Hated the delays. Talk to your rad onc and see what he/she says. Most of the stuff I googled about skin care and rads all said no hot or cold.
Don't want you to have skin problems and have delays.
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Hi everyone, I have my last rads tomorrow for my mets to the bones. It has liminated a lot of my pain I was experiencing. So I am pleased with that. See RO tomorrow to see what all he has to say at this point. Curious and asking RO if you experience pain again in your bones or even a new area can they radiate some more?
Wish everyone the best with your rads. Your getting closer and closer to getting done with all of this.
michelekb: I had a road map all over my legs, hip, and chest for my spine. Not tattoos on me not even when they did rads to my breast wall.
itzmeshel: I did rads with chemo as well my first and second time around.
jo1955: hope Femara works for you. I cannot take any of that cause I am TN
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Hi everyone,
I see this thread is pretty active already, and I'd like to jump in too. I went for my simulation and tattoos today, but am not sure whether i will be starting actual rads tx in December or if it will slip to January. I need to have 25 tx plus 8 boosts. But currently, I have an icky infection/hole in the middle of the scar on my breast (I did chemo first, then had surgery 4 weeks ago) - the oncs need it to heal before i can start rads. so we'll have to wait and see. in the meantime, i'll hang out on this thread of that's ok with you all :-)
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@Latte. Welcome, though I'd rather have met you almost anywhere else. Wonder if treatments for BC in Israel are similar to those in the States. Rad # 4 today, so in a couple of hours there will be only 28 to go, including boosts. BC has a new meaning to me now: Before Cancer. Yes, plz hang out on this thread. Shalom, Barbcard2
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Hi everyone!
Had my first rads yesterday. It went well. It took longer to set up then to have the actually treatment. Hopefully today will go as well.
Hope everyone is doing good. Jenn
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Thanks for welcoming me, although, yes, I wish it was under different circumstances. Everybody here seems so supportive and helpful - nice to be able to relate to such a wonderful group!
Anybody else having trouble getting into the Christmas spirit this year? I have not even started shopping, and that's not like me at all.
I'll let you know how my simulation goes tomorrow.
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Welcome to all the Newbies - Wish is were under different circumstances, but there is lots of support here.
yellow78 - Congrats on starting rads - my setup also took longer than the actual zap. I was only zapped from 2 directions each lasting about 30 seconds each.
je1957 - I have not even decorated and probably won't this year. Can't shake the rads fatigue. Gonna try and get some shopping done this weekend. Talk about waiting until almost the last minute.
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Hi Everyone.
I haven't been posting for a few days, just been a little DITD (Down in the Dumps). My boob is getting very pink, almost red (is that dark pink?) and my nipple is pretty sore now. I used conrstarch orver the weekend and last night and it helped alot. Hard to dress for work when not wearing a bra. Between that and my head itching all the time from this blasted wig which I have come to HATE, I am very cranky. Add that DH's car broke down and I am driving him to work and back and my rad appointment everyday (schedule just doesn't work out for HIM to do the drving - grrr) and then trying to actually work at work...add Christmas behindedness to the mix and I am in a foul mood. AH. I feel better now, thanks for letting me rant a bit!
Today is number 12. Yay for me!
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starling - So sorry to hear you are having such a hard time. Have you tried a cami? I did that for a few days and it helped especially with me using the Aquaphor. Shuffling everyone around and try to work and do rads - I would be cranky too. Number 12 and counting down - who many do you have left? Hope the rest of your day is better.
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valgirl congrats on 6 tx left. It will be over soon.
Valgirl and Jo docs are so different. My BS told me she wanted mammo's and MRI rotated every 3 months for 2 years. My tumor did not show on my mammo hence the MRI followup.
Eban glad you are finished and that the rads helped with your pain. Seems like you have been through the ringer. Hopefully it will get better from here.
Latte welcome to our thread sorry you have to join us here but it is a great group of ladies for support.
yellow78 congrats on starting now you can see a light at the end of the tunnel.
je1957 I also have had a hard time this year. Part of it is that I have been gone a lot on the weekends and during the week I do not have time for things because of rads. So not much decorating got done this year and have been trying to squeeze in a stop or two when I go for rads. That is the only way I have gotten my shopping done.
starling-sorry you have been DITD, it is good to let it out. I go for #9 today, I too have had a sore nipple. My rad onc told me to purchase silicone nipple shields. Got them at the mastectomy supply place and they were only $6.50 for a set of two. They stick to your skin without adhesives. Boy have they made a difference. I have ditched the bra now that I have them. My bra was rubbing and making me red. figured I did not the extra aggravation to my skin. My skin texture under my breast is changing but luckily not itching. I am putting on extra cream trying to stay ahead of it.
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jo how did you tolerate the Femara, hope it did not make you nauseated.
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Sherryc - After I saw my onc yesterday and he told me I only had to have a mammo once a year, I was a bit concerned. Most ladies have said they are getting follow ups every 6 months. I will see him again in 4 months and with the timing of my annual, will probably have my gyn schedule it and see what happens. The onc said he does not like to do additional tests unless there is a reason. Sound logical to me and I will just go with it for now. The tx plan can always change and I like the idea of fewer med appts. I have to trust what he says - he is really good and would not lead me in the wrong direction.
So far so good on the Femara. Last night was the first yellow pill. Will keep using the sample bottle for now and if no nausea will get the RX filled. The Arimidex took about 3 weeks before I got sick. Cross my fingers that won't happen again - really don't want to do Tamox.
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Thanks Jo and Sherry for allyour cheery-up messages! I do feel better now.
I have a question - any of you who had chemo and had a port. I had one in my chest and now its been removed, but I have a hard lumpy thing under where it was. Its more disfiguring than where I had my lumpectomy. Anyone else have this?
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Would someone please tell me what TE means? 4 down, 28 to go. Sounds like a football score.
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finshed #12 today; 21 to go, so making progress. I am fortunate not to have any side effects so far. (Sorry, starling, that you are not faring as well.) I think the fatigue at the end of last week was just from getting up early every morning and not getting enough sleep, as I am feeling better now. I just wish my sister-in-law had a place to go besides our home, so that our kids could stay here when they come for Christmas. That's going to be a real hassle trying to share cars when they aren't even staying with us. I don't need another hassle to deal with, but I guess we don't always get to choose our situations. She only thought she would be with us 3-4 months when she moved in last March...
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TE - temporary expanders or tissue expanders
I had to look it up. If you search abbreviations it explains what they all mean.
Finished #25 of Rads today. 5 to go and counting down.
Broke my tooth at lunch today - so dentist tomorrow. Need to get that fixed before I leave town Dec. 22. Going to visit our Son and Daugher-in-law in California for Christmas.
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I finished #7 today. I still have 21 to go.
My RO takes x-rays once a week. Does anyone else get weekly x-rays? They adjust the marks on my chest. (I have paint pen marks not tattoos). Anyway it is very uncomfortable for me to lie with my hand above my head for a long time. I still have some issues with range of motion because of the axillary node dissection on the left side. Because of the x-rays I was laying there for about 25 minutes. I started crying. i was crying because I was in pain and I so did not want to be getting radiation. The techs all asked what was the matter. Being menopausal thanks to chemo probably doesn't help.
I feel stupid for crying. It just welled up in me and I couldn't stop it. I hope everyone else is having a better day than I am. Oh well, this too shall pass.
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