Chemo June 2010
Comments
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Sherry--> The MUGA is a heart function test they give you if you get Adriamycin or Herceptin, because both can decrease heart function. Although I have heard that some doctors do a different heart test sometimes.
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chey- You hang in there girl. I know how you feel about wrapping things up and feeling you aren't "doing" anything to fight BC. It does feel weird.
sherry- I know you like your Onc. As it appears he is not sure what is going on, perhaps it's time for a second opinion? I think an objective, new medical expert sure couldn't hurt. Your Onc surely would not object under the circumstances....if he did, I would worry.
Tomorrow is my last rads. I met with my Onc yesterday. She wants to shut down my ovaries and get me on Arimidex. I know it is "standard of care", but I just can't get comfortable with it, too many other health SE. I told her I would tell her by the end of the month. I have been madly researching every possible lifestyle thing I can do to prevent recurrence. There is so much research on nutrition and diet. They think that is why Japanese women have such a low rate of BC. I am reading a fabulous book written by a doctor who is a brain tumor survivor. He has documented lots of studies showing success with nutritional changes (basically anti inflammatory, no sugar, white flour etc) to prevent recurrence. The book is Anti cancer by Servan-Schreiber. Making lifestyle changes sure can't hurt and allows me to still feel like I'm doing something to help. Now if I can just start exercising!
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Sherry, Bon, Tmarina and Chey- I am full of sadness for the four of you! I can't think of any words to give you solace. I feel the weight of your grief and worry and pray you find relief and renewal soon.
I am chugging along. Going to work trying to get one productive activity done after work and crashing early. For some reason my mouth is getting worse. No sores, just sorness, dryness and nothing tastes right. My area of radiation is much less pink and much less painful.
I pray that all will go well with everyone this weekend.
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Joan, I was wondering if you are taking any of the hormone blockers. I am on Femara and I am having drymouth and dry eyes and I am thinking maybe it is a side effect of this drug. My PC visit yesterday was spent discussing all I have been through in the last 6 mths and what the Femara might do to me. I am being watched now for pre-Diabetes as a result of chemo. JOY_JOY!!! This gift just never quits. Have a good weekend and I will talk to you soon. Ginny
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Chey - now it makes sense that you struggled so much emotionally over the summer, and here we thought it was only the chemo. I am soooo sorry for your loss. It is very hard to lose someone you love. It really feels like you have a hole in your heart. I felt this way when I lost my dad. It still breaks my heart and I can't believe he's not here. My heart goes out to you!
Sherry - I hope your counts go up and you start rads soon. I agree with Dmom, get a 2nd opinion. It can't hurt!!!
Thanks for the compliments on my profile pic. It's me with my REAL hair! I was having hair envy over my old pics. And I used to complain so much about my hair!
I hope you all have a nice weekend!!
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Hi Gals,
I finnished rads on Wednesday and finally moved back home for good. The burns are healing and peeling pretty quickly now. The fatigue seems worse now than during rads. I see the Onc on Tuesday, another 450 km. drive. I will start on Tamoxifen then I guess. I still have not had blood work since chemo and would like to know what my ca15-3 is. Are any of you getting results on this yet?
My family is taking me out to celebrate tonight. I really don't feel like celebrating as I feel mangled poisened and burned. My arm is wrapped in huge wrappings for the lymphedema which makes it hard to do anything with my right hand. I recognize their need to celebrate as they have had to cover for me and do all the work plus provide so much emotional support for me. I am grateful for their help and will try to celebrate and smile with them.
I won't comment individually today, but know that I am thinking and praying for those of you experiencing loss and yet more medical problems.
Love and Hugs, Mimi
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Mimi--It must be such a relief to be home. I can't imagine having to go through all that you have had to just to get treated. Try to enjoy your evening out--relax and let them spoil you. Make sure you have dessert!
Hope everyone is having a good weekend. I'm tired today, but that's ok because there is nothing that has to be done. Have had a very hectic week! Had a fundraiser last night (in a snowstorm!) for my DD and SIL who are adopting a 3 year old boy from the Ukraine who has Down Syndrome. Hopefully we will get him home to us in the spring! Even though a lot of people stayed home, we still had a good turnout--tons of silent auction items sold! Now I can rest for a few days.
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TMarina, What a wonderful thing that you DD and SIL are doing for this child. Praying everything goes smoothly. Congrats on Grandmotherhood!!!!!!
mimi, Welcome home and I do hope the evening celebration turned out better than you could have ever imagined. I know what you mean about feeling mangled, poisoned and burned but the memory of this horror will fade some and life will start to be sweet again in no time at all. Just hang in there, girlfriend!!!!!
We are going to a Christmas party tonight for my husband's workplace. They give away about $8,000.00 of door prizes so we hope to be the happy recipient of a good prize. Last year we get a poinsetia, WOW , what a disappointment that was. We are overdue for some good luck but will take whatever comes.
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tina- Your DD and SIL's wish to adopt this little boy and give him a loving home just takes my breath away. I will keep them in my prayers too.
If you guys haven't read it yet, I highly recommend Anticancer by Servan-Schreiber. It is written by a doctor who is a cancer survivor who has researched nutritional and lifestyle things that are beneficial to keeping cancer from recurring. Some cultures have low rates of cancer (Japan, India, China). There is lots of evidence that diet can help (brocolli, geen tea, turmeric). It seems the western way of eating is the worst. The book is footnoted throughout with studies. It is fascinating. It also gives me the feeling of doing something, now that I am finished with surgery, chemo and rads. Of course I am thrilled to be done, but it is weird too. Kind of like surviving a ride on a wild, runaway horse!
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Dmom- How do we get off this wild runaway horse ride???? Thanks for the info on the book---I am putting this book on my Christmas wish list right now!!!!
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Thanks for the prayers ladies-we are all praying for an easy adoption process!!
D-mom--Don't think I've said it yet--CONGRATS on finishing rads!! I bet you are glad to have your days to yourself again--with no sitting in waiting rooms for hours!! I have the book you mentioned--but haven't read it all the way through yet. I think I am waiting to be done with tx (except for herceptin) and then I will look more into "being healthy".
I'm so bummed right now that I can't have oranges or oj because of this new med I'm on for the low heart function. I just crave them this time of year! Oh well, I guess I'll switch to apple juice. Are pineapples good this time of year?
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Dmom - Congrats on finishing rads!!! That's awesome! I'm so happy for you. I have that Anti Cancer book. I've read parts of it, but not all of it.
Tina - I hope you can find a fruit and juice to satisfy your cravings! It's a bummer to not be able to eat food you want!
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Hey ladies- Tmarina blessings to your children as they plan their adoption. Kitty you look mahvelous in that pic.
I think I'll try to post a pic of myself again. I am going "topless" in public 24/7. Wait did I post that info already. Chemobrain! Sorry if I am repeating myself.
Gin2ca- So sorry about the possibility of diabetes! As Bon said, cancer is the gift that keeps on giving! I am on Tamoxifen and will be until we decide if I am in menopause. I'll check about the dry mouth side effect. I got some literature from the National Cancer Institute that says aprrox. 2 out of 5 chemo patients can experience mouth problems post chemo. The side effects can last months or years after treatment. Gotta work in a dentist appt. during the Holidays!
FYI I signed up for a study through Army of Women web site. I don't remember what the study is titled but it is basically about mental health post cancer. The National Cancer Institue has sent me a book called Facing Forward Life After Cancer Treatment and a link to an educational website titled Pathways To Recovery After Breast Cancer Treatment. I have started looking at both and have found some good info. I assume if you google these titles or go on the NCI website you should be able to find out how you can use them.
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Kitty and Chey...I just love your new pictures! Very cute and perky...hope that's how you're both feeling, too!
DMom..Hip Hip Hooray! Three Cheers and all that! Brilliant that you've finished with rads!
Joan, Thanks for your encouragement. You sound so up-beat these days! Wonderful that you've started moving onward and upward! Yes, don't skip the dentist appointment in January. I went last week for a cleaning and actually have a cavity...the first in about 15 or 20 years! Have to go back first week of January for the filling. The dry mouth issue promotes bacteria so everyone needs to remember to drink more, and brush and floss and rinse more.
Tina...I'm so sorry that you're dealing with a heart issue and having to delay the Herceptin. But aren't you glad they keep track of all that so we don't get in more trouble. Herceptin is a miracle drug, but not without it's problems. I'm now having to deal with thyroid issues, most probably related to the radiation, but I read somewhere that Herceptin and other monoclonal antibodies can mess with thyroid function, too. Another of the many 'gifts' that can come with a cancer diagnosis. And Tina, sorry that you have to back off orange juice and citrus. I know how hard that is...here I sit in Florida, surrounded by citrus groves, and can't eat or drink any of it due to GERD. Anyway, Tina, I still think you are a most inspiring person to have dealt with cancer twice in two years. You, too, Kitty. I admire you more than words can say.
Ginny...I sure hope you got a great door prize this year! And I'm so sorry that pre-diabetes is an issue after chemo. I swear that after chemo and radiation we are susceptible to almost every ailment and disease syndrome know to man. Yes, I repeat, cancer...the gift that keeps on giving. And Ginny, thanks for sharing the stories of Julia. I know it can't be easy to see your Mom in that condition, but how you are facing it with good humor and love is awesome.
Mimi...congratulations on making it through rads! I'm sorry that your lymphedema is a problem and hope that you can get some relief. Yes, feeling mangled, poisoned and burned is appropriate because that's what's happened to you. Your family wants to celebrate and you are still hurting...but they love you and are grateful for your endurance and survival. I, too, have struggled from the fatigue but understand that it gets better with time. Someone told me last week to give myself three months post radiation. Ok, that clock is ticking. For me it's been 1 month today that I had my last rads tx so I expect the switch to flip on February 5th and I should feel just fine, right!
Sherry...are you feeling any better? I pray every day for your regained strength.
Jackie...how are you doing? When do you start rads?
My heart cath is scheduled for Thursday, December 16th. They wanted to do it tomorrow but I begged them to wait until I can coordinate with the MO on the Herceptin. I don't want to rock that boat and I'm supposed to get 2 doses of Herceptin this month, one on the 8th and the other on the 29th.
Gee, ladies, aren't you going to be glad to have 2010 behind us soon? I sure am. Even though we'll have challenges in 2011, it seems that a new year is a symbol of hope and progress. Moving on...I wish we could all get together for a girls' night PJ party, eat junk food (yes, DMom, we can have healthy stuff, too), watch 'chick flicks', share beauty tips (like hair dying and eyebrow stenciling) and just have one giant group hug as 'girl friends'. I dearly love you all!
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Bon, Glad to hear from you and DITTO on the pajama party. I went shopping for Julia the other day because she is busting out of all of her clothes. I purchased 4 pairs of size 18 pants and shirts and she could wear 2 pants and no shirts. The 2 pants she could wear did not leave much growing room and with all of the M$M's, doughnuts,COOKIES, cake , and pie she manages to get into that might not be a good idea. She is just like a kid in a candy store when it comes to sweets.
I have learned to cook with splenda and brown sugar splenda and take her some of that trying to keep her out of bad sweets, but she still manages to get them somehow. Friday when I got there she had gotten a whole bag of Iced Lemonade cookies and had already consumed about half a bag,WTH!!! Where does this stuff keep coming from??? Her sugar had gotten a little better before Thanksgiving but is now creeping back out of control. I'm starting to think I need to put her in lockdown to keep the sweets away. Oh well, I know she is having fun fooling all of us. When I catch her with the forbidden food she just grins and keeps on eating and says maybe you need o just spank me. HA-HA
Jackie, I was also wondering if you have started rads and how is that going??? Good luck and thinking of you.
DMOM, I am doing the FInished with the Glowing in the Dark Dance for you!!!!!! Mimi you get the second round of the dance>>> We all need to exercise more so ladies give us some good news to dance to.
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Bon, I am also praying for your heart cath to be negative. My younger brother just had one the week before Christmas and what a relief that was for all of us that it was negative for any heart problems. He is having problems with a new onset of high BP. He takes care of Mom and her finances and health issues along with me. There are actually 6 of us children but the other 4 for various reasons and excuses do not involve themselves much with concern for her. I think they have basically written her off, which really burns me because she is still here and such a character. I know I will miss her when she goes but I will have no regrets, thank goodness!!!! Ginny
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Tina- Is pineapple considered citrus? Is it citrus you need to avoid? What about pomegranates? They are in season now.
Gin- I love your mom Julia! You can't say she isn't having fun! She is going to go out of this world laughing and playing tricks to the end. She sure does keep you on your toes.
Bon- Keeping you in my prayers during your heart procedure. Okay, I really think we need to plan that pajama party. I almost went with several other ladies from BCO last week. BarbaraA, Amyjo, StillVertical. They rented a fabulous beach house in the outer banks of North Carolina. I think it slept 15, had a hot tub, movie theatre and everything. They even found wild Mustangs! It was an open invitation to everyone on the 2010 thread. They want to do it again and get more to come. Let's all think about putting that on our 2011 "to do" list. I sure would like to meet all of you face-to-face!
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Bon - I am definitely in for a pajama party! I love hanging out in my jammies! Thank goodness because I got the"opportunity" this year to wear them a lot, while recuperating from chemo!
I hope we all have a CANCER FREE 2011!!!
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Designermom--It's not citrus that's the problem, it's potassium. Apparently oranges and bananas have lots of it, and I need to avoid it with the med I am on now. My potassium level is already at the high end of normal, so I have to have it checked weekly.
Ginny--good for you for sticking by your mom! No regrets!
Bon--thinking of you, as always, and praying everything goes well with the heart cath.
Kitty--YES! Cancer free 2011!!!!!!!!!!
I took a big step today and informed my school district and principal that I would like to extend my leave until the end of the year. I stopped in to the school today to visit and everyone thought it was a good idea. I won't be able to do recess until it warms up in March, and with the fatigue and heart issue, working would be difficult. I know many women really want to get back to work because it helps them move on and feel normal (and I respect that greatly!), but I just want some time to heal and enjoy life a little. I plan on going back next Fall, but I will be thinking about what I really want to do with my life and sort of re-evaluating things. My oncologist and family all think it's a good idea. My onc said he will support me in anyway he can by filling out forms or writing a letter.
Have a great Monday!!
Tina
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Ladies...you have to laugh! I send an update of my cancer journey to about 75 people, some friends, colleagues, clients, family. They like to keep connected to what I'm doing, how I'm doing and when I'm doing it. I wrote a note to all of them last week, just outlining my activities month-by-month since January 2010, and included not only the cancer stuff, but all the private, personal loses I've faces, too. It was cathartic and a message of hope and accomplishment, plus thanks for having them go along with me as I struggled through. I ended by saying that I hoped 2011 would be much brighter for all.
One of my clients responded this weekend with a fabulous one-liner as follows:
You should smash Frank Sinatra's "It's Been a Very Good Year."
Now is that priceless or what? Out of the mouths of an English Lit professor comes one of the best lines I've heard in a long while! Hope it makes you smile, too. Perhaps the sales of that Frank Sinatra single will soar...maybe we should have a giant record smashing party?
Good night and my hopes that you're having a SE free, stress free day, Love, Bon
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We can smash them while in our pjs
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We can smash them while in our pjs, brushing everyone's new hair!
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Ladies, Well, I am officially rugless(thats what I call my wigs). I have a really short thick head of hair about 1 inch long all over. It is salt and pepper but heavy on the salt. Everyone at work thinks it does not look real because the dark hair is sort of under the gray and it looks like I colored the roots dark and left the gray ends. That is really strange but describes it as best I can.
My SIL was just deployed to Afghanistan yesterday and that leaves my daughter in Okinawa alone for her birthday(DEC 15) and Christmas. I wish she could come home but has just started a new job and cannot take off, so we will be spending a lot of time on our vonage phones the next three months.
The latest Julia addition is she has been telling everyone that she was sent by the government to Pearl Harbour right after the japs blew it up at the start of WWII. She said they needed her to spy and drive the soldiers around to meet other spies. She is insistent that this really happened. I'm pretty sure she has never been to Hawaii but my dad was in WWII but not anywhere near Pearl Harbour. She told the workers where she lives that the President called her and is making a special medal for her that he will send his plane for her and present it to her. Honestly, I don't know sometimes where she comes up with these things but I think she missed her calling as a fiction novel writer. The latest sugar heist was last night with me sneaking out of her room with raisin bread with icing on top that someone had brought her. I managed to get it before she ate the whole box. It is a shame that she craves sweets so bad and it is the worst thing for her, but I think that is just life that we won't what we least need.
I definitely want to plan that PJ party. I'll show you my scars if you show me yours----HA HA!!!!! We will also be smashing our individual copy of old Frank's record.
Tina I wish you well on your decision to take a break. I think it makes great sense. You have been through a lot and need to take care of yourself. For me, going back to work was about giving back because I work with Breast Cancer patients and those struggling through treatment, diagnosis and anxiety. I knew that with what I've been through I could help others with this horrible disease. There is nothing better than someone that has been there. I have held many hands and even shared some tears with my patients since I returned to work and am truly getting a blessing from my work everyday.
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gin--that is a great reason to work! I'm sure you are a blessing to many others! We are each different with our reasons to work or not, and sometimes it is a tough desicion. For me, I am definitely happy with the decision, I'm just waiting now to hear from the school. If they ok it (which they should) it will be a big weight off my shoulders. Love the "Julia" stories!
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Tmarina - good for you for taking this time off!
I'm definitely in for smashing records in my jammies (pj's).
gin2ca - I love your Julia stories! They get better each time!
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Hi All, I have started rads. Had #9 of 33 today. Overall doing ok with it. I am struggling with fatigue but making due. I am battling the joint/bone pain of Arimidex at the moment. I just finished 30 day son it and the pain is increasing. Of course, being the matryr I am I have refused to take any pain meds including Tylenol. I am trying to do a few minutes on the elliptical at least a day. Med Onc fussed at me today and told me I need to stay ahead of the pain and try to take a dose or two a day of Tylenol. He is going to see me again in 60 days (earlier if the pain gets worse) and re-evaluate what to do.
Congrats to all of you that have finished rads! Woohoo!!!! You go girls!
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grneyd--Hope the rest of the rads go well for you. I only have 4 left, and the fatigue is really noticeable now. My skin is holding up much better than I expected, but my rad onc has given me breaks when needed to keep it from getting too bad. I used a good body lotion and Aloe Vera gel at first, then switched to Aquaphor when the skin started getting really red.
Sorry about the joint pain! I've heard that can get pretty bad. TAKE PAIN MEDS! We don't get any rewards for suffering! If your pain is under control you will feel more like doing other things, like exercising and SHOPPING
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hi everyone,
it's been ages since i posted, i've been reading all your posts, but couldn't get mentally in the right place to post an update (not that anything new is wrong, just ...)
glad to hear that most people are moving forward, finishing rads, etc. Sending good thoughts for those who are still having problems with SEs and other issues
I had surgery 3 weeks ago - clear margins, but the sentinel node still had a micromet (another node was clear). but i knew the sentinel node had cancer because of the initial biopsy anyway. surgery went fine, but 1.5 days after i started getting excrutiating pain in my shoulder - they must have moved it badly while i was under anesthetic or something. lots of NSAIDS and pain pills later, and it is fine now. but i have an infection in the breast incision, which is painful. and my underarm area is still really tender from the surgery.
had my first appt with the rads onc today, and have simulation on tuesday next week. he is hopeful that the infection will clear up before i start rads (they won't start until it is healed). One interesting thing is that I saw him entering my staging info into the computer, and it said stage IIb - I said to him that I am stage IIIc - so he told me that the neo-adj chemo took me from IIIc to IIb, and my staging from the surgery pathology rept is IIb now.
that's about all from me - i seem to be a bit down at the moment, but not really sure why. i think it's just part of moving on to something new (rads) and leaving the old (chemo) behind. but i know that what i am going through is nothing compared to what some of you are dealing with, and i know i'll snap out of it soon.
have a good weekend everyone (yep, the weekend here is Friday/Saturday!) :-)
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Hello ladies.... have not been on here in a while... getting over the red devil and now had my 3rd rad treatment.. oh what fun it is... I have an hour there and back and it only takes about 15 mins start to finsh.. hope my skin holds up for the 33 treatments..
Did they tell any of you all to do corn starch on the chest to help it?
grneyd5600- My onc said he was going to put me on Arimidax also but after rads was over... is there something I need to know now or is this up to each Dr. Cause as of now I am not taking any thing and a little worried..
(((Hugs)))) to all and Yea to all that are done.. wish I was there....
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sandiddstn - I know it's about 50/50 no the board here about when they start the Arimidex. I wouldn't worry about getting it until onc says its a go. They are probably letting your body settled own from the red devil first. I had 12 weeks of Taxol after the red devil I had time to get that moving along in my body. One thing you can ask them to do is check your estrogen level (blood test) and see if it is still low. If it is definitely don't worry and you can go with the Arimidex when you are done with the rads. I have about the same drive you do to rads. I swear the drive down and back is more exhausting than anything! Hang in there!!!!
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