Living on Borrowed Time at 3 years
Just joined the forum so hope I am doing this right. I passed my 3rd year anniversary in June and I should be celebrating....right? I have no signs of disease and my oncologist has moved me to every 6 month check-ups. Yet I can't shake the feeling that I am living on borrowed time, that its not "if" my cancer returns, its "when." I don't feel like I can share this with family and friends because I don't want them to think something is wrong- or that I am trying to draw attention to myself, but I am really scared here lately. Any ideas?
Comments
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Hi Stacys_mum, welcome to the place no-one wants to be. What you are feeling is very normal and typical for when the hussle of treatment slows down and you have had some time to think. I belive we all at somestage in the journey we are on have felt exactly the same way. Did you think you would be here three years ago when you were first diagnosed? I'll bet you didn't but your determination not to give into this disease has got you to this point in time. You have done the hard yards it's now time for you to enjoy your 'new' life with your family with the added bonus of insight and the added joy of being alive. Yes your cancer may, I say may come back, but are you going to live whatever life you have cowering in a corner and missing out on the good things? No-one has a crystal ball that is going to tell us how long we have on this earth, and that goes for the so called healthy people as well. But we have an advantage over them, we have already faced death so now we really know how to live.
Enjoy your days, months, years, may they be long and full of the things that make you happy.
Love n hugs. chrissyb
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Stacys_mom:
I completely relate to how you are feeling. I was diagnosed in 2006 and still feel that way at times. About a year after treatment ended I went to counseling and that helped a lot. But if I am totally honest, I also feel like I am living on borrowed time. I don't have a great solution for that except to just keep living. Most of the time I can keep my fears under control but when I have some new ache or pain, or when I have an appt. coming up or around the date I was diagnosed I seem to feel like my borrowed time is up.
What I can tell you is that the borrowed time feeling peaked for me about a year ago-so where you are now. I don't know why but I just thought I wouldn't make it over 3 years. Well, now I am 4 1/2 yrs out and doing well.
Btw-I thought I was the only one who had that feeling but now I know I am not alone. So, thanks for bringing it up. I don't think there is really one right answer but if you have not talked to a counselor I would start there-it helped me soooo much.
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Hi Stacy's mom.
Yep, I know how you feel but it does get better with time.
You and i have exactly the same tumor characteristics, but i had 12 out of 14 pos nodes.
I am " out" 5 yrs and 3 mos ( but who's counting)
My life is pretty much back to " before" except I have a deep profound appreciation of this life.
Before you know it , you will be an old timer and the fears will subside.
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Thank you all. It does help to hear that others share the same feelings. I'm really enjoying my life right now- have two new grandbabies, a wonderful husband and family and a busy happy life. Just get nostalgic for the days "before cancer" that I didn't have this nagging feeling in the back of my mind. Putting it in writing and out there to the world helps, especially when others can relate and not get scared. Hugs to all of you!
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Hi stacys_mum. Haven't posted here for quite awhile but check in occasionally and can really relate to your post. I am 4 1/2 years out and still have this anxiety, the feeling of living 'on borrowed time.' Just had a bad time recently, I hadn't been feeling really well and had my six month onc appt. coming up. Probably even more, I have recently lost a friend at church to breast cancer. Her cancer had been gone for just over five years and she battled for over 4 years when it came back. After 4 1/2 years, I'm usually pretty positive, but it is still there, in the back of my mind and sometimes, it comes roaring back.
Snewl
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Ugh I can totally relate. two years out and im more stressed than when i was diagnosed! Im on welbutrin that seems to help, but i so know what you are feeling! Its horrible!
Laura
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Staceysmom,
What has helped me is my faith. I believe that God is the only one in control of whether I get a recurrence, and I have no idea what He has planned for me. So, when I have appointments, I don't get unnecessarily anxious. I feel great today, and that's all any of us have. BUT, it is hard dealing with this stuff, and I'm not always this positive and nonchalant (
).
What I do have is a lot of great friends on this forum, and we've gotten each other through a lot of rough times. Come here, and we'll help each other out!
Love
Bobbie
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I certainly get what you are saying.....in the beginning I was sure older people I knew ( in-laws) would outlive me...and that younger people would certainly outlive me........with my diagnosis it would just be a matter of "short" time.....
But last week we buried this great guy that was in a business networking group with me.....he was full of energy--great sense of humor....40 years old with a young son.....he died playing golf...a game he loved....had a heart attack. My young GYN's husband died last year riding his bike on the side of the road.....came around the corner and a Mercedes took him out and he died....my father-in-law died two years ago.
If anyone told me six years ago that I would outlive them I would not have believed it.....they were healthy.... I was not. The future is just unknown to everyone......all we can do is enjoy the present. Every day I open my eyes....I am breathing.....and can hear my children in the other room is a GREAT DAY. I just take one at a time. Each one adding to the next....that I have chalked up six great, great years.
It does get better......cancer will become less consuming.....the drugs are good....and getting better. Odds are you have beat it.
Jacqueline
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I think everyone here has said something so valuable. It certainly seems no matter how positive one tries to be, there is always going to be a moment that one of these thoughts may pass through our mind. None of us has a date stamped on our foot, and no one is assured any more than this moment in time. I read several uplifting books and also listen to a lot of uplifting music, which really is anything that speaks to "your" heart. For me, Reiki Therapy has probably given me the most profound healing I have ever experienced and has made me more appreciative of everything and everyone I encounter.
Believe in the Cure... it can happen and you can be made whole! We had miraculous healing in Biblical Times, so why not now?
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HI
I am another one who thought maybe she was the only one who felt this way. Most days I'm fine, positive and barely thinking about it but then I get that odd ache or whatever and the BIG C raises it's head. I'm 2 years out now and I agree it has given me a new prospective on life. I have learned to not put things off, live for the day to an extent I think. However, I do have an overwhelming feeling that this thing will return, not if but when - I don't understand why and I have given up trying. For now I will just get on with my life, enjoy the family and friends I have that surround me and make the most of every available opportunity that comes my way. If I have to GO early then I want to know I have enjoyed what ever time I have remaining and will have no regrets for having missed out on the important things in life. I just can't seem to get my head around retirement planning - strange that- guess I'm too focused on the past and present but haven't managed to include the future for now but hopefully that will change as time moves on.
Gaynor
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I could SO relate to your post!!! I thought 5.75 years ago that I would not live long.. I never thought that the day would come when I wouldn't think about BC on a daily basis. Now as a busy mom of 5 kids ( three are teens now) and working at a new job... life has continued but I still awake in the morning and hear my kids and feel so blessed to be alive!
thanks to you all for posting,
Wendy
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I'm two years out,and I almost feel guilty for feeling this way. While I truly squeeze the most out of each day, it's always with the motivation that my 'good times' may be limited. I'm waiting for the other shoe to drop.
The guilty feeling comes because others have been so supportive and simply want me to be able to go with the flow now that treatments are over and my surgeries are coming to an end.
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